Jackson High’s Camille Wertzbar talks about her battle with Gitelman Syndrome

  Рет қаралды 3,121

MLive

MLive

5 жыл бұрын

The junior pitcher on the Viking softball squad talks about the struggles of playing through a disease and how she handles

Пікірлер: 22
@yupthatsme2238
@yupthatsme2238 4 жыл бұрын
Thank you for talking about it - as someone who is struggling with the same sickness - it is really nice to know that I am not alone in suffering
@lynseyviggiano4832
@lynseyviggiano4832 2 жыл бұрын
I was born with this too, and I've struggled my whole life with muscle pain and weakness. 37 years old and I just got my first cane and walker due to the neuropathy that this has caused.
@debsalertloverc4263
@debsalertloverc4263 5 жыл бұрын
I have gitelman syndrome as well I am 40 I was diagnosed three years ago I'm glad you were diagnosed earlier then I was
@sabblewabble
@sabblewabble 5 жыл бұрын
original debby C i have gitelman syndrome and it was found when i was 2 years old.
@alisonlee970
@alisonlee970 4 жыл бұрын
What kind of doctor diagnosed you ultimately? I need to schedule a consult. Thank you!
@A.Love.language
@A.Love.language 3 жыл бұрын
Sadly same :( so many intensive care stays and finally found out!
@royarachelyazhari
@royarachelyazhari 5 ай бұрын
I suffer with this at well. Found out when I was pregnant in 2009. It is a daily battle. 😢
@imabinthekitchen
@imabinthekitchen 2 жыл бұрын
Proud of you. I struggle with GS. No one knows how much harder you have to fight.
@mohammedibrahim5111
@mohammedibrahim5111 3 жыл бұрын
I have suffered gitelman syndrome since 2006 now I am 39
@goodvibes7649
@goodvibes7649 2 жыл бұрын
I am diagnosed recently..n i am pregnant…i am going through a lot daily
@TheXchristineX
@TheXchristineX 3 ай бұрын
Is it possible to message privately ?? I have just been diagnosed at 29
@danielcarr6170
@danielcarr6170 4 ай бұрын
3000 mg of potassium cholride for me every day found it at age 14 and i got it genetically so i have gitelman syndrome for life , yiur not alone it does suck but everyone that has gitleman syndrome remember this anytime u puke or have bad diarrhea u need to go to er to get potassium through iv asap!!! i had mine drop to 2.1 which is dangerous and im lucky i didnt die. Ive already had heart arythmias when my potassium gets low bc its supposed to be at a 3.5 or higher fir me i take 2 pills 1 20meq pill in the morning and 1 at night around 6pm it sucks tbh but im glad they found it bc of how mines been getting wirse foctor expects me to be on dialysis when im 40 or esrlier bc theyve upped my dose 2 times now and i have issues with my potassium from time to time. Im lucky to be here as we speak. I truly hope more doctors reaserch this bc every doctor ive had has had to look uo what gitleman is bc theyve never even heard of it tbh
@MrBogus213
@MrBogus213 3 ай бұрын
I've spent a week in the hospital twice already. I was down to 1.6 back in January. I didn't find out I had it until I was 30. You're not alone, friend.
@kliyaharbottle4756
@kliyaharbottle4756 3 жыл бұрын
I was diagnosed when I was two I am 13
@ToniAllen
@ToniAllen 3 жыл бұрын
My husband has this. It sucks a whole lot.
@Bob-it2bf
@Bob-it2bf Жыл бұрын
It’s not that bad
@ToniAllen
@ToniAllen Жыл бұрын
@@Bob-it2bf I'm sure YOURS isn't, and I'm glad for that for your sake. But there are varying severities. My husband's is no picnic, but still is quite disruptive to his quality of life. A friend with it (met through a support group) is so bad that she's in and out of the hospital quite frequently and struggles with everyday tasks. Just because yours is "not that bad" doesn't mean everyone living with it has the same experience.
@CrossStug
@CrossStug 3 жыл бұрын
I got diagnosed at 14. 10 pills a day and a ton of salty foods.
@danielcarr6170
@danielcarr6170 4 ай бұрын
Be aware too much sodium will dehydrate u more and will reduce potassium levels was told a high salt diet by my doctor but it's not 100% true yes we have to have higher consumption if salt than a normal person but it's not too much more and too much sodium overtime will affect blood pressure tbh with u.
@glongstuy3758
@glongstuy3758 3 жыл бұрын
Lol just diagnosed
@aizlyn6719
@aizlyn6719 2 жыл бұрын
I have this and played rugby in high school. had it since I was 5 years old. A pitcher just stands there so it isn't even inspiring.
@Bob-it2bf
@Bob-it2bf Жыл бұрын
It’s not that bad I been had this since I was a kid . Just take your meds lol
Gitelman's syndrome testimonial part 1
11:31
sylvia reed
Рет қаралды 2,3 М.
Bartter, Gitelman syndromes
28:02
Prof. Mohamed Mamdouh Elsayed اد.محمد ممدوح السيد
Рет қаралды 1,6 М.
ERKNet Webinar - Gitelman Syndrome (adult view) by Tom Nijenhuis
1:03:25
ERKNet: Network for Rare Kidney Diseases
Рет қаралды 592
Fanconi Syndrome & The Proximal Tubule - Best Renal Teaching for RACP, MRCP, USMLE
15:30
Tutorials by Kristeen Barker
Рет қаралды 2,6 М.
Things Michiganders Say | Michigan Accent And Slang
7:26
Ryan Redoute
Рет қаралды 93 М.
Dr.Deepak Marwah Discusses Gitelman Syndrome
8:50
PrepLadder NEET PG I FMGE I INI-CET
Рет қаралды 51 М.
Julia - France - Gitelman Syndrome - A long diagnostis (ep1)
5:35
EwenLife Rare Diseases
Рет қаралды 992
Sein Kind hat einen Gendefekt | SWR | Landesschau Rheinland-Pfalz
6:50
SWR Landesschau Rheinland-Pfalz
Рет қаралды 27 М.
New Rule: From the River to the Sea | Real Time with Bill Maher (HBO)
8:13
Real Time with Bill Maher
Рет қаралды 3,6 МЛН