Desmoid Tumor (Fibromatosis explained in 5 minutes) pathology usmle FAP familial adenomatosis coli

[@JMGardnerMD]

This is an excerpt from my Basic Soft Tissue Pathology Cases video (full video here: kikoxp.com/posts/5463). A complete organized library of all my videos, digital slides, pics, & sample pathology reports is available here: kikoxp.com/posts/5084 (dermpath) & kikoxp.com/posts/5083 (bone/soft tissue sarcoma pathology).

[@lizlizary]

Seeing this helped me understand my pathology report findings a lot better, thank you. I was diagnosed with mammary fibromatosis (extra-abdominal desmoid tumor) today

[@cathriencath1881]

So. What your doctor do Dear?

[@lizlizary]

@ well since I posted that comment my diagnosis has been revised to a chest wall desmoid tumor; after visiting an oncologist first now I’m about to see a sarcoma specialist and a thoracic surgeon.

[@cathriencath1881]

@@lizlizary you hold that about 2 month dear? And how big your tumor is? I have at wall abdomen and has surgery yesterday. My oncologist said only wait every 6 month to see the tumor come again or not. But i want ask second opinion to treat this

[@samaalkhalidy6301]

Thank you so much Dr. Jerad for your efforts👏👏

[@garyhawkins9733]

Thank you for the info

[@user-ct8sl5de3s]

I have been diagnosed with fibromatosis in the neck. It was removed 3 months ago and is already grown back 3cm. Just had an MRI and CT scan completed. No doctor here knows how to treat it. I have them growing in multiple places in my body as well. The pain is the worst for me. Don't know what to do.

[@keathinlew9453]

I have the same tumour growing on my left shoulder, and the pain is killing me too.

[@user-ct8sl5de3s]

I just had another procedure done on my neck for the fibromatosis tumor. They couldn't get all of it when they did the procedure unfortunately. They did something called a cryoablation where they put needles in the tumor and freeze it. Just had it done a week ago. Hurts pretty bad and the nerve damage I have is horrible.​@keathinlew9453

[@magswaglife]

Guys plz tell me how r u now ? I m suffering from fibromatosis in my ileac crest region

[@user-ct8sl5de3s]

I have it in my neck muscle growing. They did that cryoablation on it where they freeze the tumor, but unfortunately, they couldn't get it all because of the location my tumor is at. It's too dangerous next to blood vessels and nerves. It's just a matter of time before it starts regrowing again. It really sucks. Because it hurts and the more surgery or procedures they do on it, the more damage is done. I've had surgery to remove the tumor, and it regrew immediately after because they saw it 3 months after the surgery on a CT scan. Then, just a year later now i had this cryoablation procedure. So I'm only a week after that procedure for the cryoablation being done. I hurts so very badly, and because it's in my neck, my whole head, neck, shoulder, face, arm is in bad shape. Don't believe it will be back to even a tiny bit like it was before the procedure, but it was messed up before to so..lol. it's just very difficult. I'm not trying to scare you. I'm just trying to help. If you have more questions, I'm happy to help and tell you what I know. Hang in there ok. You're not alone.​@magswaglife

[@magswaglife]

@@user-ct8sl5de3s I can understand the pain u r facing n I ll pray to God that he blesses you n help u to recover from this. I have a tumor in ileac crest region n it is painful but I fear alot from surgery n all .. that's why still struggling to get rid out of it by any other means.

[@chazlon5061]

i think i might have this. my biopsy histologically looked like fibromyxoid sarcoma but no immunochemical or gene fusions were positive and they did the whole battery of them muc4, etc. etc.

[@magswaglife]

Hey..how r u now ??

[@Backiyalakshmi-yb2ov]

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