Wife saves my life! [CC]

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[@maikelenz2661]

a wifesaver

[@aim-to-misbehave5674]

I just read that in the voice of the priest guy from The Princess Bride... Made it a million times funnier than it already was.

[@DanielvZ]

Or in the voice of Kripke from The Big Bang Theory 😅

[@SoundsNatureAnimals]

😃😃😃

[@lilanimations5479]

Oh ma lord you are creative

[@taraclarke2565]

I literally laughed at this!!

[@CWazBroadwayBandGeek]

“Everyone should have a Claudia.” “Advocate for yourself.” 👏🏻PREACH👏🏻IT!

[@K.Kitbex]

If only.

[@taradaycatalortaraifyourno8482]

My mom is my claudia (im 35) its sad but if you say how you fell etc doctors i feel dont believe you. If you have soneone yelling "no this this and this are issues!!!" They care a bit more.

[@jirahjashmiermacalino7556]

*sigh.....wishful thinking it is

[@Inamichan]

I like how Claudia uses “we” instead of “she”. It shows how much she cares!

[@rippedfromtheroots632]

Came to say this cos this is how my boyfriend is about my chronic migraines and other things the matter w me. It's heartbreakingly beautiful :')

[@susaneirthug415]

It's beautiful. I am so happy for both.

[@scoutlaceharding]

"Univeristy isn't good for anyone's health." Yep, guess what triggered my first bipolar episodes! Wheee

[@poembot8012]

sounds _fuuuuuuuun_

[@frostyskeletons8950]

Shout out to the emergence of my personality disorder and manifestation of severe social anxiety to the point of constant derealization 👁👄👁

[@cj-fi7kz]

Got psoriasis for the first time in my second year of law school 😓

[@chloegodden7195]

had an depressive episode within 3 weeks of uni. I have to be put on pills.

[@cheesecakelasagna]

I ghosted uni 2 years ago (on my 3rd year) and have never talked to anyone about what went wrong. Yey.

[@M00s3r]

Everyone *should* have a Claudia! She's a great advocate. She's so laid back usually, but you can see this "getting things done" side of her.

[@Hedoneo0]

I totally agree Claudia is the best

[@melodybroome6203]

I love them both, such strong and empowered women!!! 😍

[@mishripettinger6170]

She rocks

[@diannemartino3464]

I’ve said the same thing. EVERYONE needs a Claudia. I love her.

[@mellohikay]

i think you mean *must*

[@mossbaby6292]

I love Claudia’s use of “we” and “you” when referring to Jessica’s condition. Before she was in her life she says “you got migraines” and afterwards she says “we still get some migraines” and it’s just really cute how her wife’s condition is something she feels they go through together and how much her wife means to her

[@MitzyNonaka]

Almost died of sepsis in a hospital after a cyst twisted around my ovary and it filled with dead blood. When the ambulance picked me up, as I blacked out and threw up and screamed in pain, I was made fun of and screamed at. At the hospital, they left me in a corner after making fun of me. When I was screaming in pain and begging for help, they accused me of being an opiate addict. Took about 7 hours of blinding pain to finally get an ultrasound, after which I was rushed to the operating table for emergency surgery. So yeah, they do NOT care about young ladies or believe them when they describe their pain

[@orlande22]

Please tell me you are going to sue the arse off of them? That sounds like hell, it should never happen to anyone.

[@nicolebloopbloop3215]

Literally similar thing happened to me last month. I have PCOS and sometimes I have to go to the hospital because of it. It was very painful and I kept telling the doctor's that I have PCOS but like the doctor didn't believe me... She thought I had an STD or an infection, even though I told her I'm not sexually active (which she raised an eyebrow at). She then tried to bluff me by saying I can't get an ultrasound at this time (2am) (when I'm in the ER), and just gave me morphine. They found out that it was bleeding but did not find out if it had torsion... She just gave me meds and sent me home. I could have died, but thankfully I am okay. I should have gotten a CT scan, but she never took other steps to figure out my problem. I was and still am so very pissed off.

[@MitzyNonaka]

Nicole Bloopbloop YES! I was a virgin at the time and when I said that they said “really??”... no I’m LYING and want to die here thank you

[@MitzyNonaka]

Eleanor honestly I never sue... I don’t have time or money haha but really I should contact the hospital now that it is 6 years later and make sure they know what happened

[@lunacouer]

Long comment ahead. TL;DR Y'all just helped me put two and two together. Thank you! Also, tips and tricks on how to get doctors to take you seriously. At age 29, I ended up with intermittent, severe back and pelvic pain. By age 33, it turned into chronic pain. No one would take me seriously about finding the source, and eventually I was sent to a pain doctor. I had a diagnosis of endometriosis, but there was none in the area that hurt, and surgery and hormones did nothing to stop the pain. But even that diagnosis took three years to get, because I was treated as pill-seeking. I mean, no one's supposed to have pain like that in their late 20's, right? *rolls eyes* 10 years later, I asked my OB/Gyn to do the diagnostic surgery to see if I still had endometriosis. Nope - it had never come back and my pelvis was textbook perfect. This had NEVER been the cause of my pain. I finally got the right diagnosis when I switched to a different pain doctor. On my very first appointment, the new doctor looked at my back and hips, and literally, with simple measurements and observation, told me "It's your Sacroiliac Joint - your right hip is tilted up and twisted forward". Later scans backed this up, because, heh, he actually ordered them. None of my previous doctors had. This could've been fixed with physical therapy back then. 15 years after the pain initially started, there's a lot of damage on that joint, and the physical therapist I was sent to ended up tearing one of my discs, trying to put the joint back in place. Walking wrong that whole time accelerated major disc degeneration. So now it's even more fucked up. But now I'm being taken seriously, because I'm in my 40's. The new pain doctor didn't think twice or grill me on the pain I was in. Back then? Nope. It's not like my condition or pain changed in all those years. The only difference was in how old I was. I had never even considered that my age would have contributed to that. Seriously, thank you all for your stories. It helps. It did teach me one thing - advocate like hell, like Claudia, and don't take no for an answer, no matter how much push back you get. You're the one that has to live with the consequences of what doctors will and won't do. They don't. Ask them to do scans (aka, proof); get the reports and images CD and bring them to every doctor you see; tell them that other doctors haven't figured it out (doctors with huge egos love this, because they think they'll be the one to fix you); go into detail about every single symptom, down to your fingernails, because they won't ask about other symptoms if they think they're on the right track with the diagnosis they're thinking of. If you know the type of specialist that could help with your symptoms, like Claudia, just ask for a referral. A lot of primary care doctors would love to get you off their hands. It's not even from an overblown ego or mean place - doctors really hate it when they can't help or don't know the answer. It helps them too, if they feel like they're doing everything they can. Also, doctors love documentation, like symptom trackers, diet trackers, exercise trackers, sleep trackers, medication trackers, medication interaction printouts, etc. Doctors tend to take people more seriously if they're tracking everything. If it's pain you're dealing with, printout one of the "real" pain charts - the ones that doctors think of versus what patients think of - and point out where you're at with that chart. Don't say an 11, because otherwise they think you're lying. To doctors, a 10 is you're passed out because you've got burns on 90% of your body. Just some tips and tricks I've learned over the years. It's important that every single avenue is explored. I mean, the heart-breaking stories in these comments show what happens when doctors make assumptions. It's up to us to make sure nothing is left out.

[@crisnemitz1606]

I agree 100%! You have to take charge. My son was diagnosed with a rare genetic disease at the age of 2 in 1996. The doctor at the University hospital basically said take him home and enjoy him while you can. Well, screw that! I researched and found Doctors and protocols. Plus, the internet was nothing like it is today. It was a lot of calls, letters, faxes, and travel. Bottom line : My son is 24 and doing better than anyone thought possible. Like I said, the doctors didn't expect him to live. Sorry this is so long, but I just wanted to agree that advocates are so important! You're a beautiful couple and lucky to have each other. Take Care!

[@user-ll5oj4eo1g]

This reminds me of Lorenzo's Oil - two parents literally learn how ALD worked so they could treat their son and somewhat "solved" some mysteries about ALD. en.wikipedia.org/wiki/Lorenzo%27s_Oil

[@crisnemitz1606]

@@johndododoe1411 Awww, thank you. This is such an old comment that I'd forgotten about it. I needed the reminder that I was able to facilitate that. It was a nice boost on a kind of blah day. ❤

[@karenthomas1456]

It's so true. Advocating for yourself in medical situations can be likd going into battle and it shouldn't be like that but unfortunately an awful lot of medical training is the same as it was 50 years ago and a lot of medics just don't know what to do with a patient with more complex needs, so they get fobbed off or disbelieved.

[@Mrstigger747]

@@karenthomas1456. I had FINALLY found THE doctor and within the first year and a half she saved my life twice! Then I lost her, she had to move across the country and I struggled to find a GP as I was now a “complicated” case. I had had 3 types of cancer, fibromyalgia, Raynaud’s in my feet and hands, then I got hit with Chronic Fatigue/Myalgic Encephalomyelitis, and just as I was learning how to Pace and eat more protein and gentle stretching, I got hit with Lupus a year ago! Then I was struggling with the “fainting” which is still being investigated and now I’m on a drug because my heart keeps trying to go into Atrial Fibrillation. The MOST annoying thing about this whole process is that I had a male doctor and had to fight for every single diagnosis. Then I got the empathetic female doctor and my life was SO much better! Then I lost her and had to find another doctor and ended up with TWO males (who also don’t do assisted death, but beggars can’t be choosers and that is another discussion). So I am back to having to fight for every diagnosis and step forward! I am so drawn to Jessica and Claudia’s journey and can so empathize 👋🇨🇦

[@Skip6235]

I read an article a few years ago about how doctors and other medical professionals (the article was about the US, but I assume it is similar elsewhere) are less likely to take young women seriously about their symptoms, especially pain. It was written by a guy who’s wife has a chronic condition that causes severe pain and it took them forever to get it diagnosed and treated because whenever they would go to the ER they would just give her some pain meds and send her home because they didn’t believe that it was that bad. The whole thing was infuriating to read. I’ll try and see if I can find it

[@imanimcnair973]

Skip6235 it's true I live in the Caribbean and went to A&E due to a back pain that made me some what immobile for hours and the doctors didn't even take a look at my back he just told me to lose weight and I will be fine. I was so mad that I wasted my time and went to the hospital it was better I stayed home and just suffer through the pain

[@kaylamaenot3247]

I was about to say; heaven forbid you're a fat women trying to get someone to listen to you 😑

[@elsaandersson8410]

So true, and it's infuriating. Pretty sure I read an article about that or a similar situation, turned out she had really bad endometriosis and it could've killed her (if I remember correctly).

[@BattyButtercup]

Skip6235 i've read a similar thing which SPECIFICALLY tells nurses that if a female is rating pain on a scale of ten to mentally add two/three BECAUSE women tend to understate how much pain they are in. i think it is a mixture of gendered socialisation (think of the doctor who told Jessica "she can't have kidney stones! male rugby players crying!") and different conceptions of pain, physically or psychologically. medicine could really benefit from conducting studies on how pain is felt & how it is evaluated (accurately and not) according to perceived gender (and/or age). i know that there is little to no literature on treating trans patients (and have heard unsettling stories from trans friends on their experiences in hospitals).

[@imanimcnair973]

BattyButtercup I think women do underestimate how much pain we are in. The pain I was in had me in tears but I still tried my best to move around even tho it felt like my lower half was strapped down.

[@Slythegirl123]

A good note I've seen: instead of talking about the pain, say how it limits you. ex. 'my arm is in pain' vs. 'I'm unable to drive or write because of my pain' if you give specific things it's effecting, they're more likely to care. from my experience.

[@christalcavanaugh]

Casper Ghostly You’re exactly right. A lot of people who don’t often have pain or a type of pain will say it’s “really bad” but that doesn’t explain it very well. If you say “I can’t sit upright because of the pain in my ____” it is more helpful and descriptive

[@kirstikaptein5909]

Casper Ghostly this is very helpful, thank you

[@cheesecakelasagna]

*immediately takes notes*

[@lesbodactyl]

I have several chronic illnesses and I'm a lesbian, and it's so comforting to see a healthy and supportive relationship that might be something like mine. I used to think I shouldn't ever be with anyone because I would just be a burden, no one would ever want to be with someone like me and that it wouldn't be fair to "hold someone back". Thank you both for educating people and helping reaffirm that those thoughts aren't true.

[@chronicallyfabulous88]

My abusive ex used my disabling chronic illnesses against me, in exactly that way -- telling me that no one else would ever want me and that I'd be alone forever if I ever left him. He constantly told me I was a huge burden on him, holding him back from having the life he wanted and making him miserable. NONE of that was true. But it took me a long time, after I finally got away from him, to learn and figure that all out. I had a lot of support & help from my best friend, Mike, who's now my flatmate and carer. I've dated women since that nightmare ex-boyfriend who've displayed ableist attitudes and I've broken up with them because of those attitudes. Why should I give my time & love to someone who doesn't even see me as their equal?? You DESERVE a partner who loves, respects and values you for who you are -- and not "in spite of" your disabilities/chronic illness. They're part of who we are and continue to shape our lives, every day. We're not less-than because of them. Maybe if I hadn't been surrounded by deeply ableist people my whole life, it wouldn't have taken an intensely abusive relationship for me to realise all that. It makes me want to speak out and teach other chronically ill & disabled folks (especially kids & young people) the same things, y'know?

[@AllieLittleMonster]

Jordan Blake you are not a burden and someone will love the heck outta you and all of your illnesses !!! Xoxoxo

[@tatiannaemily474]

You are never a burden, that is such a common and flawed assumption from so many people but the reality is, good hearted people are out there and willing to find a solution alongside you, are willing to give you the best quality of life they can offer, because at the end of the day no one is like you, and your personality will speak to someone else's so perfectly that you'll both fight to provide for each other and love each other. It takes 2 people wanting to follow a path together and always encouraging each other on that path :)

[@Slythegirl123]

honestly, as a gay man i get you. i'm mentally ill and disordered to the point where it harms my everyday life, and things like this make me feel a little bit closer to not being a burden.

[@OuchingTigerLimpingDragon]

Yeah, I'm bi but in a hetero marriage. I have this laundry list of intertwined, all disabling-in-their-own-right, chronic illnesses. I was independent and working when we were dating and engaged, and even though I was still desperately ill, it was the illness I was used to and knew how to manage and deal with the symptoms. My health absolutely plummeted during the engagement and first few years of marriage, and I feel like this millstone around his neck. All the plans we had while dating and engaged were hinged on my being able to chip in with time, money, and effort, and so they're just ashes now. But... he doesn't use my disability against me, he encourages me to be as independent and capable as possible, and he loves me. Life would be better if I were healthy, there's no getting around that, but he doesn't resent the situation we're in, and I'm so grateful for it.

[@victoriabrown6561]

Claud: Concerned about her wife Jessica: 😙✌🏻

[@dumplinglover8042]

LMAO❤

[@oliviawebb4438]

Need to get me one of those wife things

[@sonofhibbs4425]

I’m beginning to think, all females lesbian or straight need one.

[@yana_v_v]

@@sonofhibbs4425 Straight females can have a male Claudia.) My partner does so much great things for my health (I’m also on disability), that I could make a video of my own. I’m not as pretty, though, and don’t have thousands of subscribers, so I’m not gonna.)))

[@yvellebradley2502]

Jana Vikulova Awww...I bet that you are pretty! Don’t be so harsh with yourself. 🦋

[@lucacommonjay7894]

"Remember the time you had kidney stones?" **Full of delight**: -"Yeaaah!" XD

[@eveescastle5866]

I honestly hate doctors who dont believe you when you say you have certain conditions cause they've never heard of it. It's frustrating when you know more than your doctor.

[@blackanimecat2]

EveesCastle its not even that you know more, irs that they dont trust you and therefore they are gatekeeping your treatment

[@aelinluna3434]

I personally would like to know what cereal box these doctors are getting their degrees from. I find it incredibly hard to believe they made it through med school without failing out from stupidity or having someone punch them into another dimension for their shit attitudes.

[@sonofhibbs4425]

Oh my God, Rinna, exactly. So many horror stories I know. Why anyone trusts the profession is beyond me. Some doctors are wonderful beyond wonderful, but they are often booked and busy with everyone else desperately seeking good health care. They are sadly few and far between. Add in insurance policies, and it’s often the poor who get stuck with awful doctors. There’s this phrase: “ the rich stay healthy, the sick stay poor”... gee, I wonder why.

[@mishripettinger6170]

@@aelinluna3434 yes thank you I wanted to say it too

[@moony7964]

I feel like there's so many of us that feel this way.

[@howarthe1]

The value of an advocate cannot be overstated. Patients are often encouraged to advocate for themselves, but patients are sick people. They cannot sustain an argument. God bless Claudia!

[@flawlix]

I identify so hard with “I hope they find something so they can FIX IT.”

[@flootzavut30daychallenge]

flawlix god same

[@Dooms-Daisy]

I was wondering how they pay for all of this and then I remembered socialized medicine in the UK.

[@angie8110]

Same, I have to go to the dermatologist and its crazy expensive. I cant imagine all those specialists in the US

[@ericfolsom4495]

My wife doesn't have nearly this list of medical problems, but she does have quite a few. Our primary reason for moving out of the US is due to medical expenses...and she's on disability. The prices are STILL outrageous for hospital care. One time got a bill that was nearly what I made in an entire year before taxes. So glad they're not in the US, I think Jessica would have hit the maximum allowed (which Obama got rid of thankfully) and insurance wouldn't have covered anything anymore.

[@irismoon8435]

Claudia has a wonderfully rich voice. I'm a singer and I do theater so I very much appreciate lovely vocal tones.

[@angeltoast5482]

0

[@Howiesgirl]

You ladies are the cutest couple ever! You both seem so warm & relatable. I feel like if I ever could meet you, it would be fun to hang out with you.

[@joshuacreel3000]

"I do not know what that is" THIS IS A PROBLEM EVERYWHERE IF YOU'RE CHRONIC AND NOT THE MOST COMMON THING EVER.

[@BattyButtercup]

Joshua Creel YES! it's INFURIATING! and then there's the similar "oh, you have asthma/eczema? you just haven't used your inhalers/creams properly". I WAS ON A NEBULISER PRETTY MUCH WEEKLY MY ENTIRE CHILDHOOD and teachers & peers just told me that THEIR asthma didn't stop them so why was MY asthma so "special"? the eczema was/is different because it was often VISIBLY painful. still wasn't told i was allowed to take painkillers until years into living in pain daily. "chronic" plus "obscure condition" & "chronic" plus "hugely common minor thing" are both things that just don't exist in people's heads. and they usually don't care to learn either. :(

[@aim-to-misbehave5674]

I had a super simple problem to solve when I was ten. My knee swelled up to the size of a football and was locking and giving way with every other step. It ended up taking four years and two MRIs (and tests for rheumatoid arthritis and a myriad of other things that ended up getting ruled out) to diagnose a torn meniscus. A damn torn meniscus. A stupidly common injury. But because it took four years to diagnose, and because I also have collapsed arches that screw up how I build muscle around my knee and hip joints, I now have a chronic knee condition that's going to plague me for the rest of my life and probably end up with me needing early hip and knee replacements on that side. All because the first MRI apparently didn't pick up a whopping great tear in my meniscus and a bunch of loose cartilage flapping around inside my knee. (And the doctor that finally diagnosed me did it by walking behind me down a corridor, seeing my collapsed arches, and working backwards from there with an MRI to confirm his suspicions. A paediatric knee specialist, of course. Find yourselves a specialist, guys, they work wonders.)

[@joshuacreel3000]

i have definitely been to specialists, other than very self evident thyroid cancer they're still pretty confused lol.

[@aim-to-misbehave5674]

@@joshuacreel3000 Yeah, they're better than generic GPs but not all-knowing all-seeing. Unfortunately. Life would be much easier if they were. My specialist comment wasn't aimed at anyone in particular, more just backing up what Jessica said re specialists being better at getting people to pay attention to you.

[@orlande22]

It's still a problem if your chronic and have something fairly common, if they can't fix you easily they don't tend to try.

[@sean-michaelgettys6176]

I often say everyone needs a Carlie (my wife who helps advocate for me when i can’t advocate for myself since sometimes I’m uncoscious or very close to it) but I’d say Claudia also gets the everyone needs a Claudia list :)

[@firesoftheasylum7890]

My partner remembers my allergies and health issues more than I do (I mean, it's a huge list and there's some brain damage), he's just like Claudia. He advocates and fights so hard for me, truly lucky to have him. Everyone really should have that person that goes to bat for them when they can't and stands with you when you're trying.

[@oldasyouromens]

I have the exact opposite story. I have cerebral palsy and it's known as a "childhood condition" so my parents, being awesome and proactive, found me the third highest rated pediatric specialist in the country for cerebral palsy. But I have quite mild symptoms, and whenever she would see me walk she would be like "you're fine". So when my symptoms started getting worse, like, "I'm in so much pain I want to kill myself" or "I'm dizzy all the time and unable to eat because I'll vomit", she just said it was normal and I was fine. But I got a new pediatrician when I was 15 and she was just like "oh yeah your brain sends out extra signals all the time without regulating them, so you literally feel pain worse than other people. And there might be a *slight* blockage in your inner ear, but your brain can't calm down and makes you have vertigo for no reason, so here's an antihistamine to stop that and you should be fine". Literally a lifesaver. I'm so glad I don't have to leave her until I'm 21 because right now I don't know what I'd do.

[@chronicallyfabulous88]

One thing I learned recently at university (I'm studying Biomedical Science with a major in Human Genetics) that really explained a lot about pain hypersensitisation (I'm guessing Fibromyalgia, in your case? That's one of my dx) is that the vast majority of the work our brains do is dampening signals, not producing them. Sending a signal is the default setting and the brain has to work to dampen signals that aren't needed, at the time. So a lot of different medical conditions are related to a failure to properly dampen certain signals. It's essentially a dysregulation of the brain's STFU mechanisms 😁

[@felicitygee381]

@@chronicallyfabulous88 omg 😂

[@mackenziedesire7515]

I know you left this comment at least a year ago, but just saw this and wanted to say it might be good for you and your folks to start researching for a good doctor to transition to once you are 21, and asking your good doctor who she'd recommend, etc. it is SO nice to have a good doctor who cares and wants to help though and I'm glad you guys found one! Good luck!

[@jackainsley4365]

God, I can relate to Claudia so much. My partner is chronically ill and the shit we have seen in emergency departments, the dismissal and condescension from doctors and nurses, the rolled eyes, the veiled accusations ... It's utterly dehumanising and the worst part is there's nothing I can do to protect the person I love from it all.

[@firewordsparkler]

Ugh I hate that you suddenly have to become an expert in dealing with doctors and specialists overnight. I remember having to call my insurance, my GP, and the MRI place in an infinite loop to schedule a single appointment. Plus the "You're too young to have back problems" ad nauseam from everyone I know.

[@Seagull-Matthames]

That "you are too young" phrase bugs me. It is an assumption that can prove fatal as anybody who is familiar with young onset bowel cancer will tell you.

[@Rhelanae]

I had bunions as a kid (genetics) and as I was growing up they were slowing me down to when I was 14 I would mow the lawn and then couldn’t walk for a couple days because of the pain I was in. (I personally rated it a 5 and the doctor said it should’ve been a 8) and I was told by two physicians that I’m too young for bunions and that I can’t have a correctional surgery until I’m in my 40s. Then I found a physician that listened to me, checked that my feet weren’t going to grow anymore and even diagnosed I had bunionettes (tailors bunions) on my pinky toes and a few months later I had the first surgery and a few months after that the second. In all I had ten pins to straighten four toes and I had to relearn how to walk, wear flip flops, and run. But. But. I found someone who listened to me. It really changed my quality of life.

[@sid2tiger6]

I hate the “too young to be in pain” thing got that a lot as a teenager until they diagnosed me with gastroparesis. Also I still get that now when dealing with my chronic ankle pain from two surgeries.

[@mygirldarby]

I had a herniated disc in my back from the age of 12 until it finally ruptured at 27. I was misdiagnosed over and over and my pain was dismissed. I now have nerve damage in my leg. Thanks to all the doctors I saw who didn't believe my pain levels....and one doctor who hit on me and told me if I dated him he would give me the pain meds I needed. Bastard! Of course i told him NO. I suffered for years.

[@thebrewtifullife]

I used to drag my mother along to all my appointments since she's more assertive than me. Having an older lady to tell them where to stick it, even when you're an adult seems to help get things done. I've given up on gp's, if you can see a specialist I think that's the way to go - I should have gone to a sports injury clinic last time

[@heidijohng8785]

As a young female physician, I’m so sad to hear your guys’ experience at what I think must be the UK equivalent of the emergency department. So glad you guys are advocating for yourselves 👏🏼 As more women go into the field of medicine, I am confident that the culture will change. Way to go, Claudia!

[@mossmartinez6355]

I've always seen Claudia as very laid back but not when it concerns Jessica. She becomes her warrior! You see what we see a very strong woman! I feel as if you both are lucky to have found each other. Hope you both feel better soon 🇱🇷❤

[@yeracontra]

As someone who is about to graduate and become a doctor in 1 month, your A&E story breaks my heart 😢 I'm so sorry on their behalf! There's no excuses to their actions but I promise we are not all like that, especially here in New Zealand! Claudia, you need to become a GP seriously. Your way of thinking is so critical and spot on!!!

[@yeracontra]

Also- I studied in the UK for 2 months this year as part of my elective and I did notice the lack of sharing of clinical information between hospitals and services. Some are also just paper and not electronic. It was SO annoying and shocking (I was in a big center in London) And the administration in general is quite bad. One time they lost on of our patients' notes in transfer???

[@elizabethhogan1610]

Claudia is actually a dentist

[@susanwilliams2392]

I;m in NZ and chronic. Mostly a and e have been pretty good to me, and believed me. The waiting room is awful, but once you are taken through, mostly not too bad. At least they listened, which is a major plus cos my condition is super duper rare and most doctors have never heard of it. I haven't found our paperwork to be very good though. Even within the same hospital different departments don't have access to my history, diagnoses, meds i am on, or meds i have taken in the past. it is my job to tell them, and i always miss at least one condition or med.

[@ameliepreece8018]

Yeah, I spent the whole video realising that we have really good hospitals in NZ(apart from the wait time). I’m only 13 but from all my experiences in hospitals, everyone is really nice and respectful and never tell you that you’re not actually sick. Most of the time we just go in and say what’s wrong and they’ll be like “ok you can get surgery at this time or go to a private place and not wait”

[@yeracontra]

@@susanwilliams2392 im glad to hear!! We do try our best and we are very lucky here in aotearoa. Looking back at this post amongst covid times is crazy ❤

[@darkwingchuck5005]

"Everyone should have a Claudia!" The world would certainly be a better place.

[@pollyflores418]

As a disabled lesbian, this makes me feel so much better!! So often I convince myself no one can love me and you and Claudia give me so much hope!!!

[@Mrstigger747]

I hope you come back and see this? We see you and hold you in our hearts 💕🥰🥰🥰 There will be someone for you ❣️👋🇨🇦

[@amethystsamia]

Everyone does indeed need a Claudia! I’m my own Claudia and I can confirm everything you both said. Not about your conditions, but you do need to become educated, advocate for yourself, and MAKE THEM HEAR YOU! They definitely don’t listen. Long story short...yay Claudia!

[@DieAlteistwiederda]

Whenever a doctor wants to explain any of the Latin terms in their diagnose I'm always like "Already know that one" because at this point I probably read every damn medical article about my conditions so just throw the Latin terms at me and get it over with. I also know most terms in both my native language and English as well so I can talk and Google easier about it online. Over the years I've gotten very good with fighting for myself and my own health. It took a bit of time but now I won't stop until someone can at least explain some of my symptoms.

[@amethystsamia]

DieAlteistwiederda unfortunately we have to. For some reason docs don’t want to listen to us. I’ve found that female docs are a bit better so if you can find a female do it.

[@amethystsamia]

Hellena Rose II sometimes you need to really make them hear you. HEAR you, not just “listen”. They always claim to listen and my response is always then HEAR ME. Good luck to you.

[@rowannieuport3942]

I was hit by chronic fatigue when i was young, at 14. I had a mysterious fever, it damaged my adrenal glands. They grew weaker over the years. When i was 27 they finally died, and my blood pressure started to go down and down. I managed to see a doctor who recognized my symptoms immediately--i had darkening skin, purple stretch marks, purplish blotches in my mouth. I was given hydrocortisone and my skin lightened in a week. But the fatigue was a real problem. The disease was diagnosed as Addison's Disease. I live in America and it took me 23 years to get any help from the government. I lived with my mother, who was the only person who advocated for me--she was my Claudia, i see. I developed diabetes and other endocrine disorders, and have struggled with the attitudes of people. They so often say i don't look sick but i know a lot about living with things they would never survive, lacking empathy and the ability to cope. I am very resilient. I wasn't able to finish college, the fatigue and diabetes were such a problem. I am finally given disability rights, and i live happily. I have some of the same elements as Jessica in her videos, so i am finding a good perspective. I finally developed major depression and maybe that is what got me serious help from people. Even so, you run into ignorant stupidity that says, you don't look sick, disabled, depressed. I just don't have to pay attention to such dummies. I just turned 61 this month. Thanks for being such terrific women!

[@sarahwithstars]

Everyone needs a Claudia xx (Personally, I have a Suzanne XX)

[@suzannehood1125]

sarahwithstars xxxxxxx💕💜😘😍

[@Belacroix5]

^^ I ship

[@bananacrazy554]

Cute

[@LovelyIKnowx]

MCTD, “which is similar to Ehlers-Danlos Syndrome” WELL BOY DO I HAVE SOME NEWS FOR YOU 😂😂

[@RachelJ715]

What do you mean?

[@marshm3llow467]

@@RachelJ715 Ah, this is quite old but she made a video a year ago talking about how she was misdiagnosed with MCTD, and it was actually Ehlers-Danlos all along.

[@baltosworld3491]

Jessica holding her hand up so the camera would focus on the bracelet was cute to me for so reason.😂❤️ I love this video so much, it’s really interesting! (You guys are both so adorable and funny) Meet the one who can cure your pain!;)

[@pboekel9581]

Hi Jessica, My name is Pam and I’m a doctor from Melbourne Australia. I just wanted to say that I love your channel and watching your videos has really taught me so much! You’ve really opened my eyes to “the patient experience” of healthcare, especially in regards to how flippant us docs can be when we don’t understand or find a diagnosis. Your story reminds me just how important it is for me to listen to patients when they say that something is wrong and work with them to try and find an answer/solution. I will forever be mindful not to dismiss anyone or any symptom. I just watched this video, and I felt so ashamed of the medical community for not being your advocate before Claudia stepped in. I’m encouraging all of my medical friends to watch your videos also!! So thank you for your words and feedback. All the best, Pam 😊

[@kmitsmall]

“I think it looks like feathers” “Yeah or like feathers” 😂😂

[@viktoriakiss4496]

Yeah, and then that look on Jessica's face 😂 I just love them

[@emilyc7303]

Lol which one is deaf again??

[@viktoriakiss4496]

Relax, she was just kidding, because in this situation Claudia was the one who acted like she didn't hear Jessica say "it looks like feathers" and said "yeah or like feathers", which was kind of funny. :)

[@codieflo3776]

Time stamp?

[@kmitsmall]

Wild Child 0:41

[@angieormiston8028]

Who are these beautiful souls!!?? Thank you KZbin for this rabbit hole

[@stardolphin783]

Jessica saying "just don't be an idiot" in her british accent is everything xD

[@TeeVeeZed123]

I have a Claudia, her name is Vanessa and she is the best thing that ever happened to me, she’s been with me from healthy to M.E. and manages everything so well, and it so much better now that we are married as she can advocate for me when I can’t. You two are a great team.👌🏻👊🏻

[@sabrinafairchild3906]

I cried so much in this video. Finding a disabled vintage loving femme lesbian KZbinr was so exciting and made me feel less alone. But this video made me so sad. I can’t even get a date because I’m “too much”. My carer is my ex husband and he just makes sure I take my meds and see the dr. I struggle to research especially since my concussion which has left me light sensitive. I spend my whole life sitting in my dark room. I won’t lie....im so envious. I feel so alone and scared as everything keeps getting worse and no one listens. Where do I find my Claudia? Time to go curl up with my heat pack and take my meds and have a good cry. I’m so happy for you Jessica. Just a little green with envy that you found someone that will help you that you also love & are loved. Being loved seems like it would be nice. Ok maybe no one wants to date me because I’m a miserable broken person 😭😭😭

[@marenstorliensyltevik7639]

Sabrina Fairchild I don’t know you, but I can assure you that you’re not. Though granted it’s a bit harder to meet people from a dark room, it can still happen. Love and joy to you, and may you find your person, the one right for you and for whom you are just right too.

[@dburgd99]

I know it has been a year since you posted this message. I sincerely hope you are doing well and feeling better.

[@d0_it_t0_em48]

I appreciate the vomit warning, most people don't do that and I'm very glad I was warned so I could skip through to continue the video. ❤️

[@alexharrington4668]

Moral of the story: I absolutely need a Claudia! Literally just had a dr last week tell me I was making up all of my symptoms and that if I was in pain, I should just lose weight :(

[@PreppyHeiress26]

Find a new one n report that one.

[@Thursdayschildfar2go]

What an utter asshole!

[@alexharrington4668]

Working on that right now! :)

[@amaidaisuki]

My family dr told me that when I was looking for a diagnosis for my asthma. -.- My parents left it at that and I wound up in ICU on a machine forcing me to breath because even the steroids they were giving weren't working to clear my lungs.

[@NewCitrus]

It's terrifying how many people's symptoms are ignored by healthcare workers do to weight bias.

[@liizaa.hanson1245]

Okay but like Claudia is HANDS DOWN the greatest wife ever. Jessica you have been blessed w/ such an amazing human.

[@turtle4llama]

I had an ovarian cyst rupture after years of going into the hospital and being told I was overreacting and just a drug seeker. It still has never been treated, just acknowledged via an ultrasound showing the tattered, deformed ovary that is left. Doctors are the same as anyone else and will do whatever it takes to get out of work.

[@lazynights4777]

Okay, this is SO cute! Jess looks so in love when she looks at Claudia remembering basically EVERYTHING about her wife’s medical history. My dad doesn’t even know my birthday.

[@nguyenlchi9943]

You guys are so perfect even Tilly is perfect omg it’s like #couplegoals who? We’re #familygoals

[@riverratgrrl]

Aaah! I'm so sorry you had to go through all that! I feel really vindicated about the whole female pain not being taken seriously thing though. I had the same kidney stone thing happened to me in 2008, I got sent home with a pat on the head and a handful of aspirin and had to pretty much live in a bath full of scalding hot water for 4 days while a male friend of mine got morphine and a hospital stay despite having the *exact* same symptoms in 2009. Even some friends didn't believe me despite the fact I'd literally been peeing bloody chunks and a GP test confirmed there was no UTI or anything. 2013 I got in a really bad accident that crushed my right arm and left femur at the same time - they took away the pain killers I was given within 3 days because I was severely concussed and thought if I kept clicking the IV dispenser I'd overdose myself. When I realized it wouldn't let me do that, the staff were basically like "Well we took it away already and you're not screaming, sooo deal with it" + they forcibly catheterized me in a botched process that involved having my genitals tortured for 20min every 2 hours for 12 hours while I had 2 limbs in traction... I was on a ward with 3 other women (two of whom were very frail and elderly), we all asked for a window open for a bit (because YES WHY IS IT ALWAYS SO HOT?!) and the nurses kept ignoring us so I ended up wrenching myself up on crutches with 2 broken limbs and a catheter bag in tow, opened the damn thing myself for everyone (and nearly fell over in the process)! The staff were just consistently dismissive towards all of us. I should've been in hospital a lot longer but when they said they couldn't force me to stay after the 1st fortnight I was just like "Nope get me out've here!" THEN I had to pay that hospital £15 for my own records just so the 2nd hospital I got shunted off to had more than their own x-rays to work out what bits of metal had been hammered into me and where and how their surgical team could correct it (there was a nail basically slicing up tissue around my knee plus none of the breaks healed properly because I have atypical Marfan's syndrome). I did sessions with a councilor and a CBT therapist but the hospital pain clinic refused to physically help me with acupuncture or a TENS machine unless I agreed to sit down and bare my soul to a *third* psychologist so I just noped out, bought a TENS machine on ebay and learned to grin and bear it even though the limping's given me back probs as well now... Meanwhile a male friend of mine got ankle problems from working out too much when his job's already quite physical - he immediately got free unlimited acupuncture sessions. When I complained about the horrendous gender disparity going on my friends tried to argue "Yeah, but that guy tried physio first" and I'm like "Excuse me, I'd just completed full courses of physiotherapy AND hydrotherapy at the hospital when I asked for a pain clinic referral! What else should I have done to be taken seriously?!" and got met with blank faces because clearly the answer is "grow a penis". -__- Sorry rant over, this topic just really hit a nerve.

[@mikeydonnie]

My hat's off to Claudia. My wife developed a rare neurological disorder called dystonia 7 years ago. The thing about these rare disorders is that most doctors you encounter have never heard of them. I understand as the spouse of someone with a chronic illness, you are a de facto caregiver and you often know more about the illness than doctors do.

[@subscriber8881]

Lol love how she basically had this huge story just to tell us "I was driven by my love for Jessica....and a strong hatred for the ER" LOL you two make my day

[@colettelee1162]

Claudia and the leeks! lol My big sister has a rare disorder (Stiff Person Syndrome), and for a decade she was misdiagnosed and dismissed by doctors who thought she had to be making up her symptoms. She traveled across the US to a specialist who finally gave her the correct diagnosis. She's managing, and her husband takes care of her, so I'm eternally grateful for him. She has a cheerful/ironic sense of humor like you!

[@AZAComics]

That's amazing! Claudia was dating you only a few months and just got your whole life together! Talk about a guardian angel! 🥰❤️

[@MiljaHahto]

No wonder they got married...

[@lucyandlila4726]

It's absolutely insane how wilful drs are to ignore you. When my severe chronic pain started in my arm I was told I'd pulled a muscle, when it spread to the rest of my body I begged an a&e doctor in floods of tears to help me but he sent me away with drugs I was ALREADY ON and told me to exercise my back. I was 13 and I couldn't walk. Atm I'm struggling with all the additional illnesses piling on top and all the wonderful doctors who are insisting they're "just something some people deal with" rather than doing any investigations. It's been my mum who's saved me throughout it all. She stopped working to take care of me and it feels like she's on the phone to a hospital every day and I'm incredibly grateful, because nobody will listen to me on my own.

[@christiantangerine4584]

I kinda wanna see her collab with Dr. Mike and talk about Jessica's experience in hospitals and how she has worked thru her symptoms .

[@morrisonsrocks]

Maybe Dr. Hope would be rather worth a try, as he's at least based in the UK :) GB has their fair share of doctors with social media, who might be easier to reach, if they wanted to do a collab like that. Maybe even someone with an accommodating speciality.

[@yosoysoya7944]

Oh shoot, that's genius! Can we please bring this idea back to life??

[@JusticeAnimeGeek]

I'm working on getting a diagnosis and figuring out what the heck is wrong with me. It doesn't help that I look about 15 on a better day. I apsolutely hate going to the ER because they don't always believe you. I've gotten to the point where I keep a big folder of my info and limiting what I do. I'm trying to stay positive and stay on top of my doctors.

[@EmilyCricket]

Jane Justice Doe good luck 😊

[@ddubfan]

It took me years to be diagnosed (with lupus sle, cyclic vomiting syndrome, and psoriatic arthritis) and I was constantly being told nothing was wrong with me. Just keep advocating for yourself, don't give up ❤

[@JusticeAnimeGeek]

@@ddubfan thank you very much!

[@JusticeAnimeGeek]

@@EmilyCricket thank you!!

[@wonderingalbatross2400]

Thanks! Inspiring and really heartwarming!!! That help with my depression : ) I think a lot of people wish they could have a warm and assuring shoulder to lean on, and people like stories of love, commitment, and bonding; I think those stories are powerful too! I actually feel like calling my mom now.

[@jessicaoutofthecloset]

Thank you! I'm glad you like the video! ❤️

[@JulesBiscuits]

This is so sweet! I feel similarly about my husband. He's helped me advocate for myself when I'm too tired or in too much pain. I'm so happy you two found eachother.

[@toasted3874]

Ive fallen in love with these two. They are so cute. I mean look at them they are BEAUTIFUL BEAUTIFUL people, and Claudia looks after Jessica so well. And you just see Jessica just adores her. Its so lovely to watch.

[@izzyfrost647]

the part where you said about how departments don’t talk to eachother and it takes FOREVER to get referred from one to the other, god it’s so real! I’m forever bouncing between cardiology (POTS) gastroenterology (IBS) and the migraine clinic and my gp for years with various (mis)diagnoses. now I’m getting referred to a dietitian! and don’t get me started on the mental health services. the nhs is wonderful in that we don’t have to pay for it but in this sense it’s an absolute NIGHTMARE. it’s so good that you have Claudia to fight with the nhs for you and support you, my mum is that for me and she’s a godsend. much love to you both

[@aim-to-misbehave5674]

Some of the comments from people without universal healthcare seem to suggest that it's not all that much better over there, unless you can afford the best specialists - I guess I'd rather have free (at the point of use) chaos than chaos that bankrupts me. I can't imagine how much Jessica and Claudia would have spent now if we didn't have the NHS.

[@oli_kate]

My Claudia is my best friend Sam. He was the first person to ever believe me about my experiences. He comes with me to all my medical appointments and helps me be taken more seriously (because obviously if a man believes my symptoms are happening, they must be real). And he helped me advocate for a cane and a wheelchair. And he's helped me get a disability grant. He also built a small ramp and took out some bricks so I can enter and exit the property fully in my wheelchair. He also built a ramp at his house to help me. And he's hugged me lots and lots and I love him so dearly. Everyone needs someone in their lives who cares enough to research their conditions and help them advocate for themselves. I hope you have someone like him or Claudia

[@emilyfarfadet9131]

Such a lovely wife! I remember throwing my guts up all week getting my BA while fighting Chronic Migraines. So maddening how much you get dismissed or gaslit when seeking help for debilitating pain and disfunction.

[@AndrewD8Red]

About 12 years ago, my girlfriend (now wife) helped me through some incredibly dark thoughts. She literally saved my life and I will be forever grateful to her for that. Wives are literally wonderful, magic people.

[@DieAlteistwiederda]

The ambulance drivers told me that I just had an anxiety attack when I had extreme pain in my left shoulder. So they also didn't really do anything in the hospital and I walked around with a highly inflamed shoulder muscle for almost 2 more months until I couldn't live with that kind of pain anymore and finally found a good doctor who actually helped me. It's been almost 4 years and to this day my muscle never fully recovered which sucks because I'm left handed and this is my left shoulder and don't have the same strength anymore. My hand also goes numb on that side if I'm not careful enough and don't work out. Without my partner I wouldn't have made it out alive of that. I now also have been diagnosed with hip dysplasia and have a lot of pain on pretty much a daily basis in that part of my body but having someone on your side helps a lot. I also finally found medication that actually works for me without giving me too much side effects.

[@laquera640]

As someone diagnosed with anxiety from a young age (who also maybe has some other physical stuff going wrong?) My constant fear is that I'll be like dying (or at least have something going horribly wrong) and either 1. Doctors will assume its anxiety Or 2. I'll assume it's anxiety People always say "you know your body best and if you think something's wrong then pursue that" but it can be really hard to tell sometimes if I have symptoms because i'm panicking vs if i'm panicking because I have symptoms But also if doctors think something is anxiety then the best way to help is to ease the patient's anxiety by making sure nothing else is wrong! My favorite doctor I ever had was one who recognized I was consistently very anxious about heart problems (no family history or anything, just anxiety being anxiety) and told me that if i was concerned i could check blood flow to my fingers by squeezing them gently and watching the color come back, and if that was ok then I didn't need to worry. That's so much more helpful than being told it's anxiety and getting sent off! Its 3am here and my thoughts are all scrambled but I hate the idea of any doctor just saying its anxiety and leaving it at that! Whether anxiety or not, its obviously an issue and should be treated as such

[@laurenphelps2843]

I know this is a year or more later, but this really encourages me to fight to get diagnosed. I'm 22 and repeatedly have been told nothing is wrong with me despite chronic pain, other hypothyroidism, overextending joint, b12 deficiency, etc. I'm going to fight for answers, I deserve help, thank all, but especially Jessica and Claudia. (My mom and brother are the only ones that believe me. ) ❤

[@ConstellationCat]

“Advocate for yourself” that’s so true! Currently seeing three different departments for three different conditions one of which I’ve had all my life. I’m very grateful that none of them are life threatening but it’s such an effort to refuse to take no for an answer when the doctors just won’t listen. I know the NHS isn’t the best but I am ever so grateful that I’m able to get care and afford it too. I hope you get help with the migraines and go Claudia for taking such good care of you 💛

[@melp.1942]

When I was diagnosed with Marfan Syndrome, not until I was 30 even though I was born with it, I quickly realized you do have to be your own advocate when it comes to your health. When I had to tell my GP why I thought I had Marfan and where I needed to be referred based on the research I had done, that made the advocate lesson kick in. Then, when we had our oldest son and he had inherited the Marfan Syndrome as well, I knew I had to advocate for him and his health. Doctors (most) do their best but while they learn about all the illnesses in medical school, they may never actually see someone with Marfan or Ehlers Danlos. I had a doctor friend actually say to me "You don't have Maran, you don't want Marfan". He was right, I did not want it, but I DO have it. I do not fit the "typical" body type though. Usually people with Marfan are very tall (I am 5'8") so that is not bad but they are also typically very thin and have a hard time gaining weight. Unfortunately, I did not get that part of Marfan. But like with every disorder, not everyone is going to fit into a nice, tidy, standard box. My son is now 7'4" but again, not beanpole thin like you might expect to see. You are lucky to have Claudia to help be an advocate for you as my husband is for me. It helps to be able to have another person in your corner so to speak. :-)

[@kaitlynlusk817]

Claudia is such a sweetheart. It’s obvious she and Jessica care so much about each other. Watching them makes my heart happy ❤️

[@sean-michaelgettys6176]

My wife and yours could probably relate to each other’s A&E experiences. Shes forever having to stop them from killing me because I’m actually airborne allergic to hand sanitizer, she advocates for me on a regular basis. Good for Claudia doing her research! AND for helping you get better doctors!

[@sean-michaelgettys6176]

And at first she would rush me to the hospital or call an ambulance and then have to convince the emergency techs to treat me or at least take me to the ER. But now that we have better doctors and a better treatment plan she’s on board with me avoiding the ER as much as we can. Basically we only go if I’m dying. Its great that you found a.helpful Rheumatologist. Here I’ve had really bad experiences with those. The last one told me to “eat more foods” and just deal with the pain of my “age appropriate arthritis” and try to walk more. Totally ignoring anything like FODMAP or making any useful suggestions of exercises

[@kaymarie2]

What is love? THIS. 💝 And the obvious way you both acknowledge one another is priceless. ✨✨

[@tesstucker3311]

OH MY GOD I have never in my life seen a proper vomit topic warning in a video and I APPRECIATE IT SO MUCH! Love, an emitaphobe

[@GerardvanSchip]

I thought you were awesome on your own, then I see this video and now "get" how being with the right person makes you more awesome.

[@Emily-lw5nz]

My partner is the main reason I now have diagnoses because I swore off doctors after some terrible interactions when I was very ill and he was who convnced me to go back and advocated for me. And now my baseline is so much better! We love our Claudias

[@elisalukasik6334]

Claudia is such a wonderful wife! You two are so sweet together.

[@noflyingsharks]

As somebody who is currently going through the struggle of waiting and being tossed from specialist to specialist, this was very encouraging to hear.

[@asifloserface]

Thanks for the EDS mention! The people in the EDS support Groups really like seeing it more talked about. :) This has always been my experience with the Emergency Room. I can remember more than one time being curled over in the waiting room, never even being triaged bawling my eyes out and just ending up going home because it's been six hours and I can cry just as well in the comfort and safety of my bedroom. I have to explain my conditions to pretty much every doctor and they're all very I don't know, indifferent?? about it. I don't know that I've left the Emergency Room once since my EDS diagnosis feeling like I actually got helped. Even before it, I've always had such a high tolerance for pain that asides from the crying times, it doesn't look like I'm in pain so they just ignore me. Even when what I was describing was a ruptured cyst. (we never confirmed it because they did nothing but describing it to my GP years later, he said is most likely what it was) I even had to go in an ambulance last year when I had a non-epileptic seizure. They parked me in a bed, got the order to take bloods but never did. I literally just walked out of there several hours later feeling annoyed, scared and frankly just over it. Last week mum made me go because I was struggling to breathe. And even though this time they were nice and I was immediately triaged and put in a bed, I still went away feeling like it was just a waste of time and a cause of unnecessary anxiety.

[@crystalblue3842]

Claudia is very switched on. Her sharp intellect shines through

[@cassiesouthwick6171]

I just found you based on your "what is wrong with my hands" video and I thought EDS right away, even before I started watching the video. This video was in my recommended section right after that. I have POTS, MCAS and looking to get a EDS diagnosis. It's really good that you have your wife to help you navigate your medical issues! Also I know I'm two years late but I want to mention that migraines is a symptom of POTS. A lot of us POTSies has really bad migraines especially during a POTS episode. Drinking a lot of water and eating salt helps.

[@mhkei9821]

Claudia is an absolute hero for fighting her way through getting specialist diagnosis. You're very lucky to have found each other, you're a delightful pair with beautiful hearts

[@daniellea7520]

my favorite part of this is jessicas confused face when claudia is talking about a part of the story that she forgot

[@AnnieDreaming]

Ugh, I can relate to the awful emergency rooms. When I was 14, I was having insanely awful pain in my side that would go away and come back randomly, and my mom (who was a nurse) took me into the the ER to get it checked out. The first time, they ran tests, but ended up brushing it off as just bad ovulation pain from a cyst. The second time was a nightmare. I called my mom, nauseated and out of breath in the middle of class because it hurt so much. She took me in again, and the doctors and nurses didn't buy a single word of what I was saying. The nurse even threatened to put a catheter in if I couldn't get a good urine sample for her. They ended up sending me home with 'use heating pads and ibuprofen' as their only advice. The third time, the doctor finally listened, and ended up finding out I had some build up in my appendix. I went in for surgery at 2 in the morning to remove it. (We found out later that it wasn't that bad and that the pain was caused by a curable condition hardly anyone has ever heard of, so hurray for rare medical issues!)

[@isabellasevillaaguilera9679]

You two are so adorable

[@rivergrace3254]

i’m late but the same kinda thing happened to me. when i was 12, i started having seizures so we went to the doctors and they told us i was faking. after going to 3 different places they found a brain tumor. i had brain cancer. my family saved my life just barely. now i’m perfectly healthy:)

[@FreakingPlane]

Wow im so glad your family were that persistent.

[@shelbydempsey3316]

If you are going to put text on screen, you should read it and count to three then remove it from the screen. It makes it much easier for people to read your cute messages that pop up on screen without having to pause the video! Friendly tip that I was taught when learning to edit videos! Very cute video. Love you guys!

[@jaspriest1997]

I so agree! In the course of one year I broke both ankles, dislocated a shoulder and had a stroke and I was still told that I was “making it up” and “just had brittle bones”. It took 14 years of breaking bones and being in pain to get diagnosed with Marfans syndrome and that only happened because a chiropractor said he suspected it and gave me the name of a good specialist! The NHS is a blessing but they’re often so busy and see so many things that they just don’t pay enough attention.

[@AliceInUnderland13]

My boyfriend had to eat a low FODMAP diet for years, because similar to you, medication had killed most of the good bacteria in his microbiome. But a gastroenterologist told us about a realitvely new medication called Xifaxan, and it really helped! Now he can eat pretty much anything! You should ask your doctor about it.

[@MiljaHahto]

It is only stated that it helps if your IBS is of the diarrhetic type. It will also not develop you a healthy microbiome in your gut - it is capable of killing certain harmful bacterias, but not giving you right ones instead. It will thus not help all IBS patients, only some of them.

[@Cedalion]

This channel is helping to introduce people to LGBTQIA+ people and to people with less visible disabilities. They deserve a Nobel Peace Prize.

[@lilymedeiros]

My mom has basically diagnosed my siblings and I with every condition we have. Due to her exhaustive research, we've discovered that all four of us have what's called cold (or cholinergic/chronic) urticaria. The easiest way to explain it is that we're allergic to temperature changes, although it's not a true allergy because it's an autoimmune disorder. My sister and I both have forms of EDS, with mine presenting in both my heart & my rapidly declining vision and my sister's in her very quickly progressing scoliosis. My EDS also contributes to my hyperacusis, which isn't fun at all. We've had to fight tooth and nail to have our issues properly recognized and diagnosed. Moral of the story: be persistent and get as many opinions as you feel are necessary! Particularly with women, it seems, getting any sort of diagnosis that isn't related to anxiety is very difficult and frustrating. Advocating for yourself and your loved ones is the best way to get the results you need.

[@christabcook]

I desperately need a Claudia!!! There were many parts of the story where I'd blurt out "EXACTLY... yep, me too....man, I've given up again, I'm gonna get a referral to a Neurologist!". On and on I heard the same things I've gone through. I'm having a long 'crash' (since around August of 2020- of course I can't recall exactly when it started-brain fog) and my GP wouldn't refer me to any specialists when I asked! Time for that 2nd opinion, more realistically, a GP change. I have ME, EDS, and am just left with no care or treatments since moving states (USA, California to Oregon) 5yrs ago. It's very hard to advocate for yourself when bathing is too hard. I'm so glad for this channel!! Much inspiration 🥰 for me❣

[@sophiawhettingsteel3489]

I really enjoyed this video. Something about hearing Claudia's knowledge is just awesome and gives me warm and fuzzy feelings.

[@monkyh6of6]

Seriously when you met your wife you hit the jackpot the jackpot she sounds freaking awesome

[@jokerandcharlie]

'Everyone should have a Claudia' 👍👍👍couldn't agree more (although it's a real challenge for my old, german ears to follow your lovely wife 😘) great video, you guys are so amazing 😍

[@rosiebrockie4904]

I’ve got anxiety disorder and depression and my god has it been hard getting the help I needed and always being told you aren’t sick enough and even when they aren’t saying that you know their thinking it. One time my doctor told me I should read a self help book.

[@kweencurvesbam1065]

Bless you

[@GoVocaloider]

17:54 Please keep on waffling. It's good for my heart. When I watch you two talk with us and each other, I feel an unbelievable amount of happiness.

[@kindnessfirst3440]

I adore how Jessica smiles at Claudia in 99% of the video. The love.

[@rubygross7684]

I would expect no less from Claudia the way you talk about her! ❤️

[@natashahelen1247]

OMG the love between you both is so moving. And Claudia! What a legend! What an amazing wife!! I want my own Claudia. I think you guys should do Claudia for hire haha

[@lucydaeris77]

I just got home from a stressfull job interview, and all I wanna do now is sit down with a huge cup of coffee and watch this video, cuz the two of you can always cheer me up

[@angiem6383]

Lucy, your English is great. Try not to be so hard on yourself

[@annikala]

As someone with a chronic condition who has had doctors dismiss them and finds it hard to continue advocating for myself because it’s exhausting, this warms my heart. I love this so much 💕

[@MegzChica]

You have an amazing wife and you're so lucky. I wish my husband gave me more support about my health and helped me more.

[@emmiesage1173]

I'm 18 and I've just been diagnosed with arthritis on top of a sleuth of medical problems, including asthma, alopecia, an autoimmune disease and other mystery undiagnosed stuff. Although I know that all my stuff isn't nearly as bad as some of the things you've been through, watching your videos and hearing your story has helped me so much. While I have lots of supportive people in my life, none of them truly understand what it's like to be sick 24/7. You're honestly an inspiration, seeing how you are still so positive and don't let your diagnosis control your life. Thank you so much, you have gained a very loyal follower.

[@bregieirofernandes]

They’re both so beautiful in their own ways I can’t even tell who’s more beautiful

[@mandelstuvning]

This is so heartwarming, someone who actually cares enough and really does something about it! It's so upsetting to hear how horrible you were treated before! It's just not right that they didn't care enough to get to the bottom of why you were feeling so utterly poorly. I'm so glad that u found Claudia who seems to have made such a huge difference for you (and in other ways than medical as well ofc).