Chronic Lymphocytic Leukemia (CLL): Symptoms (ex. Skin Blisters), Diagnosis and Treatment (Vit D?)

Рет қаралды 122,598

Күн бұрын

Пікірлер: 97

@ash-st3ge Жыл бұрын

Future hematologist here. I hope that one day, I can treat patients and help them. Hematology has always been so interesting to me, and I would love to pursue that career. Thank you for the great lesson!

@raghadraghad7976 3 ай бұрын

Good luck

@AlanCornett-vm7bd Ай бұрын

I have CLL

@mike.47 3 жыл бұрын

I was diagnosed with CLL 3 years ago at age 66 and am still in the watch & wait phase. My wife however was diagnosed with AML at age 44 and she died 7 months after diagnosis. Life can really suck sometimes.

@michelezink8677 2 жыл бұрын

Holy Cow - I'm so sorry. I can't believe you both became ill. Unbelievable life is - sometimes.

@renantefernandez2177 2 жыл бұрын

I'm so sorry to hear that bro

@mdrahamatullahmd4574 Жыл бұрын

I am also a cll suffering patient. Please help me. Please explain the diet that you eat daily.

@johnnyrexfulce9475 Ай бұрын

Aml is far more rapid than CLL o was diagnosed 6;years ago

@todddunn945 Жыл бұрын

Good clear introduction. As a person with CLL I do have a couple of comments. First, the constitutional symptoms you listed are actually used as a basis to start treatment. Second, during watch and wait a CLL patient has periodic CBC blood tests and visits with a hematologist/oncologist. The main things that the blood tests look for the rate on increase of the lymphoctye count and decreases in red cell and other white cell counts as well as the platelet count. Note that the RAI stages are not like other cancer stages in that RAI stages II and IV are not more severe or even advanced than lower stages. I was RAI stage IV for two years before I went into treatment. Your discussion of treatment is very simplistic and rather out dated. FCR is almost a thing of the past and is currently only used for young patients that are not del 17p or Tp 53 mutated. Basically no one else gets FCR now. There are a number of other initial treatments for CLL such as Obinutuzumab and Venetoclax plus obinutuzumab. The treatment decision is actually quite complex.

@cathyblankenship5824 3 жыл бұрын

I have had CLL for 25 years and am still at stage 0. The Vit D and Calcium is new to me. Never heard that before. My platelets do run below normal, but still doing great. I am super sensitive to insect bites and only recently heard from a dermatologist that CLL patients tend to over-react. I will not be treated aggressively if my status changes.

@gulag8735 3 жыл бұрын

This helped me. What age were you at diagnosis?

@cathyblankenship5824 3 жыл бұрын

@@gulag8735 I am now 80 and still going strong.

@thomashelen856 3 жыл бұрын

I have be dealing with Cancer disease for the past years until i got review online about Dr.Auchi on KZbin Channel people testifies how they got cured with his herbal medicine, I order the treatment and after taking it for few weeks i totally got cured permanently.....

@sumitraanilkumar749 2 жыл бұрын

What was your Wbc and lymphocyte count at diagnosis and did these counts keep rising gradually? What tests did you perform at diagnosis?

@cathyblankenship5824 2 жыл бұрын

@@sumitraanilkumar749 will look up in my old records and let you know I did have a bone marrow test in 1999 which gave the diagnosis of B cell CLL

@TedFoxall 2 ай бұрын

I have been diagnosed forat leasr 10 years and have generally ignored it. Now at 85 I am approaching the time for action perhaps wiith detailed CT scan shortly to look at my nodes in detail. I refuse to take this disease as more than a nuisance which the way I also deal with my type 2 diabetes the same wa although I am now insulin controlled I refuse to do other than take the advice of my consultants seriously. This way I live a relatively normal existence. What will be will be and it's no good wlorrying. I wish you all the best, enjoy yourself Regards Ted 6:29

@marier7336 2 жыл бұрын

Very informative. I was diagnosed with CLL 4 years ago, aged 43.

@sKid-zy1ss Жыл бұрын

Sorry bro

@AussieCat111 Жыл бұрын

How are you doing now?

@MominNz 2 жыл бұрын

thanks for putting this great video - its a true asset with a direct focus

@zasulieman Жыл бұрын

The best explanation

@scientistatwork4667 7 ай бұрын

I was 49 when diagnosed with CLL.

@karansaini6566 4 жыл бұрын

Very nice information,sir tell about ALL

@Ginasgusa 3 жыл бұрын

Can you do a presentation on t- LGLL, large granular lymphocytes leukemia? Not much info anywhere. Thanks!

@Mtz2604 5 жыл бұрын

Thanks for the content and the clear but detailed explanation. This helps me understand what kind of leukemia the mother of my niece is going through and be more empathetic without going without tact or making her feeling even more sadnthan she's right now by asking her condition. Also I don't know if she can explain it as accurate as this video does. The mother of my niece has never been to close (my niece is like a mini me of myself and she's so smart and lovely and pretty) but the dynamic in her house emotionally speaking has worsened since her mom was diagnosed. I think her mother (has 40 y/o and is quite a rarely case of a younger patient with LLC) is in a seriously bad process with her grieve and coping. She is being hurtful and even abusive psychologically with my niece who is only 16. My niece never had a loving mother, instead a more productive and caring to provide mother; but since the diagnosis she has transformed from being kinda cold with her, to release her anger against her situation with my niece and it breaks my heart because instead of trying to cope with her daughter's love, be united and understand that her daughter is as scared or worse than her, she's just oblivious of addressing her emotions and the pain she inflict with her words and attitude. This girl is like my daughter, and I'm being as support her.

@MMacAttack 3 жыл бұрын

Wow that was a lot of personal info…..

@dennisoort7511 4 жыл бұрын

Thank you for this very clear information. With regard to the Vit. D and Calcium supplements could you please advise about the dose of those supplements at which the CLL progression is slowed down please? Or could you give a reference to the article in which the effect of these supplements is decribed ? FYI I’m a CLL patient myself

@MMacAttack 3 жыл бұрын

How did you find out you had it?

@CL4UDi4xx 3 жыл бұрын

@@MMacAttack blood work can detect it

@thomashelen856 3 жыл бұрын

@user-kl4lm9rz7h 3 жыл бұрын

@@thomashelen856 oh really. What type of cancer? What stage? What do you mean by "cured"?

@thomashelen856 3 жыл бұрын

@@user-kl4lm9rz7h i was suffering from breast cancer disease, i was cure completer with natural herbal medicine from Dr.Achi on KZbin channel,,,

@rayapatisrinivas5288 9 ай бұрын

Hi good morning madam how are you I need your guidelines about cml .... thank you

@mdrahamatullahmd4574 Жыл бұрын

I am a cll patient. I am eating tab ibrutinib but sorry to say, my health is deteriorating rapidly. Please come forward and help me to live .I am very poor.

@pvenzELP 2 жыл бұрын

Thank you, this gives me some hope

@muler-jm8nj 2 ай бұрын

I got what I wanted, thank you so much.

@nikunjkarwa4279 2 жыл бұрын

could you help me - my father has Stage 4 CLL - what vitamins would be good for treatement?

@carl6131 Жыл бұрын

Can you get pain with it? I get a lot of pain in my shins, elbows, knees and the bottom of my feet. They are sharp and intense in nature and either last a few minutes or a few hours. Thank you in advance for any answers.

Ай бұрын

Same ✋🏼

@kalyanbasnet2192 5 жыл бұрын

thanks for information sharing.

@selimballiyev4958 4 жыл бұрын

Is it possible to know with which program you made that awesome video sir? :) I would like to make awesome presentation also.

@pornsakpongthong1092 2 жыл бұрын

I have never palpated hepatomrgaly in any of my CLL patients. Are your percentages correct or am I Palpating incorrectly?

@RatCityprincess 5 ай бұрын

I've had CLL for over 10years. 5 years ago I did 6 months of chemo . I've been out of remission for 6 months. I'm only 55 and have all the symptoms of stage 4. I'm doing blood transfusions , immune globin transfusions and taking chemo. My doctor says we have other options if this treatment fails. I'm scared, 18 months to 3 years isn't long enough for me to see my grandchild grow up.

Ай бұрын

Hi, hopefully you’ll read this at just the right time 🤗 Trusting that Every thing you need comes your way and that you recognize it with ease 🙌🏼 Trusting that you’ve been brought people in your life who can help you with the fear 🙏 🌟 fear is a natural body emotion until/unless it overrides everything rational,, n having someone you trust/Love to help you bring it under control again is such a Blessing 🫶🏼 Recognizing what’s true and what is just fear based thoughts/expectations run amok helps me when fear seemingly takes on a life of its own,, controlling My Peace of mind. Realistic thoughts,, like: I am safe, secure, comforted and Loved right Now,, As opposed to thoughts like: what if….this bad thing happens after that this bad thing would happen which would mean this bad thing is coming next.. That’s generally how most of us think when fear controls us 😢But It’s not necessary,, and neither is ‘suffering’ 💗 Both are like inflicting punishment on ourselves as if we deserve it for something we did/didn’t do,, and it’s clear when you really look at it that it’s not the case,, nothing warrants suffering and recognizing that is first step toward inviting Peace back in to encompass all. 💫 💗 🥰 I hope something/anything I’ve said can help bring you some peace or maybe even lil Joy when/if you laugh at it because it’s too rambling to comprehend or my style is not your cup of tea lol 😆 Still helpful then,, the laughter 😉 🤗 And helpful for me,, I’m reminding myself, too. Awaiting my imaging results now,, 2.5 weeks now of the s/s moving into high gear, 2.5 weeks of waiting that seems more like 2.5 lifetimes :/ Thought for sure the first provider would immediately recognize and rally the troops,, then thought the next,, now thinking this one is 😊 One moment so optimistic the next stuck in fear based thinking- it’s ok but no thank you mind,, please bring back my Peace ✌🏻 Difficult when you know the ‘oh now come on, well I doubt it, chances are so slim’ and the like type of statements are wasting time when you were seemingly so ready with that immediate strength and Loving mind set 🕊️ Not quite the right timing, but/and I’d like to progress quickly now, please 😊 🙏 Request, expect, and accept The Peace Love and Joy,, right now 😊 🙏 💗 😘

@davidkhosravi9128 5 жыл бұрын

Thank you, it is perfect.

@spookily1661 3 жыл бұрын

I have very small tiny dots all over my skin but I’ve had them forever now

@baulverhulst 5 жыл бұрын

There was a recent open brain operation on Dutch TV where brain tumor cells were being destroyed by ULTRASOUND ... Can the same effect being realised with the B lymphocytes ....???/...

@thomashelen856 3 жыл бұрын

@shaaibugkage6409 2 жыл бұрын

Living life to the fullest option was all I ever wanted thank you dr omoh for making that come through he gave me hope when I was lost all thanks to him..🙏

@atikuidris7382 2 жыл бұрын

Dr Oiah is a great doctor he is very understanding and listens to your concerns . He takes time with the patient to help them with their health issues ! I highly recommend him to anyone looking for a specialist

@sonography_radiology 3 жыл бұрын

Nice video ,Thank you

@AussieCat111 Жыл бұрын

I'm only 36 and while I don't have CLL, I have 1.2% CLL type cells in my bone marrow. White cells low end of normal. Would anyone here who is studying hematology have an opinion whether or not this should be classified as low count MBL Monoclonal B Lymphocytosis?

@spookily1661 3 жыл бұрын

I have always been able to feel my lymph nodes on my neck they’ve been palpable soft and moveable and small but I have a cold

@stephaniepaigethomas9283 2 жыл бұрын

Can you have both CLL and NHL?

@AussieCat111 Жыл бұрын

I think CLL is considered a subtype of NHL.

@MMacAttack 3 жыл бұрын

Can the only symptom be a persistent HIGH WBC ?

@dramritpalsinghkamboj5790 3 жыл бұрын

Yes

@thomashelen856 3 жыл бұрын

@renantefernandez2177 2 жыл бұрын

hi sir, my wbc aver all in in normal values except may neutrophils which is 40% 10%lower than normal and may lymphocytes is 56% anything to worry I'm currently suffering from axiety attack...

@shiv6350 Жыл бұрын

@@renantefernandez2177 wahat happened can you please tell currently I'm facing the same issue 🙏🏻

@farofdead6603 3 жыл бұрын

Can anyone tell what to do if lot of pain in legs or back to patients of leukaemia what to do

@barraqaalim7459 3 жыл бұрын

I recommend you to Dr Okolo herbal medicine which can help you to get cure

@thomashelen856 3 жыл бұрын

@nhlanhlanhlanhla1777 4 жыл бұрын

thank you

@jjmedicine 4 жыл бұрын

You're welcome :)

@MMacAttack 3 жыл бұрын

Can it happen that the only symptom be a sudden persistent HIGH WBC ?

@thomashelen856 3 жыл бұрын

@tinaiye7390 2 жыл бұрын

Thank you Dr Omoh on KZbin for being the reason why am smiling today, your herbal supplements sir are indeed very effective. Keep saving lives Sir,,,

@saidumohammed16 2 жыл бұрын

Meeting Dr Oiah on KZbin has really been one of the best day of my life after years of suffering I have been finally cured from Gingivitis Thanks doc God bless you ...

@spookily1661 3 жыл бұрын

Cancer lymph nodes are firm mine are soft and moveable cancerous nodes are not moveable

@sonyafox3271 2 жыл бұрын

Lymph node’s can grow anywhere inside or outside the body!

@mdrahamatullahmd4574 Жыл бұрын

I was diagnosed cll one year ago by my doctor. I am consuming capsule ibrutinib daily and doing well but my bodyweight has reduces too much. Please suggest diet list that should i follow.

@ex4mple69 11 ай бұрын

you feeling better now? i hope you found something good for you

@mdrahamatullahmd4574 11 ай бұрын

@@ex4mple69 yes, I am quite fine now. Capsule Ibrutinib 140 mg is doing well. I consume two capsules daily.

@spookily1661 3 жыл бұрын

Usually gingers naturally have petchaie all over but I don’t think I have that cause I would have them all over I have some on arms top and 3 on back had them since birth

@GodAloneIsGood 10 ай бұрын

Watch and pray, don't waste time, the Kingdom of Heaven is at hand. Tomorrow is not promised, God's unfathomable mercy is promised. Repent, or we will all parish