Very good and explanatory video, it covers lots of aspects from the disease and it can be seen the effort you've put on it. Just one thing: do not get confused with the terms. Kartagener Syndrome is a variant of PCD, where situs inversus and PCD are present. PCD does not necessarily cause situs inversus, as cilia motility during embriogenesis is not the only mechanism used by the organs to be in their correct place. In our studies, we've seen more than 100 PCD patients and only about 30% had situs inversus. Thank you very much, I really enjoyed the video.
@sj60025 жыл бұрын
I know "syndrome" includes two or more conditions so your explanation makes sense. Thank you for the input!
@waffleiskender57602 жыл бұрын
İs it deadly
@harryseverusgranger255 Жыл бұрын
as a first year medic student, this helps a lot! Thankss! You just earned a new subscriber
@Pixorize Жыл бұрын
Welcome aboard! Thanks for watching!
@fatimamustaphasaleh59815 жыл бұрын
My son is 9 he has this chronic condition he has hearing problems he always had a runny nose and crackles he’s also living with 1 and a half lungs as infection early on wasn’t detected and resulted with scar tissue of his lower left lung ... he is the cutest human god has ever created I’m blessed to have Ali 🤲🏻🤲🏻
@hanifrezaee41365 жыл бұрын
Hi. Can we speak about this? My daughter is also the same.
@fatimamustaphasaleh59815 жыл бұрын
Hanif Rezaee hi I’ll be glad to discuss anything about his condition how old is your daughter
@hanifrezaee41365 жыл бұрын
We can talk better
@ninabouda95302 жыл бұрын
@@fatimamustaphasaleh5981 السلام عليكم انا من الجزاءر اريد التحدث معكي لان ابني لديه نفس المرض
@farokhialikiaaa181 Жыл бұрын
میشه باهم صحبت کنیم منم
@theresa47473 жыл бұрын
This is GREAT! I like how there are mini pathology sketches in between.
@soresonani5 жыл бұрын
I have a presentation about this at uni tomorrow morning and had no idea how to explain all of this! Thanks for clearing things up, very good video
@Pixorize5 жыл бұрын
Thanks Nani! We're glad our videos help.
@АзизбекЭргашев-г4уАй бұрын
perdect explanatiion thank you pixorize
@sadhanasekar8644 жыл бұрын
Great job...I really appreciate the effort u put into in making this video🔥🔥
@luisafigueiredo85285 жыл бұрын
Really good video! I have kartagener syndrome myself, and it helped me out understanding about how my body works (this was better explained that much doctors I've met before lol) Ps: pardon my english
@Pixorize5 жыл бұрын
Luisa, thanks for leaving a note. We hope that more patients and providers find our video useful to spread awareness and understanding of Kartagener Syndrome!
@peet01ful5 жыл бұрын
Hi Luisa Im suffering from this condition, If possible , I want to talk about it with you!!
@fatm44033 ай бұрын
thank you so much very well explained
@DiyaChakrabortyREAL4 жыл бұрын
Brilliant explanation! Thanks.
@CottageontheCorner5 жыл бұрын
Kartagener's Syndrome is Not also known as PCD. Kartagener's Syndrome is when you have PCD along with Situs Inversus Totalis. I've had 3 children with it.
@mahdiarous55404 жыл бұрын
Can you contact me please I need a help
@CottageontheCorner4 жыл бұрын
@@mahdiarous5540 You can dm me on my instagram @LegacyCameras and I'll be happy to help in any way I can.
@erkneverdie5 жыл бұрын
Thank you
@baraatareq30384 жыл бұрын
Thank you so much
@medicoanu72103 жыл бұрын
Thankyou so much 🙏👍👍🙏👍
@aemiir70754 ай бұрын
beautiful
@hagarkhallaf9915 жыл бұрын
Thanks a lot, superb 👏
@Pixorize5 жыл бұрын
Thanks Hagar!
@Fido30RUS5 жыл бұрын
Super! Liked very much
@cseguin5 жыл бұрын
Thanks for sharing . . . I was born with KS/PCD as well as situs inversus - I found out in the past few years that it seems like the hemispheres of the brain are also reversed . . . rather strange.
@mahdiarous55404 жыл бұрын
I have it too Can you contact me please I need a help
@cseguin4 жыл бұрын
@@mahdiarous5540 How do I get in contact with you privately? What can I do to help?
@mahdiarous55404 жыл бұрын
@@cseguin contact me in whatsapp or Facebook 20582271
@mahdiarous55404 жыл бұрын
facebook.com/mahdi.dymaria
@cseguin4 жыл бұрын
@@mahdiarous5540 I don't have a Facebook account - is there another way?
@rehababdelbagi6 ай бұрын
thank u soo much
@Pixorize6 ай бұрын
Thanks for watching!
@ib92304 жыл бұрын
I have been struggling with my condition Primary Ciliary Dyskinesia. Is there anything that can help thin down the abnormally sticky thick mucus which is causing me breathing difficulties. Living in the UK with this rare condition is tough, as there is limited support and knowledge. I have tryed out hypertonic saline, Ventolin nebs, and take daily carbocisteine to thin mucus down. If any one can recommend something i can try, i would highly appreciate it. Thank you.
@adaringbrick17213 жыл бұрын
what did your doctor tell you?
@Ishishika95453 жыл бұрын
I am also facing same condition
@waffleiskender57602 жыл бұрын
West titreşim yeleğini yada her hangi bir fizyoterapi cihazı kullanmıyor musunuz?