CRPS: The Most Painful Disease Known to Humans [complex regional pain syndrome]

This video chronicles the journeys of two patients at Dr. Katinka Van der Merwe's Neurologic Relief Center in Fayetteville, AR. Symptoms of CRPS are also explained.
If you or a loved one is suffering from Neurological Dysfunction, nerve pain, complex regional pain syndrome, postural orthostatic tachycardia, ehlers danlos syndrome or fibromyalgia there is hope! Contact us. Requesting information is completely free, we're here to help.
Call:
479-304-8202
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TheSperoClinic.com/
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Suffering from a Neurological disorder can be incredibly isolating, hopeless and frightening and we understand that. Our treatment protocols are not meant to directly treat CRPS. What we work to achieve is the rehabilitation of the central nervous system.
The nervous system is a collective of nerves stemming throughout your body with the brain as the controller.
Your nervous system controls all of the information that your body transmits to communicate with your brain. In the case of CRPS, your nervous system being damaged, can severely malfunction and send signals in the extreme to simple sensory input. IE - the wind blows on your hands and it feels like a terrible burn. By relaxing and rehabilitating the nervous system, as well as correcting any other imbalances within your brain and body, we hope to reset and restore the proper functionality of the systems within your body.
** We are currently the only facility in the world offering this treatment, our expertise is constantly being developed.
Each patient brings new knowledge and a better understanding of conditions that are widely misunderstood.
It enables us to consistently mold and change our treatment protocol to be the most effective that we possibly can.

[@s.bko1961]

I thought I was losing my mind. Words can’t describe what living with this is like.

[@marytomaino750]

It is beyond horrible. I am in pain management and that is no answer becayse they are prescribking the usual tylenol and ibuprophen. It is beyond ridiculous because now younger doctors are accusing many of drug seeking. I believve it may have been the prednisone I asked for and was told no. They have no idea how we live our lives in so much pain and some days it is horrendous. I typically pick an area I use my tens unit on. I am now researching alternative treatment such as DMSO

[@danbernstein4694]

@@marytomaino750 I developed CRPS about a year after undergoing a bone marrow transplant for cancer treatment. Mild exercise and the drug gabapentin have helped keep it in check until now. They might help you. Good luck.

[@user-hg5pc2ue7s]

I feel like I’m living in a dream! I can’t believe this is my life. I have been admitted so many times…given pain medication and nothing. My children are the only reason I’m still here.

[@BadCompany410]

I’m with you..10 years bedridden. Been kicked out of every hospital and doctor office. Told I’m just a junky and nothing is wrong with me. A lot of the horrible burning that didn’t allow me to walk or do anything has lowered. I’m on my own 2 now. Exactly what you said is how I feel. I’ve been doing this I think about 12 years. I stopped looking and asking for help. Kinda waiting to die and enjoying just being around my kids. Couldn’t do that before. It’s been almost 2 years I’m walking. People expect me to jump back into life. I said I’m feeling a little better. It like the very tip of the huge ass sword was temporarily broken off but the whole thing is still there. The doctors have lied and put false reports on me. I have always called it “the devils disease”. I smashed my foot also. Happened at work. 3 days after I got married. Imagine trying to have a workman’s comp. Case with this in your whole body. I stopped changing colored. There’s really nothing to see. A lot if the symptoms are like withdraws from drugs. I know this because I’ve been called one for years. I’ve done more research than any doctor ever could. I’m glad a few Years back they started studying this. When I got hurt. 3 doctors in the state heard of it. That’s it! A place In Italy was helping people. Supposed to be a place in Arizona now doing it. 🤷🏽‍♂️God bless and you hang in there. Mine reset and change Every time the weather changes seasons. Get hurt or get sick that does it to. I’m getting horrible migraine everyday now. You just hang in there. If you have help from a doctor you’re doing better than some of us. 👍🏽

[@theresacasareale8009]

I totally understand what you're saying. I've been dealing with this since 1997. That pain is excruciating & what makes it worse is Drs not knowing what this disease is like & people who don't believe you! I'm so sorry that you understand what I feel. I wish you didn't suffer too

[@daisyviner5483]

I got diagnosed with crps when I was only 11 and one of the first things that the doctors asked me I’d if I’m hurting myself. This broke my parents hearts so much just to think about it but they never mentioned this to me until I turned 16.

[@user-ub9th6mf9t]

Because of the internet and RSDs patients being able to communicate with the world there has been a polar shift in diagnosis and treatment . 20 years ago most of us wound up in a psych ward before we ever saw a neurologist . Many many of us took the short way out and were lost before treatment could even make a diagnosis . 😢 I am an RSD survivor. 🎉🎉!! I will never be 100% normal but some resemblance of normal .❤❤love to all those that suffer and all that treat us .❤❤❤❤

[@ramonanieubuurt105]

I've had this for 18 years. Lower legs. I gave up on sugar. I have to be careful not to get stressed out or get my feet cold. Extremely blessed I only have occasional bouts. Good luck to those dealing with this crappy disease.

[@joefogarty4698]

I have had so many practitioners ignore it since 2015 after my worst foot had surgery and it made it worse then testosterone injection site right thigh done with an insulin syringe swelled right knee up and and right foot has been on fire since and right ankle began December 2016. I explain this in a different State and it's all in my head. An ARNP prescribed the wrong su

[@jo83au]

Did you find that no sugar helped?

[@ramonanieubuurt105]

@@jo83au yes

[@michellenainkristinabusch1221]

Stress is a huge, huge contribution to having flare ups.

[@ramonanieubuurt105]

@jo83au yes. I ate anything especially sugar ie candy to try to gain weight.

[@kaylielevasseur8984]

beautiful story, i watched my mother suffer from this disease years ago and the doctors kept giving her drugs over and over to the point the pain was so bad she attempted suicide hope they can find a cure for this evil syndrome soon

[@msroach51]

😢

[@russelsantiago4756]

I feel the same way if i were in that situation

[@crissy297]

I tripped over a tree root when I was 9. Day after my birthday. I thought it was a sprain that just kept getting worse, got to the point I couldnt walk on it without pain or swelling. Just like they say in the video test results came back normal. One day I went to an orthopedic doctor and he diagnosed me with rsds. I was wheelchair bound for five years. They tried spinal steroid treatments, which allowed me to discover that I was allergic to steroids and did more harm than good, and if my pediatrician hadn't cared a little too much and threatened legal action, they were going to try an experimental spinal electro therapy. After a bit I was just put on massive amounts of pain meds for a 12 year old. They gave me calcium for my bones, and anti depressants, which I was told were sleeping pills, and didnt learn i had an unofficial diagnosis of depression until years later when I was old enough to understand. I would cry in my sleep from pain and when I woke my hands would be clenched tight and took me so long to open them I had to start sleeping with dolls or rolled up socks in my hands. I suffered from severe loneliness because I was removed from school because the only option the school had was to hold me back in special education because i needed to be in a wheelchair. So I spent 6 years homeschooling. My foot swelled so much my flesh started ripping. I have a scar on top of my foot from that. I lost my health insurance and my step dad who was recieving benefits from a near fatal car incident during work, kind of disqualified me from assistance. So I took mind numb medication. When I was fifteen I was finally able to use a walker, and at 16 I went back to public school with a cane. When I was 17 I got laid up again, woke up one morning in so much pain I couldnt walk. Spent that school year home again, and the next back at school with a used handicap scooter my uncle rebuilt. At 18 I went off the hard core meds because I was tired of being confused all the time. I found a way to deal with pain, to endure. I'm 29 now, almost 30. It's been 20 years 11 months and 2 days since I injured myself on that stupid tree. My friends kids went to that school, we went to a performance there and on the way out I pointed and told my family that tree is the one that broke my body. Sometimes I feel like an imposter. I can walk now, I have three jobs, two of which involve caretaking. I am even my step dads caretaker, and he had been disabled 1 year less than I, 1 year to the day if you believe it. But everyday I wake in pain. And I dont look to go through more therapy or treatments that dont work, not that I devalue the treatments that do seem to work. I feel like an imposter because everyone endures pain and suffering. Sometimes think I must be a weakling or overly sensitive. But to hear that the pain I feel is valid, that what I have dealt with what I do deal with, even though I have found a way to cope, is not something that can or should be scoffed at. I have never spoken to another person with rsds or crps, but hearing testimonials makes me feel less alone, less like a fool. It takes the bite off of the loneliness and isolation that this untraceable pain drapes us in.

[@lovegod5685]

I was diagnosed with CRPS April 5th 2023 due to injury at work they have yet to get me into pain management. I’m physically and mentally tired. They have done a sympathetic Nerve Block which did more harm then good, my blood pressure is out of whack now and I’m so tired of the many Doctors I’ve seen through work comp not helping me. They want do anything to help with the pain except gabapentin. I wish I received the same medical care as everyone else.

[@Mantisman6233]

I have good health insurance. I still have had the same experience you described. Going to the doctor tomorrow to tell him I'm not taking gabapentin, Cymbalta or Lyrica anymore. It doesn't help the pain and makes me sick. I was maxed out at 1200 mg 3x a day. I don't know what the answer is but those cursed drugs aren't it. I hope you get better.

[@user-ox6eq9tw9s]

Past 2 years for me it’s a living nightmare. I’m falling apart and don’t know what to do anymore. Everyone either tells me I’m broken or crazy.

[@user-ox6eq9tw9s]

Nothing works for me and I’m about ready to give up.

[@GoldPeakLLC]

M I’m dealing with something similar. I tried everything under the sun. Couple things to keep in mind. This is a brain issue and nervous system issue. Look into neuroplasticity, this can change. Look into Longvida turmeric which can calm inflammation and cross the blood brain barrier. Also buy a supplement called N-ACETYL CYSTEINE, use 1200mg. Also get a good quality fish oil with epa above 900mg. Try to atleast 3 weeks. If improved continue this, try exercise and try hypnotherapy or meditation. One really big thing to try also is ketamine infusion. Definitely do this!! Follow all of this and I’m certain you will improve.

[@rhiennarose7933]

Are you okay??

[@user-ox6eq9tw9s]

Rhienna rose well it’s been 3 years now and it’s still just as hard but I’m still here aren’t I?

[@dr.premlatadangi3676]

@@GoldPeakLLC thank you for your believe,I will surely try it ,then I will get you to know.thank you very much.

[@88pjtink]

this so reflects what my life has been for 3 years that i wept uncontrollably. absolute living hell.

[@lisawalsh218]

I totally understand you! I was diagnosed in 2012 and been in years of physical therapy. The day I could turn a door handle I cried I was so happy. My heart goes out to you and anyone living with this horrible disease.

[@DrKatinkavanderMerwe]

You should contact our patient care coordinator, Anna. 478 304 8202

[@1Anton2222]

I tried to kill my self but it didn’t work and I shouldn’t have woken up. I took a full month of 2 opioids and Xanax it would definitely have killed 15 people and I woke up after 3 days

[@1Anton2222]

Dr. Katinka van der Merwe I had no luck with anything that I tried

[@dr.premlatadangi3676]

@@lisawalsh218 hi Lisa ,what type exercise have you done

[@vmpkai]

i've been dealing with it since the end of 2020. its ruined my exams, my social life, my self esteem and my mental health. the times when the flare ups are bad i dont even leave the house because of how embarrassed i feel on my crutches and having people pity me it's in my right leg and arm, and i'm scared it's going to spread. nobody understands the pain and i am always told it's my fault for not doing excersizes, yet it hurts to even stand for 5 minutes. i get shamed by family because i'm only 16 with such a disease this explains everything so well, and it makes me somewhat grateful that mine hasn't reached their levels of insufferable

[@kstreet7438]

Age has not a thing to do with it... But good news at a younger age you have a better chance of getting better

[@rivenysa6815]

I can not imagine what it feels like but I truly hope you can find a right doctor and live a happy life, please don’t blame yourself for having a disease… it’s really unfortunate if a family doesn’t want to understand but maybe there is still hope you will get through to them Best of luck and stay strong!

[@danbernstein4694]

for what its worth a combination of mild exercise and the drug gabapentin has kept my CRPS under control thus far. Good luck

[@cionnastarks9462]

My son just got diagnosed with this . We went to different Emergency rooms everyday for 6 days til we got answers. He is still in pain. He has a pain management appt in a week.

[@romeomsfg3109]

Life can be so fucking cruel 😞

[@ginatails]

My dad has CRPS and he has multiple heat pads and ice packs. I hear him screaming from the pain every single day. It’s almost impossible for him to fall asleep and he has had CRPS since 2010. He also got almost paralyzed from CRPS and it’s really hard for him to walk even though he can with a cane, but he usually has to use a wheelchair. He smokes a lot, so I think he also has emphysema because he hasn’t been able to go up stairs for years, and he also is very out of breath when he even walks to another room.

[@marsha9435]

Heating pad and ice packs make the pain worse. I have been dealing with crps for the last 4 years.

[@carolynspeechly5934]

I'm so sorry for you and feel deeply for your poor darling dad and mum sending my prayers to your family.

[@thecurtray]

sorry you have to deal with. i also have it. your dad hates it i am sure. i am 58 vet who still remembers being a kid playing but kids think we are old. we still want to have fun and do stupid stuff for fun. life sure does go by fast. you are the best helping the old man out. one day soon you will be the old man but a man no less.

[@paulcunnane4]

God bless you.

[@stevehope6283]

Ice is almost always a big No No! I got better without it. I wouldn't have known this if it wasn't for a support group I joined on FB.

[@nicksauer4085]

I have stepped up to the line twice now to pull my own plug. 8 years with RSD/CRPS and every time I’m told someone can fix me and it doesn’t work it pushes me further to that line. I am so happy for that woman though.

[@DrKatinkavanderMerwe]

Nick, I hate to say this is a common story from all of our patients... Many had suicide plans in place when they came to us. They've tried everything else. But the body is capable of healing when given the right tools, so please don't give up. You should go to our website www.thesperoclinic.com to see stories of hope from our former patients...

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@Saffy1999]

I was so lucky to get a diagnoses of this within 2 weeks of a crush injury. I was ‘luckily’ rushed to hospital the same day I got the injury as they thought it was “Compartment SYndrome” … after two weeks in Hospital, I was diagnosed with this in my right hand. I now have it in my shoulder, neck, head, bladder and right foot. Unfortunately because I had a SCS for Sciatic pain which failed, I cannot have another. I live in pain.

[@lynnbennett6848]

Im so happy and grateful for the help these people received. Hopefully we can all get the help we need.

[@user-zl5yi6qd2t]

Thank you for the important information I been with crps for 6 years and a Wheelchair and in so much pain and depression

[@thevind1cator964]

I got it at the age of 12. I spent the next 20 years going from doctor to doctor telling me it's all in my head. There is nothing wrong. By the time I got a diagnosis, I couldn't walk. I was looking at a wheelchair. I couldn't do the most basic of things. I went to a pain clinic in my country, and basically got an 8 week physio thearapy course, and sent on my way. 12 years later. I'm off crutches for the most part. I still have days where I need them as I can not put my heel on the ground (that's where it stems from due to a major crush injury) Showering still feels like battery acid down my entire left side. There are days/weeks/months where I can't get out of bed, or eat. I have contemplated ending it all many times over my life time. I don't see an end to it, but I keep going. I'm just too stubborn to let it get me. Sex is still almost unbearable. This thing gets into every facit of your life! Anyway I just wanted to say thank you for your efforts. It may be too late for me, but I'm happy in the hope that the younger people getting diagnosed earlier and earlier these days have a chance at some relief.

[@GoldPeakLLC]

Did you ever read Dr Sarno’s book healing back pain? I have a similar condition and was counseled by someone that dealt with CRPS and healed it completely. It’s mind body work and takes real effort but it’s literally the only way to really heal. Brain is sending wrong signals and neuroplastic changes should take care of you.

[@kimpeasester]

I've lived your life, still am. My spirituality has helped me immensely along with a great team of doctors! You need good doctors that work together as a team! Unfortunately, it seems like the only way you have this happen is if you do something drastic, like try to take your own life...like I did...I was angry that I survived 5 days in a coma. Angry that my step daughter found me. But....I ended up with so many doctors and free help and home care and a great pain management doctor that now I'm not suffering like before. I'm taking a pain patch/film you put in cheek of your mouth. It's called Belbuca...and it's been great. I still have pain every day but it's at a 3, 4, 5 ,6,7,..I can function. I still get bad days that sometimes turn into a month of bad pain but I can handle it now cause I get a break in between when I have less pain. My rsd just spread again. I've had it 12 years now. It has spread to my lower back, my right hip and sciatic nerve and my left leg and foot. so I've been having alot of bad pain lately. And I'm already anxious because my pain management Dr is retiring early. He's already dropped down to 4 days a week. Anyway sweetie I want to try to help or encourage you today. First and MOST IMPORTANTLY: IT HELPS SO MUCH TO LIVE IN A STATE WITH GREAT MEDICAL CARE! I'm so happy I live in the best state because I'm getting free medical appointments, free prescriptions, free therapies, free transportation, free housekeeping, free meals cooked, someone who runs my errands, and there's so much more help I can get if I need it. I live in Massachusetts! The other great thing to help with the pain is to REALLY know your limitations and/or triggers. As well as taking care of your anxiety thru meds and therapy and meditation...it all works!There's more I'd like to say but right now I know my limitations and my pain is increasing so I need to go chill. and yes, it does get lonely when you have rsd. To my surprise, friends I've had for years quickly disappeared when I got I'll. I needed therapy for that too!lol..I wish you better days and feel free to reach out to me. Sending hugs, Kim

[@thevind1cator964]

@@kimpeasester I live in New Zealand. Pretty much free medical, or heavily subsidised prescriptions. I did a pain management course a few years back. Now it's the grind of keeping it up! Mine spread also. Started in my left heel, now it's every part of my left side. I just keep plodding. It's the thought of the one's I love, and my spirituality, that stops me doing anything stupid. That's not to say I haven't come close a few times, over the years. Stay strong :)

[@sarahlehl6741]

This "treatment" did not work for me. I am delighted for these young Women!

[@MrDimentio]

I have a friend that has CRPS. She has to deal with chronic pain a lot. Ketamine has been the most effective for her in regards of treatment.

[@dr.premlatadangi3676]

Hi Mr Dimentio, how frequent is she go through IV ketamin .I mean to say in a year, and how long she is on katamin .

[@blissbombseventeen8114]

It’s the only thing that works for me too. That, and walking ON my CRPS foot. I have since diagnosis, 7 weeks in.

[@bettya9916]

Insurance doesn't pay for ketamine OR for this clinic. I find that to be incredibly sad. I've lived with this for 44 years. No treatment. I won't take pain meds.

[@StrangeThings2.0]

Ketamine infusions dropped mine from 8/10 pain to 2/10 for 3 months. Waiting to have 3 infusions a month apart to see if I can get 6 to 9 months relief. Ketamine troches aren't strong enough, but better than nothing. Expensive. I'm about to run out & I'm in 9/10 pain.

[@StrangeThings2.0]

​@@bettya9916i get mine thrifty a public hospital. You need to find a hospital that does it, get a referral from your Dr or specialist & wait list may be long but worth it. It's an infusion monitored by nurses & an anaesthetist

[@officialmamatoolive]

This video might change my life if i can find a place in Texas. It's been nearly 23 plus years living with RSD/CRPS. Thank ypu!

[@DrKatinkavanderMerwe]

Shely McPeak we are currently the only center of its kind in the wold. Most of our patients have to travel long distances to see us. You may reach our patient care coordinator, Anna, at 479 304 8202

[@mandiehamlin4284]

I see a dr in Texas for my crps... look up Dr . Schade I have seen him for 10 years

[@slopedog]

What is the treatment for this and is it expensive?

[@stacieball977]

The Texas Medical Center in Houston is the largest medical center in the United States. People come from all over the world to be treated for just about anything you can think of. I am thankful to live here. The TMC is like a city unto itself!

[@svondriska]

@@slopedog it’s over 70k.. so while it looks promising.. the majority of us with CRPS will never be able to access this treatment. As they say, they are the only clinic in the US/World providing these treatments. Seeing these stories is promising until you realize you won’t ever realistically be able to go.

[@alankimachiwong6536]

Mashallah This brings back hope to humanity that there are people out there that can help 🙏

[@faridwiser5441]

ameen

[@ja_lil]

OMG that's exactly how I felt and still feel, it the worst thing imaginable

[@JyaiZEN]

Yup every second of every minute of everyday every single day this is how I feel😞😞

[@thestanleylife]

I was new to the area, it was the first time I'd ever moved and it was a big move right from the bottom of the country to the top. I was just starting secondary school in year 7 and made friends with the popular group (they thought I was cool or something because I was from a big city). They seemed genuine but I didn't really like being popular. Which worked out well for me in the end. My so called "friends" started to abandon me after I'd been diagnosed with CRPS. They didn't understand it and there is a lot to understand, but they could have at least tried. Because I was on crutches as my crps is in my foot, I was allowed to leave lessons 5 minutes early with one other person which I had arranged for someone in each class to go with me but over time I was just going with people I didn't know. One time I was taken by someone in my form who I'd always seen but never spoken to (she is now my best friend). One time in English, one of my popular friends could've taken me again and I was getting anxious to go by myself. I didn't need to worry about that for long because a girl I'd again, always seen with who I assumed were her friends but never really spoken to turned around, as she sat directly in front of me, and asked me if I wanted to go with her. I said yes (which I probably one of the best things I've ever done) and she seemed really nice. We had the same history after English so it worked well going together and by this point I had sort of left the Popular group as they had made it clear that they were only friends with me because it was a forced friendship (the 'ringleader' of the group's dad is a teacher at our school so he told his daughter to be friends with me because I didn't know anyone yet). The girl I'd met in English and I became friends and by this time I was eating lunch with the girl from my form who is now my best friend. One day the girl from my English (who doesn't know the girl from my form yet) comes up to us when we're eating and asks if we wanted to eat with her and her 2 other friends who I'd never met before and let me tell you, saying yes was definitely the right choice. The five of us started eating together every day and now, we're all a really good and close friend group. The kind you think only exists in your imagination because it's so perfect. It's been almost 3 years now and we're still going strong! I got diagnosed with CRPS when I was 11. I'm 14 now and I feel like having to accept that amount of pain so much so that even someone dragging a tissue over my foot caused me to be in immense paint at such a young age , having to deal with everyone at school saying I was faking it because "my broken leg was taking too long to heal" really strengthened me. And when I look at the bright side? If I hadn't gotten diagnosed then I would never have met my real friends, the ones I know will never leave me.

[@thestanleylife]

Sorry for the incredibly long comment

[@jo83au]

I have both types of CRPS since I was 5 yrs old, so over 36 years. First started when my foot went into the spokes on the wheel of my mums bike (still remember it like it was yesterday), second type started when a surgeon severed a major nerve in my leg. I got to the stage I was bed ridden for 6 months because to roll over put me intthe worst pain Ive ever experienced in my life, and i was placed on 3800mg of gabapentin plus a 100mg fantenal patch. I went into remission the last 10 years with my chronic pain only being a 3 on our pain scale. Until i required a major ankle surgery which has set off the CRPS i my ankle. I now also potentially have CRPS in my lungs and heart after suffering a massive Pulmonary Embolism (blood clot) that almost killed me.

[@jkm6998]

RIP Chantelle 💔

[@daveysodyssey9990]

I have this disease. This is 100% accurate

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@beenthere.doneit201]

I have been suffering with CRPS. Since 2016.

[@Johnsonjane1999]

I have experienced Complex Regional Pain Syndrome (CRPS) for the past 10 years after surviving a "stroke on an airplane" flight..(CPRS) affects the nerves....I recently tried using micro dosing and it has began to release the pain in my left hand....first time in 10 years I felt I would finally heal my nerves.

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@SageGilbert191]

I hope this gets better for You soon

[@eternallygratefulholistic2422]

Is this chiropractic? How do I find one near N Calif?

[@cristianrios6740]

What exactly did they do though? Did they use any medication as well?

[@priscillalimon9749]

How did the develop this disease?

[@Mantisman6233]

I'm bed ridden most of the time. I can't leave the house except for doctor appointments. If my foot isn't elevated, I am in suicidal pain. The CRPS has started spreading up my leg and to my other foot. I'm 55 and my life as I knew it is over. Dying isn't the worst thing that can happen. Living in this burning hell is worse.

[@Dog.MOm_]

Aches pains stabbing pain aches so bad 😢I've been going threw thiS for 17 years after my first accient got worse

[@theadaptiveone]

Is there much hope for people, who were diagnosed too late?

[@Crazy1200.]

I was 9 when we found out. I lost all my friends. Due to them bully me about it before I found out I had CRPS. Now I’m have friends who love to push my wheelchair outside. I’m only in at when it’s way to bad. 😊

[@sarahmcmillian9371]

I have had RSD since l was 27 l would like to tell my story and meet other people like me

[@kstreet7438]

I'm 29. We exist

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@empoweredwomen]

Wait, what's the treatment

[@supme7558]

Yeah right

[@justing1810]

What causes it

[@lucyannmcwilliams3889]

This has really helped me, as my whole life has changed, my husband left me. . . It has been the most devastating pain I have ever experienced. It has broken my family up. I am being treated at Stanford hospital.

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@brigittewendt8054]

Own family still thinks cure been suffering told if ur yellg ur not in pain it's suicide pain omg giv this evulvğ

[@foxtrot2284]

I have it in my left foot and hey guess what! I just got it in my right foot! Thankfully both times doctors were able to figure out what it was and treat it quick but I still get extremely bad flare ups sometimes and for the past month my right foot has been discolored. No one understands how bad this hurts and most my friends and family think I’m faking. I’m on crutches due to the recent development in my right foot and my cheer coach is mad at me for it. She keeps asking like when are you going to be off crutches and the other girls think I’m faking it. I hate complex so much and is horrible

[@ailimontague155]

I don’t have this disease but I just want to let you know that even though you are a stranger I am thinking of you and fighting for you, ❤️

[@dr.premlatadangi3676]

Then how you get relief.

[@foxtrot2284]

@@dr.premlatadangi3676 how do I get relief? I usually use hot packs or take a bath and use epsom salts. it doesn't take away all the pain, but it helps me relax. I also use specialized inserts for my feet because the root of the problem started because I had no arch in my foot

[@dr.premlatadangi3676]

How you use Epsom salt at home. I mean to say, how you prepare solution of it .in what ratio.please expand it.

[@foxtrot2284]

@@dr.premlatadangi3676 i just buy the stuff at the store that's for muscle relief and put in whatever amount feels good to me, sorry! I've never had a specific amount. I'm sure you could find how to prepare epsom salt at home on pintrest or something though. i would say that I use around at most 1/4 of a cup though.

[@manuelmoraleda9684]

This disease is still unexplained and no effective treatment is present. I read about Tetradotoxin as a possible treatment. Any progress on that ?

[@gallardoozzie]

Hi, I cannot Believe that I can get cured, where is your clinic located and I loved the video very inspiring. Thank you!!

[@DrKatinkavanderMerwe]

gallardoozzie we do not believe in the idea of “curing” anything, we believe it’s possible to heal, with hard work and coaching by capable and caring individuals with plenty of experience. Our patient care coordinator, Anna, can be reached at 479 304 8202. Thank you for the kind words! We have another wonderful video on www.thesperoclinic.com

[@samgray49]

CRPS sufferer here, you can't cure CRPS but put it in remission. I've been lucky to not have severe RSD but it is agonizing on most days, I've done PT OT and chiropractor and is the only thing that worked.

[@dr.premlatadangi3676]

@@samgray49 what do you mean by PT O T ,please explain it.so other suffers can get benffit.please share

[@ansel203]

@@dr.premlatadangi3676 Physical therapy and occupational therapy

[@kellianai5985]

This is my life. 😢

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@outsidetheboxcouturellc1668]

just fiagnosed with this after months of a crush injury..As a ex army combat vet..who suffets deoression,anxiety,ptsd..it is hard but WE MUST FIGHT!

[@ryanbowman4799]

Fr i got it due to a complicatuon during my hip surgery after watching this Im just grateful it is only in one foot and that it is really improving

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@officialmamatoolive]

Thank you, i will look into it, i may need to start a go fund me page to afford this and living expenses while I'm there.. I really want to check out this clinic, ive had RSD/CRPS for well over 23 years and I've almost tried it all, then texas workers comp quit paying for treatments over 15 years ago. They barely approve my pain management doctor for medication, which are no longer covered by worker's comp, so my other insurance pays some and good rx helps, my copay is $200+ a month.

[@dhebert111]

Hey. I'm in a similar situation. I've been dealing with it for 10 years now. I've also been fighting with WCB Alberta for 10 years. A couple years ago I got to the appeals commission hearing stage, but my claim was so complex they could only reach a decision on 1/3rd of the appeal and left the rest for an adjournment at a later date. The stuff they did decide on I won which was unbelievably reassuring. WCB had left me without any financial compensation or treatment for years. I lost 2 homes and sold all of my possessions just to afford treatment, medications, surgery, therapy not to mention living expenses. I had been working in the oilfields my entire adult life, since age 18. I've been seeing a team of specialists since my 1st appeal for the past few years and I've started to see a plateau of my condition. I'm not in remission yet, but at least its halted progression of the disease and I'm extremely grateful for that. Seeing as though I've been diagnosed and repeatedly tested by a multitude of specialists during these past few years of treatments.(hundreds of hours) I'm now ready to complete my appeal hearing and the commission has set aside 2 full days to hear from all of those specialists next month. They usually set aside 1-2 hours per regular hearings of appeals. I'm hoping my claim will help a lot of people with their claims going forward. I just want you to know that there are people who sympathize with your plight and that's why I'm sharing my story with you. Although I don't know you, and your from a different country we have something in common. So please answer this comment so we can continue this discussion properly and privately. Just hang in there o.k.

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@rdeh1678]

Mine was caused by a surgeon making a mistake and cut a nerve becuase he cut out out the wrong ribs for a work injury that caused me to get thoracic outlet syndrome, i now was forced retirement by worksafe insurance. My case is so bad that even the best clinic in canada said they could not help me

[@kimhickman9210]

I’ve got stage 2, caused by surgery I broke my heel bone in 2 places, I wear a offloading brace so my foot never touches the ground. The pain is finally getting to me and all I keep thinking I need to take my life, I can’t go anymore. I’m bedridden for 4 years and use my wheelchair for going out.

[@kaitlin2123]

im in the same situation as we speak, caused by a fractured foot though. im bedbound, and i completely get you. please reach out to somebody who you care about and explain everything even if you feel weak for doing so.

[@user-nq3xs5yj5c]

I got cros after i shattered my ankles and legs in the army. I cant even explain the pain. I was going insane. Oral meds only help so much. I finally got a pain pump implanted in my stomach and i finally live at a 3-4 lain out of 10. Its still horrible but i cam at least get sleep so praise jesus.

[@danielmouton4952]

I've had this horrifying condition for 14 years now. All my top teeth fell apart and I only have a few of my bottom teeth left after a nurse practitioner prescribed an anti-depressant supposedly for the anti-neuropathic capability and within 3 weeks all my top teeth just crumbled and my pain management doctor refused to take responsibility. I contacted over 10 lawyers and it was only after finding the 11 lawyer were they even willing to help me but they determined that too much time had passed and my case had prescribed. So, that was just my warning not to mix anti-depressants with any type of opiates, methadone, gabapentin, etc. Secondly, how about someone explaining what was done to help the 2 patients in the video instead of leaving the watchers and possibly co-sufferers like me with no hope other than 2 girls smiling, Exactly what was done to help them?

[@DrKatinkavanderMerwe]

You can find information on our treatment program on our website, www.thesperoclinic.com

[@nidgespadge4618]

Amytriptaline....whete you prescribed that.. Teeth etc..?

[@rebecarodriguez91]

This is horrible. What medication was it exactly? CRPS is treated with antidepressants because of how badly the pain/social toll it takes on the patients. I'm currently on bupropion which is an antidepressant and on gabbapentin with percocet. This mix has worked well for me but no doctor has told me this was bad. With my luck I could have an outcome like yours, idk but could you please share a bit more? I'm so sorry this happened to you. I hope you can find a solution with a dentist soon.

[@danielmouton4952]

@@rebecarodriguez91 @Rebeca Rodriguez Rebeca, I just saw your post. I am super busy meeting with lawyers this week. I don't want to tell you the name of the wrong anti-depressant. I will go back and review my prescription records from approx. 3 years ago to ensure that I provide you with the correct information since this is so important. I will get back to you soon. Danny

[@rebecarodriguez91]

@@danielmouton4952 bless you and thank you so much, I appreciate it 🙏🏼

[@jamiesoares7108]

It took 7 years to get a diagnosis. By then it spread to full body. Mine started out of the blue not from injury.

[@poojakadakia1763]

I have left arm- foot is the worse 😢

[@gracieburt6746]

That’s what I have and it hurts so so bad

[@starshine1305]

Gracie Burt same here

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@PK-xx2tm]

What treatment do i ask for? Pls reply asap before it's too late thank you so much for help I'm at the end of my rope

[@DrKatinkavanderMerwe]

P K you may reach our patient care advocate, Anna, at 479 304 8202.

[@PK-xx2tm]

@@DrKatinkavanderMerwe thank you very much thank you. Is there a toll free number I can call from Canada? Exhausted all treatments here:(

[@DrKatinkavanderMerwe]

P K I’m so sorry, we do not have a toll free number.

[@DrKatinkavanderMerwe]

If you message us at The Neurologic Relief Center, we can email you all the relevant information.

[@Somuchfalsehistory]

@@DrKatinkavanderMerwe Hi , I have lived with this crap as I call it 11 years now . Life is grim but I tell myself pain sensors are in my head. I am in a horrible flare again. I will try and contact u

[@thereal4113]

I have CRPS begining in my foot as a result of an accident four years ago. A podiatrist mentioned it in passing. I was too sidtracked having been, through 5 surgeries. I had been diagnosed with Tarsal Tunnel syndrome in which a plastic surgeon unraveled the trapped nerves. I followed up after 1 year explaining the pain was like bugs running along my foot. He told me to give myself more time to heal. I saw him after 2 years, and he just looked at me as if I was crazy. The pain has traveled to my shins and calf. I also had numerous pain mgt injections in my back with little success. I now take Alpa Lipoic Acid (600mgs) along with many other supplements. I also joined a gym because I've exhausted my physical therapy sessions. Can anyone recommend a doctor in NY who specializes in this horrible syndrome?

[@dorenehendricks6627]

If u do not have this u have no idea how bad it is

[@jacyann8533]

Why would he not assemble and tape the bottom of the box BEFORE putting ghe drumnset inside thd box???!

[@doveseye.4666]

I thought ankylosing spondylitis damage as the most painful, google says only contractions for a contraction was worse but AS never stops so its the most painful, fused skeleton?

[@idunno9863]

I have it too and its been getting worse soooo fast

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@Sabina-bo8mi]

Please could you tell what the treatment is or how we can access this. I am not in US

[@DrKatinkavanderMerwe]

Hi Sabina! We have a neurologic recovery program that is designed to rehabilitate the central nervous system. Our clinic is the only one of its kind. People travel to us from all over the world for treatment. For more info, please go to www.thesperoclinic.com!

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@BBEEAATTNNGGUU]

I'm so tired of living like this.

[@PumpkinPotatoHead]

Chantelle Baxter, the Australian girl in this video has just taken her life due to this disease. What an agonising way do live and die. RIP.

[@timbacon2449]

How did you come by the information about Chantelle's sad death? Can you us a link, or whatever? Anyway, I have this vile disease too. Like most of us CRPS folk, my experiences with most doctors have been very stressful. Most of them know nothing, or next to nothing, about it. What really gets to me though is their often blank refusal to educate themselves about CRPS. They tell you things that are 100% untrue, like it can't spread. If you can't get CRPS into "remission" within the first 12 months, you're likely in it for the long haul. BUT, you can have a worthwhile life with this shitty illness. If you can keep mobile, that's great. And work on distracting your mind from thinking about it, which is easier said than done.

[@MsLoriGold]

Tragic. May she Rest in Peace.

[@bettya9916]

I hate knowing this. I can't afford to go there but I always hope those who's family's spend $100,000 get to be pain free and live. We don't hear those stories from Spero.

[@melrose8213]

Please help me

[@DrKatinkavanderMerwe]

You can contact our patient care advocate, Anna, at 479-304-8202 and she would be happy to assist you. Don't lose hope.

[@Taylor-wn5xt]

I have Trigeminal Neuralgia and CRPS in the face and neck....... it 's miserable and they"re both known as the suicide disease

[@myhalldrummr]

I have this and my pain doctor won’t prescribe anything but antidepressants which I’m allergic to. I’m crippled and can’t walk.

[@DrKatinkavanderMerwe]

Mandy, you should look into our treatment program. Please don’t lose hope.

[@myhalldrummr]

@@DrKatinkavanderMerwe I did call and spoke to a wonderful woman. Unfortunately I am so broke not able to work and she said nothing available until March 9 months away. I don’t know how to raise funds. I’m a widow single mother.

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@patt6653]

HBOT plus physio is all you need for complete recovery. Expensive...should be covered by insurance. Probably a lot cheaper than drugs and pain blocks whichare barbaric. I had rsd badly in 2001 and went Oxygen Chamber for 3 ,4 days a week months...FULL recovery!!!

[@AN-dn4ed]

Hi Patt, do you think we can connect? I have crps is left foot/ankle. I’m started to get degeneration. Just called a HBOT place to get treatment. Want to hear more about yours.

[@Nigel-uw7it]

34 years with CRPS type 2......I understand

[@kstreet7438]

6 years type 1

[@theobservertheseekerthewan1824]

WOW! Its Me, or at least My Nightmare for 24+ yrs. Since a job injury in 1997. First it was in my Left Leg/Foot, then after a Botched Spinal Cord Revision, it went FULL Body You would think this would be My Worst Nightmare, But I was Wrong, My ""WORST"" Nightmare, is that its Gone Internal, This Has Become ""A Death Sentence""!!! I Have Fought this "Nightmare/ The Beast/Monster" For 24+ yrs, even though its Hard to live this way (Its Not Living, its Just existing) I first Fought to be still alive for my Son, Daughter & Family. But this is One Fight, Where I'm ready to Throw in the Towel, I can't Live Like this Anymore. The ""PAIN"" is TOO Much, Nothing Helps With the Internal Pain, and Because of the Pain, I can't eat, So I have Lost over 100lbs & still losing! Its getting Worse and I Honestly Don't know what to do, I don't know How to get through this, Don't know if I can get through this, the Constant Pain in my stomach, Pancreas, Kidney, Spleen etc. Is Killing Me, More than it ever has/had. You know After the Initial Injury, I believed I could & would Fight this ""Nightmare Monster""!! But Now I'm So Ready to End it All, Just to take the Pain away, to make it STOP!! I Always say ""RSD/CRPS is the "Gift" that Keeps on Giving, NOT!!"" & this with it going Internal, I'm So Shocked, Just Can't Believe It!

[@DrKatinkavanderMerwe]

Please look into our program. We have treated many patients with a story so similar to yours. There is hope.

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@brigittewendt8054]

Gang block dont work made me more numb

[@xylondacollins]

(American Sign Language): I have Crps type 2 on my middle toe of left foot. I can't deal with the pain sometimes that it has increased now. Do you know any over the counter medicines that will 100% help? Or I need to get a medicine prescription by my doctor?

[@netentiny]

You need prescription meds, unless you live somewhere where weed is legal. That helps too

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@lisabaugh7411]

I always call it THE MONSTER! I've had this shit for 23 years. It's in both feet and legs. I know that women's feeling. I hate when the weather changes to this day. Even in remission my bones hurt STILL.

[@sweetness34km]

27 year's and counting only therapies that helped my biofeedback, including heart math and sensory motor reprogramming integrative manual therapies ie cranial sacral miofasia release, miofasia adhesions are a massive problem vascular spasm release to increase blood flow and reduce leaking lymphatic work zero balancing neuromuscular massage, aquatic therapies.body temperature therapeutic pools and hot tubs 103 degrees saunas dry and steam another major factor in relief was doctors writing prescriptions to move to a warm dry climate humidity and barometric pressure changes a a massive problem. Enhancements a few mild meds thhst have been around since ww2 traditional Chinese massage, acupuncture cupping herbs digestive system work and MMJ especially indica at night and sativa during the day. All the new really strong meds made me extremely sick.

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@kerryswann655]

Can anyone assist me I'm desperate. I have CRPS and living in Australia. I'm getting worse and I'm need help . Anyone know who can help

[@georgiamackinlay5706]

This is the Spero clinic in America. We don't have anything like it here in Australia unfortunately. There are elements we can do over here though like the diet part (they test for all allergies) and I'm currently looking into total body modification which is a modern chiropractic technique

[@debbiesteve2217]

Have you looked into MMS it has amazing results but not sure about this

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@sweetness34km]

It's not tailored to rsd crps zero explanations on what you're doing also it's not just the brain fundamental changes in the brainstem as well as nerve roots as well as the central nervous system not just sympathetic and para sympathetic systems

[@MaddyLockman]

You really just threw every possible neuroscience term into a comment in hopes one would stick

[@Sheywh12]

If it’s this easy to get rid of the pain then why is t this more well known by all physicians that treat RSD/CRPS?? I’ve had this for 21 years This September will be 22 years since I worked?? I lived with a pain pump for 19 years!! I don’t understand if there is a cure why is it not known??

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@stephaniecrahal5336]

There isn't a cure, and I hear this treatment is $70,000-100,000.

[@cristobalmanuelmoreno.llan2215]

Imagine when they tell you you are crazy and you didnt

[@cristobalmanuelmoreno.llan2215]

For years

[@brigittewendt8054]

Crps angels lets get togthet its only us against the world i feel were not beloved bit hated when somth cant be done lets jion jands oh pretend too since ainfulll

[@brigittewendt8054]

My husband called me DAMAGED GOODS CRPS

[@nidgespadge4618]

Had this entire upper torso.. And both thighs... Internally stomach.. Had enough. Told to hang myself and assaulted by partner... Arrrsted by police for her assaulting me. Me trying to stop her.. Lost son.. Home.. Everything for lies.. Now riddled... The world's sick.. Ketamine helped.. Tortured to death.

[@donk1822]

I lived with this condition for several years and was taking 300mg of Tramadol a day which kept the worst of the pain at bay, most of the time. When Covid hit I began taking 5,000 itu's of vitamin D3 a day, religiously. I have been totally pain free for over 2 years now. It took 6 months for the condition to ease to the point where PK's became unnecessary, and about 9 months to fully go away. Give it a try, it can't hurt you.

[@bekahdoug5572]

Is this generally a women's syndrome? I've never seen a story about a man having it. Is it just typically women?

[@pugglesammy]

32 years of this and no pain meds touch it. They help to take the edge off sometimes but otherwise it is literally unbearable pain..day and night.