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KEVEYIS Joe PAM Experience July2023

  Рет қаралды 320

Periodic Paralysis Association

Periodic Paralysis Association

Жыл бұрын

Let’s face it: When it comes to Primary Periodic Paralysis (#PPP), sometimes people just don’t get it. They don’t understand how you can be fine one minute and unable to move the next. They don’t know why, during a #paralysis attack, you’re unable to get yourself moving again. But Joe does get it.
Joe is a Patient Access Manager (PAM) with the Xeris CareConnection™ team. Every day, Joe’s inspired to help people living with PPP by listening to their stories, being a shoulder they can lean on and connecting them with resources, including information about a treatment option for PPP.
Joe and the entire Xeris CareConnection™ team understand the challenges you face with PPP and are in your corner every step of the way.
To learn more or to connect with someone from Xeris CareConnection™, visit: bit.ly/3WVwBJe.
#PeriodicParalysis #TemporaryParalized #PPA
Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicpa...
We'd love to hear from you. Comment below on your experience with PP or with questions about the condition.
You can also donate at
www.periodicpa...
Your donation will help with Dr. Cannon's genetic research or a list of other extremely helpful options. The great thing is you can decide how you want your donation to be used.
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Connect with us on social:
Facebook: / periodicparalysisassoc...
Instagram: / periodicparalysis
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If you liked this video, please hit the like button, subscribe to our channel and hit the bell button to receive future videos.
#PPA #NotFaking #paralyzed
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