King's Tale (Living with Beare-Stevenson Syndrome)

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Special Books by Special Kids

Special Books by Special Kids

5 жыл бұрын

King is the 21st person to ever be diagnosed with Beare-Stevenson syndrome. His Mom was told he would live for only seconds but he is now six years old. Although he is not yet able to speak, King's sister is happy to be his advocate.
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Пікірлер: 301
@BLOVES
@BLOVES 2 жыл бұрын
The siblings that come out of these special need families seem to be the most amazing humans EVER!!!
@manestage5403
@manestage5403 2 жыл бұрын
And very mature!
@freedomofspeech766
@freedomofspeech766 2 жыл бұрын
Does the darling little King have a dad?
@mattbrown4651
@mattbrown4651 2 жыл бұрын
What this channel, probably quite rightly, does is over egg the positives. My profoundly disabled sister broke every family member one way or another. All 3 siblings had / have some neurological issue. On top of that I've suffered 35 yrs of multi substance addiction, stemming from legit prescriptions. I challenge Chris to find me some positives in my life. Despite my personal negative attitude, I applaud Chris for the massive positivity and knowledge he spreads. Great work chap, the world could use more of you.
@mcmlxii4419
@mcmlxii4419 2 жыл бұрын
BLOVES ~Yes, they do! This precious little boy has a great family.
@aronlelenora9572
@aronlelenora9572 2 жыл бұрын
❤❤❤❤
@macobats
@macobats 3 жыл бұрын
Wow, that's horrible that a nurse was negligent! Some nurses don't take their job seriously. She was being kind. As a nurse, you either take your job seriously or you are negligent! That being said, the love for this child is beautiful...
@chantellegattrell7073
@chantellegattrell7073 2 жыл бұрын
Sadly some are in it for the money which is so heartrenching
@anthonylockhart6120
@anthonylockhart6120 Жыл бұрын
@@chantellegattrell7073 exactly 💯 some of these people don't deserve to have a job in the medical field
@weetzybat
@weetzybat 11 ай бұрын
Its one thing to be in it for the money but at least put in the work
@craigward7691
@craigward7691 3 жыл бұрын
Nothing but good parenting and wonderful sibling love in this video......God bless all of them
@NAprincess324
@NAprincess324 3 жыл бұрын
This had me In tears I wish every child could be born healthy but I’m so happy he has such amazing support from his family God bless this young man ♥️
@CCK28
@CCK28 2 жыл бұрын
I love how honest King’s mother is.
@DogGran
@DogGran 3 жыл бұрын
King was born to a QUEEN! That is one amazing Momma right there, her children are well adjusted compassionate and loving 🥰 Love this whole beautiful family.
@ktgoldielocks5187
@ktgoldielocks5187 2 жыл бұрын
YESSSSSSS a queen 👑
@mesleyraves9983
@mesleyraves9983 2 жыл бұрын
amen
@g0tsp33d
@g0tsp33d Жыл бұрын
@@ktgoldielocks5187 queen of terrible genetics
@carolinamachado5919
@carolinamachado5919 3 жыл бұрын
Oh Gosh, what an amazing family! His sister has such a beautiful soul.
@keona3157
@keona3157 2 жыл бұрын
Such a honest mother and the most well behaved compassionate children
@thegulfcoastexperience
@thegulfcoastexperience 3 жыл бұрын
This is one strong family. King, you are blessed. Keep fighting lil man.
@rosemarys2465
@rosemarys2465 3 жыл бұрын
This little boy is so very loved! Hugs! Such a great family!
@rickysmoothshow2207
@rickysmoothshow2207 2 жыл бұрын
This is an amazing family. That little girl is so smart and caring, I love her and her love for her brother.
@marcokat1
@marcokat1 3 жыл бұрын
wow this family is beautiful. they all shine in such special ways.
@Totalchaos0228
@Totalchaos0228 3 жыл бұрын
So someone's negligence cost him his ability to communicate how he used to...that's terrible!! You cant tell this mom loves her children with everything in her.
@WestinNReptar
@WestinNReptar 3 жыл бұрын
Yeah this stood out so much to me--I'd actually like to know the details.
@laymere9905
@laymere9905 2 жыл бұрын
you cant or you can cause by the look of it she does
@raydenbartley
@raydenbartley Жыл бұрын
@@WestinNReptar Chris probably was told the details. But negligent nurse is all we need to know
@icanbeyourgeniehowboutalad5158
@icanbeyourgeniehowboutalad5158 Жыл бұрын
So he got brain damage pretty much from the lack of oxygen to the brain?
@wakingohiomama9110
@wakingohiomama9110 3 жыл бұрын
Dear God bless your whole family King! That little girl is so intelligent loving and articulate!!!! GO MAMA BEAR I LOVE YOUR FAMILY!
@vielkadenerson2534
@vielkadenerson2534 2 жыл бұрын
I'm impressed with the sister , she is so wise ,so mature for her age and the love for her precious brother is amazing ! the mom is so strong and so committed , God bless this extraordinary family !
@rudynewman2040
@rudynewman2040 Жыл бұрын
The sister is just darling. So sweet and compassionate toward her brother. Even the little brother is kind and loving. And we all know this love and behavior has come straight from Mamabear!!
@brendalg4
@brendalg4 3 жыл бұрын
I wish they would go more into detail about a person's condition. The reason King has some of his issues is because a nursing facility didn't take proper care of him. I know they mention it but it is so little that people might not make the connection. Lack of oxygen to the brain caused him to have a heart attack. This happened because the nursing facility did not properly take care of him
@amandacharlebois9295
@amandacharlebois9295 2 жыл бұрын
which is infuriating!!
@alexiz0013
@alexiz0013 2 жыл бұрын
Wow, that is horrible! Did they (or could they) sue?
@hencole
@hencole 2 жыл бұрын
@@alexiz0013 They could and probably did, but it isn't going to make him better.
@nickrichrriicchh5890
@nickrichrriicchh5890 2 жыл бұрын
Why do you think that?
@brendalg4
@brendalg4 2 жыл бұрын
@@alexiz0013 I don't remember if they talked about trying to sue them. I would think if I had found info on that I would have put it in my original comment
@tinkerbell1666
@tinkerbell1666 2 жыл бұрын
Queen mom has done an amazing, amazing job raising her children. They are so well adjusted and loving. What a beautiful family!! Mom your kids are awesome. Your daughter is so mature. God bless your family.
@kathrynoneill5862
@kathrynoneill5862 3 жыл бұрын
Precious little baby boy.
@kateeppolito4272
@kateeppolito4272 2 жыл бұрын
Wow this was so special to watch. King’s siblings are so full of love for him. And his mom is a handpicked mama for sure
@ptrdshijfffjvddf
@ptrdshijfffjvddf 3 жыл бұрын
Ebony is such an incredible big sister!!
@janicewashington4318
@janicewashington4318 2 жыл бұрын
She’s the best big sis ❤️
@miapdx503
@miapdx503 Жыл бұрын
Beautiful inside and out! She's going to be an amazing woman 🌹
@tammy3458
@tammy3458 2 жыл бұрын
What a beautiful loving family. You can see how devoted they all are to each other❤️🙏🏻These thoughtful, sweet siblings are truly a rarity.
@brennanreidy6669
@brennanreidy6669 2 жыл бұрын
Ebony is the epitome of an angel. She is SO mature and I'm so amazed by her speech and knowledge. She's so well spoken, and I can tell that their Mom is a stellar parent and teacher. They're respectful, loving, protective, all the traits a sibling could wish for.
@jakecompton8733
@jakecompton8733 2 жыл бұрын
The sister is so smart and kind
@Monkey3328
@Monkey3328 2 жыл бұрын
I feel bad king really has a beautiful heart and deserves so much love
@vwlh8r
@vwlh8r 2 жыл бұрын
I love King and his family. It's so inspirational to see people who love each other so much.
@kellanbellchamber6430
@kellanbellchamber6430 3 жыл бұрын
His brother is so sweet 🥺❤️"i love him because i love him" ahh so cute
@ticktokd1755
@ticktokd1755 3 жыл бұрын
He not cute
@ticktokd1755
@ticktokd1755 3 жыл бұрын
He is ultra cute
@robbyyn
@robbyyn 2 жыл бұрын
"God gives his toughest battles to His toughest soldiers" - Here's to you, soldier mom! And to your amazing kids!
@ingridisaviolet8498
@ingridisaviolet8498 3 жыл бұрын
Even though this condition makes day to day life a little more difficult I think King really brought this family together. 😌
@MJJIllseeyouinheaven
@MJJIllseeyouinheaven 3 жыл бұрын
Such a caring and loving family - a truly blessed family. I wish you all the best for the future! Greetings from Germany
@kimikae4170
@kimikae4170 2 жыл бұрын
I'm speechless at the beautiful sweet pure love this mother has for her sweet special son, and all her children..... And Kings sister is as precious as can be! WoW what a beautiful gem she is shinning like she does when she just looks at him even. And of course Kings brother is a cutie who loves his brother dearly. Such a lovely, loving, beautiful family..... If all families could have such a loving strong mama as King does, boy oh boy what a wonderful world this would be!oh Cheers!
@susanpaul4752
@susanpaul4752 2 жыл бұрын
Beautiful children...lovely mother who has taught her children well...beautiful family. Lucky King to have these loving family members.
@dawna4185
@dawna4185 3 жыл бұрын
what an incredible family!
@MD-lw4kw
@MD-lw4kw 2 жыл бұрын
most supportive real mother I've seen on this entire channel
@JackieHagge
@JackieHagge 3 жыл бұрын
Love to know how King and his awesome family is doing now
@localgyakutenkenjitu
@localgyakutenkenjitu 3 жыл бұрын
it puts things into perspective how good you have it when you see someone so young stepping up to the plate and doing so much for her sibling
@queenettajones5510
@queenettajones5510 3 жыл бұрын
Awwwww king is so cute 😊. His family really loves him.
@debraholz9756
@debraholz9756 2 жыл бұрын
WOW So beautiful! What an amazing, loving mom and sweet brother and sister. Excellent parenting, momma
@jennia4853
@jennia4853 Жыл бұрын
I’m so impressed by the sister’s compassion and level of maturity. She is a beautiful soul.
@elizabethyoungshoeboot9880
@elizabethyoungshoeboot9880 3 жыл бұрын
That's what love is for a family that is full of love for one another.
@DeAnn909
@DeAnn909 Жыл бұрын
I love that they named him King. That's a cool name.
@bruceleesmilkytiddies
@bruceleesmilkytiddies Жыл бұрын
Fitting too
@Sharonlee334
@Sharonlee334 3 жыл бұрын
Such a special family! ❤️
@grahamvandyke
@grahamvandyke 2 жыл бұрын
I had a tracheostomy years ago and whenever I was in desperate need of suctioning it felt like I was drowning in my own mucus. He has a really incredible sister who's willing to do that all for him.
@zoesmith849
@zoesmith849 2 жыл бұрын
Lovely to meet you all! What a beautiful family. Thank you for sharing your love ❤️
@1Sarradd
@1Sarradd 2 жыл бұрын
Love and prayers for you and your family. I lost my niece to trisomy 18 who had a lot of similar needs. I was a caretaker for her. Your struggles are real and your love is real and thank you for doing this video to show the world that love is stronger than anything.
@lexiev1250
@lexiev1250 Жыл бұрын
I’m so sorry for your loss 😥
@ktgoldielocks5187
@ktgoldielocks5187 2 жыл бұрын
I really love & appreciate his mother's honesty about getting used to how he looked at first
@youcanthandletheheat
@youcanthandletheheat 2 жыл бұрын
I love seeing how much these families love their special babies. The parents are amazing the siblings are amazing. Just amazing angels on this earth.
@teacherbecca526
@teacherbecca526 2 жыл бұрын
I'm thankful that God chose me to be his Momma. Yes, that's it right there. You are an amazing woman of faith. Thank you for sharing your story with us and giving such a beautiful perspective on what many would regard as a difficult situation. 🥰
@victoriap1649
@victoriap1649 2 жыл бұрын
Sending so much love to King and his amazing family ♥️♥️♥️♥️
@HS-cf4lb
@HS-cf4lb 3 жыл бұрын
El Rey is a gift of God. Bless him and his beautiful family. I'm so humbled by this channel and all these kids. Lord please forgive me for every time I've complained about the petty things that I complain about and thankyou for bringing this gift in to my life.
@debraronan8389
@debraronan8389 3 жыл бұрын
God bless you sweet King. You are loved!! 😘❤
@gerardnoles8273
@gerardnoles8273 2 жыл бұрын
I'm so moved and touched by kings story! Mom, sister and brother what a supportive family that can push as mom says a little more. Our children is our life and mom you are exemplifying that love that no one else can bear! Love you dearly! Sent with gentle effect! G.Noles Mesquite, Tx
@keeleehudson
@keeleehudson 2 жыл бұрын
What a beautiful family 😍🥰
@adamisaac4685
@adamisaac4685 2 жыл бұрын
Love you guys so much! I am a musician from Madison Wisconsin. It’s been a pleasure meeting your little king. What a boy!!! My heart has definitely gotten larger. You are very blessed indeed. God does give his toughest battles to his strongest soldiers. I love you ❤️
@TheElektra
@TheElektra 2 жыл бұрын
I learned so much from that little girl just watching this. What a phenomenal sister and human. This family is amazing. Kids are so smart and loving and so is mom!
@cherylarmstrong5880
@cherylarmstrong5880 2 жыл бұрын
Wouldn't it be a much better world if all parents bought their kids up to be as loving and kind as these. They are a fantastic example for everyone to learn from, even though they have had to cope with negligence from staff who should have been more professional. This happens far more frequently than it should, my family included. God bless all of you.
@hyeena7290
@hyeena7290 2 жыл бұрын
And Ebony, you are a beautiful, young lady! A true angel.
@evonza4858
@evonza4858 3 жыл бұрын
God continue to bless this little guy and everybody who takes care of him🥰❤️🖤💚
@patricialambert1827
@patricialambert1827 2 жыл бұрын
King, you are loved! You have a wonderful, loving family! Bless you!💕💕
@BrooklynGirl
@BrooklynGirl Жыл бұрын
What a beautiful family. God Bless you all.
@JasonBrockStick
@JasonBrockStick 2 жыл бұрын
Thank You for sharing King’s story :) You are helping open people’s Hearts ♥️Your families Love towards King is warming so many lives, King and others souls born here with such difficulties are here to teach us some of the biggest lessons. You are an amazing family.
@nonames8734
@nonames8734 2 жыл бұрын
This family is so sweet
@amandamorcan3330
@amandamorcan3330 2 жыл бұрын
You, beautiful lady, are an inspiration to all!! 💖 you have done such a wonderful job raising your children and have such a pure heart, as do your children... King is blessed to be part of such a family 🥰
@stephie7015
@stephie7015 2 жыл бұрын
Wow!! What a loving family! Blessings!
@ScottBeck-hk2lq
@ScottBeck-hk2lq 6 ай бұрын
This young man's family and most especially his sister are just, wow. What incredible hearts with just so much love.
@blackcitroenlove
@blackcitroenlove Жыл бұрын
I love this young King. All the good things for him and his family
@MA-sk4fg
@MA-sk4fg 11 ай бұрын
The love that the whole family give to King is keeping him alive god bless you all.
@everythingandmorepodcast195
@everythingandmorepodcast195 3 жыл бұрын
Such an amazing family
@alanaazevedom
@alanaazevedom 2 жыл бұрын
Absolutely lovely family! God bless you all
@anuskasoares8276
@anuskasoares8276 2 жыл бұрын
What a loving family this little boy has! I can see that they want his best and that's all that matters. His mission on this planet must be very important.
@22lyric
@22lyric Жыл бұрын
EVERYONE should have such a loving family! And his mom is such a warrior. Trying for EVERYONE, disabled, seniors, to get cameras in facilities to prevent abuse. And that started years ago. I can imagine it is even more needed TODAY. Hope facilities are changing! I LOVE KING! 🙏❤️
@nondassteele9329
@nondassteele9329 2 жыл бұрын
Lots of Love in this family from King to them and them to King. God bless you all Family...
@mylifefornick
@mylifefornick 2 жыл бұрын
Beautiful family! Patience and love 💕
@lorettavogelgesang2490
@lorettavogelgesang2490 2 жыл бұрын
God Bless You Precious King and Your Amazing Family...Thank You All for reminding us what pure love is...Divinely Inspiring Much Love 💖🙏🏾☮️
@jesuscadena5673
@jesuscadena5673 2 жыл бұрын
God bless you King. Thank the family for being there for him every minute of the day..
@mizushirokanon9174
@mizushirokanon9174 2 жыл бұрын
Omg, such an awesome family! King is so lived, that is heartwarming! ❤️
@Grimlock987
@Grimlock987 2 жыл бұрын
These videos make me emotional.
@glenda1385
@glenda1385 2 жыл бұрын
His siblings just love him so. Awesome family :)
@starrrozmiarek3322
@starrrozmiarek3322 2 жыл бұрын
What an incredible family King has!!
@patricialewis-neal376
@patricialewis-neal376 2 жыл бұрын
King is God’s child, and he’s Loved just like all of God’s children. He’s a blessing and very loved. God has him in his arms always. 🙏❤️🙏
@tylerlynch2796
@tylerlynch2796 2 жыл бұрын
amen
@demijour1234
@demijour1234 10 ай бұрын
King is so lucky to have such a loving family and vice versa, his family is so lucky to King. He brings such love and closeness to his family. This is my second time watching this and it saddens and angers me that because of one nurse who neglected to take care of King properly, worsened his condition. Sending lots of love and prayers and hugs to King and his family. ❤❤❤🙏🙏🙏🫂🫂🫂🤗🤗🤗💕💕💕
@Nearlydeads
@Nearlydeads 2 жыл бұрын
God chose the right family for this sweet soul!!!
@DAVEJJR
@DAVEJJR 2 жыл бұрын
King will make me a better person! He’s a beautiful little boy, with an absolutely loving family who is devoted to him! I agree with his mom, based on experience, not every nurse is an angel. But King is a lucky boy!! I love you baby ♥️
@brandonlott1717
@brandonlott1717 2 жыл бұрын
God bless them all. I have been humbled yet again. 🙏 praying for these families as much as the individuals. That they live a happy and healthy life as they can!!❤
@jennbeth1
@jennbeth1 Жыл бұрын
These genetic disorders are fascinating.
@ayceleijae
@ayceleijae 2 жыл бұрын
His siblings are so sweet!!! He’s got a great family! What a lucky boy❤️
@snesable
@snesable 3 жыл бұрын
wow such a beautiful family
@sarx100
@sarx100 2 жыл бұрын
This video made my heart melt . Big up the mum
@goodboix3528
@goodboix3528 Жыл бұрын
Much love to the whole family. Big ol pack o' sweethearts!!!!!
@rosemarykirby7489
@rosemarykirby7489 Жыл бұрын
One of the most beautiful families in the world. I just adore them! So loving and kind and sweet. God bless them all. King, queen, prince and princess. I bow down to you all! ❤
@hyeena7290
@hyeena7290 3 жыл бұрын
King, you're the King!
@sirachvlogs5586
@sirachvlogs5586 2 жыл бұрын
Wow, lovely mother and children.
@charlenemock333
@charlenemock333 2 жыл бұрын
This woman has definitely raised her other children right as well. They are very respectful and loving towards their little brother. That is just amazing.
@brandonm8901
@brandonm8901 Жыл бұрын
What a wonderful family ❤
@bellejourneelibre47
@bellejourneelibre47 Жыл бұрын
King is adorable, wish him all the happiness with his sweet family 💕💕💕💖💗💗
@tatianaflores1926
@tatianaflores1926 Жыл бұрын
Beautiful family
@marleenninaka1303
@marleenninaka1303 3 жыл бұрын
Hi everyone: It's so nice to see you all again on KZbin. I want to meet you all one day. Take care and stay safe.
@todknight3093
@todknight3093 Жыл бұрын
It's amazing how these families are so understanding and loving and all are so humble 🤩. I believe that has humbled all of these families so much and it's so beautiful to see. May God bless and strengthen all of these extraordinary loving families and keep strengthening. I admire all these families. 💪💪💪😇😇😇❤️❤️❤️❤️👍👍👍🙏🙏🙏🙏🙏
@4Mr.Crowley2
@4Mr.Crowley2 5 ай бұрын
Hearing this poor child, who is blind and due to the massive brain traumas he doesn’t respond to anything, laboring so hard to take basic breaths, even when he has a trache and oxygen supplements etc, is just tragic. That labored breathing is very taxing on the cardio system and is definitely painful for him. Sigh.
@kris-co2wt
@kris-co2wt 2 жыл бұрын
Wow…I’m totally crying at that last part, I kept it together until mama made that comment about taking it as a compliment that she’s one of God’s strongest soldiers. Sending my love and prayers to your family King♥️
@eaglecoeur
@eaglecoeur 2 жыл бұрын
Such a loving family! ❤
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