Kristin Talks About Her Polycystic Ovary Syndrome | Kitchen & Jorn

[@kitchenandjorn]

Hey friends!!!! Some comments guidelines for today! 1) no diet talk 2) any disparaging talk about my appearance and you will deeply wish you had not woken up today! LOVE YA MEAN IT!!!!!

[@mattcottrell3286]

Fuck yeah Kristen! Set those boundaries! Also. I love y’all!!!! I have PCOS too, and it’s so refreshing to hear you talk about it!!

[@snakehandler87]

Love ya mean it omg havent heard that since my late teens #nostalgia love yall 💙

[@astridquarry1248]

I love your boundaries! Setting a great example 😊

[@laurenschenck5355]

Love you so much my BBFLS so much! ❤

[@naxp42]

Omg I have PCOS and I say this to every healthcare provider I meet. (Minus the love ya bit)

[@SirAgravaine]

Honestly, gynecological disorders are not very well researched and women's pain is constantly dismissed. Thanks for shining a light on the process!

[@m_here1]

THIS!!!! I have painful periods but the way these disorders are currently researched and understood, no one knows wtf I have 🙃🙃🙃

[@alleykat1870]

@@m_here1obviously I am not a doctor but it took me years to get diagnosed (I’m 31, got diagnosed with PCOS and IBS last year) but what helped was finding a doctor who really took me seriously who ordered the most comprehensive blood testing available. She discovered my DHEA was wayyyyy high and that’s how she put everything together. No other blood test I had over the last many years tested DHEA levels. So I would try to find someone willing to do super comprehensive testing, I know it really sucks and can be very hard but just keep trying doctors until you find one who’ll really really listen to you

[@KT-1429]

Part of this problem is properly categorizing conditions. While PCOS caused gynecological symptoms, it is not a gynecological disorder, it is an endocrine/metabolic disorder. That being said, it doesn't really matter because you are 1000% right! Women's pain is easily dismissed and ignored, and women are never given their dues appropriately.

[@lynndragon2536]

Yeah and emergency rooms just shrug and be like your just being dramatic about it… me: I have been bleeding too heavy for a heavy pad to last 30 mins and am in pain for two months … also they didn’t even check to see if I was anemic from that so yeah doctors are not good with this issue

[@livelongandprospermary8796]

And they’ll be like “well we can give you birth control. Do you want that?” As if it doesn’t come with 100000 side effects. I have PMDD (I think caused by my adhd) and birth control actually made it worse and made my libido so low I thought I was asexual (being asexual is fine, it just isn’t me). Upon stopping BC, my libido came back and my pmdd got so much better. It’s almost gone when I can take adhd meds. Being that I’m in a stable relationship with financial means and a someday type desire for kids, I’ll save my mental health and take my chances with non hormonal barrier methods and cycle tracking. Better that than unaliving because that’s how I felt on BC. I feel like I tell my doctors this and they don’t acknowledge it. They don’t care. They don’t want to help me find a solution. I basically had to seek out adhd on my own and figure out what works on my own. And these doctors are women so you’d think they’d have empathy :/ I couldn’t possibly understand my own body better than someone with medical education for lots of different bodies. 🙄🙄🙄🙄 sorry this turned into me venting…. In conclusion. Yes. Agree completely!’

[@kmgx291]

I have PCOS and a couple years ago I had a huge cyst on my ovary that was so painful I could barely walk. Went to an ER, the male doctor confirmed an "abnormally large cyst" and told me to take some aleve. I sobbed the whole way home. Went to another ER the next day and they brought in an OBGYN who was livid that I was sent home. I was in surgery less than 12 hours later. I almost lost my ovary. 2nd opinions are important, friends!

[@Rinsuki]

I'm sorry that happened to you. Sadly, this is common but really the ED provider should have consulted an OB.

[@mydogmyguru8676]

Shout out to Kristin's mom though for being her advocate, even when all the other adults were like its fine. I was diagnosed at 15 with PCOS and with stage 4 endometriosis 8 years later, and had to be my own advocate due to lack of support from my family. Wishing you well

[@Aelffwynn]

Honestly yeah. I have chronic medical issues that started when I was 9. My mom took it seriously and was so scared for me, even when other adults didn't care or believe me. She was a single mom trying to figure out a new career and support us, too. I'm grateful she didn't give up.

[@ColorJoyLynnH]

I see you. That was surely a lonely journey.

[@meowcenary21]

Hugs same here. I had a total hysterectomy at 37 and will be 40 this year. Hormonal health is important for everyone

[@bethanythatsme]

"As soon as I started having periods, I started having problems." Abso-freaking-lutely. Our experiences mirror each other in so many ways. Thank you for helping to normalize talking about our bodies 💜

[@madisonmackay967]

Right!! I resonated with this so much. I had a “regular” period for about three months and then just hell after that.

[@bethanythatsme]

@@madisonmackay967 💜

[@alijedlicka3148]

Agreed!! Sums up so much for me

[@TheUntypicals]

PCOS is thought to start in the womb. I'm sure a mum's bad diet during pregnancy is the main cause

[@vamvam7690]

@@TheUntypicals some research shows a possible link to excess AMH production in the pregnant mother and higher instances of PCOS in offspring…so it’s a possible link due to hormonal imbalance in the expectant mother and has nothing to do with a mothers poor diet Please don’t spread misinformation and blame women without cause

[@melissalockard1124]

I work as a certified diabetes educator- THANK YOU for stating that people should not feel shame regarding a medication. I have met so many people that feel the stigma of diabetes/insulin resistance. This was a wonderful discussion on the channel!

[@lhalison87]

I struggle with this stigma all the time....and I so often feel like I am judged as "just being fat", but the truth is my weight is caused more by my insulin resistance than anything. I eat relatively well, I exercise regularly, but my body just holds onto the fat. I can't tell you how many appointments I go to with other medical professionals and the first thing they see is 'an overweight woman with diabetes'.

[@herzetty]

I feel like this is the result of everyone around a fat person (especially doctors) saying "just don't get diabetes" any time we talk about anything related to eating or our bodies. It's the fear stick they beat us with and the medication is our punishment for failing. In reality, my body just doesn't deal with insulin as well as yours does regardless of literally everything else. It's so frustrating to experience.

[@maaretrahkonen7706]

But it is extremely important to lose weight. 5-10% weight loss often already helps a lot with diabetes and PCOS. And everyone of us overweight can easily lose some weight - or at least make sure not to gain any more.

[@maaretrahkonen7706]

I was overweight and thought I had insuline resistance. Losing weight was actually the only way to get healthy. It was really hard and it took me three years, but now I have a healthier (still a bit over weight) body. Everyone with pcos really have to make an effort to be at least close to "normal weight". Kristin is too young to understand that, but the fact remains: the most important thing for people with overweight and pcos is to lose weight. And it's free, doesn't cost a penny.

[@kahldrialeighsun1208]

​@maaretrahkonen7706 I'm going to do my best not to let my emotional reaction to what you said get in the way of trying to get through to you & people who think like you. I used to think like that before I had to learn the hard way that just because I can do it, so can everyone. It sounds like you went through a lot & managed to do something you described as really hard. I'm not trying to take away from that. I'm not here to shame you or make you feel like you have to defend yourself. That being said, I would like you to consider that your experience is not universal. I am currently facing some health issues that left me in dire circumstances. I can't simply lose weight. I can't afford healthy food. I do not enjoy eating sugary food. Sugar is cheap & it's in everything as a result. I can't make my own food. I'm disabled & have to have help to perform basic tasks. I'm also too poor to have anyone do it for me. I don't have family to help. I lost all my friends when I became disabled in my 20s. My health has become worse & worse as I've aged into my 40s. My weight has increased & I face blindness & limb loss as a result. All I do is worry about my future. I'm one stroke away from a terrible death rotting in a nursing home. I have no support & I constantly endure people telling me it's my fault because I'm fat & won't just lose weight. If it was that simple, then of course I would. None of those people including doctors have offered to pay for healthy meals & cook them. All they offer is judgment. If I try to explain my difficulties then they throw me away accusing me of making excuses. No one would choose my life. The bitter loneliness is awful on top the small window I've shared of my health issues which is the tip of the iceberg. You know what no offers? Compassion. Real support & not empty platitudes that they don't mean. I've learned to suffer in silence because I've been taught by every human interaction there is nothing to gain but trauma. My only comfort is that life does not go on forever. I hold onto that as things become ever more unbearable. There was no malice intended in my reply. I know I have nothing to gain from this. The only reason I did so is because I know there are others out there like me who stay silent. Bringing this suffering into the light is the only way it it gets better. I wanted to help people when I got hurt I was in college. I wanted to help kids who had a rough start get a chance. I lost my opportunity to make the world better for having me in it when my injury snowballed into lifelong disability. Late night stabs in the dark on social media is all I can manage now. I hope you have a good life. If anyone reads this I hope you are loved. I hope you are cared for. I hope you are not judged nor held to obscure standards without regard for all that you have survived.

[@ariellesarinafirestone7823]

I’m so glad you said the thing about “if a doctor is a little too excited to tell you what not to eat find a different doctor”. THANK YOU!!!

[@ColorJoyLynnH]

Amen!!!

[@courtneyheadrick2930]

My current gyno told me I have several ovarian polyps because I am fat, and he's worried I am too fat for him to perform surgery. Mind you I also have the death periods and I desperately need my polyps removed. He put me on a 9 month wait list for my polyp removal surgery. So I just have the joy of having debilitating periods every month. Because I have medicad as my insurance I am essentially stuck with my current gyn. I've even asked if it would be possible for me to just see another doctor within the same practice and my request was denied. I am allowed zero relief for the pain aside from OTC meds. I truly appreciate you putting your story out there. Thank you Kristin. Side note I am over weight but rest assure my polyps weren't caused by me being fat 🤦‍♀️. Like you ever since getting my period I have had issues. I got my endometriosis diagnosis when I was 21 after a lap surgery. I so wish I could get a new gyno sooner rather than later. Being made to feel like shit because of my weight is not a good feeling.

[@ariellesarinafirestone7823]

@@courtneyheadrick2930 I completely feel you and I am SO sorry🥺 you are likely overweight because of your condition not the other way around as most doctors might like you to believe. For me it’s literally impossible for me to lose weight without ozempic. You are doing everything right and I’m so sorry doctors fucking SUCK! I really hope you get the care you deserve and be sure to stand your ground!! You know your body better than any doctor ❤️

[@jesb29928]

Kristen talking about Endo was cracking me up. It's a serious topic, but also really funny to imagine my angry body as an interior designer who has decided the wallpaper needs to be other places. 😆

[@litzgrahmann6468]

I can't tell how much I appreciate you talking about the insulin resistance part of PCOS. My endocrinologist basically told me that not only is it common with PCOS patients it's almost completely inevitable and that no matter your diet and exercise routine it's something that happens because PCOS is a hormone regulation problem.

[@yasmindahall6714]

As a ply size woman I know how hard it is to find a doctor who doesn’t attribute everything to your weight. I’m so glad Kristen was able to find someone who listens and is proactive. Great video

[@barmhjertige1]

Tell me about it.. I have been shamed by so many doctors. And it’s awful.

[@ariellesarinafirestone7823]

@@barmhjertige1 me too :(

[@scoutsalem9926]

I hate how common it is for a doctor to dismiss any woman of her problems if she’s even slightly overweight.. why is it a person who’s gone through 4 years sometimes 8 years of medical school gives advice I could give with zero medical knowledge?? “Go on a diet and get better sleep” like gee thanks I’m hearing that for the first time ever and I haven’t tried that before!!! 🙄

[@MyLittleGreenHairdedMermaid]

The worst story I heard was this woman had gained 60lbs in 6 months, and 40lbs more in the next 6 months, doctors just kept telling her to lose weight and she wouldn't be in pain anymore, COMPLETELY ignoring how fast she put on weight and she was eating healthy and was active. Anyways she had cancer..... which a sign of cancer which every fing doctor should know is sudden extreme weight loss or weight gain

[@sweetnlo13]

I literally JUST found one! I have a skin condition and as a teen a dermatologist literally was like well if you lost weight and changed your diet it could also help. Like babe just prescribe the medication

[@isabellaojeda7484]

Thank you for sharing your story! I have PCOS too, was diagnosed at 26. It affects my life much more than anyone realizes. And there is so much misinformation out there that can harm us and reinforce stigma. I appreciate you talking openly about your experiences. :)

[@kitchenandjorn]

Thank YOU

[@alleykat1870]

The misinformation is so so bad! When I first got diagnosed with PCOS, I fell down a rabbit hole with research so I could figure out how best to manage it outside of my treatment plan with medication and omg some of the stuff I found was absolutely ridiculous!

[@amolerat4456]

Same hear so happy to see pepole talking about it.

[@simransimran9339]

Same. Diagnosed at 26. The biggest mistake I made was stopping my medication and consultations after two years of treatment. I thought, I'm better now, I've regular periods now, lost weight am no longer prediabetic, I can go off meds now. Then it all went to hell. Weight gain, rare periods, the works. Started my meds a few months ago after experiencing the worst pain in my life. I'm losing weight now, menstrual health is better. Though, the most common advice I got from the doctors and furtive internet research was cut down refined foods and sugar. Which was something I had to do anyway because I became diabetic last year. My suggestion with PCOS is that along with your gynecologist consult an endocrinologist. Because one hormone affects the others, so we need to kind of keep on eye on all of them. Progesterone, insulin, thyroid, so on.

[@julieredstone-lewis6473]

I’m so glad you made this video. I have PCOS and went undiagnosed for 20 years, despite complaining about symptoms, including miscarriages and infertility, to my family Dr for years. 10% of women have PCOS, but it is not readily diagnosed or treated in teens when symptoms first emerge. Your mom is awesome for fighting for you! I hope this encourages others to talk about symptoms with their PCPs.

[@aceofstace4456]

I was never diagnosed with PCOS, but as I write this, I am recovering from a partial hysterectomy at 33 years old. I started birth control at a very early age as well because periods were nothing but problem-causing from the get-go. It's so important to find a doctor who listens to you when you explain your pain! Hearing you talk about your journey makes me feel so much less alone in my journey... thank you!

[@emily-janeboustead6084]

Is anyone else loving the almost clueless vibe from Kirsten’s outfit? It’s a cute vibe! Also, real talk, all that before hitting 21 is freaking tough. I just wanna hug Kristen so bad, because I went through the same thing and no one told me that PCOS can start acting up when you’re a teen/tween. Also, Jen’s support is something that I wish I had in my life! They are just the perfect and support their friends so sweetly! These two! Are just my comfort KZbinrs and make me feel like I’m sitting in a pub with my gay friends, talking about girl/non binary shit.

[@gonewiththewindows4912]

they for real are my comfort ytubers too, also I love the fit too

[@Dropsofsilver621]

I literally just had an appointment with my gynecologist yesterday and convinced her to remove my uterus after YEARS AND YEARS of issues, including having two iron infusions a year. She was hesitant because of my age (36), but I was like, dude this is not a good quality of life and she finally caved

[@nicboyd1898]

If I had a Time Machine I would have taken everything out in my surgery at 37. My doctor convinced me to leave an ovary. Ended up needing additional surgeries. I wished I would’ve taken out my last ovary initially when they took out my uterus- it stayed and made trouble for 10+ years! Best wishes for your surgery-🎉!

[@livelongandprospermary8796]

Yes what is it with docs like “you might want kids”…treating patients that don’t even exist instead of the person in front of them pleading to be heard and given proper treatment.

[@csong9940]

@@nicboyd1898 I’m considering a hysterectomy because I have a fibroid and I’m on my period every other week, even with an IUD. My last period was 3.5 weeks long. Did you start menopause after your hysterectomy?

[@krose6451]

Congratulations! Im so glad she was willing to listennand help you getvwhar you want!

[@fruitybat89]

@@csong9940 Hey so I know your not asking me specifically but I just had a hysterectomy (I am 33) Dec 22 2022. I had my cervics, uterus, and fallopian tubes removed. I kept my ovaries. If you keep your ovaries you shouldn't have to worry about menopause but it's a case to case basis. I had adenomyosis.

[@AC-pc2mb]

YES! PCOS... is SO different for everyone, and not everything works for everyone, it manifest differently in everyone... and some people dont get cyst at all. its crazy mine is polar opposite from Kristine. Thank you for being so real!

[@Lauren-yo6ph]

Appreciate the time you guys take to make these videos. As someone who has PCOS, it's nice to see people talking about it.

[@blake_ilan]

Thanks for this! I’m transmasc, and wanted to share that my thick uterine lining was the sign my doc needed to recommend a hysto. So glad I did it. Cancer risk wasnt mentioned but now it all makes more sense!

[@ambogart4190]

Late onset PCOS myself. Was lucky enough to not have fertility affected. However, I could defo live without the painful cysts, facial hair, acne, metabolic syndrome and insulin resistance (associated with pcos often) and over all hormone chaos. Can't wait to watch!

[@Fool_of_a_Toque]

Quite honestly Kitchen sharing their story has given me some more motivation to keep advocating for my gynaecological health! Much appreciation 😭❤

[@daniellecabalis3739]

just want to say i really enjoy these more personal videos where we get to connect more with you guys. and thank you for sharing these parts of yourselves, especially with harder topics like this! 🤍🤍🤍

[@kitchenandjorn]

HOORAYYYYYYYY We are glad, we know these are just for the core friends but we love the core friends so

[@cielmay9438]

I came to the comment section to report anything that was either condescending or wrong or bullying, and instead y'all left me amazed. This has got to be the most positive community I've ever seen on KZbin. I'm now crying of joy, thank you all for sharing your experiences and supporting them 💜💜💜

[@kitchenandjorn]

Everyone RULES

[@arirenzi-surprenant]

I have the same condition!!! I can’t express how much it means to me to have a fellow indigenous person who is just like me (in a variety of ways) spread so much awareness around various issues!!! Thank you so much. Seriously, thank you!!!

[@Sienna10Sunz]

❤🧡

[@Boo-ms5hy]

Oh my goodness. I just got diagnosed with PCOS last week, and this video made my entire month. Thank you so much for sharing and being vulnerable, you are appreciated

[@fraukeverreycken8587]

I love how open kristin can be, thanks Kristin for sharing and caring

[@jenniejones-hawkes7641]

Thank you for talking about this today! I got my first period when I was 9, got diagnosed with PCOS when I was...23, OH IF I HAD KNOWN...those teenage to early 20s years would have probably been much less emotionally scarring because woof, those periods :( It's kind of quieted down now in my 40s but I'm pretty careful about management mostly. It's really nice to see so many others in the comments who know the struggle, makes me feel less alone :)

[@lilystebbins4638]

Thank you for making this video. I was diagnosed at 19 and it’s been a hard and painful journey so far. It feels nice to know that other people are going through this and understand. Having pcos is not an easy journey but for all the people who have it your not alone and we can do this. ❤️

[@joanderson6880]

Mom of year award goes to Kristin's Mom. Thank you for sharing

[@melissazinn2743]

Girl im right there with you. I was diagnosed with PCOS when I was 15 (im 38 now) I have not had a regular period since then and when I do... im out of commission the first 24hrs. Like you I carry in the front, do not have acne and get told I need to lose weight all the time. My dad even called my mom about a year ago (they're divorced) expressing his "concern" with my weight without my knowledge. She was like dont you know she has PCOS? People are just quick to judge and don't understand there may be more to the story. Anyway, just wanted to let you know your not alone💜

[@MsAidanbrown]

As someone who’s been working on my own insulin resistance and hormonal issues, this was a very validating video! Thank you for sharing your story

[@NellieIllman]

As a woman who has spent her adult years working towards normalising conversations around our bodies and allowing space for vagina/uterus/reproductive/hormone conversations, I can honestly thank you for one of the best videos I've seen on KZbin in a long time. Thank you guys!

[@juliepudelek3786]

The male gynecologist theory I can relate too. With everything that has happened and still happening to me, when I finally found someone who would listen is this older (like 50s) male gynecologist who was the one that took me the most serious with my diagnoses. I do believe it is because he listens and believes me especially since he doesn't have our actual parts. What I am happy is his intern is also a guy (young obviously) but is going to learn to be a great advocate.

[@cinnamoslut]

I've heard the same thing from so many women! I think you're right that it's because they don't have the same parts. Although, I've noticed that male doctors as a rule are more likely to actually take my pain seriously and treat the pain.

[@tstarr8314]

Unfortunately it's not consistent. I know someone who went to a male doctor about pain. He told her that all women have painful periods. It turned out that she had a cyst erupt. I also had a male doctor lie to me about what tests he was running when I went in to be tested for PCOS. He was actually running tests for fatty liver and other problems that fat people are just expected to have. He was perplexed when the results all came back negative, lied to me again about needing to see an endocrinologist for PCOS diagnosis (I found out this was a lie nearly 10 years later from another GP, but given the endocrinologist only wanted me to agree to weight loss surgery I don't have a high opinion of them either) and referred me to an obesity clinic. I have all but 1 of the common symptoms of PCOS, have been complaining about my symptoms since I was 13. I am 43 and still have not had a formal diagnosis though I have started the process. Unfortunately that doctor is also mostly focused on weight loss, not overall care.

[@florindalucero3236]

I had a few that exploded, causing a level of pain that I don't even have the words to describe, when the ER Dr did an ultrasound, he described the level of my ovarian cysts as, "a bunch of grapes". He should have described them as a bunch of landmines which could go off at any second. People talk about their biological clock ticking, my ovaries have little bomb timers 😵‍💫 Also, my Mom didn't do shit to help me, there's her 12 yr old daughter, screaming in pain, and she did nothing. In her eyes, a young girl going to see a Dr for gynecological problems meant getting a pelvic exam, and she acted like having one would be some kind of shame burden I would have to carry for the rest of my life. So, I screamed in pain until I had migraines, wept and rocked, and she just did nothing. And, guess what, she worked in the hospital, as ER triage personnel. So, I didn't receive gynecological care until I turned 30, until I was my own woman and realized that me and my body had worth.

[@cazzabojangles]

no oml my doctor called mine blackberries, why do they think we're a fruit salad

[@livelongandprospermary8796]

@@cazzabojangles Americans will measure with anything except the metric system 😂 (humor: if you don’t laugh, you’ll cry…this isn’t meant to diminish what is a very real issue, just meant as coping 💜)

[@isabellewittwer4493]

My mom is an RN and regularly dismissed me. It’s why I’m still afraid of hospitals and medical care. Every time I needed care she said it was for attention and I would get scolded for days. I still associate taking care of myself with being in trouble.

[@florindalucero3236]

@@isabellewittwer4493 wow, yes, this. She would say, "do you need to be seen?" As in, be seen by a doctor, but it always sounded like a shaming, and now I wonder at the nuance of that phrasing. Do you need to be seen? Yes, I did, I needed for my needs to be seen, to be believed and looked after. And "being seen" was treated like I was attention seeking, like I was an egoist.

[@SAmaryllis]

I'm so sorry you grew up in that environment. Medical care can be scary enough to seek, that sort of parenting attitude doesn't help at all. Sending you all the good vibes!

[@lauren3173]

I saw the title of this video and I got so excited because I’m undiagnosed with with issues that could be either of these disorders or both. I just like hearing other people’s experiences instead of just reading textbook examples because it helps me express what I’m dealing with.

[@nicboyd1898]

Finding a doctor who listens to you, does tests and works with you to figure out what is going on can be a bit of a challenging process- do not give up! It is worth it to figure out what and why your body feels and does/doesn’t do things! Good Luck 🍀

[@taylorr1917]

I've had a cervical biopsy and I have an IUD. Both made me cry and all I was told was to take some tylenol and I would be a bit uncomfortable for a few minutes. So huge shout out to your doctor who agreed to general anesthesia. I wasn't given the option and would have fought for it had I known how much pain I would be in.

[@csong9940]

Same here! No anesthesia but the doctor and nurse were surprised that I wasn’t screaming. I guess I have high pain tolerance?

[@blake3847]

Ask for it next time! I always insist!

[@carinajohannessen1515]

Yet saw a Tik Tok about a dude who got sedated for his testicular ultrasound and I was like 😮 wtf punch biopsies with nothing for women

[@amara560]

I had an IUD without anaesthesia, on just ibuprofen, and the dilating of the cervix was just awful. I also had quite a lot of pain the days after which was kind of unexpected. Last year I got a biopsy and IUD inserted under small anaesthesia. Not a full on general, but a combination of sleep and pain meds via IV. It was a much better experience.

[@roninboxers]

I had a failed mirena insertion with no pain relief, it was absolutely horrific. It was to try to help deal with my endo (so I have a well developed pain tolerance) but it was literally the most painful traumatic thing that's ever happened to me. (and I have a bunch to choose from)

[@steff2437]

I was diagnosed at 23 after my son was born, once I started thinking about having another baby. The amount of grief I have gone through knowing how hard it is to have a baby and having to fight my body some days because I am so exhausted with life is not something I ever saw coming. It is so important to continue to have these conversations

[@georgieblue1]

I was diagnosed at 15 with PCOS after my periods stopped nearly completely at about 13, I've been on birth control since and have not had a regular period in those 10 years 😳 being diagnosed when I was a teen i feel like I don't know enough about my own body cause of my birth control and see how much my pcos is affecting my health overall! So glad you did this video! Really appreciate it ❤️❤️

[@pancakebears]

i have pcos too and have been taking provera for my period but i may switch to birth control soon. since you’ve been taking bc for awhile now, may i ask what your experience was like with that? did it work for you? i understand everyone’s pcos is not exactly the same so the treatments will vary. i’m just curious bc i’m rlly scared to take birth control. i understand if you aren’t comfortable w sharing tho!

[@GG-yb3gs]

If you are on hormonal birth control, that will be regulating your hormones. There isn't the same risk of endometrial cancer associated with not having periods if you are on birth control (birth control is actually a recommended treatment for PCOS, so it's likely that it's not having much of an effect on your health at the moment)

[@TheRachieeWay]

Same, I was diagnosed around 15 and started hormonal combo pill birthcontrol at 17 for it. I have no idea what my body is like off the hormonal birth control, but at the same time I have minimal PCOS symptoms so I guess thats the trade off.

[@hellokyley9512]

What a fun time for this video to come out…as I’m curled in the fetal position, cramping, having my first period in over five years. I don’t have diagnosed PCOS, but I think I do and I just haven’t sought care due to poor past experiences. I’m also autistic and have PMDD, so I was thrilled when my periods just stopped for no reason… I turned 30 last year so I guess I should try to find a gyno, but it’s terrifying. Thank you for sharing your story.

[@MyLittleGreenHairdedMermaid]

Im in the same boat, I have figured for years I had it but doctors dont listen and have a hard time finding a good doctor in Canada. I hate to say it but most of our doctors are from overseas and they are sexist aholes, especially the indian doctors

[@starkidchickie928]

I have BEEN there bestie. When I was a teenager I never ever got a period, maybe once or twice a year, and I thought it was great. Then I finally went to my doctor and admitted it and she prescribed bc. Then I had the worst period ever. I took 3 days off of work. It will end, and please feel free to reach out to your Dr for help!!

[@catebrooks6779]

Yes! Go get taken care of, hopefully by your good gynecological doc. We're here if you need to talk.

[@oceancat0450]

I went a year without a period. I felt like I was living that year in PMS mode. I LOVE when I have a normal period.

[@cheerful_Abyss]

Thank you so much for bringing this up, Kristin! Being open and vulnerable on here might help so many people realize their own PCOS, or/and at least help raise visibility-which is SO important. It’s a harrowing condition that is always ignored. PCOS is frustrating because so many people don’t take it seriously, and there’s so little research on it! I feel that so many AFAB folks have similar stories (late diagnoses, downplayed symptoms, no knowledge of it in general) because of medical and general patriarchy. Plus, fatphobia; most people I know who have PCOS are plus-size and have insulin resistance, and doctors only point to the weight issue, instead of reasons that might be exasperating it and making it hard to lose weight. My PCOS journey has been rough. If it weren’t for me having my mom, who was highly aware of my symptoms (and also had PCOS and endometriosis-she had to get her uterus removed at 50, and had many fertility problems) be there to back up my medical issues, I likely wouldn’t have had any issues for YEARS. Because I find that talking about our stories is helpful in sharing potential alternative options for others, or at least finding commonality, here’s my story: I had my period at 12, but when I turned 15, my symptoms were sudden: I had my period nonstop (literally ;-;); I grew hair everywhere (a full beard too, not joking, which has since been removed with laser hair removal); I gained 40 pounds, and I’m 4’11 for height reference; and I had terrible, purple cystic acne-it was so painful that I couldn’t touch my face without pain. There were other symptoms-pain, fatigue, sweat/oily/dark patches of skin, mood swings, frustration, etc; (and when my ovaries were seen, pre-treatment, they were completely covered in cysts). I went to five doctors who didn’t care about any of my symptoms, but said to “eat less” and to take Actuane. (I have a lot of other health issues that don’t involve my uterus, so I didn’t-I thought taking it would be a risk in case). My mom asked about PCOS; they all ignored her. The sixth doctor finally diagnosed me. I produce zero progesterone, but do produce estrogen. I also produce a ton of testosterone! I’m extremely sensitive to medication, but doctors initially prescribed me on acne topical meds, metformin, and spironolactone. They upped those doses, then tried birth control (to control hormone levels). Lo-loestrol, Junel-Fe, and MonaNessa all gave me varying terrible side effects, mostly mental. I couldn’t take them-I’m likely allergic or highly sensitive to estrogen in particular. When I took progesterone, it ended up becoming androgenic, and worsened my symptoms :( So they kept trying. The weight gain was stubborn; I tried many things, nothing worked. I went to a new end and OB-GYN, and they recommended I try a mix of an injectable (Simaglutide; Ozempic in particular) for insulin resistance and Slynd (a mini-pill that hasn’t become androgenic). Ozempic is unfortunately not covered anymore, because the US health care is a f*cking scam, even when paying so much for insurance, so I’ve switched to Mounjaro. I also take Slynd and clindamycin; while it’s not perfect, my symptoms are much more in-check. It’s the (more-ish) winning combo for me; but the medication shortages and health care costs SUCK. Making these discussions less taboo is so important. In college, many of my friends had similar symptoms-and I talked to them about my PCOS, and I said that they *may* have it too, and to talk to an endo about that potential. They ended up getting diagnosed, too! One at 20, one at 21. Thank you so much again! Also, I LOVE those earrings, Kristin! And I hope you’re feeling better Jen; COVID sucks ❤ (Sorry this comment is so long! Whoops lol)

[@clarissaromero4667]

I’ve had a dermoid cyst removed from my right ovary, I have pretty much every symptom of PCOS, in constant pain & I have not found a doctor who will listen to me. This video gave me the boost I needed to seek other help. Thank you for being open & sharing your experiences ❤

[@livelongandprospermary8796]

Make them document why they refuse to run tests on a patient clearly having x,y,z symptoms in your chart. From what I hear, they’d rather run the tests than risk issues saying why they refuse when, to my understanding, many of the tests are non invasive screenings and blood tests. Reaching out to the office manager if they have one could be helpful too. Don’t quote me tho…not a doctor, just someone who sees a lot of patients struggling to get care especially AFAB people

[@abbiestaheli3431]

As a fellow PCOS friend with insulin resistance it’s super helpful and validating to hear other people’s stories. I’m so glad you’ve found a doctor that listens and problem solves WITH you.

[@ngairepowell2022]

I got diagnosed with pcos in 2020 and haven't really done anything about it except going on the pill to manage the symptoms when I have my period. Your video was super informative and has made me realise that I need to be doing more. Thank you for sharing ❤️

[@mb-the-enby]

I also lost an ovary to torsion, but I was in my 30s. I can’t imagine how scary it would be to have it happen (on a plane!) as a teenager. ❤

[@caitlynskiff2001]

I love how your mom paid attention to your pain. I don't have PCOS (at least not to my knowledge) but I do have very painful cramps and my mom is someone who says "Well your generation just doesn't know how to suck it up. I dealt with cramps forever and never complained about the pain once." I still have serious pain during my periods and she still blows me off as being dramatic. Period pain and mood swings are truly the only thing we argue about regularly. If I am being a little grumpy she automatically goes "Are you on your period?" I mean, most of the time I am but that's still a sexist thing to ask just because I'm a little bitchy.

[@megjuneau]

Love this. I got diagnosed in 2001, and at the time there was no convo about it, so I love hearing other peoples stories and journeys with it because it can vary so much.

[@BronwynAskark]

Thank you so much for sharing your story! I was diagnosed with PCOS a little less than a decade ago and hearing you talk about your journey/issues with it is weirdly comforting because its that "I feel that way too!" moment. Much love to you all!

[@yoopergirl904]

Thank you for this video ❤️ Two years ago I was diagnosed with PCOS, Endometriosis and Hashimotos Disease and I'm so thankful for videos like these that shed light on these issues.

[@soniajade]

Kristin, as a teen who’s currently on the journey of being diagnosed with multiple chronic conditions which have caused a lot of pain and suffering thank you!! Even though we have different conditions this is very relatable and comforting to see being talked about! Keep being you💗

[@simr44]

Thank you for this. As a woman with endometriosis and PCOS… I get a lot of “advice” from people who don’t have either or who don’t have both. Just like I know hysterectomy is not always a cure for endo… I’m still planning to get one. I took so many medications to have my babies and I’m no longer wanting to have more and my pain has only progressed… so that that baby right out of my body please.

[@jennfink3412]

From experience, endometrial biopsies done in the office with 0 pain meds are the single most painful thing I have ever been through. I'm so glad you had yours under general anesthesia, and are continuing to advocate for your health and pain. Sending love.

[@blaireshoe8738]

Appreciate you spreading awareness. Having a person explain their full experience with something makes it so much easier to empathize when someone else tells you "I have XYZ" without making them go into it if they don't want to. At least, it certainly does for me. Thank you for sharing, Kristin!

[@hannahblossom98]

Kristin! I saw you speak about this on the feed of buzz and it was what made me speak about it with my doctor and got diagnosed. Thank you for bringing it up so I could get the help I needed 💕

[@livinginthenow]

Thanks for sharing your story, Kristen. I'm glad your doctor is being pro-active about screening for cancer and doing biopsies when warranted. Cancers of the reproductive organs can really sneak up on a person. Too many people with uteruses and cervixes -- especially younger people -- don't take screening regimens seriously. My endometrial cancer was spotted early, and this was entirely due to my doctor's insistence that we keep to the schedule. I was entirely asymptomatic, and it would undoubtedly have gone undetected long past the point of no return if it had not been for regular screening.

[@ferviduum]

Thank you for this. As other people have said there is so much misinformation and lack of research out there on gynecological issues, and frankly I don’t have the energy or ability to do all of the research myself. It’s frustrating because we depend on doctors for advice on how to manage conditions like endo and PCOS and yet I have still never had a doctor that didn’t want me to lose weight as a primary focus for treatment. All I want is to avoid scary scenarios like developing too much insulin resistance. I have never even been told about the dangers of excess uterine lining being a risk factor for cancer until hearing you mention it in this video! Hearing from other people with gynecological problems is so valuable.

[@CatCaffeine]

Pain management is SO IMPORTANT.

[@Dawillsy]

It’s so nice to see other people with this. It makes me feel not alone . I’m 17 and lost my first ovary to a cyst in 2019 . And I’ve had them on my left ovary ever since and it’s awful . My treatment is always delayed from something . I just wish they would stop covering up the problem . Bc it’s keeping me from school and my life . Thanks for helping me feel not alone .

[@MikaelaJonasXD]

I was diagnosed with PCOS last week and I’ve been feeling a little lost. This video makes me feel like I’m not alone ❤

[@harpurr53]

Thank you for sharing and being so openly vulnerable with us about such intense medical traumas. I've never been through what you've been through, and I am happy to learn more about these diseases and how they can occur, what it's like to live with them, etc. I struggle with chronic pain/illness (and have for 2 decades!) and really feel you on needing to find new doctors because they recommend a dietary change to help your (in my case, autoimmune) disorder. I hope all goes well for your health in your upcoming procedures!

[@breakinfreee]

This is not the point but the way Kitchen says “syndrome” at 1:56 reminded me of how The Incredibles villain introduced himself. 😂

[@rebeccacuthbertson1271]

Holy guacamole batman, I'm sorry your struggles with PCOS and related/adjacent issues have been such a rollercoaster! You are a hilarious storyteller however, even through all this craziness. I'm so happy that you have a doctor/medical team who listens to you and that you're getting the help you need! All the best

[@jennyhatton1114]

Pcos can suck it.. lol I’m glad you’re doing a video on this. So many people have/suffer through this and it’s rarely talked about intelligently.

[@cerib8458]

When I was first diagnosed at 16 there were NO famous people talking about it. I think hearing someone with a platform like yours even saying 'I have this... and I have no idea about it and how to fix it' would have still have been a big change. I appreciated this video so much.

[@sunnyostrom4898]

"Don't wait until your 30's" I've been trying since my 20s but it wasn't until yesterday, after 10 months of non-stop period, that somebody looked deep enough, past my weight to give me my PCOS diagnosis...I'm 43. Thank you for doing this video

[@jessbeatty3394]

My progesterone treatment course made me soooooo emotional. My mom walked outside and I was full on sobbing in the yard. When she asked what was wrong, it took me like 5 minutes in between sobs to explain that I was so sad that all the leaves had to die in fall after the trees worked so hard all year to make them. I was diagnosed with my PCOS when I was 18 and had to do the progesterone course by 19. I have to have a regular face shaving schedule now but I've been managing ok the last few years... Definitely no joke! Hang in there! Thanks for making this video. I also agree with you, the amount of people in my life that have told me I just have to diet more or watch what I eat...garbage cans for them all!

[@rifatherapper]

I appreciate you Kristin, Jen, and Brie for tackling tough topics and for keeping us fed with the funny videos too 🫶🏾

[@littlewhitedove12]

So glad you had advocates along the way. I have a friend who was fairly recently diagnosed, and another friend and I tried to get her to go to the doctor so many times. We need each other to help us know when to push for help and when to relax. Hope the medicines help!

[@shcoolcat]

My doctor didn't take my constant symptoms seriously for several years, to the point where I had to change doctors just to be heard. Immediately, my new doctor ordered an ultrasound, and a few days later I was diagnosed with cystic ovaries. PCOS is a difficult diagnosis, so it's nice to find that others have had similar experiences, and that I'm not alone. Thank you so much for talking about this! Best of health for everyone

[@ennui9764]

as someone with diagnosed pcos ,you talking about it is really comforting

[@whfidjshdhfjfj5555]

I’m not quite thirty and I’ve already had surgery to remove endometriosis. I am lucky to not be in the PCOS boat, but it took me six months to recover fully from that intensive surgery, bright side is that my belly button looks fucking *sick* now. It took years of telling doctors the pain I felt for one to say, “yeah, that’s not normal” and two weeks later I was on route to surgery. I really appreciate how open y’all are to talk about things that are hard. My experience was genuinely pretty fine, especially compared to all of the uterus’d people still fighting to be heard, but those were so very dark times of my life. I hope soon I will be able to chat as openly about it as you did so beautifully here.

[@gracekelly812]

I got diagnosed with PCOS 17 years ago and it was only until the last 3ish years that I finally got medical advice that wasn’t nonsense. I’m so happy that you were willing to talk about this! I know it would have helped me find my way to better treatment if I’d seen anyone talking about it when I was younger.

[@mars7612]

This video was so calming and helpful! I have always been terrified about going to the gynecologist but, I'm making my first appointment tonight. Thank you so much! ❤️ Also, Jen is like a human therapy dog, they are so calming, the vibes are immaculate 💕

[@madelyne3055]

I have pcos and it's hard to not feel ashamed about it. Having someone I look up to talk so openly about this is really comforting. Thanks you guys 💜

[@Cupidthewingwoman]

I also have PCOS, it doesn’t feel as serious as Kirsten’s, but I literally could not get an actual diagnosis until about 3 years ago. And, like Kristen, I’ve had concerns about my period for years since I was in middle school. None of the doctors or specialists (who were all AFAB) took me seriously and I ended up making myself an appointment(IN THE MIDDLE OF A PANDEMIC)with a lovely woman at PlannedParenthood. From there, I now have a gyno(who’s also a man) who actually listens to concerns I have 👍

[@cinnamoslut]

As an AFAB person who has struggled with chronic pain for over a decade now... I've learned that it doesn't necessarily help to have an AFAB doctor. In fact, I've actually had better experiences with AMAB doctors, they have been less dismissive in my experience and more willing to actually treat my pain.

[@VarshaaaBeauty]

I was medically gaslit for over a decade. I told docs I thought I had it at 16 andddd they ignored me. Feels so good that cysters are speaking up about their experiences!

[@Mhaigalodon]

You guys are amazing. This is so important. I love you. I’m also furious that I, a thirty-effing-three year old woman, was today years old when I heard the “filling up more than one tampon in an hour” thing.

[@shannonp3400]

I have had horribly painful periods since I started my period. Having a doctor that listens about your pain is worth it’s weight in gold❤

[@RaeAyame]

Thank you for this video. As someone who has multiple endocrine issues, it's nice to know I m not alone. For me, I've been on birth control for 2 decades because if I go off it my periods will stop or be super irregular (bleeding multiple times a month then not bleeding for a year). I've also got the belly and little/no acne.

[@Sojiebee]

i've tried to research this stuff out of curiosity and you explain it soooo much better than anything I've ever found

[@KatieMae525]

Thank you so much for setting boundaries with the comment section! 👏 I don’t think many people realize just how harmful, toxic, and triggering anything relating to the word “diet” can be. I’ve been on a similar journey in my 30 years of life with PCOS. It’s frustrating, especially because many people look at me and go “it’s all in your head. Just try to lose weight. You’re not in pain, you don’t show it. You don’t look like anything is wrong with you” etc…. Which none of those are helpful statements. I’m hopeful that I can find all the right doctors soon, and figure out a treatment plan that works for me. I hope you’re well, Kristin. Thank you so much for sharing ❤

[@arsenicCatnya]

i'm recovering from a laparoscopy and endometriosis ablation + cyst draining right now so this was a huge comfort knowing i'm not alone dealing with all this stuff as i know it's kind of a taboo topic! so sorry you've had to go through so much but very glad you've found some great advocates 💚

[@Ginnyvos]

Thank you so much for sharing so openly. I've also got PCOS and a lot of the things you talk about hit home for me. From a mom who tried ringing all the bells and telling people that something wasn't right and got dismissed constantly (only in my case for well over 4 years because I thankfully never had a cyst literally explode on me) to body fat distribution and not being taken seriously even as an adult by doctors that are supposed to help you. Also thank you for nixing diet tips because dear gods if I get told by one more person that I would be totally fine if only I did such and so diet I can't be held accountable. One thing you didn't really talk about (and I really really hope that that's because you don't have this experience) is how much people will blame you for your own PCOS on account of being fat. PCOS is a hormonal disbalance that literally makes you fat... and yet doctors and everyone else seem to believe that losing weight is the miracle cure to PCOS. It is not. Another thing that I've experienced a lot is that because it's related to reduced fertility, it has been grouped with gynecology and thus the ONLY thing doctors seem to care about is if your body is capable of making babies. Literally any other symptoms are diagnosed as irrelevant and definitely not worth medicating. Anyway, I'm going to stop ranting now and give you another very sincere thank you. Speaking out about all these issues and the importance of getting help with them is so important!

[@brandiehammond]

I’m so glad your mom tried to help as well as my mom. Around 10 or so it was like night and day I started to gain weight and it was noticeable. My mom kept an eye on it as obesity do run in the family. I didn’t get my period until I was 13 and it was horrible and down hill from there. She noticed the changes and when I got a little older try to tell the military drs what’s going on, completely dismissed and was told she’s just starting out it will eventually start to get normal blah blah . Time goes on same thing and on top she needs to better control her eating. Pain had gotten worse and periods were coming every 3 months 6 months or yearly. When I did get em it was horrible pain but I was barely bleeding. Mine only lasted 3 days majority of the time or 5 was rare when I did have them. When I was about 21-22 back in 2004 is when I visited a gyn who knew exactly what I was talking about and she did a internal ultrasound and reg ultrasound and confirmed it was PCOS with Insulin resistance , and I was riddled with cysts. Over the years my periods were scattered. I had a miscarriage back in Jan 09 and was pregnant again July 09 and I did have my rainbow boy in March 2010. I’ve been on a IUD since and I no longer have any periods and it feels great. But at times I do have severe pain as I can feel the cysts . I’m trying to get health insurance so I can go back to finding a gyn Dr as I want to be checked out for endometriosis as the pain I’ve had with my periods and after are not normal as literally couldn’t move or walk without throwing up/ nausea etc. for myself to help with keeping my weight in check I do a fasting type as I’ll only eat one meal a day . I had to as eating 3 meals or small meals throughout the day even though I’m active wasn’t working and kept gaining so I had to revert to fasting as it help keep me at the same weight for a several years.

[@taylorciarrocchi3579]

jen does such a great job of supporting and adding to kristins story, even though its not hers ❤️ her jokes are so funny!!!

[@heliagrey]

Earring shopping intermission is hilarious. I remember a certain instagram story from like a year ago where she said she wasn’t going to buy any more beaded earrings. 😂

[@NickiPlums]

Thank you for sharing your story, Kristen. I myself am just under two months recovered from a hysterectomy to treat my Adenomyosis (another gynecological disorder that causes extremely heavy bleeding and intense pain). I am incredibly glad to have found a doctor who actually listened to me, presented all the information and solutions in a way that made sense without judgement! It was a very long journey through many other doctors who completely dismissed my pain or only offered temporary solutions that I knew didn't work for my body because "you're so young, what if you want kids". I hope all of you out here in the comments who are suffering from similar problems are able to find a doctor who can work with you on a solution that actually works!

[@EmilyChandlerj]

Whenever I hear about people actually getting through and getting a hysterectomy that wants one it makes me so happy! There are a lot of doctors who will not listen enough to even know if it might be a good option. Way to go!

[@amandalangworthy7162]

You are making a wonderful difference in peoples' lives. This is great for everyone to hear about and understand!

[@NovaDoll]

I have fibroid and need to have a full surgery to remove them. After the doctor said my cycles will be more normal and no super heavy periods. Which is causing me to lose too much iron. Finally seeing women being able to open up so we all don't feel alone is amazing!

[@h0neybunny3-3]

My mom believes I have PCOS and/or endometreosis. It's genetic and I'm apparently showing a lot of symptoms. Its honestly kind of scary to me so I'm glad to see someone talk about it!

[@allisondaugherty5963]

As someone who took probably 6-7 extra years to get the diagnosis because of a random giant cyst on my fallopian tube (found on a CT scan to prove kidney stones . At 26, am 41 now.), I'd say see a Dr. And relate your concerns so you can get evaluated. The sooner you get the diagnosis, the sooner you can deal with all the different things going on with you. even if the diagnosis is something else completely.

[@cheekyb71]

You need to learn early to be your own advocate - lots of doctors and people will try to write your symptoms off as "normal" and tell you every other woman manages fine so you should too.... don't listen to them, listen to your body, read medical research (not just Dr Google), and find a circle of people who support you to the core. You can do this, and you will be stronger and more resilient than lots of other people because of it

[@heyitzjustme]

Thank you so much for sharing your story, Kristin! As an emerging health care professional, it is really helpful to hear specific ways your doctor has been affirming and communicative, and I will keep what you said in mind in order to give best care!

[@corynneful]

So much more common than many people realize! Thanks for sharing.

[@KT-1429]

Kristin, I also have PCOS and your journey nearly made me cry right from the start! As soon as you said your mom was altered and on it, I almost lost it. I was already 15 by the time I started my period and the first one was living hell but then it just.. never came back. Between the ages of 15-22 I had a total of 7 menstrual cycles; there were years I went completely without one. It was terrifying and I kept wondering what the fuck was wrong with me. The difference between us is that your mom noticed and cared and mine, well she just didn't. No one ever said or did anything to help me until I helped myself and got diagnosed with PCOS at 22. The most frustrating thing when I look back is that it was clearly suspected by my doctors but they all simply chose not to inform me. I started developing the tell-tale signs of PCIS in middle school: I suddenly gained 40lb from nowhere (I was a 4 sport athlete and a competitive weight lifter at the time), my face erupted with dark facial hair and hormonal acne, and I started having uncontrollable cravings and blood sugar problems. I was put on metformin at 12 and was never told why other than it was to make me lose weight (it didn't). This continued and I found a lump in my chest at 17 which later turned out to be a cyst. All the signs were there but I was the only one looking. When I was finally diagnosed it was discovered that my uterine lining was so thick it was touching on either side. The gyno said I was a breath away from cancer, which was horrifying 1. because it's fucking cancer but also 2. because my maternal grandmother had ovarian cancer in her 20s which resulted in a full hysterotomy, so my cancer risk was already high. To shed the lining I had to do 3 rounds of provera (a progestin pill that imitates natural progesterone) and start taking birth control right away. It was hell- it was three months of the atom bomb bleeding you describe! Plus I had to restart the metformin and my doctor added spironolactone to help combat my crazy high testosterone levels. Over the years I've done several treatments to help manage the condition and I can say with confidence I wouldn't even want my worst enemy going through this. It's a shame that it remains such a poorly misunderstood condition despite its commonality. But then again, conditions affecting AFAB people typically are. For those of you who think you may be experiencing PCOS but haven't explored it, please see a doctor! Despite PCOS affecting fertility and causing gynecological symptoms, it is not a gynecological condition, it is a endocrine disorder which can have devastating effects. Left unregulated, PCOS can lead to excessive cortisol levels (stress hormone), insulin resistance, high blood sugar, high blood pressure, increased cancer risk, increased cardiovascular stress, and damage to your blood vessels and organs. Seek out a professional who will listen to you and is up to date on the condition, seeing an endocrinologist is generally recommended if you have access! I would also like to point out that the name is a bit of a misnomer. It is possible to have PCOS and NOT HAVE OVARIAN CYSTS. The criteria for diagnosis are: 1. you have irregular periods or infrequent periods - this indicates that your ovaries do not regularly release eggs (ovulate) 2. blood tests showing you have high levels of "male hormones", such as testosterone (or sometimes just the signs of excess male hormones, even if the blood test is normal) and 3. scans showing you have polycystic ovaries. To be diagnosed you need 2 of the 3! Lastly, to Kristin directly I do want to give some advice, though hopefully not the kind that will get me banned (please)! Metformin is notorious for causing GI issues so, from someone who has taken it for more than a decade, I just want to say that typically taking it in the evening with a meal (a higher protein meal at that) makes it easier to process if you are one of the thousands to get these side effects!

[@patricia_seraphine]

Man, you went through alot. A lot of people especially your mother don't know what you are going through. In this world, it is hard to find people who will listen to your problem

[@patricia_seraphine]

Hopefully you able to recover from PCOS, and all other signs and symptoms to come along with to. These are the kind of topics/issues that must be discussed and not pushed to a side and forget about it. Especially us young women/girls needs to know about, so that when they experience it, they can recognize these patterns and take necessary action to prevent it from becoming worse and worse. But thanks for sharing your experience. At least it gives me some insight as to what PCOS is and what it does and how treat it.

[@ColorJoyLynnH]

So glad you found out. How lonely that must have been.

[@Ktbean]

Every time I’ve seen you on Twitter discuss your debilitating migraines, endo, and PCOS pain… I feel you so hard. I suffer from the same, minus PCOS, and it’s a ROUGH kind of pain. I’m really glad you talked about this! Having similar health issues to yours, I know how much people try to point fingers at us like we made our meat suits this way. Hearing more stories like mine makes me feel like I’m not totally alone in this struggle! I really appreciate that. 😢 Also, I’m glad you have a good doctor who wants to help you and doesn’t want to push stupid diet culture on you like it’s a life raft. That’s a huge thing in and of itself! ♥️

[@DOrihuelaGruber]

Kristin, I am so glad you made this video. I also have PCOS (the kind with the hair and some of the acne and the insulin resistance), and idk it just helps to know I'm not the only one who literally did nothing for years because I struggled with doctors too. It left me with a lot of trauma. Even now, the endocrinologist that I work with is always trying to push other meds on me because I could lose weight 😭 Luckily for me, in a weird way, my body can't handle those meds. Worst part is: she's been the best endo or gyno I've had throughout the 22 or so years that I've had a diagnosis. She even told me something that helps with the endless amount of blood tests. Hoping that your future PCOS health journey goes smoothly and easily and you don't have to deal with as much pain ❤❤❤❤❤

[@annakohler5009]

My body type was like yours. Every doctor I ever saw tried telling me I had PCOS. Nope it was discovered by accident on an unrelated CT Scan that I had a tumor on my adrenal gland and I had crushing's syndrome. A lot of the physical things are similar with Cushings vs. PCOS. If you ever want to rule that out fully see an endocrinologist. I am so thankful mine was discovered- after having it for 20+ years and surgery cured me.

[@ChrisTroudalebabe4ev]

Thank you for this! I have PCOS and I wasnt diagnosed fully until I was 24. I started symptoms at 16, I got a period once and then not again for an entire year. All the first doctor did was prescribe me birth control. Finally a different doctor 8 years later took me seriously and tested my hormone levels and my testosterone level was unnaturally high. I am currently doing infertility things and alot of people i have talked to in that space also have some form of PCOS. More women need to talk about the differences of PCOS and the fact that it exists. There is a community out there, You are not alone!

[@lilyevans7597]

This was the exact push I needed to talk to my doctor about managing my PCOS more carefully. Thank you for sharing, you made it funny even though it’s all kinda scary

[@joshc-dev]

i love you guys. you play off each other so well. especially love the humor discontinuities.

[@joshc-dev]

❤️❤️❤️🙏

[@rosegoldlibrary]

I only had heard about PCOS as extreme like acne and hair where it is more visible. Now hearing about your experience I might need to check up with my doctor ! Thank you for your story!

[@annafraser5]

Love a doctor who trusts the patient's description of their OWN pain.

[@Aragedie]

Thank you for sharing your story. Your outfit is so cute, too. I had an endometrial and cervical biopsy in the office, and it was awful! The stuff they make women go thru without pain management is insane!

[@watermelongirl1011]

As someone who was diagnosed with PCOS late last year this video was incredibly comforting to me. Not only because you talk about your experience but also because you explain that not everyone’s PCOS is the same! Thank you for being so brave and sharing your story!