Even doctors miss early signs of multiple sclerosis

There’s no cure for Multiple sclerosis, but an early diagnosis can help doctors treat the unpredictable disease.

[@samkitty5894]

How can you get diagnosed early when every appointment is months into the future, and most doctors are completely clueless. You get 15 minutes per visit. Good luck...

[@visionsmagazineonlin]

Goin thru that now. Walking is getting harder n harder. Fell in the tub. Worried about staying employed.

[@samkitty5894]

Stay positive...I know it's hard. @@visionsmagazineonlin

[@byron2521]

Hear you! My appointments were sometimes 2 months apart. Took 10 months for me to get a confirmed diagnosis.

[@leaveittolefty]

exactly!! my fear is that i will finally see dr and hear " if you would have been here 3 months ago we could have helped you."😢 update: my fear came true. diagnosed with ALS

[@KianaG1280]

Omg. That sucks. I never have to wait long to see specialists unlese its ENT.

[@kB5TVP]

To everyone who Suffers with MS. I personally will pray for you. ❤ I watched my dad SUFFER with it, a severe case. Lose all mobility within 1 year. From cane, to walker to wheelchair. He lost his battle in 2014. Im sure they have much better treatment now! Godbless everyone! ❤

[@noemig04ify]

May he Rest In Peace 🙏 My father is dealing with progressive MS, he lost mobility of both arms, he’s speech, now its starting with he’s legs. It’s hard to see him like that, but he’s humor and smile never fades.

[@ehsaasdubey7781]

Hey! I’m really sorry to know that, can you tell me the details how your father was before during early days of MS? I would really help me, thank you

[@Truerealism747]

​@@ehsaasdubey7781just lost my.mum.to.severe ms I have fybromyalgia started in left leg 59 by 64 couldn't move list her 72 bedboynd

[@ichigomf]

May I ask where are you from?

[@clarebritton8245]

So sorry to hear about your Dad. Thank you for praying, I have ms x

[@BigDrawersMcGraw]

I woke up one day completely blind in one eye out of nowhere last year. I went to the ER in philly and was properly diagnosed with MS. Although my brain has 8 large lesions, I still retained all of my motor skills. I still commute everyday by bicycle!

[@MrMudEagle]

May God bless you and keep you healthy. I pray you stay mobile, agile, and hostile as long as you live.

[@pistachiogelato8370]

Exact same thing happened to me same city too crazy...

[@street_girl]

It's not that they don't see the signs. It's just that they don't care

[@karleeknockle1325]

Sad but so true

[@deborahtruthseeker112]

Absolutely!!!😮

[@clarebritton8245]

Yes true, some don't care x

[@ronsmith2241]

My wife had symptoms mainly on her right side. It was In correctly diagnosed as a stroke for the first 8 years. Her MS was correctly diagnosed with a spinal tap after that. She had MS for 26 years and was unable to ambulate for the last 15 years. I was her carer for almost all that time. She is no longer with us and passed at almost 82 years.

[@carlytrenee4467]

I am so sorry about her passing, no matter how long its been. I have been seeking a diagnosis for an undiagnosed medical issue affecting my neurological functions that began Feb of last year. I am getting an MRI of my lumbar spine tomorrow, and I am really so anxious. All of my signs point to MS, and it's in the family. I will be thinking of your wife tonight and tomorrow. I hope you are doing well and I hope she is at peace.

[@MoxmOne]

Hello Ron, thanks for sharing your story I truly hope that one day you can be with her again. I cannot imagine being without my wife.

[@constancemichelle52]

I PRAY AND BELIEVE THEY WILL FIND A CURE!!!❤❤❤❤❤❤

[@jeanniegreen8728]

I will never forget going to the doctor telling them something is wrong because I was abnormally tired. I told them I know the difference between fatigue from stress and this is not that-- I can drink an energy drink and go right to sleep in the day time. They told me it was likely just stress from being a single parent. This was over a decade before lesions were seen on an MRI. Now I am back to southern oregon-the same area where all of my health concerns were misdiagnosed or ignored, and this year I finally enrolled in job based benefits and I am afraid to experience the same responses I had to face all those years ago.

[@Malakaiea]

That sounds like me and it was adhd!

[@raineynight]

I had brain lesions and 2 neurologist still claimed that i didnt have MS. Finally after seeing my MRI a neurosurgeon surgeon recommended that i see another neurologist. That 3rd neurologist didnt hesitate before saying rhat i did have MS. I had a spinal tap to confirm it. 5 oligoclonal bands!! This took 7 years!

[@pjangels609]

Sorry for that struggle! I think I'm going through the same thing! All my blood work (C Reactive Protein, ESR, WBD) says negative, but I have flare ups quite regularly, just getting over one, so going back to doctor! And I've told them I think I have MS.

[@raineynight]

@@pjangels609 Try to see a neurologist that specializes in MS.

[@federicamatii]

What were your first symptoms when you had 2 lesions?

[@kule510]

This is crazy hope to god they find a cure for this disease.

[@elizabethhurtado2829]

Over 7 years and no help

[@Tns85]

I had a doctor tell me I had Ms. and 2 others say I didn't. Doctor s get major monetary kickback from the pharma companies for drugs they prescribe. Always get other opinions and don't fall victim to doctor s misdiagnoses.

[@lillyrocks2011]

There's no yet an answer for Autoimmune conditions. If a person has one autoimmune probably will have or develop more. That really sucks. Pharmaceuticals aren't investing much to get to know the cause and get better treatments, direct medications because they think we aren't many people with Autoimmune conditions. So ... If we had cancer we would be seen and treated very differently with interest and would help us. There's a lot of ignorance and around Autoimmune conditions we're not taken seriously yet,but I think more ppl is getting sick with an autoimmune disease. I forgot how difficult is yo get a diagnosis because of the same ignorance thinking that is "too rare". That's when some doctors will diagnose the patient with stress or with fibromyalgia. 😢

[@benmartin1727]

Unfortunately didn't have any major symptoms early on, and through the first year of covid, had trouble seeing a dr. If I had been able to see a DR about my leg issues early on, and not been left assuming I had simply strained something, and trying to take it easy, I could have been on a treatment a lot sooner, and maybe not progressed to be near disability.

[@nidhisindhwani9871]

Plz help me and reply me .. I having legs cramps for 2months

[@pjangels609]

you could have low potassium. @@nidhisindhwani9871

[@evilemoji420]

noticed my hands and legs went numb to everything but never thought twice about vision since i’ve always been half blind

[@Ausgar-yc1yl]

You should get OrCam glasses.

[@mollybrown465]

@@Ausgar-yc1ylwhat are they? I’ve never heard of that

[@Ausgar-yc1yl]

@@mollybrown465 They are glasses that can help you see, they are expensive though.

[@frenchtoast7742]

Yes , but they always say you need lesions on the brain or spine to have MS . That’s why people are misdiagnosed. You can have the symptoms and develop lesions later on. And that’s a fact 💯 Even with Parkinson’s you need a DAT scan 💯💯

[@octopu5ie]

Thank you, very good to keep in mind!

[@brucejunboxing]

I've got MS like symptoms, but my MRI seems normal? Very confusing 😢

[@Mischief_Therian]

I don’t know what to do because my neurologist finally did an MRI after complaining about numbness and several other symptoms and they found lesions on my brain but spinal tap was normal. I’m going tomorrow for a spine scan..

[@frenchtoast7742]

@@brucejunboxing then you may or may not not have MS - but you need to talk with your neurologist about your symptoms further or do more tests because it could be another reason why you are having these issues. They thought I had it and it turned out to be something else . Keep at it and ALWAYS ADVOCATE FOR YOIR HEALTH ! ❤️

[@frenchtoast7742]

@@Mischief_Therian I never heard of that at all . If you get your tests done and you feel you’re still unsure of your diagnosis and you feel you’re not in the best of care - then go for a second opinion. It’s what I did for my health- ALWAYS . It’s your right and it will give you peace of mind . It’s a horrible feeling when you are not confident in your doctor or you are feeling unsure of yourself. Always advocate for yourself in your health 🩷

[@timholloway8821]

This is awful, I feel like death almost every single day, dizzy, terrible fatigue, the pain is terrible in my body. I'm trying to work and it's so hard just to make it through the day. I sleep but I feel like I have not slept in days, it's miserable tbh!

[@ggt2719]

🙏🏾

[@jamberry1135]

Have you tried a whole food plant based diet?

[@lenabrown2598]

My brother who took so many medications but in vain. Turned to alternative medecine It was hard for him to believe but we insisted until he started taking them My God how his life changed is God blessings

[@Jessknowsbestt]

I’m not 100% I have ms still but it sure definitely feels like it .. I think COVID caused it. And my digestive system has become paralyzed. I am 23 went from never in my life getting sick to feeling like I have a bad painful cold every single day. All I can hope for is better days but you are NOT alone.

[@davidpegram8068]

You need medical cannabis to aid you

[@ithacacomments4811]

As I understand, research has discovered a connection between mono infection in teen years with MS in adulthood.

[@georgiahewitt3495]

I got diagnosed 2020 , after having optic neuritis and facial numbness, my eyes were deteriorating fast , 3 years on my legs go completely paralysed for a few weeks at a time RRMS sucks :( early diagnosis can help start treatment earlier , although if tried 3 so far with no good results

[@davidpegram8068]

I got miss diagnosed more times than I can remember. I got told my spasticity in my leg to where I couldn't bend it was cartilage wearing. Literally until I couldn't feel my whole left side did they find my raised white blood cells

[@jamberry1135]

Have you tried a whole food plant based diet

[@davidpegram8068]

I have no active disease in my last mri scan. I eat low carb. Water overload no tobacco or alcohol. No relapse for 2years.

[@shireenramnarain4005]

​@@jamberry1135 i am total vegetarian

[@shireenramnarain4005]

​@@davidpegram8068 i dont drink ,smoke or eat meatbi am a vegetarian Yet i have ms.... It seems something wrong

[@davidpegram8068]

@@shireenramnarain4005 i highly advise you consume 5000 uts of vitamin d supplement everyday.

[@lisasheline5406]

These are the same symptoms with Fibromyalgia. Which I was diagnosed with back in 1990. I get worse and worse as time goes on. I forget just about everything. I lose my thoughts too often. Honestly everything they mentioned, I have. But my symptoms are much worse. The last three years have been the hardest for me. It may have been Fibro, but I feel it's crossed over, because I can look back over the three years and ask myself what the hell happened? I can't manage any pain.

[@kule510]

How are you doing now?

[@lisasheline5406]

@@kule510 Truly never a good day. But I push through it and do the best I can.

[@davidpegram8068]

@@lisasheline5406 have you tried medical cannabis for pain relief? Definitely not for everyone but could make positive difference.

[@jackiewilliams4426]

Same here, except I was diagnosed at 19 with fibro and am 22 now.

[@mitidav176]

I know this is an older post, but fibro doesn’t progress. Now that doesn’t mean you won’t have days that are worst than others, but the disease itself will not get worse over time. I was diagnosed with fibro 10 years ago, a misdiagnosis, & diagnosed with M.S in ‘21.

[@denisek292]

My MS symptoms started in 2001, and I didn’t get diagnosed until I finally found an MS specialist who confirmed my dx in 2010. For those 9 years, not only was I humiliated by neurologist after neurologist, irreversible damage occured from not being on a DMT. I’m now secondary progressive. My nursing career is long-gone, can’t drive, fatigue, fall constantly, pain, depression, daily anxiety, migraines, diapers replaced my Victoria’s Secret, etc. I don’t wish this disease on anyone.

[@ProjectMore69]

Im so sorry you have had to deal with this, it is frustrating how doctors brush off our concerns.

[@visionvixxen]

I wish there was a way to find and treat sooner. I think I’ve had this for 20 years and my symptoms come and go, but no doctor has said anything although I fall once to three times a year, blurry vision. Some spasms, episodic difficult breathing, blurred vision. Often tingling numbness dizziness balance hip flexor weakness. Dysfunctional bladder.Sudden Problem is I take Prozac and meds that could cause balance etc issues Depression irritability, mood swings and cognitive issues

[@kevinfitzgerald7474]

Drs miss alot of diseases. My nuerological problems are from tick diseases and mold toxicities. These nuerological problems are from the nerves in the whole body being infected, toxins and cause failure to functioning of the nervous systems.

[@gunnarfit]

How do you know you experience symptoms from mold toxicity? I’ve slept around mold many times, and experience so many debilitating symptoms in a daily basis, could I be into something?

[@110311DONTWANTCHANNE]

montel williams went undiagnosed for 9 years..even with his financial resources to pay a doc to pay attention

[@MM-qg9fq]

I’ve had ms for 10 yrs and now my identical twin just was diagnosed with it, we live in two separate countries

[@orsettina]

Read about Coimbra protocol. It ll change your lives forever.

[@frankdenes379]

I literally have every symptom listed cognitive issues I can’t remember anything, I get tingling sensations in my feet, blurry vision and double vision, muscle spasms, bladder issues and bowel issues and I also have balance issues as well! I hope I can get an appointment sooner to get a diagnosis because I don’t want these things to get worse. I’m scared but I want an exact answer as to what’s going on with me

[@nattimac1045]

My mom has MS she starring smoking marijuana to help with pain

[@mollybrown465]

I have all the symptoms too to the extent I was checked for cauda equina syndrome

[@ichigomf]

I had the same problems beside vision issues. I was already in the hospital when the symptoms got worse, I stopped walking in 4 days after reaching the hospital. It was in the last year. I'm being treated and my life is back normal since then. I'm lucky my country has free healthcare and I didn't have to pay anything for the hospital, transport, exams, medicines and doctors. Every month I take Natalizumab and visit the doctor each 3 months and everything is doing ok. I still have some tingling in my feet and balance issues, I can notice it more when I don't sleep, but nothing compared to before. I run everyday, go to the gym and work normally. Hope everything is going to be ok with you too.

[@pjangels609]

Start with an anti-inflammatory diet, it helps. Alsp look into supplements, foods and vitamins that repair the myelin sheath.

[@Lucky_Kumar__]

Can u tell me what bladder issue you had?

[@notion14]

Yes they miss it, plus if you are near to or at menopause, that's what they use !..further, to see a neurologist , the gp must do a referral letter first But Only if they believe you have MS so its a double whammy for this age group..i am in this category..And i have degenerative spine so its even worse..i am not able to put my case across , i am pathetic. Even tried going private but i still have to have his damn letter so i cant win..i am sure i have MS..any help/support for a coward please..thanks .

[@erzas556]

I don’t know if I have to go and check because I don’t have blurred vision (although I have vision problems since childhood) but I have all the other symptoms. Does anyone have the same confusion? It takes a long time to set an appointment and get a referral so I feel really lazy towards it.

[@mnmlst1]

Of course they miss. You go to a doctor and they attribute everything to anxiety and tell you to exercise.

[@priyanshubagribagri3758]

It’s has happened with me the doctor found out about the disease when the situation got out of hand

[@baronghede2365]

To anyone who finds my comment: speak to a chiropractor, try the Mediterranean diet and use Herb's like turmeric, ginger and Asian ginsing, Blessed Be.

[@abhishekmaharjan8960]

I’m also victim of ms disease and My age is 22

[@nabeelmalik89]

My Dr said I was stressing out. My vision was blurred for a few weeks at a time until I did an MRI scan. So annoyed at the Dr

[@davidpegram8068]

Is unbelievable isn't it. I couldn't bend my left leg atall and they sent me to a phisio for treatment

[@nabeelmalik89]

@@davidpegram8068 I went through the same as well. I walk like 50 to 100 meters. My knee was f'ed up!! Soo annoying. I swore at the dr and called an idiot cause his judgement was rubbish and my neuro sent the results and felt bad

[@davidpegram8068]

@@nabeelmalik89 it really was annoying '11years took to get diagnosed just because I was so young. Even got told by a doctor must be concussion the reason I couldn't walk in straight line...!

[@jamberry1135]

Have you tried a whole food plant based diet

[@SuperMichelleDJ]

A doctor told me that my chest issues from Covid were caused by smoking. I knew they were caused by Covid because I never took up smoking. Will never take another vaccine again unless I'm unconscious.

[@theoriginaljonsie1]

I have all of the symptoms that they have mentioned but drs pass it off as other things.

[@frenchtoast7742]

MS and Fibromyalgia ARE NOT THE SAME SYMPTOMS. STOP comparing these two !!! MS AND PARKINSONISM are very highly comparable. Unless you have had an MS or Parkinson’s workup - don’t compare Fibromyalgia to any of these two diseases. We have these two horrible diseases for life and they don’t go away . We get worse and we don’t get better . We became disabled or unable to drive , to do daily tasks , breathe and live on our own , and our lives shortened due to infectious or lung infections. These are not symptoms or complications of Fibromyalgia. So please stop comparing. Spoken from a Parkinson’s patient.

[@njay3029]

actually, fibro and MS do have many similar/same symptoms, many fibro patients go onto develop Ms and many are misdiagnosed

[@mollybrown465]

Well I have all those symptoms but I haven’t got MS or Parkinson’s, just fibro. I have bronchiectasis so I struggle to breathe. I have no control over bowel or bladder. I wear tight straps most of the day and night because of cts. I have a cpap that is use through the day and night. I suffer with occipital neuralgia, spondylitis and three damaged lumbar disc, and no knees. So now tell me my symptoms are not like MS.

[@stevesmith-hi3oo]

how is it cured?

[@sharonscott8490]

Sounds like menopause symptoms

[@catherineduguay9558]

Sounds like Fibro too

[@martinsahagunsiles3513]

😓

[@elizabethhurtado2829]

💰💰💰💰💰💰💰🏦🙏

[@lillyrocks2011]

There's no yet an answer for Autoimmune conditions. If a person has one autoimmune probably will have or develop more. That really sucks. Pharmaceuticals aren't investing much to get to know the cause and get better treatments, direct medications because they think we aren't many people with Autoimmune conditions. So ... If we had cancer we would be seen and treated very differently with interest and would help us. There's a lot of ignorance and around Autoimmune conditions we're not taken seriously yet,but I think more ppl is getting sick with an autoimmune disease. I forgot how difficult is yo get a diagnosis because of the same ignorance thinking that is "too rare". That's when some doctors will diagnose the patient with stress or with fibromyalgia. 😢

[@denisek292]

You’re absolutely correct. I have MS, but also have Hashimoto’s discovered by Thyroid cancer surgery. Beware of BigPharma’s “autoimmune” drugs: They’re mostly chemo w/ risks the FDA allows concealed. My closest friend, who also had MS, was placed on Gilenya in 2018, when he was first dx. What the NIH and FDA failed to disclose, is Gilenya causes renal cancer: That’s exactly what he died from April 19, 2024. Not only am I completely heartbroken, I’m mad as hell at BigPharma….they knew, but money is their god. Covid lockdowns will have adverse affects on children who were forced into remote learning. Childhood is crucial for healthy immune development. There’s a misguided belief that “all germs are bad.” Wrong. Good and bad germs are essential for a well-functioning immune-system. Kids must be allowed to roll in dirt and mud, which is fun and healthier.