Larry - Living with ALS February 4, 2017

[@trey87]

Larry, I want to thank you for your service. I'm sorry you are dealing with this terrible disease. A friend on my Facebook is a prior-Marine and he was diagnosed with ALS in 2010.

[@Chanthip74]

Hi Larry! I have SMA type 2 it´s a neuromuscular disease and I have a ventilator 24/7 helping my breathe and keep me alive. I have many friends who also battle this horrible disease ALS around the world .I will say thank you for sharing your life with ALS and bring awareness. I like your videos.

[@eabeaton8592]

Sending courage your way....I have sent you comment re: our family gene, but have not heard back...so, not certain if you are reading comments......happy that you are able to travel with your family and congrats on your becoming a grandfather....find you soon...Eileen

[@larryujhely]

I'm sorry about not seeing your comments, I don't seem to get notifications all the time that I have gotten one.

[@eabeaton8592]

Sent msg...not sure if it went through...if so, disregard this one.....our familial gene is SOD1 with a mutation in the 21st chromosome....the blood test is i-113-t....just for your information if you are gathering data.....I am not a medical person; however, should you want to send me a message with any questions....I would be happy to help. Regards, Eileen

[@mikaelfata7016]

You are doing a fantastic job , i think you are so brave

[@AdventuresWithALS]

I am so jealous of the trips you've taken in the past year! I am hoping to take some fun trips soon. Congratulations on your future grandchild! Do you find that acupuncture has helped you? I haven't tried it but had a friend reccommend it as possible muscle spasm relief. Keep the videos coming :)

[@larryujhely]

I have found that the muscles that are affected more, like my shoulder, react negatively to the accupuncture. So no, it hasn't helped.

[@finestnostalgia]

Stay strong bud

[@lianage.3885]

Do you have bulbar als?

[@larryujhely]

Thank-you for your kind words. It's a horrible disease that I wish they could find something to help us out. I am starting a baseball tour this summer to help raise money toward research to fight this. If you would like to help, go to: www.gofundme.com/ALSBaseballTour