Рет қаралды 84
The mission of the International Consortium for FD/MAS is to improve the care and find solutions for the unmet needs of patients and their care providers through the promotion of multi-stakeholder, collaborative, and patient-centric clinical, translational, and basic research. The International Consortium for FD/MAS will encourage the testing and development of potential cures and treatments and promote the development of evidence-based standards of care. The consortium aims to improve access to information worldwide through dissemination and education initiatives. Finally, the consortium will support the development of cooperative scientific studies and initiatives with promise to serve the global FD/MAS patient community.