Learning More About Functional Neurological Disorder

[@carolynsadler2101]

I hope you are doing well. I just found your channel. My daughter has been suffering with FND for over 3 years. She also has depression/anxiety. I almost cried when I saw the video you recorded of your seizures. My daughter's seizures are so similar. Your journey sounds so familiar. It is so hard to accept that this could be what life is like for the rest of your life. My daughter lives with me and is very dependent on me for her basic needs. She almost never leaves the house. We hope and pray that we will find a treatment that will be the cure but we understand that there just might not be one. I hope that you are not in too much pain. Your videos have truly helped me.

[@casseyklie]

Hi Carolyn. Thanks for writing and sharing apart of your families story. I’m sorry to hear that your daughter is struggling 💕 it is such a tough journey. I hope your family finds some ease. I’m glad my videos could help a bit!

[@hiram8098]

I been seeing a lot less symptoms when I start using my left hand, I think it would be beneficial for you to use less dominant hand. I know that depending on which hand you use it is associated with using more of one side of the brain. So for example I am more dominant with my right hand. I been experiencing more stress when I use my right hand, and sometimes I feel the right side of my brain being over stimulated and it starts to hurt and my back start to cramp up and I some times I lose control of my body. But when Immediately start to think of using my left hand I feel the right side of my brain starts to come down . But my brain does feel a tendency to use my right hand cense I’m soo use to using my right hand. I know the issue it’s with the programing so instead of trying reprogram the right side of the brain, which for me, it has the tendency to stress itself out. I believe it’s easier to start off with a clean slate, and that would be using my left hand to access part of the brain that does not have the hard wiring to stress itself out. I been teaching my self to use my left hand to do everything from doing daily chores, writhing and even drawing. Cense then I been noticing at lot less stress except for when my brain tries to go back to using my right hand, which can do the lots of the things I’m trying to lear, but much faster. Just give it a try and see how you brain and mood feels. Its kind of hard though cense the body or the brain tense to use the stronger muscles rather than the week one. Just take it slow

[@aliciafierro4736]

Hey, I have FND and have so many cognitive symtoms. So, I wanted to share that is definitely a thing. So you're not crazy. I thought I was for a long time. Also, for the fatigue, physical therapy has helped me a lot. Try to push yourself just to be a little sore or a little tired. Not too much!!! We have to build endurance, that takes a long time according to my physical therapist. #staypositive

[@casseyklie]

Hey there, thanks for sharing! And yes trying my best to find a good balance for exercising. Wishing you well 💕

[@avasabadishin5765]

Thank you! This was helpful. Still not sure if I have FND. But some symptoms is I have issues with walking in my right leg, not paralysis I don’t really know how to describe it, so my balance is off. I have pain in my foot and ankle, sometimes calf. I have a constant numbness in a portion of my foot and random tingling/burning sensations, I don’t know if my fatigue is from natural life or my possible diagnosis. I’ve been doing a lot of research on different disorders to try and find a diagnosis similar to my situation so thank you for making these informational videos! Ragnarok is so good!

[@casseyklie]

It sounds like fnd for sure! Im sorry youre dealing with that. And yesss. I love loki in it, hes so unique!

[@avasabadishin5765]

@@casseyklie Thank you, yesss such a good show!

[@seewah101]

Thank you for talking about this shit maybe diagnosis.

[@avasabadishin5765]

@@seewah101 Absolutely it’s good to raise awareness or else no one gets help. I’m still struggling and my symptoms have gotten worse, doctors still can’t figure it out. Hopefully they will come to a final diagnosis eventually

[@avasabadishin5765]

@@seewah101 sorry I also realized you may have been talking to her and not me, but her videos are definitely helpful in terms of raising awareness

[@alinabohn2276]

I haven’t seen any more videos since this one. Is everything ok?

[@casseyklie]

I had to take a break. I wasn’t doing too well but I’m hoping to start up again 💕 thanks for checking in!

[@MrAllaqua]

Hello casey... I have never taken meds for my fnd. And I always have brain fog. It was one of the things that made me think something is not right. Then short term blindness and double vision . That was my tell .just wanted to share that . Love and peace to you and yours .

[@casseyklie]

Thanks for sharing🫶

[@jimreed6875]

I'm going to try Ragnarok. I'm always looking for something good to watch. Thank you.

[@casseyklie]

Hope you enjoy

[@sonjamurphy]

It’s me again, the girl from Colorado. I wrote you a long message on your anniversary post I think it was. Anyhoo, the trouble you are having with talking and losing your train of thought or can’t find wirds. That was a huge problem for me for about a year or two. I would be talking with my doctor or mom or whoever and in mid sentence I would completely forget what I was talking about and sometimes, unless the other person helped me out, occasionally I would just forget and not regain my memory of the conversation either for days or not at all. I have dystonia with my eyes and I used to have worse trouble with my eyes and trying to keep them both open at the same time especially if it was bright outside. I have trouble reading because it makes my eyes shake a little and I get dizzy.

[@casseyklie]

Hi sonja! Thanks for writing again. Thanks for sharing your similar symptoms. I also get dizzy and feel strange when i read so i like the auido books! Wishing you well 💕

[@MrAllaqua]

Do you get a slight warning before they hit ... my eyes go first slightly before the main attack . I watched a ty vid on a guy that couldn't walk , however when asked to walk backwards he walked fine .... that's how fnd works . Distraction techniques. I play guitar to Distract Sorry for all these posts .. it's just nice to be able to relate 😌

[@michaelharrand5443]

my wife finds walking backwards helps and standing on her toe s help to centre her self she calls it and music and dancing with her walker help for a bit some days nothing helps but there better days and bad some say bouncing a ball helps but not try that yet i think if you can distract your mind can help not sure it works all time

[@MrAllaqua]

@michaelharrand5443 yes .. for me if I walk up the stairs one by one .. preprogrammed by my brain I tick and shake .. but two stairs at a time fine .. strange eh , thanks for your reply

[@casseyklie]

I do sometimes! Sometimes i get a stabbing pain in the left side of my head. Sometimes i feel spacy 🤷‍♀️

[@MrAllaqua]

@casseyklie yes for me it's almost like a dizzy spell, on a boat type feeling before , not always .. but mostly ,gives me time to prepare.

[@geraldinekinneavy5468]

I am now deterating I’m loosing my balance I am hitting myself when on my walking stick but when I’m out with my sister she wraps her hand around my Hand and she controls my hand and stops me hitting my self I hit my head face chest this is a new symptom Casey Kline

[@casseyklie]

Im sorry to hear that 💗

[@MrEd-ri5kh]

I hope you're okay!

[@casseyklie]

Im okay thank you! 🫶