Learning To Live With Heart Failure

[@meghanvidler9147]

Not everyone can go for a walk - I have severe arthritis and knee damage and have difficulty walking.

[@johndaly2178]

A concern that needs to be addressed revolves around the universal advice to "call your doctor if..." any of several problems occur. Our experience has been that "your doctor" is not available. We may get a call back from a nurse practitioner. We may be offered a "first available" appointment 30 days out. Sooner or later we have had to just go to an ER, when I believe the problem could have been solved with routine but prompt attention from a physician. I believe we have an excellent cardiology team, but they are so busy that a problem doesn't get attention until it deteriorates to a more serious situation. Just calling to say "I gained five pounds this week" would not get any meaningful response, leaving the patient to wonder, "should I take another diuretic?" "should I wait and see?" "what should I do?" I wonder if other patients have a similar concern.

[@RavenWolfDrum69]

I agree.

[@BonoTheManShow]

My wife as chf thanks for this video I was feeling so lost

[@paolow1299]

Thank you for this advice which is better than anything my doctor or health centre ever tell me .

[@bakokat6982]

Yes, I came here to find info that my cardiologist who rushes through my visits that are months apart . I saw her once after being in the hospital the first time and was found to have cardiac issues. Second appointment was quick and only discussed upping my lasix and then it was “ see you in six months. “ This video gives me more information than my Dr. gave me. I didn’t get to even discuss my sudden episode of syncope that sent me to,the ER. …I think I need to find another, but my HMO probably won’t ok or pay for it.

[@gabriellebudd1166]

Thank you very much this has been a very informative video for me as I am with heart failure and I wear a defibrillator which saves my life thank you

[@boraborabob1]

Had heart attack and lost 25% of heart muscle. Meds like Xanax, Lomotil and hydrocodone for back and numerous other maladies I held my own with an EF rate of 37% as I reached 80. These meds along with normal heart medicines allowed to continue good diet and plenty of exercise for 10 years. In the last two years doctors have cut off Hydro, lomotil and xanax. Too much advil created a bleeding ulcer. Now I just sit around in pain, poor sleep and depressed and am on a fast slippery slope down currently passing 30% EF. Thank you doctors.

[@wendi2819]

I hope you're doing ok. My very best wishes to you!!

[@quashiesuzanne]

Look for various other options to help yourself and research other alternatives. Body mechanics, massage therapy, diets, exercise, relaxation techniques, hobbies. Physical therapy do all you can and God will bless the rest!

[@georgetaylor8535]

I'm right here with you. I feel a little helpless very vulnerable and misunderstood people look at me like I'm normal and ask me to do things which are impossible for me to do and then they think I'm just being lazy. I hope you are at least happy in some way. I just couldn't imagine being taken off them meds that they had you on. God bless you and hang in there I'll eventually see you on the other side my friend.

[@paulpouncey3888]

having emphysema and cirrhosis was bad enough before having CHF !!! Now I feel like a ticking time bomb !!!!!!

[@lmonnette4037]

I certainly can understand that feeling. I was so looking forward to enjoying retirement with my husband. Both of us were always very hard working and loved being active. Now I feel so defeated by my Heart. I feel bitter about how my case was handled poorly by my first two heart doctors. They didn't listen when I told them my heart was in trouble. They didn't listen. Now it's up to me to keep going and not let this kill me !

[@sarajsanders2050]

I am sorry you going through that. I love you. You not alone.

[@wendi2819]

@@lmonnette4037 I know how you feel!!! I've had shortness of breath and swollen ankles for 8 years. They truly overlooked how bad this has been for me. I haven't been able to walk any distance all this time. Now I'm terrified how bad this may be.🙏🏼🙏🏼🙏🏼🙏🏼

[@quashiesuzanne]

@@lmonnette4037 you keep fighting I'm with yah your not alone!!! God helps those who serve him with earnest endeavors

[@WarmongerYT]

​@@wendi2819... I'm 35 yrs old. Unfortunately we "make just too much" for insurance but for me to get insurance would be at least $2K per month. I've developed varicose veins out of nowhere within the last 10 months, swollen ankles & now for the last two weeks of woken up with my fingers swollen & painful & stiff. I'm always exhausted. Ever since I broke my foot I was inactive for a while & now out of shape. Honestly think I might have heart disease... Just wish I could go to the doctor & I'm about to die or not at 35 yrs old ..

[@rukhiafzal5778]

Thanks for this informative program by this way you are helping and educating the people thank you once again

[@jocerb30]

I diagnosed Grade I diastolic dysfunction.thanks for information it helps me how to be more curious about my illness.

[@biggiecoalla14]

Jocer Bulatao hi sir..how are you now?want to ask you something because I was diagnosed also with same condition.what medication are you taking?do you have Sa shortness of breath even only when you talking and juz at rest?thank you if you share some idea

[@thomsharma4149]

Thank you very much for this information

[@chargermopar]

Heart failure is a result of trying to pay for medical care in the US

[@lissacollins3557]

chargermopar poop

[@lorraineacosta6370]

Rightttt 😩💔🤦🏻‍♀️

[@zellanutellaa]

That part

[@michaelgreene6540]

In 2023, soon to be 2024 and nothing has changed. I couldn't afford health insurance after Obamacare. Couldn't pay for my hypertension meds.

[@RavenWolfDrum69]

​@michalgreene6540 I'm so soorry

[@lmonnette4037]

After an Afib event I ended up in the hospital and a cardiac conversion was done. I was pretty sick for several weeks before going into full blown Afib. After the Cardiac Conversion I could tell I was feeling a bit better. But then I was told my echocardiogram showed my heart had weakened. Seven days later I had gained 7 pounds! I was short of breath and my chest burned inside when I did anything, like I had run a marathon. I always become very fatigued in everything I do and have developed a raspy unproductive cough. I have to use a cane I am so weak. I have another echocardiogram in December. The doctors then said they would give me a dx!!??!! Really? If I am in heart failure..tell me so. Telling me my heart didn't bounce back from the cardiac conversion just doesn't cut it! I'm 64,...I think I can handle the truth!

[@quashiesuzanne]

Yeah don't tell.me half the story at home and when I get to the office it's worse

[@wendi2819]

I hope you are well!!!!

[@quashiesuzanne]

This video is great and reassuring thx so much

[@strollby4800]

Great informative video, most helpful, Thank you for posting.

[@quacker998]

Your salt goal is 2000mg or less! 500mg per meal is a good goal - makes a huge difference to the fatigue

[@Reaper1947]

Is this a joke? I have heart failure and let me tell there is no way you can learn to live with it. If you have heart failure you are dying, some slowly and some sooner than later. I was diagnosed a few years ago and I can barely take care of myself now, I can't even vacuum the floor. It's not that I want to die, it's more like I don't want to live like this anymore. Basically, I don't call what I'm doing LIVING! TheReaper!

[@gregorymalchuk272]

Did you have a heart attack that caused the failure? Are medications keeping symptoms under control?

[@Reaper1947]

@@gregorymalchuk272 I've had 32 years first open heart then lots of stents, then an ablation that didn't take then a defibrillator/pacemaker etc. Can you believe it someone gave me a thumbs down? I guess they couldn't handle my truth, this all depends on the condition of your heart at the time. Because some hearts are in better shape than others results vary. On the meds, on April 17th I took myself off my last 2 heart meds, one of them the Amiodorone had my heart pumping so slow that I could only take 3 steps before I had to stop to catch my breath. If some of this stuff works for you consider yourself lucky, I think my heart is just too far gone? I don't want any more surgeries or medication, nothing has worked for me in fact some of this junk has just made me worse. What I would tell my fellow CHF club members is, it's a crapshoot. I'm sure you've seen those Entresto commercials? I was on it for almost a year even though it was making me worse, then I finally gave it up. It's good to talk to other CHF patients but like I said we are all different. Don't expect the same results as others have had, and if your meds are making you worse or giving you side effects that you can't live with do something about it. Doctors may know the standard protocols but they don't know you because they are NOT YOU! What I have learned FOR ME is not much of this junk works. I'm OK with that I'm going to be 74 next month it's not that I want to die, I just don't want to live like this anymore. TheReaper!

[@gregorymalchuk272]

@@Reaper1947 Do you feel better now that you are off your medication? What is your ejection fraction? What does the cardiologist think? Look into a medication called Rapamycin. It is an old transplant medication that now is being used as a general-purpose anti-aging medication. It increases lab mouse and rat lifespan by 25 to 30%, and it has been proven in several studies to reduce the inflammatory chemical cascade that causes heart failure. Also look into resveratrol, which is an easily available supplement found in grape skins that has similar anti-aging effects and positive effects in heart failure.

[@Reaper1947]

@@gregorymalchuk272 All year I was going downhill until I could only take 2 or 3 steps and I would have to lean on the wall because I was GASPING for air. If I would raise one or two arms to get something out of the cupboard my arms and legs would turn to rubber and down I would go, and come very close to blacking out. It’s a really weird feeling and it was happening every day in early April. What happens is I guess my heart can’t pump up as fast as gravity pulls it out of my arms. The best I can describe it is it I get a quiver and it feels like my battery is going dead. Now to answer your question do I feel better off the meds. The answer is HELL YES! if a walk slow I can actually walk up the basement stairs without HAVING to stop to catch my breath, when I get to the top of the stairs I sit down and rest a bit and catch my breath but nothing like before. On the 16th of April I started reading up on Amiodarone 200 mg, I knew right away it was the Amiodarone but at the same time I quit the metoprolol ER too. Just about every heart medication I’ve ever been on has made me sicker. I have an appointment with my Cardiologist on the 10th, my best guess is he is going to be pissed and think I’m nuts, but I don’t care it’s my life. When I quit the meds on April 17th I figured I might last a few more days at best. I always took my meds at night when I woke up on the 18Th my first day off the meds I was back to my old normal. TheReaper!

[@Reaper1947]

@toni camaro OK for the record I don't smoke, I am not on statins, I do take some vitamins, as far as the sodium goes I am on 80m of Lasix daily so I spend about 4 hours a day pissing every 15 minutes. TheReaper!

[@mariehoadley2075]

Two years ago I was diagnosis with C H F I was in stage 3, I have been more tired and short of breath, Could I be in stage 4 now?

[@amcbleed7837]

Are u in hospital or just taking meds at home

[@sherlyfordyce5063]

Can you say what is the treatment for enlarged heart thank you

[@bilalyounus3543]

My daughter 6 years old ckd patient with 35% ejection fraction heart failure. She has edema on her face feet and legs now. Her bp remained high she was taking bp medicines now her bp remaining normal and she has cough as well

[@wendi2819]

So very sorry. I hope they can help her!🙏🏼🙏🏼🙏🏼

[@celinejohnston3257]

What about turning purple around the mouth, even when it's not that cold.

[@lucario2188]

Go to the doctor has fast has you can.

[@LisaToler-fl9ir]

Dont wait ,see your Physician Your Doctor to guide you

[@SolarReturn1966]

Can one return to work after being diagnosed and hospitalized with chf?

[@tomkinney7427]

SolarReturn yes you can go back to work. It's hard. But I work everyday. On top of kidney failure.

[@gailhickman5843]

There's no point in these videos.We're gonna snuff it,sooner than we deserve to. This time last year, I was working in a nursing home, my occupation for over 22 years. Following a heart attack (at work)!, 4 cardiac arrests and open heart surgery, I'm wrecked.Tired n knackered all the while, can't leave my house on my own....pretty depressing eh? And,........ Department of Work and Pensions say I'm capable of working.... This is England, btw.

[@Mickey67938]

Gail Hickman sorry about your personal circumstances but I don’t agree. I’m 49 and have three children. Whilst I feel pretty good I want to get as info on how to stick around for as long as I can

[@lmonnette4037]

I have a stent and was told after two heart caths in two years..all is well. NOT! Recently had an Afib event, then a cardiac conversion. I then was told my echocardiogram showed my heart didn't bounce back like it should have. My symptoms now are heart failure. Can't walk far without my cane, coughing an unproductive cough, a lot at night. Pain in between my shoulder blades all the way to my chest and always feel like I just ran a marathon! Gained 7 pounds after the cardiac conversion the first week. On my third heart doctor in three years and thank God he is an American. He, I believe will at least listen to me. I know now the only thing keeping me going......is me! I have worked really hard all my life...now this???!? It sucks!

[@bajajoes1]

England is a heartless Bitch!

[@gregorymalchuk272]

@@lmonnette4037 Are medications helping your situation?

[@RavenWolfDrum69]

Whats wrong with her eyes

[@AS-ye4yx]

Don’t store medication in bathroom cabinets.

[@tachyontee3877]

Why?

[@marywilliams9858]

They degrade do that you do not get the benefit from them.

[@GlannyAmmachi]

I could hardly lift a towellout of washing machine to put into dryer after visit to shop unable put shopping away for days so tired cant make cup of tea or close curtains have started coughing very short breathe. Best make sure arranged your choice of funeral in my case direct creamation it is cheaper eat what you like you will lose appitite cut out salt keep up fluids always have water beside you your spirtual believe is strong play music laugh😢😊😊give thanks be aware you are dying

[@tomasparriles6440]

Nice chick

[@cesarcantu813]

♥️🙏♥️ 👨🏽‍🦼

[@wilfordmurray]

This video is loaded with BS!. Better plan would be to listen very carefully to what she has to day... and then do the exact opposite! You will live longer.

[@sunshinelovenv]

that is not what she said moron

[@Mickey67938]

Dick

[@robertoluis9238]

bingo----------------------