Let's talk about my Disney World trauma | grief and progressive disability

When I was in high school (and at the peak of losing a lot of abilities to my muscular dystrophy), my marching band took a trip to Disney World. Let's just say that it was far from the 'Happiest Place on Earth' for me...
Watch my story about losing the ability to run over a single summer: • I lost my ability to r...
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#DisneyWorld #traumatic #StoryTime #disability #disabled #FSHD #muscularDystrophy #EarlyOnset

[@Larissa-lp1df]

Amazing video, love how eloquent you are...thanks for sharing!

[@h3llie]

Incredibly relatable… so many memories of struggling to keep up on school trips, one time my friends loaned a wheelchair for me even though I was protesting, because they knew I was in too much pain to walk. ❤

[@morganfleming2463]

Let’s goooooooo

[@DisabledInNature]

😂

[@jessicamillerr]

Hello 🥝 Focus on video editing. It is quite low, edit in good style. Because it is very important in your video.

[@emilybrowno]

Agree at heart. 🌶️

[@LizzyFerretOfficial]

All the loves to you, both for sharing this story and for the actual going thru it, cuz being a teen is tricky enough let’s be honest! ❤️‍🩹 I founded @dundeedragons wheelchair sports club and as I sustained my SCI in my early 20s it was a clearly defined line in my life - pre injury & post injury. So I was surprised when encouraging kids with CP etc to come along to the club and their parents were suuuuuuper reluctant for them to use a wheelchair because they’d been “fighting” and “battling” to walk etc etc. So to use a sports chair would seem like some kind of failure or roll back on all that work (🙄) Fast forward to when the kiddo realises that their sports wheelchair is a tool to be able to move freer and faster than they ever have before and boom: 💡 moment - their life changes for the positive, forever, right there. I always say a wheelchair is a tool in your arsenal to get stuff done, just like you wear welly boots to get through mud or ballet pumps to do artsy dances or running spikes to get down a track quickly. A wheelchair is just another example of an item that makes doing some tasks easier. So bin the stigma and get yer butt in the seat 😎

[@DisabledInNature]

I love all of this ❤️