Letting Her Choose // non-verbal cerebral palsy

  Рет қаралды 34,278

Hope & Sunshine

Hope & Sunshine

2 жыл бұрын

Even though she has non-verbal cerebral palsy, Raelynn can made choices by looking at the thing that she wants. But an eye gaze will allow her to choose between many more things, much more easily!
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Raelynn's PO Box:
Raelynn Huff
PO Box 219
Nokomis, IL 62075
Join this channel to support what we do, and get perks:
/ @hopeandsunshine
Our Other KZbin channels:
▶️ Our Family's channel: / smalltownfamily
▶️ Abby's channel: / nurseabby
▶️ Cory's channel: / corythecoder
▶️ Games With the Kiddos: / @gameswiththekiddos
▶️ Daily Bible Devotion: / dailybibledevotion
Website: sunshinebaby.tv
Instagram: / sunshinebaby_tv
TikTok: / sunshinebabytv
Facebook: / sunshinebabetv
Subscribe: / @hopeandsunshine
AFFILIATE LINKS
✔️ TubeBuddy: www.tubebuddy.com/sunshinebaby
✔️ Epidemic Sound: www.epidemicsound.com/referra...
ABOUT RAELYNN'S KZbin CHANNEL
Raelynn has epileptic encephalopathy, global developmental delay, cerebral palsy, cortical vision impairment, and I could go on and on. In fact, I'll go on a little more. Raelynn is quadriplegic. She has a gastro-jejunal (GJ) tube. She has a vagus nerve stimulator (vns). She uses a shaker vest, nebulizer, and a cough assist machine daily to help her breath better.
Raelynn’s been to the doctor more times than the rest of our family combined!
In this whole situation, if we were looking for hope in our circumstances, we honestly wouldn’t find much. Raelynn will probably always be in a wheelchair. She’ll probably always be fed via a food pump. She’ll probably never talk. And she has virtually no chance of getting better.
I can’t tell you how many times people have told me, “God can heal her.” I’ve actually come to find it a little funny when people say that (and I'm a pastor!). I know that God CAN heal her, and I know that God will heal her in eternity, but the point of life is not that we wouldn’t have difficult circumstances.
God is using Raelynn exactly as she is right now. I see how much I’m a better person because of Raelynn. I see the ways God has changed my family, the things He’s taught us, the people He’s put us in connection with, all because of Raelynn’s problems. When I see how much God uses her disabilities, I see that God takes the bad things, the hard things, the hopeless circumstances of our lives and brings beauty, goodness, and hope from them all.
That's what this channel's about.
We post videos of Raelynn's life, seizures, and other disabilities to this channel three days a week (Monday, Wednesday, Friday).
If this sounds like something you could benefit from, please consider subscribing! Your subscription will help us keep making videos of Raelynn's life and assistive technologies! ❤️
/ @hopeandsunshine
#nonverbal #cerebralpalsy #winslate
sunshinebaby.tv

Пікірлер: 80
@gracins4425
@gracins4425 2 жыл бұрын
I am so glad she liked her gifts.I hope she enjoys them
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
She does! Thanks so much!!
@esthermartin768
@esthermartin768 2 жыл бұрын
Hey Gracin where did you find the glow in the dark blanket?
@gracins4425
@gracins4425 Жыл бұрын
@@esthermartin768 I doing it at Walmart
@gracins4425
@gracins4425 Жыл бұрын
Found lol ! I have so many typos
@rosemarrypolack5708
@rosemarrypolack5708 2 жыл бұрын
Aaawwww! She definitely liked the gifts from Gracin. Her eyes watched the whole unwrapping and her face showed that she approved!!
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
She sure did!
@laceygray9509
@laceygray9509 2 жыл бұрын
Hey guys!! That makes me so happy to see her choose and enjoy her gifts! I have some gifts and a card coming…some may come after Christmas but one will come in tomorrow for sure! I can’t wait to see her with them!💕 glad u guys are doing so well!
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Awesome! Thank you so much!
@laceygray9509
@laceygray9509 2 жыл бұрын
@@HopeAndSunshine always! Show them on video so I know u got them🥰
@emi7912
@emi7912 2 жыл бұрын
Wonderful, Raelynn has a new Winslate to try! 🙌 Love seeing her use it 😊 And she’s definitely smiling over her present, wow, I’d like a glow in the dark blanket myself - sweet stuffed animals too, very thoughtful of Gracin. That’s so neat, Raelynn made the Winslate say Dad Come Here and Stop!?😯
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Yeah, Abby put each of our faces on the screen, so that when she looks at one, it calls that person over 😂
@user-xf2qo5wy3q
@user-xf2qo5wy3q 2 жыл бұрын
Thank you for doing all the work programing the eye gaze for her,thats cool!
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Abby did a great job with it 😊
@KeepingItHopeful
@KeepingItHopeful 2 жыл бұрын
I find the eye gaze devices so neat.
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Me too, it's very cool technology!
@erinsteinbergs568
@erinsteinbergs568 2 жыл бұрын
I'm so proud of your daughter and I hope she can communicate with her device. That would be so cool 😎
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
That would be awesome!
@erinsteinbergs568
@erinsteinbergs568 2 жыл бұрын
I'm so happy for your daughter 💗.
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Thanks ❤️
@esthermartin768
@esthermartin768 2 жыл бұрын
I have a nonverbal daughter and love to see how much you keep her included, makes my heart happy. ❤
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Of course 😊
@jemmabrown1988
@jemmabrown1988 2 жыл бұрын
Not been subscribed to you guys for very long but WOW Raylin’s progress with the eye gazes is incredible obviously I’m an outsider looking in but she’s doing AMAZING well done raylin (can you tell her I said well done)
@jemmabrown1988
@jemmabrown1988 2 жыл бұрын
Forgot to say sorry I can’t spell her name I’m a screen reader user so I can’t see it written down so I have to guess! BADLY! Also I dropped a comment on one of your tiktoks I need you to follow my account so I can drop you my email.
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Yeah, I think Raelynn will really benefit from having her own eye gaze 😊
@justinea4480
@justinea4480 2 жыл бұрын
I'm so happy 😊 that raelynn loves her gifts 😊
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Me too!
@justinea4480
@justinea4480 2 жыл бұрын
@@HopeAndSunshine aww 💖 thank you for agreeing with me 😊 I appreciate it a lot 💗
@marypettyfer4640
@marypettyfer4640 2 жыл бұрын
God bless in my prayers 🙏🏼 ♥️❤😊
@justinea4480
@justinea4480 2 жыл бұрын
@@marypettyfer4640 aww 💖 thank you for your prayers 🙏 how are you feeling physically 🙏 I'm here for you 🙏❤️
@marypettyfer4640
@marypettyfer4640 2 жыл бұрын
@@justinea4480 Lot better thank you ❤❤❤🙏🏼
@niamhhackett3479
@niamhhackett3479 2 жыл бұрын
Love your you tibes
@emileemcneil4771
@emileemcneil4771 2 жыл бұрын
I have something for Raelynn that I would really love to get to her for Christmas.. love seeing all you together and I hope you all have an amazing Christmas and a happy new year
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Aw thanks! Merry Christmas!
@cherrelle9964
@cherrelle9964 2 жыл бұрын
This is so cool!
@catlover111able
@catlover111able 2 жыл бұрын
I love this sooo much I hope she can get this one
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
She loves her gifts 🥰
@marypettyfer4640
@marypettyfer4640 2 жыл бұрын
Fabulous 👍😊♥️🙏🏼
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
It was a good day 🙂
@staceypearson6184
@staceypearson6184 2 жыл бұрын
MerryChristmas🎄🎄🎄🎄☃⛄🎄 from Indiana
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Merry Christmas!
@evaklaassen4907
@evaklaassen4907 2 жыл бұрын
Can Railyn find the right colour on her own?🎨 I mean, when you ask her " Railynn where is the green colour?" Than she looks on the screen and finds the green 🟢 ? Sorry about my englisch, I hope you understand. Greetings from germany! I love your channel! 🐼🐼
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
We will certainly try that 👍
@Lunaria1818
@Lunaria1818 2 жыл бұрын
Hi guys! Wow, the voice who talks on the eye gaze was mommy abby? Cool! Mary christmas! 🎄
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Yep! She recorded her voice for it!
@nellyrubi229
@nellyrubi229 2 жыл бұрын
I wanna let you guys know that I'll be seizure free for at least 3-4 days
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
That's nice 🙂
@sarfunnisa3777
@sarfunnisa3777 2 жыл бұрын
Hai sunshine baby....... Many gift kittiyille. You happy baby❤❤❤❤❤❤❤❤നല്ല സ്നേഹമുള്ള father and mother. God bless baby and family❤❤❤❤❤
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
God bless you!
@TrickyChi
@TrickyChi 2 жыл бұрын
Seems her new communication device she cought on fast to using seems to be perfect for her
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
We sure hope so ❤️
@shelleyrightmyer6421
@shelleyrightmyer6421 2 жыл бұрын
Ilove you somuch miss you
@taraisaacs8965
@taraisaacs8965 2 жыл бұрын
Good morning from sunny Florida. Sending panda hugs. I tried the toothbrush bristles I spy with my mom last night and she did the same thing by naming everything blue in the bathroom before guessing it! Good one Abby! Thanks for the suggestion. Looked up Nokomis Illinois on the map last night, Effingham is the closest city I'm familiar with from my travels. How far is that from you?
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
It's about an hour way I think
@taraisaacs8965
@taraisaacs8965 2 жыл бұрын
@@HopeAndSunshine I ordered a surprise for Raelynn it'll come from Gillette Children's Specialty Healthcare in St Paul which is where I go for my custom wheelchair seating. It probably won't be marked as being from me. So just wanted you to be on the lookout.
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
@@taraisaacs8965 awesome! We'll be looking out for it! Thanks!!
@taraisaacs8965
@taraisaacs8965 2 жыл бұрын
@@HopeAndSunshine Does sweet Raelynn get the Christmas gift of no more cast?
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
She's probably going to still need to wear them some, but we are gradually keeping them off more
@katestairs1155
@katestairs1155 2 жыл бұрын
Kaitlyn is going to be a little late to the party me🥰
@nellyrubi229
@nellyrubi229 2 жыл бұрын
How old is raelynn and I'm doing much better then I was last night not suicidal anymore
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
I'm glad to hear that. We're here for you. Raelynn is 9
@anniewall9679
@anniewall9679 2 жыл бұрын
For Christmas gifts did RaeLynn get from Gracesion
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
She got a blanket and some plush animals ❤️
@anniewall9679
@anniewall9679 2 жыл бұрын
@@HopeAndSunshine that’s nice to hear
@tessalee8890
@tessalee8890 2 жыл бұрын
What bout audio book for to listen to
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
That would be cool
@tessalee8890
@tessalee8890 2 жыл бұрын
We r listening to the boxcar children books as we go to bed
@anniewall9679
@anniewall9679 2 жыл бұрын
Good morning Chris and Abbey did anyone win the panda last night or the Amazon gift card
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Yes, Emily Kula won 👍
@anniewall9679
@anniewall9679 2 жыл бұрын
@@HopeAndSunshine Great I’m glad to hear that she won
@erinsjourney3591
@erinsjourney3591 2 жыл бұрын
Hi
@HopeAndSunshine
@HopeAndSunshine 2 жыл бұрын
Hey there!
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