Lily's Musings ∞ My Tinnitus Update

[@LyliJ]

Dear friends, I wanted to share something I've found as well that has aggravated my tinnitus and is better to AVOID: caffeine we already knew, but ASPARTAME (so Coke Zero for example) - is a no-no for tinnitus sufferers. It has been clinically proven to worsen tinnitus, as it causes certain types of inflammation in the body. Hope that helps some of you :)

[@catz2505]

that is interesting to know. I am having tinnitus so bad and all I drink is water and Diet Dr Pepper. I don't drink coffee or tea and I love them. Only drink two a day, but it's my caffiene to get me going in the morning. Thank you...I hd no idea.

[@LyliJ]

@@catz2505 let us know if your tinnitus gets a little softer after quitting the diet soda!

[@vladokupcak72]

Lyli jel još uzimaš Antidepresive. Molim te odgovori.

[@LyliJ]

@@vladokupcak72 what?

[@vanessaarroyo7751]

Caffeine & stress & soda Tinnitus feeds on anxiety. I am sure I missed some. Looking forward to hearing more of your updates. Thanks for sharing.

[@Serenity_717]

You are absolutely right,same story here,I've noticed that lack of sleep/anxiety, stress,caffeine and overthinking makes it worse! Also I am high sensitive (my nerve system also my ears). So it will never go away,i am learning how to live with it but it's not always easy especially when it's really loud. I do take a little comfort in that i am not the only one. There are more people suffering from tinnitus then i expected. Keep strong everyone ❤❤❤

[@diewarheit7777777]

SUPER NEGATIV!! Passen Sie auf wenn sie so denken wird das ganze noch lauter , kein wunder das wie sie sagen es nie weg geht.

[@juliechapman2364]

I've had tinnitus since I was 20 years old. I'm 65 years old now. I recently had an ear infection and my tinnitus has got worse . It has become unbearable and it's driving me mad. I hope one day they doctors will find a cure for it.

[@LyliJ]

Hi Julie I replied your comment on my 1st video. Have you seen other specialists recently? I hope that there will be progress as well for ear trauma and repair, it seems that a lot more has been done for other parts of the body but this one remains very mysterious.

[@margaretjohnson8943]

I have had tinnitus since I was a young child I am now 76. The tinnitus noise has changed as I got older and became louder. Some days it sounds like a worn bearing sometimes like being in an aircraft. Sometimes I hardly hear it at all. I did not realise until the pandemic made us wear masks that I am partially deaf in one ear and have been lip reading since I was quite young. I did have a lot of ear infections and also had measles. I understand that the problem is in the brain and notice differences when I have consumed different foods especially sugar or a lot of carbohydrates. I have recently started to listen to another KZbin track out of curiosity not expecting much to change but I am finding that some old injuries are getting better. So maybe just maybe the tinnitus will also fade away.

[@petemayo5949]

The only things that have really helped me were relaxing into the sound, meditating with it. Then it seems easier to forget. That and using one of those What frequency is my Tinnitus sites. After hearing my frequency out loud my inner sounds doesn't seem to bad. Also masking white noise helps temporarily.

[@LyliJ]

@@petemayo5949yes it really helped soothe me and fall asleep to listen to sounds that covered up that frequency, like rain on leaves or cicadas

[@LucyDenbowski]

​

[@tylovset]

Thank you for making these videos. My situation has been very similar to yours, and I have reached many of the same conclusions as you did, so I am grateful to hear it from you. I had 6-7 months with very loud spikes every other day after an audio trauma (and 2 years with mild T), but things have suddenly improved over the last 2 months and I'm now almost free of anxiety. Tinnitus is still quite loud when I wake up, but unnoticeable most of the day and spikes are much rarer. As you say, it guides me to live healthier which is what I actually want, e.g. I watch my bedtime, coffee, stress, loud noises etc. Masking sounds never worked for me, but I think in some ways that helps me accept and embrace my tinnitus, as I realized there were no alternatives.

[@KenMyrheim]

I've lived with tinnitus since my late teens. To put it mildly, it sucks. I couple of years ago, it started getting worse, and I was having constant headaches. My doctor referred me to an audiologist, who got me hearing aids. The hearing aids emit low-level noise that masks the tinnitus. It's still there, but my brain is being tricked into ignoring it. I'm doing a lot better, thank goodness!

[@BlueLikeNeon]

Do you use them all the time? What happens if you not wear them?

[@LyliJ]

I'm glad you got to find a doctor to help you and that you're doing better, Ken!

[@KenMyrheim]

@@BlueLikeNeon I only take them off when I go to bed. They recharge over night, and I put them back in first thing in the morning. Without them, the tinnitus is much more noticeable, but not enough to disrupt my sleep, thank goodness!

[@BlueLikeNeon]

@@KenMyrheim Is it a TRT therapy?

[@KenMyrheim]

@@BlueLikeNeon Sorry, I have no idea what that means.

[@xciceroguy]

Good luck, I’ve had it over 15 years now and I’ve just accepted it’s now part of my life now. Background noise helps. A fan or other ambient noise might help you sleep.

[@NightWolf15869]

I also have had Tinitus for 5 years now ...binural beats have helped me allot ...it's been tough but I'm coping with help & inspiring people like you thank you for the encouraging message ...I hope your tinitus will be cured

[@Rebeccaln61]

After loosing my left eye to cancer a few years back…I then suddenly had a stroke in my right eye about 11 mths leaving me with a high pitch buzzing with like an old telegram sending messages….only in my right ear…..I’m learning how to live life blind..braille,O&M etc… it’s all new and I’m trying to stay strong !! Standing on my Faith that Hashem Elohim (God) will fight my battles for me as I hold my PEACE!!

[@LyliJ]

sending you strength and a hug!

[@michael206x]

Thank you for the video, it’s so helpful to hear others that have the same struggle. So glad to hear your getting better and better. 🤗

[@redcastles8469]

I watched your original video many times when I first started experiencing tinnitus, the initial few months are the worst! Eventually I habituated somewhat, but last year incidentally found the cause - an acoustic neuroma on my left side! It's smallish, so for now I am on watch and wait. What was a scary diagnosis also somewhat validated what I went through, and am still going through with tinnitus - we are so strong. Many thanks again❤

[@BlueLikeNeon]

How loud is your T?

[@redcastles8469]

@@BlueLikeNeon it was a 10/10 for atleast 4 months - totally incapacitating. It is probably still the same but I tune it out now, after having it for so long now you just kind of do that automatically. I can still hear it during the day easily if I listen for it - still loud in a quiet room/need a speaker to sleep etc

[@yasinv3743]

But even they take out this bloody acoustic neuroma tinnutus will stay , so what's the point better wait n watch after all world is finishing with wats n uncure diseases , death is better you rest in peace bcoz no body no bloody symptoms, now what will tinnutus do nothing if we die

[@WICKEDMAN85]

Im recovering from Eustachian Tube Dysfunction, Tinnitus and recently Ear fluttering in my right ear! Its been a tough 6-7 months and now with Ear fluttering after thinking I was recovering well. I know that I can't give up and must believe that I can beat this conditon. It was nice to hear of your experience Lily J! Un grand merci belle dame! Respect from across the channel in the UK! P.S I recommend Julian Cowan Hill videos if you ever feel fustrated with your Tinnitus! Hes an amazing source of information and support!

[@LyliJ]

Thanks a lot for the recommendation! Sending you healing vibes

[@bijenmaharjan5533]

Did you do surgery for ETD or it healed itself?? How long does it TaKe ??

[@LyliJ]

@@bijenmaharjan5533 no surgery, you can watch my first video about it (in the description)

[@iamjiere22]

Thanns so much for sharing Lyli. I’m going through the same from another side of the world. I was looking for the link about your eustacian tube but couldn’t seem to find. I will have flights to take in 1 week and with this I’m quite afraid of doing so. Would you be able to share it here as well? Thank you so much in advance.

[@LyliJ]

@@iamjiere22 Hi there, I hope your flight will go well! Ive never made a video about the eustachian tube though. Best wishes

[@rkk3885]

Thank you very much, I really loved your insights on this and it's giving me hope. Due to depression and inability to deal with my life in some ways I used to blast music on my headphones.. I already had mild tinnitus from a trauma and I kind of thought, that it couldn't possibly get much worse. But since about a month I hear several frequencies and one is especially bothersome, high and loud. It started after I had a particularly bad period and resorted to lots of loud metal.. I hear it always and it drives me mad. Until now I couldn't really believe anyone saying to calm down and move on but you helped me get some hope back and change my view on this condition. I wish you all the best!

[@LyliJ]

thank you! how is your hearing now, 2 months later? have you tried listening to music in less direct & safer ways than blasting on headphones? I enjoy loud music in my car and in my studio, and I try and wear earplugs when I'm at a concert or club. I think I will get those custom earplugs (around 150 bucks) for this summer because I'll be at several festivals.

[@rkk3885]

thank you for your reply! i actually haven't used my headphones since then and i am very cautious with music now. i am better now regarding the Tinnitus, mostly mentally though. if i don't think about it, i don't hear it but if i focus on it, it's still quite bothersome. but i am too tired to freak out about it every time😅 i used to think, that getting used to it wasn't an option, i just wanted it GONE. but learning to focus into other directions is actually quite helpful.. as i am quite depressed still and have a pretty negative outlook on life anyway, i tend to calm myself down with thinking, that a lifetime of Tinnitus isn't that long compared to other timespans in the universe and once i am dead, this will be gone as well, which for me is pretty calming most of the time :) all the best!

[@thebreathalyzer]

Appreciate you speaking about this, I struggle with this and have some pretty bad high frequency hearing loss.

[@kevinbailey3554]

Your lucky lily as I have it loud and continually. I wake in the morning and it’s the first thing I think about as it screams at me. I also take out my hearing aids to sleep and it is twice as bad. Count your blessings. Lots of love.

[@LyliJ]

oh Kevin that must be hard to deal with! I remember waking up like that for weeks and weeks.. sending healing vibes your way and hoping that it will pass over time ∞

[@kevinbailey3554]

@@LyliJ thank you so much lots of love your way

[@susy841]

​@LyliJ How long and how did you get to the stage where you didn't hear it all the time?.

[@ShiloYrazusta]

Great to see you Lyli Kat! Thank you for your sharings, you are AMAZING!!!💕

[@LyliJ]

Always happy to share Shilo ! ∞ I hope to make more videos in the future. You're been an inspiration to me over the last years to find my Light and continue to explore the path of Love

[@ShiloYrazusta]

💕

[@charlesmorris8791]

Thank you for sharing. God bless you...

[@philipsmeeton]

Yes stress is very much a factor.

[@melodyebuskin5490]

Thx for this update. Magnesium flakes in hot baths reduce it greatly f me. Neck n shoulder issues/tension caused by stress/anxiety/whiplash or other neck issues can be a cause as they affect the vagus nerves. Self massage and Backnobber around that area can help. Also metabolic dysfunction ie leaky gut from food allergies, caffeine, sugar, carbs, dairy, plants, parasites, mold, metal toxins or emf’s. Elimination of these items can help reduce inflammation which I’ve read is main the cause of T. Also, once the brain hears the noise and it gets focused on, it gets looped and stays. Some ppl say TRT, CBT and pink noise or nature sounds have worked for them. Check out the vid: ‘T-Ringing in the Brain’. There are several ppl on YT that have helpful advice on T.

[@debraharwood1201]

Thank you for sharing❤

[@SufyMusic]

I had blood caked on my eardrum after I was assaulted with a skull fracture, but it had no impact on my hearing, I can only feel grateful to God for the positive outcome

[@hamsterecology]

Really appreciate this message

[@Hew.Jarsol]

Thanks/ Im 1.4 years in now with T and Hyperacusis. Age 43 Blood pressure okay and fitness. I had OCD before it started though. An electrical hissss and a ringing. But no hearing loss up to 8000hz wtf. Foods, sugar etc dont affect it. Tiredness and hangovers do though. Cold showers dont work!

[@BinuralOdyssey]

Similar experieance here. I had moderate loss in my right ear at a young age, which is also the ear i have recently developed tinnitus in. It also started around the time I started listening and creating binural beats. Its a weird feeling like you can almost mentally turn it on and off, or at least change it slightly by thinking about it.

[@jackburton4892]

I've had this my whole life. Im now 48 with untreated narcolepsy my whole life. Lack if sleep and worry makes it worse. So basically all the time. 🙁

[@cliffordparmeter6940]

Thank you for your video l have had Tinnitus for three years good band bad days l find you must remain positive that's works and l meditate very often and l also listen to Juilia Hill.😊

[@HereForTheBeef]

Thank you so much! Your videos are very encouraging 🙏 I completely identify with the notion that it's almost like a spiritual battle / teacher haha. Did your hearing loss recover ok too?

[@LyliJ]

yes if anything the left ear is a bit more sensitive in the high end now, I don't like frequencies around 8000Hz they are really loud :)

[@syntheshwara]

Big fan of your presets and sound design

[@LyliJ]

thank you!!

[@emadwilliam92]

Thank you for sharing your story Lily! You mentioned in the previous video that you lost some hearing initially for high frequencies > 8kHz, did you ever get that hearing back?

[@LyliJ]

I can still hear that frequency, it is soothing when I hear frequency sweeps and it gets around 8-10kHz. however I'm very sensitive in my left ear now to high frequencies, I don't like harsh music or shitty speakers (even less than before I mean)

[@mikeletson1962]

I am about to embark on a three day fast with green tea and water my only intakes. I am hoping this will prove that diet may be contributing to the severity of tinnitus.

[@LyliJ]

best of luck on your journey!

[@pedeck3]

How'd the fast work out?

[@lynnkahle2586]

I can't stand this condition, it's really hard having it, I feel sorry for anyone struggling with this.

[@leonardopetroniodarias995]

Thank for your video!!! Did you get better with the time? I developd Tinnitus 1 year ago and now I think it is a bit better, but I am still scare it will get worse in the future.

[@LyliJ]

got way better than after the trauma. but it still exists to this day. its been 3 years almost

[@LyliJ]

dont be scared as fear will make it worse :)

[@leonardopetroniodarias995]

@@LyliJ thank you for your advice, by the way, I love your music, thanks for your videos!!!!

[@LyliJ]

@@leonardopetroniodarias995 I appreciate it

[@Jupiter_in_suburbia]

@@LyliJDid the harshness and volume go down?

[@thruitallauto2538]

It seems that life is what aggravates tinnitus the most, everything you do is what causes the problem to progress caffeine, stress, an if you live in this world your under stress, anxiety,

[@GrinGillis]

My tinnitus is way worse than people talk about. It comes with seizes and brain zaps that are scary. It gets worse more i sleep. I don’t know how i bare it. Seriously it is 15 times louder then what i see described by others.

[@LyliJ]

Hi there, I'm not a doctor or specialist or anything, but this sounds like an underlying issue that is more than just tinnitus.. brain zaps - sounds neurological/serotonin related maybe? I got those when I came off antidepressants one time, are you taking medication like antidepressants? I hope you will find the help you need

[@hamtalker2007]

I have bilateral tinnitus from vision snow syndrome after I accepted it I got habituated to it and I get those squeakys every now and then but I don't hear it until I'm at idle

[@ALIASZARDOZ]

Pay attention from 85dB and over in 8 or 12hours of playing music at these overwhelming levels each day because you can loose your ears. Take earplugs when you play at 85dB and over. Take some breaks, take your time... you're not in competition. Take care of yourself.

[@LyliJ]

I listen on my speakers at work but hardly never that loud. I stopped using headphones and earphones as much as well. I noticed that I can hear the ringing quite loud when I put closed headphones on without any sound. Like it amplifies the sound in my head!

[@ALIASZARDOZ]

@@LyliJ Don't forget Lily : You're the Best !👍😉 Phil from Dunkirk 🎶🎵🎶

[@lynnkahle2586]

Nice video... Thank you!😊

[@Lakshmi235Lakshmi]

Thank you 🙏🤗🌹

[@delphhh_]

my tinnitus gets louder when I touch my neck, ears and jaw. It wasn’t like that in the beginning. It happened after physiotherapy so now I’m afraid he made it worse and it can’t go away anymore. Have you heard this before? Thanks a lot!

[@LyliJ]

hi there! sounds like it could be related to pressure in the bones/articulations if it's "mechanically" triggered like you said. If I were you I'd continue searching for a physio or chiropractor that is sensitive to this subject. have you tried alternative methods as well? (chinese medicine Tuina massage)?

[@MrKennyBones]

This means it’s working and was somatic all along. I had the same thing, only after my body started to relax was when physical therapy really started to work. Before that it was constant. Now I can barely hear it most of the time and I’ve only been doing physical therapy for a couple of weeks. My tinnitus has come down from an 8/10 to a 0.5-1 now. I do breathing exercises, stretching and physical therapy. I’m certain it can go away completely.

[@delphhh_]

That’s so great! I never went back to the physio, he was specialized in TMJ problems, but the somatic T is still here. Also changing my diet right now which helps a bit. Were you also having it by touching your ears and cheeks? What kind of physical therapy do you do? Thanks a lot!

[@clevenicefatori9053]

Olá! Tenho por sequélas pos covid-19. Há mais de 2 anos. É um tormento!😢 No silêncio é insuportável!!! Uma mistura de barulhos que é difícil explicar. Que Deus dê à medicina sabedoria para fazer um remédio. Deus abençoe a todos! 🇧🇷

[@BlueLikeNeon]

You better protect your hearing Lily and not expose yourself to loud noises. My T was barely noticeable for 6 years without any spikes. Half year ago it got worse and it's a daily struggle.

[@LyliJ]

ohh, Im sorry to hear that, what made it get worse, was there any specific event that caused this?

[@BlueLikeNeon]

@@LyliJ I'm not sure what made it worse. There are good and bad days. I can't sleep without medications. It sucks but I'm trying not to give up.

[@Hew.Jarsol]

​@@BlueLikeNeonsame

[@BlueLikeNeon]

@@LyliJ I just wanted to say that I'm much better now. I still hear ringing but little less maybe and it's not bothering me that much. It's still there but when I focus on other things I can ignore it. One thing I miss are concerts.

[@voodooaa]

@@BlueLikeNeon Im in the same situation, had it for years, but for the last 4/5 months it got worse.. How did you fix it?

[@rustdawg7364]

How does one meet people without going really anywhere .Only been to 5 concerts and those days are over .most places that people are besides bars .At a loss .Mines since 09

[@ahcenehamlat4819]

Tu es toujours belle lyli je t'adore mon ange 💋💋💋❤❤❤❤❤💋💋💋

[@bijenmaharjan5533]

can you tell more about your sensitivity?

[@LyliJ]

what do you mean?

[@bijenmaharjan5533]

@@LyliJ i mean sound sensitivity? or is it sound sensitivity you mentioned??

[@bijenmaharjan5533]

@@LyliJ i mean sound sensitivity.. is it sound sensitivity you mentioned or?

[@LyliJ]

@@bijenmaharjan5533 I don't understand your question :) if you want to hear my full story of tinnitus it's in part 1 (in the description of this video!) I think you'll get your answer there

[@thruitallauto2538]

Mine has been loud for about 6 years now, no relief loud hissing

[@AzaanMohamed66]

How did you get it?

[@thruitallauto2538]

@ laying on the bed one evening and it felt like someone poured concrete down my left ear, went plum def in that ear, then that noise started at first it sounded like water rolling rocks , eventually my hearing came back some, now it’s just a loud hiss, I used to listen to music loud in my 20s and 30s, but hadden on up to my 60s, happened when I was 54

[@AzaanMohamed66]

@thruitallauto2538 try violet noise it makes it quieter if it's a hizzing sound

[@RapidFlow_Shop]

Hey I have the same experience, Tinnitus feeds on our worry and paranoia, I made a video also how I overcame it.

[@melodyebuskin5490]

Link?

[@RapidFlow_Shop]

@@melodyebuskin5490 kzbin.info/www/bejne/f3jVc2NuabZsfLM

[@paultorbert6929]

I have Ménière’s disease….. It’s hell.

[@LyliJ]

Im sorry to hear this Paul, I hope that you find ways for relief

[@Ryliftz]

I want to die rn because I lost my hearing with gunshots and have tinnitus…. I can’t live like this forever plz help me

[@LyliJ]

im sorry that you're going through a rough time, I've found that it always helps me to talk about what I'm going through & just vent to someone who is caring and a good listener. Do you have someone who is ready to just listen to you? if not there are good platforms like BetterHelp with therapists who can help. sending you lots of love

[@Incimer]

It got a lot better for me, practically nonexistent now. I hope yours goes away

[@maurizioberarducci3362]

I not coping with this i feel very low

[@jamesc9168]

I got mine about 72 hours after the illness that I got on the night of the J and J vaccine. 3 years of nonstop, absolute misery now.

[@LyliJ]

Im very sorry to hear that this happened. it helped me to listen to ambiant nature sounds that were around the same frequency as my tinnitus. I hope you'll heal

[@jamesc9168]

@LyliJ thank you for the well wishes. I like the sound of bath water running, but what really helps is the Tinnitis Descender video. For me mine is at its worst when laying down. Something happens when my body is in a horizontal position.

[@LyliJ]

@@jamesc9168 yes it makes sense when you think about it - blood will rush in your ear when you lay down or even worse if you're upside down , causing the ear to pulsate more and worsen the tinnitus. I do yoga and whenever I do inversions (headstand) that ringing comes back immediately!

[@jamesc9168]

@@LyliJ hmmm interesting. I was thinking maybe my tinnitus isn't actually a problem with my ears

[@LyliJ]

@@jamesc9168 if you have inflammation in your body it can cause tinnitus, so not directly related to an ear injury, you are correct! fever and illness can cause temporary tinnitus. The fact that yours is still ongoing after 3 years though means it’s left a significant imprint on the inner ear , but the body is constantly changing and repairing itself, do not lose hope

[@kappeuter]

You are very lucky you don't hear it when you wake up.

[@maurizioberarducci3362]

I am scared

[@LyliJ]

no, why are you scared? just take deep breaths

[@Andrey221ua]

You are even more beautiful and feminine than you were in the last video)

[@LyliJ]

aw thank you☺

[@donnas8408]

Tinnitus is not an interesting condition! Are you kidding me! Please choose your words wisely! It’s a suicidal condition when you have it bad. Keep it 💯! SMH

[@LyliJ]

ok

[@chris7921]

It’s pronounced ti • nuh • tuhs Sorry but the American way of saying it is really irksome and it’s not how it should be pronounced

[@LyliJ]

it's pronounced both ways. sorry but it's true. and I'm not British :)