Living With A Brain Tumour | Tess's Story - Macmillan Cancer Support

[@sammiwood4926]

I have a rare glio neuronal brain tumour and I was told in January 2015 I had a mass on my brain, I went down hill fairly quickly and the tumour took off growing from 3.6mm to a little over 6mm when I was biopsied in the April of the same year. My care is under LGI in the north of England and I have an amazing team, my neurosurgeon told me that he wanted to try and remove as much if not all of the tumour so I could then just just be watched and everything should be fine......(famous last words)..... The surgery was supposed to be a 3hr operation and I lasted 5 and a half hours, my surgeon was really upset he wanted to remove my tumour entirely but barely managed to remove 13%. He said as much as he liked my head he never ever wanted to go back in there again as it was by far one of the hardest cases he’d had that year. Plodding on....... roll onto November and the tumour decided that it was going to misbehave in the 6 months and it was decided that as the tumour had not only grown back but had almost doubled I was going to have Gamma Knife radiation....... it thankfully has worked and the gremlin in my head although it is still in there it’s behaving, (we just don’t feed it after midnight 😋) But as for any help or councillors, I saw a McMillan nurse a few times, but that was just as I was to have surgery. But I’ve never sat and talked with anyone about how I’m feeling and what I’m going through with my husband and my children....... we’ve never been given any information from any support groups

[@macmillancancer]

Hi there Samantha. Thank you for sharing with us here. I want you to know that we are here for you and want to help in any way that we can. I can see that you have been through a lot and I am sure that there must have been some really challenging times. If you ever want to talk about things, including about what types of support are available to you, please do give us a call. We are on freephone 0808 808 00 00, Monday to Friday 9am to 8pm. Best wishes, Keir