Living with Autoimmune Hepatitis 1/3

[@gracesfunworld1508]

I am 11 and got Diagnosed this year and watching you help me knowing that I am not alone so thank you

[@kirstymills1761]

Thank you for watching, I'm glad this has helped you :). I also have a blog if you fancy a look kirstylouisemills.wordpress.com/ . Hope you are well - it's a lot to go through at 11 - you must be very brave xxx

[@gracesfunworld1508]

Thank you

[@roseilunga6216]

Grace’s Fun World i got diagnosed when i was 8 . i’m 18 now and it’s been so hard! dm me on @hungry.xx on insta if you want to talk :)

[@gracesfunworld1508]

Rose Ilunga i will thanks

[@roseilunga6216]

Grace’s Fun World sorry that’s my back up instagram. use my main @rosedidthatt :)

[@constanced6704]

I got diagnosed @ age 58. In 2016 fibrosis score was a 2. Not sure what it is now. I did not realize this disease affected your kidneys. Thank you for doing this video. Would like to have someone to talk to about this

[@kirstymills1761]

Hey Constance, lovely to hear from you. If you are based in the UK, the British Liver Trust run monthly support groups which are super useful. britishlivertrust.org.uk/

[@constanced6704]

@@kirstymills1761 I live in the USA

[@constanced6704]

@@kirstymills1761 Hi Kirsty I just love your accent! 🌷 I can relate to what you were saying about Prednisone. I’ve got 6 compression fractures in my T-Spine as a result of being on prednisone over a year. I’ve also had Cataract surgery as well. I started researching support groups & found American Liver Foundation & AIHA. I’ll check those out. Thank you so much for your help!💖

[@shaikharashid9498]

hi my name is shaikha and I got diagnosed with autoimmune hepatitis when I was 14 and my symptoms was itchy skin and yellow skin and eyes, now I'm 20 years old and I'm still talking 100mg of azathioprine

[@kirstymills1761]

Thanks for watching Shaika and I hope you keep healthy. X

[@anawhite4713]

Hi my name is Ana. I just got diagnosed with the AAH. How are you doing now?

[@aitmoussad.6426]

Me too

[@lisatravers3351]

God bless how are you now ❤

[@kirstymills1761]

All good thanks Lisa! Hope you are doing ok too x

[@lisatravers3351]

@@kirstymills1761 that's good 2 hear ❤

[@NaturallyImmaculate]

I was diagnosed at 23 but I experience severe itching does anyone else have this problem?

[@catherineabillon7235]

hi! I'm Catherine I have autoimmune hepaptitis PBC overlap. I went from being very ill and had pruritus severe itchy all over my body 24/7 and overcome it. I was put on steriods I’m good now though there are days that I feel like sleeping the whole day. I hope you’ll get better soon

[@kirstymills1761]

Hi! I don't actually have this symptom.

[@aitmoussad.6426]

Yes

[@15studiomusic]

hi , im 31, i just got diagnosed. i am now on Prednisone for 3 days. i am actually working oversea on a working visa, i came back home for holiday and somehow the doctor found out my liver ALT level is high and I had a liver biopsy. so yeah, it says i have Autoimmune hepatitis. to be honest, i am still not so sure what is it gonna do to me, because I have no symptoms at all. but doesnt seems like my doctor wants me to leave, because I might need regular checkup and blood test. I am so confused now if I should stay in my country for the rest of my life or still work oversea. I am now still at my home country, doing nothing these days, because my doctor wants me to take Prednisone for few weeks and see how it goes first. I feel very sorry for my colleagues to cover my work for me, but I really dont know when can I go back... shall I just quit the job and let them find someone else? this is very hard to decide. sorry, just being confusing these days, want somewhere to express my feeling.. and sorry for my english.. anyway, thank you for ur video

[@kirstymills1761]

Hi Ellen, hope you are feeling well. I'm sorry to hear you have been diagnosed with AIH. I would just say take it a day at a time, and don't make any rash decisions as it will all be a shock right now. I've managed to work full time since my diagnosis but everyone is different. Wish you all the best xx

[@isalala9987]

Hey my Name is isabelle i live in Germany and in Germany we don’t have Videos like this I am 16 years old and i have autuimmune Hepatitis Sorry my englisch is Not that good 😂

[@kirstymills1761]

Hi Isabelle thank you for getting in touch. I hope you were able to understand my English in the video. I hope you are keeping well :) xxx

[@HaHa-nr8zo]

Did you get a Hep B vaccine?

[@kirstymills1761]

Nope.

[@HaHa-nr8zo]

@@kirstymills1761 Thank you for your reply.

[@renee2394]

I have auto immune hepatitis and am vaccinated with HepB. Wondered why you were asking this

[@kirstymills1761]

@@renee2394 pretty sure the previous poster was an anti-vaxxer