LIVING WITH DEMENTIA EP. 35 | MONEY TROUBLE

[@LIVINGWITHDEMENTIAPODCAST]

Appreciate your vote for Cooper!! A BIG thank you! You can vote once a day for free! It usually has you verify with your Facebook account because that's how they prevent people from cheating with bots! THANK YOU SO MUCH FOR HELPING US OUT!! IT MEANS THE WORLD TO US!! babyoftheyear.org/2024/cooper-vallacqua?fbsh=1&fbclid=IwY2xjawGPLqhleHRuA2FlbQIxMQABHRcjo_JE0NXocV5JIewxj8gvTmjFBo6QJ0XBzX7VH8zm2BM4PhnxZCD2iw_aem_NgDBCeLVleHFLR-feZqv1g

[@tamiwigginton7137]

My thought are to have him tested for multiply lyme/ tick borne illness!! These bits cause all kinds of problems one being Parkinson and Alzheimer's!!! It does go to the brain!! I know you said he had a brain injury while in the military, but it's very possible to have both!! You have to go to a lyme literate doctor for this and all the blood being tested has to got to a specific lab!! Even specialist do not test for this!! Fyi.. good luck!!

[@LIVINGWITHDEMENTIAPODCAST]

@@tamiwigginton7137 we were fortunate to have an amazing doctor who did test for this back at the beginning! Just a reminder Jason does not have Alzheimer’s, etc His dementia is being classified as from CTE Chronic Traumatic Encephalopathy from the brain injury he suffered. Of course we will never 100% know until he passes.

[@purplephoenixartbymicheled9298]

😊 he's a Cute pie Voted for Cooper So your Beautiful Families can be closer together. I know the feeling being the only child me and my husband lived in Florida and it took us many years to be able to move closer to Mom / Dad Because I knew in my heart they were going to need me one day. Me being a caregiver/ CNA Working along side of at that time. Yes I miss Florida born and raised there but I had to do the right thing in my heart. Xo Xo

[@AmyMiller-wl4dq]

My nephew made it to the second round! Lucian is my great-nephew and is the light of our world! We were shocked he was even considered! Congrats on Cooper!!!

[@BJ2020_]

@@tamiwigginton7137Yes, all testing always. One day fine, next day in hospital and dying. Yes, I smoked but does not come on overnight! 4 yrs later a middle eastern doctor recognized symptoms from his desert country. He found what no one a rare form of a disease. Maybe only 1000 max get it yearly in USA. If had caught sooner would of lived longer

[@RR-it2rt]

It doesn’t feel like Jason was showtiming in today’s video…he seemed very present. Thank you Jason, for choosing to expend your energy to help others. Your sense of humor was shining bright today!

[@erica_0612]

I totally agree!

[@ceoa]

Totally 🙂

[@sherrymacaroni5916]

I'm not trying to be contentious, but I think he is show timing. We have to listen to what he's often like behind the scenes, what they describe but don't show. And then realize they pick an optimal moment of lucidity to film. And Jason works a little extra hard to put across a good message using humor to keep things upbeat. God Bless All. It's never too late for a miracle, Lord Jesus. Either way, we trust you.

[@mamat792]

Cancel PayPal and hide your credit cards. But the aircraft loader 😂 as a retired AF vet of course you needed that. Love your laughter.

[@thenarrowgate6883]

Agree on returning as many things that are piling up as possible, and hopefully get refunded. Re-Assign the PayPal account to a debit card that you can control the balance/spending limit with a monthly allowance/budget? Praying for you both with much much love🙏🏻🙏🏻🙏🏻❤️❤️❤️

[@thenarrowgate6883]

Return as many things that are piling up as possible, and hopefully get refunded. Re-Assign the PayPal account to a debit card that you can control the balance/spending limit with a monthly allowance/budget? Praying for you both with much much love🙏🏻🙏🏻🙏🏻❤️❤️❤️

[@amadahyrose]

It's amazing how Jason is still so brilliant yet compromised. Warmest prayers as you both walk this road. ❤️

[@mamalovesthebeach437]

You two are remarkable… For Jason to be able to sit there in a lucid moment and have these discussions blows my mind. If the military lift purchase wasn’t so outrageous and frightening, it would be hilarious! Not to diminish the seriousness of this, but my husband does not have dementia, but he buys very expensive equipment and things he does not need on auctions.🤦‍♀️ I wonder if it’s just a dopamine hit? Something that makes a human being feel excitement especially when other feelings are becoming more diminished or absent. When you talk about “the bad “, unless someone has cared for someone with dementia, they would have no idea how difficult it can get. Of course everyone is different. I will never forget my stepdad calling me in the middle of the night and my mom in the background, screaming my name and “help me!!!!” She was a modest, calm, natured lovely woman… dementia takes our loved ones away as we know them piece by piece. You look rested and lovely and your hair is so beautiful. It’s very important for caregivers to take care of themselves. Bless you both for talking about this from both perspectives… You are helping so many people. ❤❤

[@lynnloehr1566]

Jason, this was a fantastic video, and it's so good to hear your perspective. You are so eloquent and well spoken and I am sure you help a lot of people. Leslie, you do such a good job of protecting Jason and keeping his dignity in tact. I am sure you have a huge job.

[@gmedack]

You two are a wonderfully charming couple. I can imagine what you were like before the onset of this disease. I have to say that your videos are hard to watch at times, as I feel so sad for the both of you. The amount of effort that you both make to get through this together is admirable, however. I do not think I have ever witnessed two people have so much love, loyalty and respect and commitment to their marriage. I truly admire both of you. Thank you for letting us into your lives.

[@maggiemoo0328]

Beautifully put, thank you ❤

[@laurajeffcoat4731]

YES I totally agree and understand. My husband hasn't been diagnosed yet but I know there's something changing. It's very lonely being a caregiver. You guys are doing a wonderful job explaining the different stages of onset dementia. Thank you both 🤗💓💕💞

[@waterwalker9087]

Just can’t thank you enough for making this huge sacrifice to help others. Today I was especially helped when Jason explained that he becomes as a 2 yr old at times. How helpful that was to hear it spoken as a fact. It’s easier now for me to accept that is truly what happens and to deal with it appropriately as a caregiving relative. God bless you both! ❤

[@lovinlife6630]

Leslie, you have such a sweet, fun personality. Jason appears to be highly intelligent and he has a wonderful sense of humor. You guys are such a fun couple, and I imagine you have had a lot of really fun times together over the years.

[@peggydrawspictures]

love the way he laughed when you said "a used urn". laughter is such a gift.

[@erica_0612]

I love Jason’s humor, and I love the humor between you two. Laughter is the best medicine for sure! You are such an awesome couple.

[@judyabernathy80]

Jason, you are SO adorable! You crack me up every time you are on video. I give you both so much credit for allowing us to be part of your journey. It helps a lot of people. God bless you both!! ♥️🙏🏼♥️

[@stacieboucher1570]

Thanks for sharing! I couldn’t do this during the hard times without seeing how you handle, and with humor. I get so frustrated! My husband is 67, and five ys in. He just did the pay pal buying the other day after I thought I had everything locked down. He bought two flame throwers to light his pipe! Jason’s perspective is valuable. Before I knew he had dementia he waisted thousands of dollars on scams, deals, wandering around the country ( flying from Hi to the mainland) till he got lost and totaled his rental car. We’re broke now! Glad you caught it and have some stuff to show for it! Love you two, appreciate you, and pray for you whenever you pop in my head. Aloha, Stacie🌺💖✝️

[@drinajgb2437]

My husband never went through this. He is stage 6 mixed dementia. Started at 52 acute viral encephalitis then has slowly progressed into dementia. He hates computers and phones. Has no interest in any sort of buying which after hearing this has been a blessing. Weird thing is he thinks he’s getting better. Not. A lot of apathy exists and has from the day he awoke from coma. A side effect of vascular damage.Not a lot of interest in the world in general. Thinks everything is ok. Lonely describes this for sure. Not much interaction. No intimacy. Year 15.

[@LIVINGWITHDEMENTIAPODCAST]

Hugs! 🤗 I completely understand 💙

[@michele21auntiem]

i get it. very lonely.

[@autiemuse]

My husband is autistic and I have lived for.many years with similar apathy and isolation. You are not alone ❤

[@redsandrock8073]

❤

[@in2phalanges]

Jason’s sense of humor is still a kick in the pants !!!

[@marciahellen6290]

No need to show the hard days, we know they happen. Thanks Jason for making us laugh and weep for the man you were. Much love to you both.❤

[@SharonKBM]

Yes, I agree. There is no need to show the hard days. It is very sweet and admirable that Jason thinks you should, but we really do not need to see what is happening.

[@kathleenmetcalf6767]

Wow Jason is still very quick-witted - s brilliant man!

[@gailmiller5226]

Jason did an awesome job explaining. Leslie you are amazing ❤️

[@deborahjobe7841]

As one living with a dementia (FTD/CBS), You and Jason did an amazing job with this one. My husband and I changed our financial account situation. I now have a small account where I can get what I want and he owns the major account. It allows me to purchase small items important to me without compromising our major funds,

[@lindaSee89]

My husband after several years finally admitted his cognitive decline yesterday with the doctor. My husbands thing was buying massive amounts of clothing for years. So many clothes with tags. When covid hit something slowed him down. Thank goodness. Thank you Jason. Jason I plan on being cremated. If you have the urn, I would buy it. Have your wife reach out to me.

[@sharongraham4444]

Thank you for saying it feels lonely. I think that's one of the hardest part of being a caregiver

[@KenIvywood]

Amen

[@dawncore9863]

You two are so cool together! Y'all have NO IDEA how much these videos help my family! Please continue these chats for as long as you're comfortable doing so!! PS we voted!

[@marylawson4492]

I understand the loneliness. When my husbands dementia got worse he lacked the compassion, he once had so much of. I so missed that side of him.

[@Gwaycee]

If it's ok, please constantly play him some good old hymns from Hymns of Faith or Golden Bells at low volume. They are played free on youtube. You'll see how his soul will calm down. My grandmother was really happy when she listened to the songs.

[@tracyanderson3715]

I miss my husband too. It’s like the man I married disappeared or died he’s not in there anymore and it’s Sooooooo Lonely

[@ggeise1467]

Thank you both for sharing what you choose to. The fact that you don't share the absolute train wreck part is totally fine. You are navigating Jason and your lives and allowing and promoting Jason's dignity. ❤

[@DrMSG59]

Hi Jason and Leslie, you had requested to hear from anyone - who similar to Jason - is also fully aware that he (or she) is actively losing his/ her memory. I was diagnosed with Lewy Body Dementia last year, and like Jason, continue to be acutely aware of my short-term memory loss (my long-term memory is intact). My wife and I have watched these videos from the beginning. Interestingly, before I was diagnosed, I would answer your questions to Jason in the very same way that Jason answered each of them. I know that his diagnosis is now CTE; however, my own symptoms have tracked very closely with Jason's (I have visual and auditory hallucinations, tremors, restless legs and arms syndrome, and other autonomic issues). Yes, I am very much aware of my condition - and also I'm aware that it is progressing. So I fully understand why you would ask this question, as it is also incredulous to me that, despite the severity of my memory impairment, I am still aware that the memory loss is occurring (and I am declining). It is very strange -- but then again, what part of LBD is not? :) P.S. I thought of something that might help to explain the above: I have read that (at least in Lewy Body) insight is not meaningfully compromised, even though executive function, attention, and memory are impaired (that may or may not be true with CTE). If insight lives in separate brain center from memory, that may explain the phenomenon! -- and there I go above with the lengthy explanations - I used to be brief and to the point)! :)

[@missiris1234]

Cooper deserves my two votes. What a cutie. May you both enjoy him for many years to come

[@Jackiej24320]

I love the humour through all this and the honesty. I love also that it’s Jason that is discussing this. My mom has Lewy body with Parkinson’s and it helps so much to see people who can still laugh with what they are going through. It’s not something that you can just forget is there but the honesty and humour helps many going through these diseases . Not all our loved ones can be in the position to have fun conversations. Thank you.

[@nancyvold1470]

Jason is such a smart guy...this really shows what a wonderful sense of humor he has. Leslie, you are the best caregiver and loving spouse - I hope you two have many happy times ahead. On the not so good days, I pray that God gives you the strength to deal with whatever is ahead.

[@pattyrobertson3886]

You are so lovely! When you can laugh at yourself ( because it really was funny!) That is good medicine I chuckled myself too! Im glad the people who were selling this understood what had happened! Thank you for your vunerability and for caring about others Leslie and Jason.

[@keresabritton4727]

This is one of the most helpful videos you have done. Jason, thanks for your vulnerability in sharing. For those of us who work with dementia caregivers, these kinds of conversations are very helpful for understanding your day-to-day challenges. I would never have thought that there would be a need to hide the credit/debit cards. I love your transparency - both of you!

[@mandiesmaison458]

This video for your interaction alone, was lovely, Jason was on form, what a ‘unit’, what a team you both are! Thank you both.

[@missyj3728]

There is no need to show the bad at all! No one would want tower bad moments put on the internet. I think most people know that the journey is hard. You handle sharing your journey with grace ❤

[@stacieboucher1570]

Maybe she doesn’t have to show it, but it’s helpful to us going thru it with our husbands to hear some of the other things he does. There is no manual for this!😢

[@wendygrant3873]

I love how candid you both are. I have questions about the aircraft loader.......I'm shocked that an average person can buy one with no questions asked. Again thank you for making these videos and being so open.

[@gailtester8749]

Bless you both! My husband suffered Parkinson’s and Lewy body Dementia. His spending problem was political donations! It was crazy! He could not say no! I lost him last March after an 8 year struggle. Miss him so much! You two are so genuine and honest! Bless you, bless you!

[@petra7322]

I love the purchase of the giant loader, not funny for you, but it makes me laugh every time he talks about it. Leslie you are a gem🌷🙏🏻

[@ginarankin295]

I think your videos are extremely helpful and I appreciate that Jason is even willing to do it. You don't have to show the bad and I think most people will understand that.

[@evetorresola376]

Def voting for Cooper. And I don’t need to see the bad. My mom has dementia and I see the bad the good and the ugly. Thank you for your videos and appreciate them. Leslie God has you and Jason too. One day at a time. That’s all we can do.

[@KenIvywood]

My husband is no longer able to use computer so he is not buying things. He hardly talks and I agree that is so lonely. Good to see Jason doing as well as he can. 🙏♥️

[@judithkoveleskie7476]

Sorry some of the haters are back. You both are great and helping so many people. God Bless You ❤

[@BecomingaGreenstalker]

Love it so much that you two can laugh and giggle with each other still!❤

[@Shiryone]

TY Jason for the laughs....badly needed! I'm laughing with you guys. Gosh, spending issues can be linked to so many things...disorders, depression, loneliness, etc.

[@redeemed5554]

Jason and Leslie, I love you guys, the chemistry between you is a beautiful thing to watch ❣ Thank you so much for sharing your lives with us. May God's presence fill your hearts and home. ❤❤

[@janes8863]

No one has the right to criticize or judge anyone's life unless they are living it. They have no idea what is happening unless they are a part of it. Wishing you and your family the best.

[@darci_nicole]

You are an example to me of a godly wife. ❤

[@ericmartin7603]

Most definitely.

[@kookykreek]

My sister has frontotemporal dementia. I had to sell her house to pay for her placement. I didn’t know until I had to clean her house out, but she really went through this. She had 416 pairs of the very same style of jeans. 300 purses, plus others not counted because I threw them away. 77 of the very same shirt. 132 pair of Ugg boots. On and on! I am not kidding, I have PTSD from the experience. I sold her stuff because all this stuff and sooooo much more was unused. I couldn’t just throw it away. I did take all her cards away. Luckily, while she was still at home she didn’t have the wherewithal to figure a way around what I did. I do think people get a whole different idea of what happens behind the scenes because what is on video is the good times. However, I understand you keeping that to yourselves. I do Facebook lives with my sister. I do it to see the progression over time. It’s hard to notice when you see that person all the time. This year compared to last year is 😢.

[@Jamcrackerr]

I feel your pain as my 65 yo sister is 2 years in on vascular dementia diagnosis. It. Is. Heartbreaking. Godspeed🙏

[@mandymorrow5473]

I hope that giant sale brought in some funds to help with her care because I imagine it gets expensive!

[@DiscernmentNow]

WOW. 😢

[@gonnabeok.]

Its not funny for you dealing with her purchases but I had to smile reading it. Horrible disease. Had 2 family members died from results of Alz. Have never been a carer tho.

[@Golfgal4661]

The love you have for each other is so evident. Leslie I can’t imagine how hard this is for you.

[@maryf3219]

My brother has Lewy Body dementia. He went through that buying stage. He has a pile of "treasures" too. He's far beyond that now. He can no longer carry on a meaningful conversation. He gets sundowners frequently. Recently, he talked non-stop nonsense for 22 hours straight. He sometimes moves furniture all around or piles it up. He always wants to go see Mom and Dad who have been gone for 30 years.Fortunately, through the VA, my sister in law has a very good support group and help with caregiving. This is a horrible disease. I miss my brother.

[@lilysgram5886]

💞

[@ChristinaEFP]

Hi guys. You have no idea how helpful you are to me. My husband has frontal temporal D. All so different now. Thank you to the both of you. As the wife I do understand you get it. Hard to explain. To someone who does not see him often Boy do I understand child behavior all the while trying to give him dignity

[@christined2495]

My sister had frontal temporal D she had been diagnosed at age 50… My heart breaks for you, sending prayers 🙏

[@christined2495]

First I want to say that Jason truly is something, he has such an intelligent mind even with his Dementia… My sister had Alzheimer’s frontal temporal and he was buying sheet sets, like maybe going back and forth to the store in one day and bought three sets, also candles, we found at least 100 stored away in a closet,and dishes that nested … this was when she was not diagnosed yet, so she was still driving, and also before she was tested Voted for your adorable grandson, I truly hope he wins, he is precious

[@sandrathompson3374]

Thanks Jason for putting your life out there for us.Leslie you are stronger than you think and I have nothing but admiration for you.I have been through this before.

[@DarleneBonham-q7f]

Thank you for giving us a glimpse of what life is like with a loved one with dementia. My aunt lived for 12 years with dementia, and her daughter kept her home with her until she passed (she was not early onset). I am sure it's a challenge to help others in this way and filter out the negative responses by "trolls" of the internet. Your channel is truly altruistic in that you both help complete strangers by showing us a glimpse into your joys and struggles. God bless you both and I hope you and your family have a very Merry Christmas.

[@ElizabethDohertyThomas]

That gap in private reality vs public persona is so, so freakin' hard. You are doing so amazing knowing that is a huge problem while also respecting your boo enough to not publicize his dark behaviors. 🙏

[@KK-rc5ds]

This happened to 2 people in my family. This makes it clearer. My father use to buy so many vitamins and herbs, exercise equipment and treatments for sore joints. 3+ garages filled with museum of dad’s life. Many things displayed but no where to sit! 😀 He is allowing my brother to declutter. Thank goodness he can’t read a series of numbers anymore or tv would sell him so much junk. My father is gotten kinder and gentler with care givers.

[@mkatal8329]

I had a hard day with my mom today and your video provided much needed cheer! I voted for your adorable grandson.

[@terismedley7467]

I don't have dementia (as far as I know), but I completely think like Jason when I start a new hobby. I'm all about buying the stuff to do the hobby and not so much about actually doing the hobby. Imagine how it will be when I start having impulse control issues! Love you two!

[@merder911]

Ditto 😂

[@patsytownsend368]

Me too!

[@debrobinson8134]

I’m the same. As I get older, I’m buying lots of hobby related things. More than I will ever use. I watch a video and then feel like I Need that. I can get anything I want without leaving my home. I do need to cancel PayPal.

[@nukejets]

You are both awesome. Thanks for sharing your story with us. I'm also diagnosed with mild dementia type unspecified. I struggle with wanting to buy things too. Ugh. Like Jason, I also started with a very high baseline IQ so I often don't appear that I have dementia. And I understand the cognitive fluctuation stuff and "showtime." It's very nice of you to share.

[@kathleenwoodbury7491]

Above all that I can’t imagine the financial ramifications of these unnecessary purchases. Leslie, God bless you for your love and sense of humor getting you through this journey.

[@lynnolds]

I LOVE these videos! My good friend has a husband with early onset dementia (first diagnosed as Lewy body). I know we don’t see your “bad” days, but she doesn’t get what you do on the good days. You are a fantastic care giver!

[@vickisturgill4792]

Great video. So sad that this wonderful man is slowly disappearing. Thanks for sharing

[@lesliedelp3565]

Thank you for the wonderful wisdom! I recently started caring for my mother, who is in the throws of dementia, because my brother, her resident caregiver died. I am amazed at how exhausting it is to keep them safe when they are clueless as to how much risk they are dealing with! I could talk about this for days, suffice it to say, your videos are so helpful! Thanks!

[@susanburnett6123]

Jason is always so good to see you and I really appreciate this video today. I am 73 and I stay home a lot by myself. I tell you what I get so tempted to buy stuff off TV and off the Internet. It is just so hard to resist something new. It is always so good to see both of you.

[@maryjanesheppard]

God bless you both for sharing these issues. And it's so great that Jason still has his sense of humor, he's sooo funny!! Love the pipe! ❤

[@stephaniegamble3571]

Prayers for you and Jason ALWAYS! God bless you, praying for Jason's healing!

[@SoHappy20245]

You are an amazing couple. Thank you for sharing your journey, I have no doubt that you are helping many. God bless you both.

[@kelliewalker7281]

Thank you for sharing. My husband buys sports jersey, shoes, posters, half the basement, 2 closets and our sons old room are full of his impulse buys. I thought I was the only one. I didnt realize this was a part of his dementia.

[@ramonasmithson439]

We went through this with my daughter's mother-in-law. We all lived together, and by the time we realized that she was doing this. She had spent so much money. She was giving money to every organization that sent her something asking for donations. The churches were really abusing her. So sad. They knew she had dementia and they were hitting her up all the time for money. Wish we had seen this video. 4 yrs ago.

[@DonnaAnders-w4d]

This was such an interesting chat today with Jason and Leslie. I know they have many struggles off camera but hearing them brainstorm together today was really helpful and inspiring. This has to be so very hard on both involved but it’s so good Jason will at times agree to discuss these issues to help other people. God Bless you both as you deal with this horrible disease.❤️

[@lindaeshbach6494]

Yes Jason seemed genuine today It would be really hard to film him when he's having a melt down moment, actually it probably would just make him more mad or crazed. I certainly don't want to see you in that position, for your own safety. Love that you are doing this to try to help others. I myself worked in geriatrics over 40 years and Id say in the last 10 or so people were getting younger coming in with dementia. So they were stronger when they got an episode of anger and it wast pretty. Take care

[@bltlil]

Talking about the hard things is plenty! We caregivers need encouragement, so your videos are perfect for that! Talking about the negative and hard stuff is enough to bring awareness cuz things will be different for everybody watching’s situation. Thank you for your openness today Jason! Cherish these moments!

[@Benintende1952]

I understand the loneliness. My husband doesn’t isolate himself or freeze me out but it is the loss of our shared memories. Our wedding, our honeymoon, raising the kids, where we’ve lived and places we’ve traveled to - the memories of 50 years - just gone. Then there is also the loss of our shared decision making. Our “secret” jokes that only I remember now.

[@jenniferm4928]

Yes, I worry about Leslie. Only she really knows the cost of what this has done to him.

[@lisakirby247]

No need to show the bad, for those of us who have loved ones with dementia we see firsthand how the bad can be. Anyone watching that isn’t affected by this firsthand but has a friend or coworker going through it with a loved one, reach out to them and let them share their bad and it may help them by venting to you about it or it may help you be more understanding for the caregiver, loved one who has the dementia. This journey is a lonely one, it helps to have support groups yet it is hard to describe but the feelings of isolation at times is real. I can’t imagine what my loved one with dementia must feel.😢. Thanks for sharing Jason & Leslie🙏

[@backthebusup]

I, from a personal standpoint completely understand the struggle of caring for a loved one w/dementia. Said loved one has passed on. I really think it would be beneficial for your viewers to see a little bit of “the bad”. It would be like a window into your world Leslie, might be therapeutic for you. Bless you Leslie and all you do for Jason & the dementia community. Hugs 🤗

[@KimberlyManuel-ee3ov]

My thoughts and prayers are with you both. I love his humor. My best friend has had early onset dementia for 10 years now and she is 59. She shops constantly so her husband put her on a budget, she also does not remember the next day what she bought. She prefers to be alone and does not like eating with her husband either most days. Her long term memory is excellent so sometimes our talks are short and sometimes they are long. She now lives in another state so we talk by phone a few times a week, yesterday was a great day for her and we talked for 3 hours. I miss the young her so much but she is my sister from another mister and I always try to take the time to talk with her. I have my days where I am very lonely for my old friend pre-dementia. Thanks for your updates.

[@Heather89Anne]

I love you guys! My admiration for Jason has been huge but after this it has gone way up. It's a given, Leslie, that I look up to you.

[@rondaowens4752]

Thank you Jason for the reminder to vote for your grandson!

[@GaryPack-l4u]

This is very helpful thank you very much for making it possible to leave comments again. Both of you are doing an exemplary job of navigating this very difficult situation. I have Lewy body dementia, which is very similar to what Jason has. It is admirable how well you two communicate and maintain a sense of humor and perspective. There is no getting around the fact that any kind of dementia is terrible. Your faith is inspiring. Thank you for these videos.

[@PatriotMomof5]

You have to have a sense of humor in situations such as what you are in. I love that you can laugh and giggle together, even though in the moment, I’m sure it’s very frustrating and difficult. I loved the aircraft carrier story. I remember when he bought that and you had to call them and tell them no we don’t really need that! The wetsuit and the urn are awesome as well! I got a good giggle. Keep smiling through the tears and leaning on God’s grace thank you for sharing. I’m sure there are many many people that are going through the same thing that are appreciating all that you’re putting out there that they can learn from.

[@pricedesign8805]

I think Jason is remarkable!

[@susanwisniewski6821]

Thank you so much for your honesty about your situation. Your offering help and comfort to so many people. Praying for you.

[@julievegh3744]

Nice video and absolutely love your transparency. You two are helping so many people who really benefit from your real lives. Thank-you for sharing and caring. 😊

[@cherylmclemore66]

Jason is hilarious! I absolutely love you two & I feel like I’ve known you forever. 💖

[@BellaBlue637]

Great video! The way you guys work things out to share, but preserve Jason’s dignity is wonderful. We really don’t have to see the bad. Your descriptions paint a vivid picture.

[@marydepuydt2610]

Oh my goodness, you are my heroes tonight! My husband is doing this on Amazon. I believe he is well into the dementia thing although he has not been diagnosed, only because when I even mention it, he goes ballistic on me. Just knowing that I’m not alone helps so much! Thank you!

[@cathywarriner]

"That's not a fair question " I love seeing Jason laugh , his whole face lights up 😊

[@nicgeorgiapeach]

I’m always so blown away by your relationship. So amazing to hear Jason’s perspective and such a testament to how incredibly intelligent he is. Leslie, you are the epitome of a devoted and committed spouse. ❤

[@cathyvitale3670]

I love how you both can laugh! God bless you both!

[@tamabradley6844]

I have early Alzheimer's.. My wants are things that have meaning now.. Like buying two Big beautiful (Heart looking) Boulders, so my husband and I can sit on them and watch the stars. Or asking my husband to paint a picture of my favorite childhood cartoon character, something that makes me laugh and smile. Moments are bigger now. Eating out and holding hands are very special. We recently visited an antique shop, it was so fun reminiscing ...but knowing NONE of US will be able to keep any of this stuff.. it was ok to leave it go. Now is the time for Love. I am lucky.

[@premavida]

Thank you for keeping me as a follower despite spoken and unspoken debates in the past. Great admiration. Great lives you are both living. ❤

[@jo-annmaruszak9885]

You are amazing Jason and you have the best caretaker anyone can have. God bless you both. Your videos are helpful.

[@AngelaMinor-k6k]

Love the two of you. I know you don’t show the worst and I love that you love and respect Jason that much. Prayers and blessings for you both.

[@nicoleziegler6112]

The insight your husband has into his own illness is nothing I have ever seen before….. It’s remarkable

[@kimcwhite6509]

I love your humor, but the fact that you admit it is big. I think our brains get obsessed with something & can't stop🥰

[@marijanel9639]

Oh boy - thank you for sharing!! Jason and Leslie - you are just so generous with your time and advice.

[@michellemalega59]

Y’all are so adorable! I love how loving you both are with each other! Thank you for sharing your experience with us.💕

[@southernsass2937]

Jason, you bought what!?😂😭 Ready for the apocalypse! Leslie, you are one Incredible caregiver. I love seeing that Jason hasn't lost his sense of humor 😂 I just love y'all. Thank you both for the update. ((Hugs)) from Louisiana ♥️♥️

[@pamelalee5261]

Both of you are just incredible! Jason is so unbelievably intelligent and great at helping you explain things when he is having a good day. Even though we can't see what goes on every day I can tell Jason is so blessed to have you as his wife and now caregiver. Leslie you are the Best!🌸

[@patriciaLamb-s3w]

Don't show the bad! I am in the same lifestyle you are living. So very hard and the loneliness is so bad. 24/7. prayers for your family!

[@helenwilliams8471]

Yeah, Jason for doing a good job sharing! I'm sure the bad is really bad but it's wonderful that he & you are 'both willing to share this journey with others. I pray for you both!! 🙏❤️🙏

[@mrs.e3909]

The "bad" is too harsh for other peoples eyes. My mother never yelled or got angry towards me, but as her dementia progressed and delusional thought became part of the disease, she acted out in waysb that family had never seen from her before. It can be heartbreaking.

[@luella2897]

Great video to help those dealing with this to understand. I wasn't aware of such problems until my niece's husband started ordering random"odd" things , such as $900 worth of steaks. The problem they had was that he had memorized the card numbers ,etc.

[@JoanneIreland-z2g]

What an intelligent man just incredible!

[@wrennknits6048]

You guys ar so precious and walking thru a tough situation with amazing grace. So helpful to others❤