Living with Lupus | Emily Littlejohn, DO, MPH

[@ForsakenTempl]

A specialist refused to see me because I didn't have inflammation markers according to the blood workup despite having a hundred strange new symptoms suddenly come upon me. Joint pain in several joints, very dry mouth and eyes, skin sensitivity to light, vision changes, fingernail changes and abdominal pain.

[@DeRocco21]

Good job emily!

[@ladyjane6846]

No mention (or did I miss it?) of the malar and discoid rash which is found on the face of over 60% of Lupus patients. A very distinct butterfly shaped rash across the bridge of the nose onto the cheeks. A big sign you may have Lupus.

[@kayreece4156]

Lupus cure:dr udoka on KZbin

[@rhiannonemm4884]

Malar rash is actually less common then kidney involvement though and is less fatal might be why its worth mentioning more who knows

[@angelgonzalez-xf5dg]

John you are right. It is sad that all the focus is on women, I'm a 65 old man with lupus for over 8 years , I have lupus plus 2 years taking ( Benlysta) that stops the damages to my heart,lungs,kidneys and more, lupus Is More Severe in man's that female. Also is more severe in the mental health, depression is terrible, because we normally are the provider's , is so hard when you can't work. Is to many man's taking thair life, is deprecion is not taking care. Plus the anemia and thyroid problems, that's a killer. I hope some day the doctor's see that we having a harder symptoms, The worst thing is when they said and judge us, You look good how is that you are sick. That is no information regarding man's lupus because we are not important to Medical professionals

[@lindaseale1409]

I've been suffering from lupus since 2008 not officially diagnosed until this year the pain that I am in from between restless leg lung problems I also have long haulers covid and I have no help with figuring out lupus and what to do and if I'm going to die from it my kidney seems like they're not working properly and my father is on dialysis my father's sister my Aunt she only has one kidney and her son my first cousin died of kidney cancer so I'm really concerned that some of my organs and I don't know cuz I have no health insurance maybe failing on me I'm only 58 on the fact that I was diagnosed unofficially in 2008 and here we are nearly 2023 that's what 2008 15 years of pain and suffering I've been to every doctor and rheumatology, oncologist, ENT, Internal Medicine Family Practice, Psych eval and treatment for post-traumatic stress and now I'm playing games with the freaking Social Security office since June because I cannot work I cannot stand for long periods of time cuz my legs are killing me with restless leg it's an iron deficiency I don't know I've tried everything to get rid of it I can't sit for very long because of the pain in my legs they actually end up going numb and then my toes end up going freezing really cold so I don't know I wish someone could help me free consultation somewhere please I'm begging someone cuz I don't know how much more longer I can go on like this with the pain and the fatigue and the rash and the fevers and the vomiting the list goes on and on and on

[@jennashinn8322]

She mentioned lupus is hereditary, I’d be interested in learning about what genes are considered for Lupus.

[@sullivanderek4091]

thanks to @dr_ehiagwina I want to appreciate @dr_ehiagwina for giving me more life again,i was diagnose of lupus after the use of @dr_ehiagwina herbal medicine got cured, if you are infected you can contact him he also cure sickness like hepatitis :BP, :skin disease, stomach :ulcer, :Asthma romati : am, Fibroid :Acute waist pain, :Cancer of the breast, :Hynia, :Afflictions, :Chest pain :HIV HSV 1and 2 HPV Contact him on WhatsApp:[phone]

[@Thestrong11]

Are there any chances of lupus patients getting into drug addiction?

[@sullivanderek4091]

thanks to @dr_ehiagwina I want to appreciate @dr_ehiagwina for giving me more life again,i was diagnose of lupus after the use of @dr_ehiagwina herbal medicine got cured, if you are infected you can contact him he also cure sickness like hepatitis :BP, :skin disease, stomach :ulcer, :Asthma romati : am, Fibroid :Acute waist pain, :Cancer of the breast, :Hynia, :Afflictions, :Chest pain :HIV HSV 1and 2 HPV Contact him on WhatsApp:[phone]

[@TheCascadingCatalyst]

You can have have Lupus while also having a negative ANA

[@marys3738]

This doctor did not do it for me. She looks like she doesn’t want to be there.

[@kvloveslv119]

Totally agree. She seems annoyed.