Lupus Documentary - Bringing Awareness to the Disease

[@neta8055]

They hardest thing is people looking at you and saying you don’t look sick, so you can’t really get any support from family and friends. Living with lupus you learn how to fake being ok, when in reality everyday your in pain.. You just start teaching yourself little things to do to push through your day. Your life changes, trying to keep a job and support yourself is a challenge, because you never know how your going to wake up.. you can get 10hrs of sleep and you still cant make it through a whole day without a nap.. The mental part is very hard. Especially if you have no family. You will find yourself worrying how you’re gonna financial take care of yourself, it’s very hard to work. My heart goes out to everyone living with this disease. If people only knew. I pray for a cure.🙏🏾

[@stevenroberge4271]

Laneta Jenkins I have heard very similar from meeting a variety of those who suffer - Lupus. They told me that they find comfort by connecting with other Lupus patients or just realizing that "they are not alone". I wish you well.

[@neta8055]

Steven Roberge thank you

[@cassandravick6327]

Yes ,, well spoken , it is a battle mentally and most difendenly physically ,, it's a battle , wouldn't wish it on a dog

[@maryjofinan4410]

Laneta Jenkins my own kids & Family don’t understand. It actually makes my lupus worse bc I genuinely hate not being able to keep up so I push too much then drop!!! You are in my prayers GOD BLESS YOU

[@SLKnoxx]

My parents say I'm just lazy. I haven't been able to work but I was denied disability because they determined that "lupus did not affect my daily life " Obviously awareness hasn't made it to SSA yet.

[@marathonlady1446]

I was diagnosed in 1982, I was 22 years old. I have been on chemo, lost my kidneys and been through all the possible symptoms. I am now 62 and have had a transplant and been in remission for two decades. I now have new problems and in between all my illnesses, I still have had good times. It’s up to the patient how they will handle and learn to live with Lupus.

[@sheri1368]

I have lupus and I'm not going to let it get me down as long as I have MY LORD JESUS CHRIST with me by my side I will be able to stand strong!!

[@irmadennington2773]

sheri hogan I had lupus and suffered much from it for almost ten years, I was diagnosed with SLE after I had cancer. With a proper diet I was able to reverse it, I avoided white sugar, low carbohydrate, no sugary drinks and sweets, vegetable sprouts especially alfalfa. I declined any medication but opted for natural remedies. I drink ginger tea everyday.no direct sunlight . A bit of exercise if I can helps. Last month, my blood tests result was clear, I'm free, but I'm still careful.

[@marksokana5843]

sheri hogan yes

[@juanitobarrera7750]

sheri hogan i just find out today my mam have lupus😔

[@mytreasuredcreations]

google Dr Brooke Goldner. She had lupus and reversed with a whole foods plant based diet. Now she's helping others heal.

[@msnancy1380]

sheri hogan amen!!!!!!!! I have lupus too now...just diagnosed! Its in Gods hands now...

[@MacyPooh196]

My older sister had Lupus and now, after doing well for a few years, her doctor told her that her kidneys are beginning to fail because the medication isn't doing it's job, and if this new medication doesn't work, she could go into total kidney failure. I was more scared about the news about her kidneys than I was when we figured out she had Lupus. I've already made a promise to donate blood if she needs it, and now, if it calls for it, I will donate a kidney to her because I refuse to let this take my sister. I get really scared that I'll lose her and I don't want anything to happen to her.

[@misamisa2677]

MacyPooh196 i have discovered that eating mostly green veggies has reduced flare up i feel better Only problem now is i had an accident i went in my closet reaching for something and did not notice the plug for my iron hanging and the iron hit my head with its tip broke thru the skin I immediately poured hydrogen peroxide to keep it germ free, it healed well except i developed pressure and it feels numb on top of my head Since then i have developed a kind of sunken in on my forehead top between my eyes are swollen i have sharp like knives stabbing pain that come by surprise headache i feel a weird pressure from top of head upper palate nose eyes ears teeth And its a struggle to work am a truck driver it causes many problems I think i may have brain trouble I got rid of my heart problem I have decided to fight passively eating right but its so hard to work Am afraid i will not heal fast enough to keep earning my keep Am single dont want to burden my children my bones are in constant pain writting, texting is very painful I tried changing jobs i worked as a cook but pain in bones will not allow me to cut veggies my hand goes numb and arm not qualified to do other work Cant get disability So all i have as a plan is to plan my funeral least cost no health insurance spent too much already last episode of flare up Having had an abusive former husband took extra pounding at bones broken wrists messed up knees So i know drinking green smoothies helps I bought a small blender to have smoothies yayyy

[@ShereeTrask]

I spent my 20's sick and in the hospital but I researched, went back to school and received my CHHC and now help others heal from within. I am happy to say that I am medication free and managing my disease thru diet, stress management, a sleep schedule, daily movement and a positive mindset. Lupus is certainly tricky, like all disease seems to be, but it can be managed and it doesn't have to define you. Thank you for bringing awareness.

[@ShereeTrask]

Absolutely, Dax!

[@vaideuddin8996]

What is CHHC?plz reply thanks

[@lupuswarrior6785]

How do you get medication free if u have lupus every doctor I have seen said it's impossible or really hard to get into remission

[@trimmellipscomb1923]

I have Lupus, diagnosed in two thousand and three, but felt like I had it when I was eleven years old. Now older a lot of things began to happen. I had a lot of surgery's, I had my gallbladder taken out, tonsils, I had a hysterectomy, Deep Vein Thrombosis, and there after a heart attack and about Six Pulomonary Embolisms. Everyday! I'm fighting!.

[@misamisa2677]

Trimmel Lipscomb wow u sound like me

[@millardthompson8157]

I HAVE IT AND BOUGHT A BOOK BY LOUISE L HAY IT REALLY HELPED

[@Khadija667-l5s]

@Marian Cook hush idiot.

[@gayleoleary9313]

I am just so impressed how well this was done. I have Lupus and you can watch a lot of stuff about it but when I watched this I cried. It meant so much to hear that others go though exactly the same things I do and I know I am not alone. It is the simple stuff, like "staring at the shower" and wondering why it has to be so hard. To most people its just a shower but to some of us it is an agonizing task. Everything in this doc was spot on to my life and my experiences with Lupus. Most people realIy dont get it, even those closest to you. Thank you LFA of CT and Steven Roberge. I will be sharing this....

[@maggieistyping6572]

As someone who was diagnosed at the age of 7, I was one of the youngest children in the United States to be diagnosed with lupus, at first they thought I had leukemia- they tested my ANA and it was at 420, I had renal failure, at first they gave me 6 months to live then they gave me 10 years, I’m now 19, I’m in a flare now but I’m being treated. I used to be sent different articles of clothing sunglasses hats jackets to protect me from the sun from the lupus foundation, seeing this doc reminds me I’m not alone:)

[@julialawrence179]

Lupus is horrible 😢 I was diagnosed 2007 felt like I've had it most if my life, I was 31 at the time, its a constant fight just to get from one day to the next, hardest part is you don't look sick,so when you can't function as you should and you try to explain it, people think you're just lazy or just making excuses, even the ones who say they understood really don't, you find that out as you go along, I thank God I have a great husband who helps with everything and expects nothing in return, I can't even be intimate with him and he still stands by me, everything about this disease changes your life!! I pray thats all I can do without effort.

[@K4t1eK4t]

This is the best documentary I have ever seen regarding Lupus. The only thing I would have liked to see would have been the fact that so many other illnesses go hand in hand with Lupus. Thank you so much for all the work that was put into this documentary.

[@mayraramirez8587]

I have lupus I was diagnosed when I was 18 I’m now 24 so it’s been 6 years with this illness. In 2014 i had a flare and after that I was controlled with the medication I have been in remission. I am now married and have a healthy baby boy who is 1 yr and 8 months.

[@jessicac391]

Mayra Ramirez thank you for your testimony 🙏🏼🌻💗

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@julialawrence179]

You are very blessed to have a healthy baby boy, love and cherish him, I lost my only son because I had Lupus and didn't even know until 2 years after when I was trying to have another all hell broke loose, I was told if I tried again I wouldn't make it, so I gave up.

[@mayraramirez8587]

@@julialawrence179 yes I do cherish him, he is a blessing 💕 his almost 4 years old. I’m so sorry to hear that. I’m sorry for what you went through and the fact that you had to give up 🥺.

[@Just_DBG]

❤ beautifully put together. I was diagnosed in September 2024. I know my journey as just started but I take comfort knowing that God is with me. In addition, I am not alone because there are people who truly undersatand how LUPUS affects us greatly.

[@kuzonhotman2791]

I just found out that my mom has lupus. I'm really scared of what the future holds. She's the only one I got, that's why I need to keep my self strong for her.

[@michelleb6363]

Jefferson Baleva keto type diets are good for Lupus. Most days you feel normal. Every now and then she might have pain and/or feel tired but most days on this diet she’ll feel great.

[@kimchloe4458]

My husband has this. I'ma take care of him.

[@didithcastro5618]

My 34yr old sister isay died from systemic lupus last Apr 12, 2015 leaving behind a husband and a 5yr old son. She battled the disease for 5yrs and I'll forever regret not doing enough for her. I think we'll forever mourn losing her, we love her so much! There's a little awareness of lupus in the Phils. Yes she seeked medical help and had been confined 5x but if we only knew what we know now she would still be alive. One of the most painful part is watching her slowly die inside the Hosp. I can never erase it from my mind. I miss my sister so much.

[@Elliebellebama]

Didith Castro So sorry for your loss and hurt. God Bless !

[@saundrat.5243]

I am so sorry to hear about your sister. My family buried my 32 year old cousin last week from Lupus too.

[@stevenroberge4271]

Didith Castro Sorry to hear about your sister. Thank you for sharing with us.

[@davrosd]

So sad to hear of this :-(

[@eunicevillanueva7458]

Didith Castro, I am so sorry for your loss😔. Lupus makes me angry😡 and it gives me the feeling of being powerless. I know I shouldn't feel like this but I can't help it! I was diagnosed with lupus February of 2014 but I was told by a doctor that I must have had lupus since I was a little girl. This makes me scare because now I understand why I've been in a coma TWICE and I just never know if it will happen again😔.

[@Galgarrick]

Steve Roberge - thank you. I'm the mother of a 15 year old boy who was just diagnosed. This disease is heartbreaking...the more awareness the better.

[@InkingEchoes]

It feels grieved to see the stories with such serious issues. I too am a lulups nephritis patients, was 19 when diagnosed, i m 24 today living almost a normal life as everything now is in remission since 1.5 years as reports by my doctor. With close follow ups and medications everything has settled but im have to be on meds my doctor says. I don't know if i will ever be free from meds or what the future holds but at present, i consider myself blessed at heart to have provided all the needful by my family. Im under treatment of a Nephrologist since diagnosis, and i can't be more grateful to have such a great doctor like him, i feel truly blessed. I too had a lot of symptoms and went through a really tuff time since we were unaware about the disease. But once i was diagnosed, i have gotten better on every passing follow-up . God blees everyone!

[@rosaflynn6545]

I was diagnosed with Systemic Lupus in 1982. I have experienced all the Lupus symptoms and have ESRD with a kidney transplant and now at 60 years old have had a heart attack. I have had extremely unbelievable bad moments in my life, and yet, I have had many incredible and wonderful times with my husband, family and friends. If you have Lupus, please, listen and follow all the instructions your doctors give you, have patience and FAITH, even with all the restrictions this disease throws at you, try to continue your life as routinely as possible. I know first hand how hard it is, but, there are still good times to be had! God bless you all!!

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@misamisa2677]

been diagnosed with fibromyalgia sciatica scoliosis rheumatoid arthritis bulging, all kinds bad disks empty sella cataracts dry eye yet i dont give in to the pity, attention, sadness, depression, or anything i quickly look for how to get out of it a good cry in the shower so eyes dont swell i rarely take prednisone i stopped killing myself with up to 12 tylenol or more to be able to work i think i had at least 2 strokes 3 yrs ago my left is still numb yet no one can tell cause i stretch doing plank has been great !!!! really great!!!!!!!!!!!! i have my days now that my head feels really bad but if i drink my green juice eat salad am great!!!!! i have noticed that getting rid of my sugar is a miracle

[@babyghany9991]

Misa Misa check out borax..dmso..and turpentine

[@michelekisly2535]

Why​@@babyghany9991

[@annmarieschrage-glaviano5281]

Yes, most misunderstood. 18 years with it diagnosed. A lifetime before 46, wondering why and what was happening. Stay focused on whole foods, nothing processed, no sugar, no MSG and take your supplements carefully. Be a walking miracle. GOD BLESS YOU.

[@radhika5206]

Thank you..

[@lagafa4975]

I have lupus for 16 years now and I still can't believe that I have lupus 😰😢😥😴😷🤒🤕

[@deborahjames4875]

I was diagnosed with Lupus SLE in 2015. Since I am Native American, our health care system does not have the resources for specialist or doctors, so I am an untreated patient. I live my life everyday with this untreated time bomb. it was nice to see all the people being treated so carefully with their Lupus. I envy them. I will go on with my life and endure my untreated Lupus.

[@jjhh2133]

Deborah James w I y

I will pray for you hard 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼

[@citcatpat1232]

16 and living with debilitating lupus, endometriosis,ACNIS, scoliosis, anemia, hyperthyroidism, and something else we are in the works of diagnosing. I also suffer from bipolar, ptsd, anorexia, dissociative disorder, and adhd. Loved hearing your story, thank you for sharing!

[@magicalpatterns]

I was a social worker and now from bed I want to open a chapter in MN. We have no support in this state at all. The isolation is unbearable as the physical pain is as well. Thank you 🙏🏼

[@michelekisly2535]

Nys??? It's not right here either

[@onlyzuul4850]

I have SLE, and everyday is a surprise. I struggle with the side effects of the meds, and try to control it through diet and exercise, but it’s so unpredictable and has a mind of its own. The medical system is broken. Doctors don’t care, and just pass you around with little to no care, family doesn’t care. I do this on my own, and I’m tired. The only thing that keeps me opening my eyes each day are my kids. I wouldn’t wish this on my worst enemy.

[@sammiifty4313]

Same😔😔 I have Sle

[@michaelfranks2844]

My best friend is a 13 year old girl. She has lupis. this profile picture is in honor of her. She is very strong. She is the reason i want to support the foundation.

[@evxnhxre]

This doc is really good. When they said things like "It restricts you from doing the things you want to do", "it takes away all your goals and dreams in life" and "I didn't do this to myself, it just happened", it resonated alot with me. I was diagnosed 4 years ago, when i was 16. I had to rethink everything I wanted to do with my life, my ambitions, the adventures I wanted to go on and often when I thought of stuff like that, I feel like I'm being dramatic bc there're so many ppl who have it much worse. It's nice to know that there're others who feel the things I do.

[@michelekisly2535]

It's like the walking dead; or a prison sentence

[@TerrenceAybar]

My wife has Lupus right now and I'm so afraid of what the future holds for us but more specifically, for her. We have two boys and I feel like I'm doing everything I can to keep us afloat. It's so, so hard and I'm trying to keep positive but the dark side to this disease has me worried.

[@beamerbenz546]

God bless you stay strong brother!

[@TerrenceAybar]

Thank you, I appreciate that.

[@kimchloe4458]

+Terrence Aybar I am sure she appreciates you so much though. Take care all of you and stay strong.

[@psicologiadelavidacronica6552]

Terrence Aybar Keep strong! God bless you all! Support is so important to a Lupus patience! Understanding and supporting her are the best gifts you can give to her. Thank you for that!!

[@ckjf1117]

I have lupus for 8 years now, it Attack my kidney, 5 years ago I decide to become vegetarian and it made a great improve on my disease, less stress helps too, and work out and stretching, just don't go under the sun that offend tho.. But changing my diets I found out it's a must.

[@MacyPooh196]

+Feng CK My sister's kidney's are beginning to fail. How severe was your kidney attack, because I'm really scared for her.

[@ckjf1117]

less salt , and green diet, and stretches,,. my whole kidney stoped once ..then i wake up...

[@mahazoromba5724]

How many time did you take to feel better with vegetarian diet??

[@lnnunley09]

Wonderful video and so important to let the world know how debilitating this horrible disease is.

[@paulina3076]

Thank you for sharing this video abouth lupus...it means a lot to me that i am not the only one who is suffering from lupus. Because toghetter we are strong! I had a uncle who died of it in 2001...that scared me a lot because i got the diagnose in 1990...after a lot of dokter visits with all kind of wrong diagnoses for 4 years i asked that i wanted to go to see a specialist. He did all kind of tests and came to the conclusion of lupus. Tried some medication but it only made my lupus worser. A younger nice is diagnosed with it to...so that makes 3 persons in one family. I wish everyone good luck by fighting this terreble monster that lives in us...and hope that one day they find a good cure so that no one has to suffer from it.

[@annmarieschrage-glaviano5281]

June 1st is my 19th anniversary being dx with SLE, nephritis and cns, 2 of the higest comorbidity factors. Love your lupus, many don't understand the life changing effects of this malfunction of the auto immune. Don't allow them to insult you or make you feel inferior. People that don't understand the illness often bully and intimidate patients unaware of how debilitating the body feels. Make the most of life, you are not lupus and you are not alone. Leave, remove, everything toxic in your life. Lobby for lupus support to those disabled. Lupus patients need financial help almost always. Because of inconsistency in ability to work with care requirements. Best advice from my experience, inflamnation needs to be reduced from the inside out. Go plant based eating, Keto with lower protein level intake. Cut all all sugars and food additives, cut processed foods FAST often. A day without inflammation is pure energy, a life with no headaches, weakness, fatigue can be golden. Love your lupus♡ God bless us, everyone!

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@anipatas1689]

You have no idea how much it means to have seen this video. Thank you for trying to raise awareness!

[@colleenparlin9260]

I too have Lupus and it took years before it was diagnosed. What I really appreciated on this video was the info. that I did nothing to cause this. You are genetically predisposed or your not. Jesus will walk me through this.

[@mytreasuredcreations]

google Dr Brooke Goldner. She had lupus and reversed with a whole foods plant based diet. Now she's helping others heal.

[@jayhillz3705]

Change what you eat

[@marathonlady1446]

I was diagnosed in 1982, I was 22 years old. Lost my kidneys and been through all the possible symptoms. I am now 62 and have had a transplant and been in remission for two decades. I now have new problems and in between all my illnesses, I still have had good times. It’s up to the patient how they will handle and learn to live with Lupus.

[@maryamfirdousahmed4847]

I have lupus and had multi organ involvemet. Its nearly been a year since my diagnosis and everyday is a battle. But I am much better than before

[@richard425]

Great seeing men sharing their Lupus experience. I have it as well and most people say you look fine and Lupus is a female/ Black disease. No it’s not!!! Men woman white black asian Latin etc can all get this horrible disease. Great documentary and blessings to all who suffer with this. Took me years and tons of doctors to believe me then diagnose me.

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@my4babiez]

I have to say this is the best lupus documentary ive seen. Very well done. Thank you for making such a great awareness video on this debilitating disease.

[@maryjofinan4410]

my4babiez you are not kidding no one understands & my own family think I’m lazy at times (so hurtful)

[@barbarahenninger6642]

I did not know anything about lupus until I saw a video blog about it. The lady doing the blog needs kidney and lung transplants to live. I had no idea about this. Thank you for making more awareness of this horrible disease. People do sometimes need transplants, so please, if you are healthy, sign up to donate your organs when you die.

[@julialawrence179]

I am in tears because I cant believe we are all going through the same thing!! We have to plan every little detail of our lives, we cant function like normal, this really hurts, but it helps to know I'm not alone.

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@dereckmejia7981]

wow this is amazing I didn't know this many ppl had it and are going throw the same things I am.

[@starynight99ful]

thank you for this documentary and to the people sharing their experiences, I am newly diagnosed with this wretched disease.

[@NathanWeber]

Well done video. The interviewees really covers the spectrum of Lupus types. Thank you for this.

[@michelekisly2535]

Spectrum indeed; everyone thinks you are a hypochondriac, even Health Care professionals

[@mailorenzo6967]

thank you for this video. I have been battling this unusual disease for more than a year and too disppointing that until I am still not recommended to work. Its just hard and my life changed coz i isolate myself to others. better to stay alone rather than socialize with others. It is very tiring,you have the strength but its limited...

[@rochellebrodie3159]

That one person that disliked this video though...

[@cinthiuxdemelon6887]

But the diagnosis is not always easy. Many times doctors will say you're crazy, lazy , or that you have fibromyalgia... etc. The worse of being sick is not having any diagnosis, with uncertainty, and living daily with horrible, strange symptoms/signs that nobody seems to care nor have an answer.

[@sandrak9173]

Yes and it doesnt Always show up in bloodwork either 😔 I have all signs and my dr scratches her head.... right now my blood results is ok! But I feel like crap....

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@RZR-p6x]

I have learned to live as my body, spirit and mind chooses too. I no longer live for others, or how others expect me to. This has been a hard change, but it's the greatest thing I can do. 😊

[@jazmingarcia6773]

Lupus haunts my family from generation to generation. Im scared of my future but seeing so many support cheers me up.

[@margaritasantos2931]

I have lupus and I’m in so much pain but I get up every day because of my family my husband is a big help

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@jaimedowdie863]

I was diagnosed with Lupus and Autoimmune Hepatitis back in 2003. I'm now 65 and stay in alot of pain. I see my doctors but they still don't understand how bad a person hurts. I was also diagnosed last Thanksgiving with cirroshois of the liver. I also have alot of other health problems but I try to take one day at a time. Can't do as much as I use too. But I do try.

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@theblackcreed8086]

at 13:26 I started to cry.....I'm 12.., I really want to help out with this type of disease

[@lovely.mara.zad1]

ur amazing

[@susanjorden425]

We need more ppl like you. God bless you

[@grapiken7766]

I've read much about water fasting and its effects on autoimmune diseases like arthritis. There is a fascinating article in GQ Magazine about a man who went on a medically supervised water fast for 6 days. His arthritis symptoms cleared up. If I had lupus I would try this as I read about a British comedian who developed lupus and cured herself of it through a raw vegan diet. Apparently it can't be cured. I think conventional medicine treats the symptoms but not the causes and if toxicity in the body is creating an auto immune response then a water fast seems the best course of action, albeit a very difficult one.

[@grapiken7766]

Danielle Pedraza I've read about dairy and gluten. Keep off them if you can. I've just made buckwheat and apple pancakes with cinnamon. Buckwheat is a good alternative of you're giving up wheat but you probably have to buy it online

[@grapiken7766]

Also there is an 'anger and fear' response mechanism that causes arthritis to flare up apparently. Meditation is good for that. Good luck

[@k.g.8503]

Lupus is a disease with remission and flares. It is incurable. But patients can most certainly make lifestyle changes to prolong the remission and lessen the flares. Stay out of the sun, stay away from alcohol, eat anti-inflammatory foods, reduce stress, etc.

[@jonathanwright2925]

After 16 years being misdiagnosed with Crohns 2 days ago after 4 weeks of constant blood work it turns out I have Systemic Lupus like my mother. I am all up in the air in how I am supposed to afford all the specialist they want me to see now. Much love to everyone here that is fighting this disease and to those who lost loved ones to it as well. My mom is getting towards the end of her fight so I know what I am in for next.

[@mariileyva]

Thank you for this video! I know what it is like to wake up in the morning 2 hours before i need to be somewhere because it takes me that long to start functioning

[@2gether4ever88]

thank you for sharing this. I wish no one else had to have this, yet it also helps to know Im not alone!

[@JeanTralala]

I have SLE and I'd say getting and holding on to a job is especially hard... Here in my country no one's going to hire you if you have a disability that could go active and eat up into their healthcare budget, so I have no choice but to NOT disclose that I have this illness. It sucks to have a super sensitive immune system-- you won't be able to keep up with the workload. One time (just two months shy of finally being regularized as an employee) I had to not turn up at work because it was flu season and I was (as I seasonally am) immuno-compromised. I also do not have the luxury of resting just about any time of the day when at work because eyes are on you. This led to me losing my job... I'm still trying to figure out how to pay for meds (because dangit, Cellcept is hella expensive).

[@JeanTralala]

@Marian Cook SLE is not curable. It goes inactive, sure, but you can't get rid of it.

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@daaina1729]

Thank you for this video. Yes it helps to know that i am not alone in this world with lupus. Wish we could all get together sometime. Have not support group where i am so nobody not even the doctors truly understand.

[@MIMI-jk3hr]

I told that people who have lupus and get the butterfly redness are not so bad. Wrong!!! Before I was diagnosed with lupus my face was bright red. The next day my whole face looked as if I had tiny pimples. The worst, it felt like someone threw acid on my face. My God was painful. Lupus turned my life upside down.

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@tc247]

Thank You Steven. I subscribed and thumbs UP! My mother was very sick when she was preg. with me in 1957. Very sick.(not the reg. preg. sick) My dad took her to the Lehey sp? Clinic in Boston and they did a huge work up on her. They knew she had something they had never seen before. They told me dad and her they "thought" she had some rare type of Leukemia. My dad was in the service and so they never went back. My mom told me the dr.s had never seen a case like hers and held a HUGE Symposium for specialists all over to figure it out...They had to ask her to sign some documents to release her info. When she was in her mid 40's she was told she had Systemic and the skin type (I can't remember the word, sorry it is late and I am very tired, always tired) I got sick in my late 20's and now I am almost 60. I have Fibro, Chronic Fatigue Syn, Thyroid, Arthritis others...I need to know if there is ANY testing or DNA studies that you or anyone might know about. My daughter is in her early 30's and now showing the same signs. She is wanting to have kids..I am terrified of what I DON"T know...IF we knew we could at least get help or KNOW what we're facing. IF you or anyone can give me any info I will do all the work to get in touch with someone, etc..I don't know what to do. My RHEUMATOLOGIST knows I have something wrong, he isn't sure what... Thank you Steve, for doing this docu...More people need to be aware and NEED TO KNOW where they can go and what to do. I personally think, genetics, may play a role in this horrid disease..thank you..blessings, Victoria

[@sabserab]

Yes, blood test. The ANAs and ANA subtypes for collagenosis. Your rheumalologist should test that on her. I hope tho by the time you have the answers. I have Lupus and Fibro, too and I wish I had such a nice mom like you

[@mytreasuredcreations]

google Dr Brooke Goldner. She had lupus and reversed with a whole foods plant based diet. Now she's helping others heal. Check also the medical medium, Anthony William, to see what to eat and how to reverse these auto immune diseases.

[@janielisabeth]

At the very least watch BETRAYED and stop eating gluten and any round up ready foods

[@michelekisly2535]

Great post

[@shandaa2007]

Joint pain, swollen joints, migraine heads, sob, low grade temperature, low energy, hair loss...... but no one knows what's wrong with me from dr to dr blood blood blood but always negative. The pain and struggle is real.

[@jocelyncastillo3877]

BlessedandHighly Favored sadly it can take a few weeks, months up to years to officially diagnose someone with lupus due to it being misdiagnosed often. I hope you really look into getting help if you’re not well. Wish you the best of luck and I’m sorry for the pain you’re in :(

[@misamisa2677]

its bad but can be good if u choose to eat right!!! believe me i've had flare ups that were very bad skin that felt as if melting away pain that has left me exhausted exhausted exhausted i've had so much stress to my body and mind plus physical trauma that is how lupus can be born but i have tested it when put on drugs it was worst i know i dont want to walk with a walker or be like so many people just dragging on so when i started to eat right i feel so much better i start my day with cup of water with organic apple cider vinegar i squeeze 2 lemons in water drink that all day my breakfast after the vinegar i drink green smoothies Dr Goldner cured herself of lupus Dr Eric Berg has great videos on nutrition i will be 60 and i feel 30

[@philydive76]

i have it & when i flare up i just want to die it hurts so bad i pray god to plz keep me here to raise my boyz

[@theeliteathlete5031]

I loved this! #lupie&what I am a lupus patient and I love this documentary 🙏💜🙏

[@pqueen87]

Thank you for this GREAT video.!!! Hope more people can understand lupus disease ...

[@Photogenic_heart_india]

My sister is suffering from SLE. Swelling on face and legs, getting hair fall, reducing protein, not having meal properly. Medicine not working as required. She have been spending her time on bed for 2 years.

[@trippinwiththefergusons2913]

I think the representation for the 2nd highest group to likely have lupus was underrepresented. 1 in 9 men are affected but 3 in 5 African Americans, Hispanic and Asian women had no representation. It’s important to make your awareness all inclusive.

[@marie.s9995]

It's common among Asians! Trust me, I've seen so much.EVEN the Brugada syndrome Asians are underrepresented.

[@_starling22]

Thank you for this video💜💜💜

[@ericlindsaykoehn2454]

These people explain what I have been dealing with for years. I have a rhuematologist but he is reluctant to call it Lupus. I have most of the symptoms but because my blood work has yet to confirm I have it I am being treated for Fybromyalgia. Have any of you had this problem with lupus not showing up in blood work? What are other test to be done besides blood work?

[@dabyrekna9289]

Eric &Lindsay Koehn maybe a kidney biopsy

I hate this fucking disease! It took away my career and I probably won’t be able to have children!!!! I fucking HATE YOU LUPUS!!!!

[@magicalpatterns]

I have this horrific illness. Bedridden for 4 years now.

[@stevonhubbard2711]

my mom has this disease and she keeps telling me she's going to die and i don't believe that she will die anytime soon

[@rayscene5887]

she will die no sooner than in a few years.

[@yingyang2815]

What do you mean no sooner than a few years

[@ashydawn6833]

It’s not a death sentence! I might possibly have a drug-induced lupus and I don’t even know what that really means but it’s not a death sentence because you’re diagnosed with lupus. Don’t scare this poor thing!

[@susanjorden425]

Most horrible life ever. Severe n chronic. Its not life irs existing

[@YY-pr5sz]

Thank you

[@julieoliver8170]

I cured my lupus with pure gum turpentine and it healed the yeast in my stomach and killed it and then I started using MMS and my lupus is 100% gone. There are no markers for it anymore

[@julieoliver8170]

The cure is pure gun turpentine. All autoimmune disease is from yeast overgrown in our stomachs. I cured mine with pure turpentine. Diamond G brand is best.

[@lorebilim7471]

what is MMS in turkish

[@babyghany9991]

Did you change yr diet?

[@julieoliver8170]

It's sugars. Then yeast overgrowth. Must take turpentine. 6 chain carbon's is the cure.

[@evannkien6197]

Just remember to keep up with your doctors and you medications. 2 near death experiences so far from neglecting the medications. just stay on it.

[@misamisa2677]

I just found out i have lupus Been thinking of how will I financially support myself I finally give up am struggling one or 2 yr more then i will let go

[@Jcaba21.]

Keep fighting , I was recently diagnosed with Lupus, no one knows how it feels except the people who have it. Look for support groups! Keep fighting.

[@marie.s9995]

SLE is a multiorgan involvement. No cure. It killed my math professor, it killed my roomie and she was a nurse. 😵

[@misamisa2677]

i started having bad flares in 1986 am 61 now but drinking green vegetables makes it better i have stopped being careful am tired just happy enough to make it to my daughters wedding

[@lupuswarriorsle1129]

I have lupus for 9 year now

[@jayjay6319]

Thank you! !!!! This video is GREATLY APPRECIATED. :'~) ♡♡♡♡

[@lovely.mara.zad1]

live life enjoying the journey to heal, to get stronger, have love, hope and faith in yourself

[@imtakenimtakenforever6029]

I hate lupus its so sad we have all have to have this illness.

[@prakashbadlani8226]

My wife to 14 years patients lupas sle

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@orlahoward1547]

Well done to the makers of this documentary. Awareness is getting better the more this is talked about. I have sle too and has changed my whole life. I pray and hope the cure is found. Neovacs is developing an immuno vaccine please god a cure is coming. Supporting people with lupus is the best thing a person can do, as until a cure is found they need it. I have lupus but it does not have me.

[@ckjf1117]

For all lupus member we are chosen to change the world by changing our diet to show the world that any disease can be cure once your body is more vegetarian base.. We are what we eat keep that in mind for all lupus member.. Once we realize it ... We become Family of light ...orz...😇.. Thank God for this disease made me realize more what I am intaking to my body.. It's a gift .. To wake us up...

[@imtakenimtakenforever6029]

I have lupus aps and sle lupus

[@monicawarren3678]

I'm so sad

[@something2chewon]

There's lots of videos about what the disease is I need a Docter who can diagnose me. Ive been ignored and verbally attacked by docters for 10 long years, it feels like 20. and I'm just tired. Along with just trying to take care of myself ive been fighting for disability and they keep denying me. I think its because I am a Christian to be honest with you. My Docter believes in pills not God and the healing that is sapose to come from the food God gave us. I'm in Washington state and only get state / gov health insurance. Can anyone help me PLEASE

[@salinapoudel1965]

I have lupus since 7 years

[@prakashbadlani8226]

Lupus sle patient

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@murshidistudio4642]

My wife have Lupas just now but I have no idea what I doing now she is 19 years old from india assam

[@bhavininath]

here for Selena

[@markpatterson5199]

Me 2 ^_^

[@maricresyponbustamante3131]

im so worry for selena gomez she had lupus

[@kevintatum4903]

I just found out today my wife has it. I’m very scared for her.

[@TinaMarie-qb5rq]

this is hard to watch knowing that the federal government keeps the one drug away from those it would save, cannabis, i have lupus, and cannabis literally saved my life!

[@mama_keikei8081]

I would have better luck with medical treatments if I was a drug addict. It’s like some doctors don’t know anything about lupus.

[@misamisa2677]

DR BROOKE GOLDNER watch her videos she had lupus for 13 yrs

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@Nono-jf5bc]

Please has anyone tried stems cells and keylation and a special water to cure this just found out it's taking me lungs liver and kidney on top of that me have fibromyalgia may god give everyone a good day

[@marieharris6646]

Powerful Herbal treatment is 100% guaranteed for HSV cure, the reason why most people are finding it difficult to cure HSV 1 or 2 is because they believe on medical reports, drugs and medical treatments which is not helpful to cure HSV and hasn't proved any sign of helping. Natural roots/herbs are the best remedy which can easily eradicate herpes forever. I never believed it until I was helped and cured of my 18 months genital herpes with natural herbal medicines from Dr Idumebolo Where other medical prescribed drugs and treatments failed,, Dr Idumebolo natural herbs helped save me from Genital herpes permanently after using his herbs treatment for only just 11 days and I’m so grateful for this. I'm so excited! I'm free and completely cured from my genital herpes. I'm so glad to have reached out to Dr Idumebolo, also known as the 11 days healer of herpes simplex virus. Are you suffering from herpes disease as well?. Why don't you reach out to Dr Idumebolo at [e-mail] so he can as well get you cured just the way I got cured by him?. You can also contact Dr Idumebolo via WhatsApp [phone]

[@zachparker9781]

I'm a white 15 year old male and I have Lupus

[@bijonganguly7078]

MY DAUGHTER EXPIRED BECAUSE OF LUPUS....SHE WAS IN CLASS VIII ONLY.. IN THE YEAR 2010.....SHE HAD.SEIZURE.. MENINGITIS... AT LAST MIOCARDIATIS..MY HUSBAND WENT INTO COMA..I HAD CENTRAL NERVOUS SYSTEM.. BREAKDOWN... MY SON WENT INTO DEPRESSION...TOTALLY SHATTERED.. THERE IS NO MEDICENE.. ONLY STEROIDS.. HCQS 200... .AUTO IMMUNODEFICIENCY.... I DO NOT BELIEVE IN GOD...REGARDS... INDRANI GANGULY.. KOLKATA.... INDIA