Living with Lupus: Finding out I have Lupus instead of Alopecia

I recently found out I have Lupus and yes my life has permanently changed but I'm still blessed! Follow my journey!
Love you NAYvy !
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[@danielle4556]

I was diagnosed with Lupus 4 years ago , it’s painful , your white blood cells attacks your red blood cells, your experience hair lost, pain , inflammation, depression, but the way deal with it is God Strength, and fighting for my children and husband to live for them , and still try to have a normal life as possible.

[@BmoreBetterNOW]

High levels of Vitamin D3 + K2. A Brazilian doctor treats such autoimmune issues as MS with the Coimbra protocol (named after this doctor.)

[@debbiehamilton191]

Indeed You know what I love about christ despite the battle, the mountain, the struggles he is there with you but many times we say why me lord ?but we fail to see that God want our attention most of the time we say we are Christians but many times in our heart we are hypocritical towards him if we dont love our self we cant love God .many says christ is coming which I do believe with my whole heart but what are we doing with our life? are we living every day as our last? do we read and pray enough?are we as the rich young ruler that didn't want to give his goods to the poor .

[@maimunagarbarurum1190]

I want you to know that there is a herbal cure for lupus and I cured mine with herbal remedy form Dr imenherbal who I met on KZbin channel. His name is Dr imenherbal

[@cassmiller8170]

@@BmoreBetterNOWput a link to the video

[@Seedsofrighteousness]

I am praying for you Naomi. I rebuke any attacks on your body in the name of Jesus. Weapons form but they never prosper and you are healed now in Jesus Name!

[@tracijenningsesq.5203]

Amen! He is a healer and we cast out every spirit of infirmity!! Your healing and deliverance is already bought by the blood! Praying for you!

[@_kpretty]

AMEN !! ❤️

[@itsterri8520]

Amen!

[@1Faith71]

Amen 🙏

[@marilynmartin3901]

@@tracijenningsesq.5203 AMEN

[@shanygcanewman6951]

Hey girl ! I have lupus too , and although that’s not how I found out , I was diagnosed in Highschool and I’m 23 now! My Doctors tell me I’m healthy and my symptoms have been mid until like irritation etc but manageable! It gets better and although everyone is different just know God will NEVER give you something you can’t handle ! God loves you & he’s a healer and a protector! This is not a death sentence but a new chapter❤️

[@annahirox4291]

What were your symptoms? I've been suspecting it for a little while but my doctors don't really acknowledge it when I bring it up

[@endiya.]

Amen!♥️♥️🙏🏽🙏🏽

[@maimunagarbarurum1190]

I want you to know that there is a herbal cure for lupus and I cured mine with herbal remedy form Dr imenherbal who I met on KZbin channel. His name is Dr imenherbal

[@MrPhresh25]

It’s curable and you can get rid of it naturally.

[@MrJBlac]

@@MrPhresh25 how can you get rid of it, the bald spots?

[@fayola2872]

My mom has Lupus or overcame Lupus by changing her diet and she takes Seamoss which has changed everything for her you got this ~

[@kittykatsboudoir]

theres no cure but i'm happy that mom is doing well from a fellow Lupus pt currently hospitalized

[@fayola2872]

@@kittykatsboudoir Yes hunni me too some weeks or better than others however, the natural way seem to work a lot better than modern meds. Once you get Lupus un control with Modern meds please look into natural medications. Also sorry to hear that you are in the hospital I, know you will be ok one step at a time. Fayola

[@Sincerelysexy]

@@kittykatsboudoir there’s a cure for EVERYTHING. Doctor’s of course won’t tell you that. It starts with you you have to take your herbs and stop eating junk and eat cleaner. Seamoss will help.

[@cbreeze123]

What does her current diet consist of?

[@celiamartinez3]

Praying for healing and peace. The Lord will get you through just keep leaning on him. And a naturopath MD would be a good one to find. Also could try and get I touch w some of Dr Sebi herbs. Also watch some KZbin vids with those living with Lupus to help you cope and so you can see a perspective of someone else going through it ❤️❤️❤️

[@sweetniko20]

I see the hurt in your eyes trust me I got diagnosed 2years ago with kidney disease and I was soooo depressed seek god he will help you baby girl stay strong I’ll be praying for you ❤️

[@MiyaLashae]

You are very strong 💖 had to sub. You got this sis!

[@HeIsLuv]

Hey 👋 I'm one of your subbies too

[@idacummings3032]

Pra

[@idacummings3032]

Good Evening Ms Rose My name is Ms Ida I am very new to your channel ,,,,I just wanted to say that prayers are going up for you ,,, And I tell you what right now the devil is a big oh lie,,,,,God bless you ,,,,

[@deannayork9128]

Stay strong, Naomi. You got this. Praying for you.

[@VenusNovember]

❤️

[@sweetbabygirl2043]

I sometimes hate doctors. She was so emotionless. I pray you get through this lovely

[@sweetbabygirl2043]

@experience It's a love hate relationship. I understand why you guy's are like that sometimes. I just don't lik it because at vulnerable moments I need someone to be sympathetic and understanding. Looking at an emotionless face is going to make me feel like you don't care

[@Ducky190]

My grandma has lupus been living with it for a very long time. She is actaully very inspirational because she gets up sick and all and takes care of literally everybody and still manages to keep herself together. I can't speak on your situation because I don't live it but I'm sending nothing but positive happy vibes.

[@maimunagarbarurum1190]

I want you to know that there is a herbal cure for lupus and I cured mine with herbal remedy form Dr imenherbal who I met on KZbin channel. His name is Dr imenherbal

[@jaybae253]

I am right there with you love. I’m 33 and 12 years in on my lupus journey. We got this! 💪🏾💜

[@rhondapagan5759]

*am filled with joy and happiness with my family today, because of fibroids my tubes was blocked for 5years after using Dr Omo herbal medicine I was able to shrinking my fibroid naturally, I just give birth to a boy🤱🏿last month here*❤️ Dr Omo herbal medicine work perfectly well he can also help you get rid of Endometriosis, Infections, Unblocked Tubes, Ovarian Cyst, Pcos, Lupus& Herpes Etc.

[@maimunagarbarurum1190]

I want you to know that there is a herbal cure for lupus and I cured mine with herbal remedy form Dr imenherbal who I met on KZbin channel. His name is Dr imenherbal

[@WiseOne671]

I was diagnosed with discoid lupus in 2007. I had the same bald patches. I was taking the shots and medicine an getting worse. I stopped taking all of that medicine and I'm doing 100% better. Good luck with your journey.

[@R0404]

Did/do you have systemic lupus? Is it gone?

[@lexilane]

I have lupus too, & I shaved my hair last year vlogged my journey & I’m literally 6 months pregnant & my lupus is in remission. It does get better I promise 💙 my hair grew back & yours will too. I’ll be praying for you 🙏🏽

[@lateshiabrooks2180]

Congratulations!

[@lexilane]

@@lateshiabrooks2180 thank you! 💙

[@lateshiabrooks2180]

@@lexilane ur welcome!

[@MsKolo90]

God is going to cover you and bring you through this. He wants you here for your son. Don’t be afraid to put out a go fund me so cover any expenses. Apply for disability as well , if you so choose.

[@BossQueen]

I agree with everything u said 💯

[@grindpaidvlogs]

Amen

[@reginahoggan227]

God has you baby. Stay prayed up and go to him about it all.

[@antoniamitchell6996]

You will make it hun, God is in control. He is able to deliver. My aunt have lupus and is living with it for 18 years now. She has the 2 of them in one. And if you ask her how can she smile, she will tell you Jesus

[@selleisa121626]

I’m so sorry you’re going through this. What your dermatologist didn’t say that I would like to add: Yes, this sucks. Nobody wants to be diagnosed with a chronic illness, and it is totally acceptable to feel that pain. You’re a young beautiful girl and losing your hair, being told to change your normal regimens, take multiple medications... that’s not easy!! But the good news is that now we have a diagnosis which means we have something to target! With this information you are equipped to tackle this condition and seek the proper treatment to have the quality of life you deserve! If that’s free from pain and symptoms without the use of pharmaceuticals then that’s something she should clearly identify the pros and cons of; which she did not. I’m a BSN RN student and her complete lack of empathy was appalling. It’s disheartening to see how easily some health care professionals can become jaded. I pray you meet a better dermatologist in the future, you got this girl! 🤍 you’re beautiful, you are loved, and you matter 💕

[@jerseygirl049]

My mom has Lupus and not gonna lie, it's rough seeing her struggle on certain days even months but God got you and you will live a full and prosperous life!

[@dromocure]

I have herbal medicine for lupus check my video for information

[@heavenlyheavenly3867]

Praying for your healing as well as your strength. “By his stripes we are healed” (Isaiah 53:5). 🙏🏾🙏🏾🙏🏾

[@Safire-ji1vl]

Amen

[@pamelab424]

I am now 55 and was just diagnosed with Discoid Lupus. I remember hitting my head on the edge of a metal shelf in a patients room as I am a RN. I want to say about a year or so later I noticed a bald spot. I’ve been reading trying to understand and yes I’ve read stress but also trauma can cause it. I too had a biopsy done and it confirmed discoid. I am using a steroid ointment but I have been using Rosemary oil and peppermint as they say the rosemary oil has been likened to the potency of Minoxidil. I have always had beautiful hair like you and as women God said our hair is our glory so to be attacked like this is a lot. I had a derm of color…basically it’s like they say there is no cure. But I trust God and know that He can heal and I am trusting Him to do just that. I heard within me the hair will be restored. Then like the enemy I found two more spots. Trust God in the process and lean on Him. He knew we would be going through this only He can keep you as He is keeping me. God bless you and strengthen you in Jesus name♥

[@aida7212]

Keep strong sister! You got this!!!💪🏻 I’ve had Lupus since I was 16 and I’m 33 now. You can and will cope! Pray, eat clean, exercise and wear your sunscreen! I’m open to answering any question you may have. There are also many support groups 🗝🕊❤️‍🔥✝️🙏🏼

[@dromocure]

I have herbal medicine for lupus check my video for information

[@JackieDelon]

Positive comment : I love the hat and nails combo plus the brown shirt . But I’m praying for you as well I hope this situation turn around completely. ✨

[@dionnasgrignoli1329]

I was diagnosed with systemic lupus. So it attacks any and every part of my body. I lose hair, get rashes, had seizures, Raynaud’s disease from it , and it was attacking my heart. I totally understand what you are going through

[@maimunagarbarurum1190]

I want you to know that there is a herbal cure for lupus and I cured mine with herbal remedy form Dr imenherbal who I met on KZbin channel. His name is Dr imenherbal

[@antoniawarren8884]

I have systemic lupus. It’s a starting disease. I have to learn to deal with it, since the Doctors told me wasn’t a cure for this, but with Gods grace and mercy I’m doing ok. You have flare ups, knees swell also feet. It causes arthritis and kidney disease. Praying that you will be alright. Keep God first in all you do. God bless you.

[@dionnasgrignoli1329]

@@antoniawarren8884 that’s all I know to do. Thank you so much ! My prayers for you as well 🙏❤️

[@ajanikemarie201]

I have lupus as well and I understand everything you going through I was told in 2012 when I was in job corps because my hands turn blue when I’m cold a nurse there told me that I could possibly have lupus I was 18 at the time I didn’t know what Lupus was then I didn’t get it confirmed and in 2016 I started going bald in certain spots I had made a video as well that I never posted seeing if wild growth oil will work and in 2018 I got sick really bad where I couldn’t walk my bones would ache it was hard for me to hold my bladder I felt like a 90-year-old women I started sleeping on the floor because I couldn’t sleep in my bed anymore because it would hurt me to try to get up so I eventually went and saw my primary care doctor cause I could no longer tolerate the pain no more and they confirmed that I had lupus I use to cry about it and be sad about it because I feel like why me but I came to turns why not me what motivated not to feel sorry for myself was me seeing children thats living with illness everyday of there life always having a smile on their face and positive outlook on life no matter what they may go through so basically what I’m saying is you gotta take it one day at a time and eventually gets better

[@beverlyfrancis8433]

My hands used to turn blue when I was living in cold country. I thought I had Raynauds syndrome

[@tiag298]

@@beverlyfrancis8433 Raynaud can be caused by Lupus.

[@danielled4146]

🙏🏾🙏🏾🙌🏾

[@maimunagarbarurum1190]

I want you to know that there is a herbal cure for lupus and I cured mine with herbal remedy form Dr imenherbal who I met on KZbin channel. His name is Dr imenherbal

[@xavierwilliams7383]

May the Most High gives you strength and healing in his holy name amen Continue to stay strong and your truly a blessing

[@traci-annburton5935]

I'm so sorry sweetie. No diagnosis is easy to get through without emotions and some level of feeling stressed. You will be in my prayers and you will get through this. Just as you say, process it and take all the necessary steps you need to maintain your health.

[@melissapalmer7200]

When you started crying i litterally teared up because I know how hard it is to not only be unsure about our health but then worry about our little ones as well. Especially with rude doctors. Will definitely be praying for healing hands on rough days and peace💜💜💜

[@xoliyah6553]

yeah that doctor definitely should’ve been more sympathetic, literally she had no emotion in her voice but nonetheless I’m praying for your physical health and mental health. Stay strong, we love you ❤️

[@Journey_for_two]

It’s not the doctors place to have an emotional state when giving out facts, it could lead the patient on to believe that things are worse than they are

[@xoliyah6553]

@@Journey_for_two this is true to some degree, yes doctors have to be level headed when giving out information to families or patients but that doesn’t mean they can’t be sympathetic once the information is delivered. Plenty of doctors reassure their patients after giving them life changing news like this.

[@Journey_for_two]

@@xoliyah6553 true 🤔

[@peachesjeter5480]

I don’t see where the doctor did anything wrong I work in a hospital and that’s what they do give it to you straight this is something these Dr. deal with all day every day this is nothing new to them they’re not there to console you.

[@xoliyah6553]

@@peachesjeter5480 that may be true but it’s just common curtesy to show some sort of sympathy or reassurance when someone just got life threatening news like this. But I do know that doctors become very desensitized because they relay information like this so often

[@Stankfunkmusic74]

Been on this journey for damn near 14 years. I was given 3 months..... It can be irritating, & highly stressful, but you will manage. Just keep as much stress put of your life as possible. My moms was diagnosed when she was 16, she just turned 79. Out of her 5 kids, me being the youngest.... I'm the only one to get it. Plus, I'm a man, so it's rare for me. But I got it, so I deal with it. If you need questions answered, I can answer the best I can. Keep fighting!!! 💜💜💜

[@vincentarone4492]

GOD has you! This will be your testimony baby girl!!! Stay Strong

[@qwashington89]

I definitely agree with removing anything inflammatory from your diet and life. I have my own issues and removed a lot of toxins from my life that we've used not realizing their effects: laundry detergent, deodorant, body wash, toothpaste, air fresheners, dairy, etc.

[@iinkedbeauty]

I was diagnosed with DLE over 8 years ago. My initial reaction was shock and I was thankful the biopsy from the dermatologist was just that dle but was recommended to see a rheumatologist as well which in fact i did see one and was put on medication for joint pain and inflammation I took it but slowly got off of it. I went the natural route and changed my diet (lifestyle in terms of eating) my doctor also told me it’s very very very rare the DLE will turn into SLE although some ppl may only just develop some of the symptoms a person with SLE would have but it’s less likely to develop. It’s tough I know and I hate explaining it to friends because they don’t really understand but also ppl can be cruel about it and why you have bald spots, I mean I older now and just developed a close relationship with messy buns. I pray everything work out and you find what works for you and have a full happy and successful life 🥰🥰

[@debbiehamilton191]

Put your trust in God serve him be sincere dont serve him half heartily give him your all Jesus love you dont have to accept defeat from the enemy Just tell it to God and he will give you a testimony.

[@queensarah1931]

He definitely will, I don’t even know you but Amma genuinely Pray and Fast for you in Jesus Mighty Name... Be strong hun we love you 💕💕💕. Jesus loves you even more, watch him turn it all the way around, for his Glory

[@debbiehamilton191]

Feed your mind on positive things Look what satan did to job he lost every thing but the devil wanted more from him his soul .so we can learn a lot of lessons from job When his wife told him curse God and die he didn't so you need to hold on and know that your redeemer lived

[@kymkt3]

Not to disrespect anyone But these diseases is not the lord’s way of testing you but rather to get your attention about living in Sin The wages of Sin equals death This young lady needs to go before the lord an ask him what in her life that’s allowing this to happen to her an he will let her know an I pray she listens an obey 6 years ago I had hyperthyroidism 30% of it an I was in the world When I got saved 2015 Jesus healed an delivered me I’ve been living more in my spirit then my flesh I am going threw a trail an test that has changed my character I feel so blessed Old friends an family members gone that didn’t mean me well .He sent my husband an promise me a prosperous future an not to harm me The same can happen for this young lady I love Jesus my life changed for the better I will keep this young lady in prayer 🙏 God bless❤️

[@zee4848]

I know what your going through my mom has lupus , the first months were awful Cs it started in the summer and she couldn’t be in any sun and she lost so much vitamin D , but now she’s thriving and moving in a regular manner , trust me it gets better stay strong ❤️❤️❤️

[@shantiization]

I know you mean well but you can not know what she is going through because your mum has lupus. Only the person with lupus knows what they are going through. Speaking as a person with SLE lupus.

[@firestarter8555]

I saw your video. I felt the Holy Spirit wanted me to tell you “this too shall pass”. I was diagnosed an autoimmune disease that affects thyroid. Let me tell you God will carry you through this. Have Faith and know that you are healed. Trust him and rest in his promises. 🙏🏾

[@lynettemontgomery5215]

I was in your shoes two years ago when I was diagnose with Lupus. I had concerns about a butterfly rash on my cheeks and a bold spot in my head. My dermatologist contact me and immediately scheduled an appointment with a Rheumatologist. It took me two years to process this information. I have an amazing primary doctor who answers all my questions concerning Lupus. She told me my Lupus was at the beginning stage. I see my Primary and Rheumatologist every six month to see if anything change. Exposure to the sun can trigger a flare up, when your body is under physically stress and certain foods can also trigger a flare up. There are days you may be physically tired and can’t get out of bed. There is a doctor on KZbin I follow Dr. Connie Jeon she has Lupus and Lorissa Nelson on KZbin which no longer has Lupus. I am on a gluten free diet, I do yoga, and water aerobics to help with my joint pain. I will continue to follow you on this journey and your not in this alone.

[@vanessamussenden6909]

Baby girl you’re a Queen. No one knows your struggles and your strengths like me and I know you will overcome this. Breaks my heart to witness you going through this and I pray you conquer this condition and become a testimony and a source of support and encouragement to others. We got you and God got you so I know you’re gonna be okay.

[@cameroncarlton9601]

This happen to me when I was around your age. I remember the feelings that came over me. My hair looked a lot worse. I used sulfur 8 (over the counter). Second opinions are always good. You’ll get through this, my hair didn’t start coming back in until almost a year later BUT it did come back in fully. 🙏🏾

[@mack1820]

I used Sulfur 8 growing up! I was always told it kept dandruff away. That was some strong smelling grease! 🎖🎖

[@maimunagarbarurum1190]

I want you to know that there is a herbal cure for lupus and I cured mine with herbal remedy form Dr imenherbal who I met on KZbin channel. His name is Dr imenherbal

[@SG-dw4cg]

Hi. Sulfur 8 stopped your hair thinning?

[@salexiaward]

Stay strong🙏🏾. I have discoid lupus as well-causes my skin to be discolored, docs thought I had vitiligo at 1st. We gonna get through this journey together❤️

[@Nette1293]

Did you have only one spot or was it all over?

[@LifestyleWithKrissy]

I know this exact feeling… was diagnosed with SLE. This is a trying to time but be a strong as you can be because I know how hard it is and can be. Stay strong. 💜

[@damoashlynvlogs8253]

Any health condition is scary. AND you’re young + a mom! Sending you big hugs & lots of prayers my love 💜 God is with you & he’s got you 🙏🏽

[@lauralupusandsupport5802]

I have been living with lupus for years. It's shocking, but you will get through it. The journey is difficult. You will have ups and downs with flare ups. Stay encouraged, Lupus Warrior!!💜

[@joysmith1790]

I have lupus but I got the pain factor in my bones and body. I've had flares early on but I'm doing much better now. I'm praying for God to just renew your strength. Your beautiful and I understand what your going through

[@sadeovoxo]

Diagnosed with multiple sclerosis (also an autoimmune disease) 10 years ago when I was 17, I can relate to your feelings after your diagnosis, my biggest advice to you is to continue to advocate for yourself especially with these doctors you know your body best so if you’re not confident with whatever information they provide get second opinions and do your own research, also be kind to yourself and know that it’s not your fault, everyone will tell you to be strong but remember it’s okay not to be sometimes, wishing you peace and perseverance through your journey

[@ShayBlossom]

Keep your head up babygirl ! You’re Gods child . Please let the angels watch over this young lady and release any pain she has. 🙏🏽🙏🏽🙏🏽🙏🏽

[@pressytojumpscare]

I’m just now seeing this! I think I found out last year I had discoid lupus . It’s been steadily progressing since college in 2011 but I didn’t get answers until last year. I’m oddly at peace with it. Knowing it’s not systemic and only attacking my scalp. I hate it’s progressing (it’s more annoying than anything), but I’m at peace with the fact that there’s really nothing I’m doing that’s causing it. Anyway! I’m hoping to learn more from your journey so the symptoms don’t exacerbate.

[@ButterflyNoa]

I feel the same❤

[@ashuntestephens7743]

I am definitely praying for you!! Talk to God girl he’s there for you and he’s listening! Just have faith and trust him!! Your going to get through this!!! 🤍

[@TheCherrio2009]

Stay strong girl. My cousin/sister passed away from lupus last year. I’ve seen 1st hand everything she went thru… a lot of episodes, a lot of different medication. It was to the point where it attacked her brain and other organs. But what I did find that was very helpful to gain her strength back was eating healthy and drinking cactus juice…but you have to be consistent.. so make sure uu eat healthy. Stay positive and keep praying. I will definitely keep you in my prayers as uu battle with this disease. You are not alone in this. Thank you for opening up and sharing your story. 💜💜

[@kellyj.azania4371]

I offer this as an encouragement. I'm 56 and I have lupus. Back in 2019, a lot of my hair fell out. It was very devastating...but, it is what it is. I just chose to embrace it. I shaved my head. A year later, it all grew back. Thank the Lord. If it hadn't grown back, I'd still thank the Lord because he knows more about the hairs on my head than I do. You're in my prayers.

[@crazykillerbish]

I am so happy to finally find someone who also have discoid lupus, not SLE. I was diagnosed in 2015 at the age of 19 , but my hair began to fall out in high school and was told it was eczema. I am 24 years old now and at the time I was diagnosed , I was devastated. I am only on plaquenil and azothprine. I had to come with terms that my hair was gone , the permanent scarring is just another factor of my life. You got this , you will have your days where you just want to give up , but you have to stay strong and not stress. Flare Ups suck tremendously, but they don’t last forever. I take a more holistic approach now and have completely changed my diet to plant based along with taking turmeric for inflammation daily. This have help my discoid lupus TREMENDOUSLY ! You got this , I’m so happy to find someone I can relate to within my age range cause it’s hard to cope with this alone.

[@chaela7597]

I can see the pain in your eyes. I’m praying for you. ❤️

[@lourdesrodriguez4235]

I felt the same way I was told in 2018 my depression hit me so hard after that & to top it off i loss my grandmother that I'm very close to & also Loss my job in 2021 in the beginning of January because I was missing alot of work due to being sick alot even tho I was on fmla my H.R had alot of personal info from my Doctor's & she treated me like shit she even told me to control my illness. No one could really understand what you going through not unless they have it they self . I felt so alone going through this I took it upon myself to seek for help someone to talk to I was going to take my own life. So right now I'm switching all my Doctor's & starting all over again & since day one i been taking pictures & writing everything down. I have lupus ,fibromyalgia,several migraines .THANK YOU FOR SHARING YOUR STORY

[@dromocure]

I have herbal medicine for lupus check my video for information

[@diamondlewis7550]

Praying for healing and strength love. 💫

[@ElegantEbonyTV]

I have lupus as well. I speak about my experience on my channel. Having lupus is the hardest thing I’ve ever had to deal with but with God he continues to give me the strength to fight this disease. I pray that God eases your pain and comforts you in this time. Having lupus can be scary but you can fight it. I pray for your healing and I wish you the best 🙏🏾❤️

[@nitpitts2060]

Though it is saddening to hear about anything negative in our health there is no better doctor than Yahweh in heaven. I have been dealing with what at first was diagnosed as discoid lupus in early 2010. Now I am told it is systemic lupus but bare in mind the great physician who perfects not practices says by his sons stripes we are healed. Be encouraged hunny. Nothing to hard for God. Bless you daily. ❤😇

[@reneemosley8363]

I have 2 autoimmune diseases so I totally understand. My edges are very thin. In the past, I had bald patches. It was very traumatizing in my youth. I've learned to do my best to keep what I have and continue to research to help me with my issues. Stay strong.

[@Itsbabyj1]

Please make sure you research all natural and holistic methods as well! 🙏🏿 you never know how you can heal yourself!

[@sherylbostick9209]

My sister please don't fret. I have been living with lupus since 2000. The oral medication that I was given was Plaquenil. When the lady told you to reduce your stress she was so spot-on. Having a child I'm sure will produce some sort of stress with you but just take it in stride. Please know that you're not alone. There are many of us out here and we deal with it day today. Please do wear sunscreen please wear some type of hat covering and if you're trying to be cute this summer like me, make sure you have some type of covering on your arms. I will continue to pray for you and others. Please listen to your body when it tells you that it's tired get the rest that you need. You may feel like you're dragging that's just one of the side effects of a flare. You can do this we are all with you. Amen

[@elvischeco4741]

I am so sorry you had to deal with this My babygirl was diagnosed as well and when I saw your video I couldn’t stop crying I’m a 41 year old training fighter and I can take a hit no problem But when I saw your video it hit my heart really hard I want you to know that God is in control and He WILL glorify Himself with your beautiful and strong testimony God bless you my love You are wonderfully and fearfully made by Gods mighty and sustaining Hand

[@Gdenise]

God bless you, and it’s so hard to understand things sometimes, but god won’t put nothing on you, you can’t handle. Sending love your way💕🙏🏽

[@rebeccarice2650]

I just found your channel and it’s giving me so much hope and inspiration. I just turned 22. I was mis diagnosed with mono on February 20th. It wasn’t until may my primary doctor told me the mono test was a false positive. I suffer from body pain, lesions on my skin (what I thought was just severe cystic acne), loss of appetite, nausea, fatigue, fever and chills. My grandma had lupus. My blood work showed I have a positive ANA. She told me it’s most likely lupus. I’m following up with my rheumatologist soon. We are lupus warriors! We got this 💜

[@Corin23_]

I’m going through this exact same thing right now. Going to the dermatologist on Wednesday. Praying for you.

[@StephanieBeThrivin]

I've been living with Lupus the last 17yrs going on 18. If you have any questions or need support I am here for you. Ive learned a lot over the years. Try to avoid stress as much as possible it can be a trigger for flare ups. I'm praying for you.

[@StephanieBeThrivin]

I have SLE Lupus and becoming vegan has helped me a lot. I've been in "remission" since 2016 first diagnosed in 2004. It is not a death sentence think positive always. I know its easier said than done and trust me I've been through so much but pray and focus on you and listening to what you body is telling you.

[@Tamira.Mikail]

Praying for you!💛 for the natural route like you mentioned maybe research on plants, foods, oils, holistic healing and herbs to include in your daily regimen may help

[@Shine_Butterfly]

May God bless you through this! You are LIVING with Lupus..key word LIVING! Stay strong. Stay positive. Stay prayerful. Stay focused.

[@peachesjeter5480]

I think the doctor did a very good job explaining to you ,you have to understand this is new to you this isn’t New to the doctor this is what she deals with all day every day.

[@qwashington89]

I was looking for the issues with the doctor that she mentioned, but I didn't see/hear anything

[@dr.lorianne]

Right Peaches, the doctor took time to explain many things. I'm sure because this was a lot of “new” information for her to process, it may have been overwhelming.

[@Blackhippie7071]

My best friend/sister had lupus….the strength and resilience of people with lupus is indescribable. Thanks for sharing

[@diamonddiva2017]

🙏 Prayers for you Beautiful 💕 God’s got you he is an healer!!!

[@SYMONESworld6214]

Girl be strong I have been living with lupus for almost 8 years it has ups and downs but if you do what you are told you can live a normal life pray baby girl

[@MsTouchofclass]

My mom has been living with lupus since her late 20s when she was diagnosed losing teeth, hair ,two open heart surgery and a hip replacement years ago, she is now 63 years old living a full beautiful life , it’s scary at first but do not be discouraged you will be just fine in Jesus name. I’m sure you have a great support system ,I am praying for you throughout this journey keep your faith.❤️ thank you so much for sharing …btw I am a living with #CHIARIMALFORMATION #CHIARIWARRIOR 💜

[@Theshellychele]

Be strong Luv! Having an auto immune sucks! I hate prescribed medication too. Do your research on some natural substances you can take such as ginger, green tea, ACV, sea moss and etc. vs. prescribed meds! Also look up the things usually food that flare up your auto immune. Prayers to you! You got this! 😊

[@lovelocked5385]

It can be managed. In life we all have something going on we battle with. God is in control and will care for you. He can guide the doctors and specialists. Always pray 🙏 Blessings

[@peacefreedom4930]

Young lady, I’m so sorry you’re going through this. You’re a beautiful articulate woman. I also have a medical challenge that’s exacerbated by stress that doesn’t have a cure. But I refuse to accept that. I also prefer natural interventions. I’d like to encourage you to find a functional medical practice and do your own research. I try various natural things to help myself and slowly I’m making progress. I’ll list some things that you might want to look into that are helping me. 1) herbals ( for gut issues impacting my immune system ) from the functional medical practice 2) grounding/earthing ( decreases my inflammation, stress load, and calms my sympathetic nervous system ) 3) Heartmath breathing ( decreases stress and engages parasympathetic nervous system ) 4) Meditation ( teaches you to observe your thoughts instead of reacting. It also teaches you to be in the moment ) 5) Eating clean ( the majority of our immune system function is reliant on our gut health. ) 6) Drink a sufficient amount of water ( flush out toxins ) 7) Sleep ( our bodies heal and remodel during sleep. When we don’t get enough sleep the body isn’t allowed to heal itself) The timing of your sleep is also important. 8) Have them check your vitamin D levels ( note: vitamin and mineral deficiencies can impact your body’s ability to carry out its work. The result can be dis-ease. Some thing has to go undone when the raw material to do the job isn’t available. Majority of black people are vitamin D deficient ) 9) you might need to take supplements until you can get your system back into balance. 10) healthy fats like certified olive oil and avocado oil These are some things that are helping me. Please, research them to see if you might want to try them. I usually try something for at least a month to see if it helps me. Tap into your intuition and follow the path that your intuition guides you down. There might not be a cure but I truly believe that you and I can find natural ways to get our conditions under control. I believe you can overcome this. This is our bodies way of telling us that something needs to change. Develop your own care plan to take care of yourself. Your body is speaking to you in its way. You can beat this. I’m sending you love and light. 🙏🏾

[@samanthagayle237]

Sending love your way!! Nothing beats praying… get on your knees girl and walk that illness vanish away!

[@marilynmartin3901]

Oh my dear, I stumbled upon your channel and saw you. You are so strong and beautiful. I don’t know you, but when I listen to you my tears started flowing. I can’t say I understand how you feel because I don’t, but I can with every fiber of my body lift you up in prayer every day. I’m a believer, so prayer is my go to. May God bless you!

[@shae1005]

Lean on the Lord, He will get you through this 🙏🏾

[@rashaadgreen1455]

My mom have it and I’ve witnessed the things she had to face . Don’t stress because stress triggers a outbreak. My mom got out of a toxic relationship that had her stressing a lot so she often had flare ups . But when she left it she barely even have to take her medicine now . She still swell up but not as much as she use to . You got this and you will get through it

[@ONLY1_JAH]

I have lupus as well, I was told at 13, I couldn’t walk, talk, or eat and a lot of my hair fell out, I feel what your going through, just know that it’s your battle and you will defeat it.

[@wendytoyle7081]

Stay strong hun and I’ll be praying for you. There’s nothing God cannot do. Just leave it in his hands because he overcame the world. Also know that you’re not alone and there’s many people struggling with a certain type of illness Including myself 🙏🏾🙏🏾

[@tamarrar.6793]

Sending prayers and positive thoughts your way 💜

[@IvyLeagu]

I'm blessed to hear your story because I don't have lupus but I have been diagnosed with an auto immune disorder 6 years now and it turned my life upside down. I have HS and when I found out that it was no cure my heart dropped further. I'm still processing this and too I am not a medication type of person never was and to think of having to take any type of medicine that my body has to process out makes me so depressed. I spoke with my family once I found out and it was then when I found out that it's genetic and it runs in the family from my Mother's side. That each one of my aunt's have some form of an autoimmune disorder. Fibromyalgia, alopecia, HS, vitiligo, and now all of the cousins are going through their issues. No one in the family has yet to be diagnosed with lupus but that doesn't mean someone hasn't or won't. I say this to say it's a long road ahead and with this the unknown is much scary, being young with do much life left makes it even harder for no one will ever know what you feel mentally, physically, or emotionally but take one day at a time, research, find those alternatives through holistic healing that may help keep this dormant and suppressed and hopefully they will find a cure. I cry with you not because I'm sad but I cry for hope for you, me and all who goes through similar. God got us. He said he will not put no more on us than we could handle do I figure he thinks we can and through us we maybe able to help another. Blessings my sister and strength, hope, peace don't let the stress affect the body for it will. Your beautiful, your intelligent, and your strong don't forget this. I salute you and I thank you💪🙏💯

[@BossQueen]

I have a cousin who is 18 & just got a kidney removed because of lupus. Her mom has it, and my Other aunt has it. But you'll be ok. Do what you feel is best for your body.💯💕

[@shemeshaduncan3325]

Hi how are u...i have a daughter that is batttling lupus and going thru kidney failure because of the complications...as for ur cousin that had the kidney removed...did she have a transplant or is shefunctioning well with jus one kidney

[@doridarling]

Thank you so much for sharing something so personal and allowing your subs to be apart of your journey. I pray for your strength and peace of mind. 💕✨

[@jjmusiclover3]

HATE when your health care provider isn’t sensitive or makes you feel invalid in any way. Like what’s the harm in sitting beside you and just saying “hey this is tough, we’re here for any questions” energy, body language, etc

[@latanyam7308]

My niece was just diagnosed with Lupus and she is very young, 19 yrs old.. sorry you had such a nonchalant provider break the news. Stay prayed up and strong beautiful lady God will take care of you! Thanks for sharing your journey

[@TashaylaEllise]

Praying for you🙏🏽

[@sweetpea7105]

Praying for your strength. Keep your head up Queen 👑

[@bwholellc5001]

@NaomiRose and to my Butterflies I have had discoid lupus and SLE for 7 years I thought I was dying at first I was so afraid had never been sick but twice in my last life . I had never heard of lupus well o take that back had a aunt in law with it but never understood what it was What I want to say is Be Brave, Self Preservation is a must , God won’t give you more than you can handle Lupus can be cruel I look at myself everyday lost some hair , scars , physical changes But feel more beautiful now then I have in my life Because I know im stronger and wiser and love me so much more I was on so much medication and that prednisone baby !!! Today im off of everything except for one. Med cellcept. My goal is to get off of this as well With diet and healthy life style and supplements We all are different so this one disease affects us each differently My prayer for you Naomi is you find what works for your body listen to your doctor if you don’t think they can help you find another doctor that will listen always research and advocate for yourself Stress aggravates Lupus try to stay positive Keep good people around you And continue to Love Yourself Beautiful

[@clemmaynard4580]

When I saw your thoughts about the dermatologist I felt vindicated. I had the exact same thought. Her energy was off. Sorry you had to go through that. Praying for you. You've got this!

[@sharifahakua7911]

I know exactly how you feel. I went through the same thing. I have to get steroid shots every two months. You might have systemic lupus too. I was diagnosed with that before the discoid lupus. I'll be praying for you!!

[@briunnafreeman4248]

Stay strong Queen. My mom has been battling lupus for about 7 plus years now. She has some good days and not so good days, but she’s living a life worth living. Sending all my purple hearts to you babe💜💜💜💜

[@rebeccamorris4372]

WOW this is the same thing that happened to me. I was diagnosed with Alopecia at 10 and just now at 28 years old I’m finding out that it’s been Lupus all these years. The fatigue, my weight going up and down, hair loss, having trouble even moving and just sweeping up for no reason left my doctors so confused and was given another diagnosis of RSD smh.

[@godivaone3891]

My sister had lupus and she listened to her doctors. She had aches and pain. She exercised daily to keep her limbs mobile. God bless you. Please keep faith. God is with you. Thanks for sharing. But I’m with you during this journey. I will subscribe.

[@alaskangoddesschannel]

This is why I recommend going to a “minority”doctor are best honestly cause they are more understanding! I’m sorry I wouldn’t been like can you refer me to another doctor I would feel comfortable with! 🥰

[@maimunagarbarurum1190]

I want you to know that there is a herbal cure for lupus and I cured mine with herbal remedy form Dr imenherbal who I met on KZbin channel. His name is Dr imenherbal

[@cammykey]

I’m crying watching this. I love you stay up beautiful. Keep praying to God that you will overcome this journey. I’m praying for you as well. Your fans are here for you. ❤️

[@vsdooley23]

I'm curious how old you are, I was diagnosed with discoid lupus when I was in my early forties when I was 36 I notices my hair getting thinner so I decided not to relax my hair anymore. I remember being really tired all the time too and always cold. My hair did grow back once I went natural. About 5 years later I noticed a bald spot in the crown of my head that look similar yours. I first thought it was a ringworm so I was trying to cure it on my own holistically. After about four months I went to my primary care doctor she treated me 2 or 3 times with fungal antibiotics after about 4 months I decided I wanted to see a dermatologist who did a biopsy and told me I had discoid lupus and I need to see a rheumatologist.I know how you feel in the beginning I didn't do what the doctor told me because I didn't like taking medicine either I was in denial and disbelief. Yes stress definitely makes it worse but you have to find coping mechanisms to help you reduce your stress levels it will help with flares. It's been over 10 years and I have found ways to maintain the Lupus better by through a lot of research , exercising , stop eating beef because it does something with people with autoimmune diseases, and trying eat a more plant based diet it seems to be working. My last for check-ups my ANA (

[@CassyPinkTv]

❤️

[@3bonyhehe]

Shes 23

[@brownsugabradley4730]

Hi Naomi I myself am being treated with medications treated for lupus... doctor's are not sure...I do more blood work at the end of the month.... I'm having a LOT of the same symptoms you have/had and when I saw your video tears immediately came to my eyes....Prayer to my mouth for the both of us.... saying "don't worry/stress yourself" is an understatement.... however if I'm not mistaken I heard you mention you have a child/children.... definitely be strong for them ....YOU got this...WE GOT THIS 🙏🏾🙏🏾

[@SpiciestBee]

A lot if people will tell you what to do during this time, and most of them mean well. Do what’s best for you, and talk to God. In your own way.

[@esther5242]

This is ABSOLUTELY true. After struggling with systemic lupus since age 19, God told me to go vegetarian at age 22. I am now 34 and in pristine health with mild symptoms. 🙏🏾❤ You will get through this!

[@SpiciestBee]

@@esther5242 I don’t have Lupus myself, but I just wanted to affirm you or anyone else who feels like God’s opinion is the most highly favored. SOOOO GLAD YOU ARE IN PRISTINE HEALTH!!! Long healthy happy wealthy life to you!

[@Roxy1990]

Don't cry hun....Perfectly imperfect this is what makes you APART of who you are

[@KelseyOnSocial]

Sorry to hear this. This didn’t pop up on your genetic labs when you were pregnant with your son?

[@krenae1036]

I think lupus is like auto immune which it be Dormant. it can lye in the body for years before it decide to show signs

[@kells522]

Stay strong in this , I was diagnosed first with alopecia at 27 and then with lupus at 28 a month after giving birth to my son. I lost all of the hair on my head and now 6 years later I am still bald. Stay in prayer and allow yourself to feel the emotions you feel. Some day will be good some will be bad but every day is a new day! Please do not be afraid to switch Dr's until you get a team that is for you.

[@thechatterbox4602]

Go vegan. Look up foods that hep your situation and don’t eat any processed foods at all

[@dede5004]

Vegan isn't always the answer! Healthy eating yes!

[@jeweldavis2350]

@@dede5004 incorrect vegan is definitely the answer! medication and pharmaceutical are not always the answer! there are individuals whom reversed lupus through vegan found undetected in their body. Dairy and meat raises inflammation in returns raise acidic levels to disease. (Herbs, vegan, fruit veggies, heal the body. pharmaceutical medicine over time damages the body major organs long term. And the sad diet standard American diet increases inflammation. All diseases begin in the gut. A Jumpstart is cleansing the:colon, liver, kidney, blood, fasting . Go to youtube, & research to watch testimonials how vegan has healed many with lupus.

[@ShesNacheaux]

@@jeweldavis2350 facts!!! This is so true!

[@fefi3340]

I was searching through the comments to see if anyone said go vegan and this person did. Please cut out dairy and you will see a big difference and them eventually you will decide to go vegan.

[@japrianicole4391]

Not even true...lupus is so different for everyone! I've had lupus SLE for almost 5 years and tired everything from an elimination diet, to testing food sensitivity to cutting out red meats so no. Healthy diet in general are helpful, yes, but it's not gonna do for everyone and i don't recommend just cutting out meds bc lupus is so hard, it changes with your hormones level, the weather, stress and live situations and definitely is changes as you age so the whole " go vegan " thing is over rated in my opinion as someone who battles with it every. single. day.

[@bihancap3102]

Awww be strong! I was diagnosed with SLE lupus last year and it changed my life. We are warriors ❤️ sending you lots of love!!!!!