Living with Macular Degeneration - Liz Tully: Living Alone with Macular Degeneration (patient story)

Is living alone with advanced macular degeneration possible?
Liz Tully shares her unfiltered story living alone with advanced macular degeneration, detailing the emotional and practical challenges she faces, and the inspiring ways she maintains independence.
This moving film combines interview and day-in-the-life footage, offering valuable insights for anyone navigating vision loss due to macular degeneration, especially if living alone.
Join Liz as she demonstrates the power of acceptance and adaptation, proving that living a fulfilling life is possible, even with significant vision loss.
Share your experience in the comments below!
For more information about macular degeneration, visit www.macular.org
#maculardegeneration #maculardegenerationawareness #AMD #AMDpatientstories #livingwithAMD

[@charlottee212]

Oh Liz, thank you for this vid. I am 77 years old and live in NYC alone. No one I know shares my condition therefore it's difficult for them to relate to my situation which adds frustration to my challenges. For someone like me who has led an active, strong, fully functional life, the aging process alone is a hard nut to swallow and vision loss is terrifying. To those in my life who are spared personal experience with this condition and try to be supportive, I will share your vid and hope they will be informed in ways I am unable to communicate. Thank you.

[@carolh3360]

I am 80 years young 😊 and I have wet AMD in one eye and dry in the other. Have been getting Eylea injections for the wet AMD for 2+ years. I’m doing very well with the treatments and my dr is wonderful. Thank you for this wonderful video and I agree with everything Liz said. I applaud her positive attitude! She is an inspiration! Liz, I wish you all the best and many more years living your life to the fullest as you bravely have been!

[@MacularOrg]

Thank you for the lovely reply!

[@cammywesson-cohen305]

Oh my goodness, thank you Liz for this wonderful video. I have wet AMD...my eyes are dry now, after receiving injections, and cataracts. I will be meeting with the cataract doctor soon and I hope that will be of help. I love my ophthalmologist and trust him completely. I too have been really active...will turn 80 in June and have committed to doing one last half marathon in October in Detroit. Thank you thank you, thank you. And, to EVERYONE with AMD who has watched this...I wish you all the very best.

[@lyndagabriel6539]

Thanks for this! I had commented before on your video(s) not featuring people living alone with AMD and you provided a thoughtful response at the time. I appreciate that you made this. I can relate to a lot that Liz is saying, although I'm in the early days she talks about, doing everything humanly possible to reduce the progress.... in an urban Canadian city, determined to be out and about. It's great to hear her talk about moving forward and dealing with each challenge as it comes up. Thank you for doing this and thank you to Liz for the depth of detail she goes into on different aspects of life. It definitely inspires hope.

[@MacularOrg]

You're so welcome! We are glad you found inspiration in Liz's story, and Liz will no doubt be happy to hear as well. There are as many unique stories as there are people with macular degeneration, and we hope to cover enough topics so that everyone has a little bit of hope and inspiration.

[@georgialink2120]

thank you for this video, I'm sharing it with my low vision group.

[@MacularOrg]

Wonderful!

[@taramansion]

I want to be as positive as her. I like what she about focusing on what you CAN do.

[@MacularOrg]

It's not always easy to be positive, but we are glad you found some inspiration in Liz's story.

[@jeremiahlittlejohn8089]

Thank you for sharing this my mother Has wet AMD in both of her eyes as well as glaucoma and has had it for a little over 5 years and is 63 years old. I'm trying to learn as much as possible in order to help her out now and in the future. Thanks for sharing

[@MacularOrg]

What a kindness to your mother!

[@LMNevada]

Depth perception is a real problem for me.

[@TrombaSolo]

Looks like she's doing pretty well. My Mom had dry AMD and could barely function.

[@MacularOrg]

Everyone's story and experience is unique! But we are trying to bring awareness to devices and services that can help people live more independently for longer.

[@sandrafernandez3839]

I was diagnosed with macular degeneration but both doctors are baffled with mine, they don't know yet what has caused it at my age. I am 48.

[@zimjun7]

I am SO sorry, Sandra!!! That is awful! I am 72 and have aggressive AMD. Wet in left and in right. The RIGHT was OK until my 3rd monthly visit. The doctor caught it when it JUST started as a DRY problem. Then both of them ended up wet.by keeping an eye on it while treating my LEFT. Guess I won't be running up stairs anymore. The shots were so painful after the numbing drops wore off, but I thought it would be WORTH IT to prevent me from going blind! GAD!!!! I live alone and have no family now. I was the youngest. Thank God for my friends that reassured me that I won't end up in some facility. Almost 2 weeks into it. Still in denial. Have my 2 cats, sweet as can be. June from Maine

[@sandrafernandez3839]

@@zimjun7 Thank you for sharing the outcome of your amd. Your words are comforting and realistic. I have to face that nature will take it's course. But I think I have to really cut down the my sugar as I am diabetic and just keep my stress low.

[@zimjun7]

@@sandrafernandez3839 There is hope ahead, Sandra. God's Earthly Kingdom...sooner than you think. I had just put the website on here, but it got bumped off, I feel. June

[@micajahsmom]

I have advanced amd in my left eye and a cataract in my right eye. I declined having a needle stuck into my eyeball every two months so it is untreated. I dont see any reason to do this treatment if it cant cure the problem and i have decided to adjust and get on with my life. I do very well living alone and have whatever i need delivered. I m a reclusive person anyway so staying in is not a oroblem for me. I live in a retirement apartment and am very surprised by how many of my neighbors dont understand what i am dealing with. I have learned to avoid gatherings here and prefer my own company with my two cats. I have a large screen tv and a kindle to adjust the size of print for the books i read every day. My doctor wull continue to monitor the cataract to see if and when i need that surgery.

[@MacularOrg]

It doesn't sound like your doctor gave you enough information about what the injections will do. If you have wet macular degeneration, and there is bleeding in the back of the eye, the injections will stop that bleeding and significantly slow or stop further vision loss. It won't return vision you've already lost, but it will help maintain the vision you have for longer. Letting wet macular degeneration go unchecked will progress your vision loss more rapidly. We hope this information helps. Of course each person makes the decisions that feel right to them!

[@peggymaurer4474]

Hi, Have you tried The Red Light Therapy?

[@magnus33john]

Liz story is ohh so familiar. I am am also from Toronto with dry mmd in the left and wet in the right. Different diseases with basically the same results. Sadly with mmd they can only treat the symptoms and the the diseases itself. The irony thanks to DNA testing i found out i have the genes for amd which isn't surprising my father had it. The irony which is almost funny is if i live long enough to develop amd it wont matter as the mmd well have taken that part of my vision already🙄. Everything she says is so familiar but she totally correct we adapt and it's all about the attitude. We don't know how many tom we have so why make any of them bad.

[@LMNevada]

Putting on eye makeup is impossible?

[@myfamilylifeinmalaysiaCanada]

I m Pakistani woman live in Canada I want to met u.plz reply me