'Living With MS' - Getting Out Of Bed

'Living With MS' is a weekly video series demonstrating how Multiple Sclerosis can affect a person's daily life. Each week will have a new video highlighting daily activities and how MS has altered how they are performed.
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[@Chicfemme]

I am crying right now... 😣 The things we take for granted. Stay strong, sweetheart!

[@alexandrabia8349]

😥

[@SorenArouet]

Got MS too. And you have all my empathy. I still can walk though, but everything I used to do sportlike is gone.

[@adelaalkenani8282]

All of that and you keep smiling, God bless you

[@ronaldbranchrb]

Keep pushing brother, I know exactly what it takes, I was diagnosed in 1996. MS strong 💪🏿

[@cooksmary]

Me too. Dx 2004, but probably had it for decades before. I wish you both to stay strong.

[@NevenShtaya]

When my boyfriend told me he have ms but not sharing me details now I know how strong he is 💕

[@wellnesshearddifferently5920]

Your strength and patience is so inspiring keep going champ!🙂

[@joshdarch3278]

Stay strong man don't give up and always push never take the easy way

[@goodgirlgeorgy]

YOU are an INSPIRATION...YOU make me want to be a more positive and productive human being! Thanks for being who you are and sharing your life with the rest of the world, Mr.Welker! God keep blessing you for blessing others with your encouraging videos.

[@erob8347]

Alright, this is crap! I am pretty angry right now. I am angry because we haven't found a cure for MS. All our money, all of our labs, all of our research, all of our geniuses and we haven't made squat. I also want to say to everyone on here with MS. I am sorry you are having to go through this. And all of you are courageous and inspire me. Robert, thank you for your great attitude sir. You are my kind of hero.

[@rosaliesabayle7437]

E Rob

[@fedupbrown6018]

i agree . it is unacceptable in 2018. yet they want to go to mars. we live in a sick matrix run for profit. illnesses such as autoimmune diseases create billions of $ for the sick controllers of our world.

[@JeevesReturns]

E Rob We don’t really matter is pretty much all I can think of.

[@anninoschristoforou3442]

Stem cells swiss medical

[@wellnesshearddifferently5920]

I couldn’t agree more with you, but let’s face it science is what it is and it’s not only the money that can fix us…but every mswarrior deserves to be heard and appreciated not by being thorned by this disease and the setbacks this can lend.I think life is what it is and it’s short, but we can always have control over our reaction in the situations after each event.

[@NancyTroutman]

I don't have MS, but am having trouble getting out of bed after hip surgery. This video gave me some tips on how to do that. Thank you for making it.

[@davem3031]

This is how I get out of bed and into my wheelchair. My MS dx was in 2008 and It's tough. Best thing is to live life and never quit.

[@cuteredpanda00]

@@MJTXAZ my body is feeling weak i had md

[@cuteredpanda00]

@@MJTXAZ muscular dystrophy

[@katherinemcgrady9981]

Thank you so much for posting this video! It's hard to imagine the everyday challenges that individuals with MS face, and I very much appreciate you sharing your experience with the world. Cheers to you!

[@moonlight.sunlight]

Thank you for the post! Your strength and perservierence is truly admiring. I wish you the best, and look forward to future videos. Godspeed!

[@shellys6476]

I need help. I need a bed for my MULTIPLE Sclerosis pain. I have read about NASA cooling tech. But I am at the point of needing a bed that is supportive and raises up. What TYPE/BRAND OF BED do you have. Please someone I need a little hope.

[@228BCH]

Thank you. I look just like that..I have been suffering from MS and now have fibromyalgia. I'm 66 It is so hard. Luckily I have an amazing husband God bless you!

[@carlagarrett3244]

My half-sister and her son have this. She was a nurse for years, so is able to help her son when needed. Your video is an excellent example of making things work as needed. Keep fighting the fight and enjoying life as it comes, and hopefully the meds to inhibit finally get better.

[@3677danielr]

Watching the video deeply saddens me and it hurts me to see so many people suffering with MS. My mom suffered with MS and I remember when she was first diagnosed with it in 1991. That was the sadist day of my life. I watched her struggle for 18 years with this disease. I would always say I wish I could take it from her and fight the disease myself. I hate to see anyone suffer. My heart and prayers go out to every single one of you individually. I know it's hard. Please stay encouraged and try to keep a good spirit about life. I know it's hard to do but take it one day at a time. May there be some medical research developed quickly to help with combating MS. God bless.

[@mariethirteen8451]

Thanku for your words. They mean a lot and it warmed my heart because I could feel the emotion behind them. I appreciate you.

[@cooksmary]

I have given up hope of research finding something to make MS easier. If they can't make a ton of money from it, they will not try to get it on the market for us.

[@cody5469]

isn't it insane to think that people wake up and jump out of bed and don't even thank anything or anyone for being able to get out of bed and wake up for another day of easy maneuvering? it's crazy to think that people just complain about life on the daily when they don't even know what a struggle is....i am praying for all disabled people daily and wish them the best days in life. So many people take life for granted and i wish they didn't. Good job to you brother.....keep the positive attitude!

[@cheegum6296]

I have benign MS. I can walk and talk normally for now but i'm halfway there where you are right now. I feel your pain brother.

[@YuhOnicx]

Same here...😭

[@anninoschristoforou3442]

Stem cells therapy swiss medical clinic

[@alexandrabia8349]

Îs very horible i have too and whitowt help îs very dificullt

[@jeromehiralall3962]

I admire your courage and strength. God bless you brother and may he keep you healthy always.

[@RowBlanka]

i got mad respect for you ur cool :)

[@Lunabyes]

My mother has fast moving primary progressive ans secondary regressive MS, and your videos have helped her have a sense of what is going to happen. Your videos are very informative, thank you for putting so much effort into making these.

[@stephenscott7053]

Strong head strong mind strong man i will prey for you tonight stay strong my friend. God makes no mistakes

[@heathermccoy9824]

I was diagnosed in 2011, in my 20's. I woke up legally blind for no reason. I had symptoms before my diagnoses but you can always chalk it up to other reasons. When I found out, I was devastated. See, my father has MS and is very advanced in the disease. It was like I was looking in the mirror and it scared the hell out of me. Still does. The fight is hard and sometimes I feel like i can't do it anymore. But I have an amazing husband who encourages me and stands by me with every relapse. I have noticed a change in my disease since I moved from West Virginia to California. Climate makes a difference for sure. Thank you for sharing.

[@irinapeace725]

Thank you dear Robert🙏❤️

[@parmarthpaudel809]

God bless u... Such a patient warrior u are... May your strength increase day by day... Best wishes...

[@mromeyn]

People have no clue how exhausting this can be, then I have rolled out of bed and hit the floor. MS Dx for 16 yrs. Thank you for this video, I am sure it will be insightful for those who sometimes just don't get it.

[@cooksmary]

Same with me. I hit the floor at my daughter's house, not being familiar with where exactly the floor was. Nothing broke but that side is weaker since the fall. Another one bites the dust.

[@jesuschristneverlived6938]

*NEVER GIVE UP MATE, YOU WILL GET BETTER!!!*

[@michellegriffin4697]

I too have MS. Most days get evenhanded than this gentleman displays. Bless you. Please continue to be strong. Blessings

[@RobertWelker]

Thank you and best wishes.

[@seandoherty3480]

Your positive attitude gives me hope!

[@sunshine9016]

Thank you for sharing this experience. Recently a family member of mine was diagnosed with MS so I am trying to find out more about it. You are a brave young man and I wish you good days and hope for better treatments.

[@RobertWelker]

I'm sorry about your family member and I wish them the best. Thank you for the kind words!

[@davidc3857]

Just wanted to say that you're a hero! I think I may have MS, I'm going to schedule an appointment with a doctor and get tested. I live alone and go through what you do every morning, getting up is beyond challenging, but seeing you go through it makes it easier to address and get tested.... Thank you & may God bless you for giving others the strength to carry on! Much love my friend, I'm sending you my best along with my thanks... 😊

[@hellomynameis5520]

Did you get tested?

[@DeepaThakrar]

Have you tried a little contraption that can aid you when getting out of bed? its a metal bar with a long loop arm that you use to pull yourself up. It goes under the mattress and stays pretty firm in place. My grandma used to have one and im now thinking of getting one too.Love your positive attitude x

[@karenlarke1737]

+Deepa Thakrar I have a bar like that they call mine a 'bed stick' Ive been using it for years now and it helps a lot.

[@TorkomMovsesiyan]

Stay strong and never give up! You can regress MS. God bless you!

[@brianbond7675]

My cousin's wife just had their second child and now diagnosed with MS, Robert keep your youtube videos coming please! I bow to you and your strength during this time. You are helping more people with these videos than you realize. I wish I could say I would as strong as you if the roles were reversed.

[@jaystunna02]

Man this is bringing tears to my eyes because just like you were trying to roll over in bed I suffer like that every night I to have MS

[@MikiCuriel]

Coimbra Protocol; high doses of vitamin D will help. Please look above.

[@jaystunna02]

MikiCuriel you think this could really work for me? Because I have CFTD to

[@MikiCuriel]

I'm sorry I don't know what is CFTD, what is it?

[@jaystunna02]

MikiCuriel Congenital Fiber Type Disproportion

[@MikiCuriel]

If you have also MS it will help, I don't know if would help with CFTD but vitamin D helps with other diseases like cancer, depresion and others. 10,000 IU daily will help for sure. The doses of the protocol Coimbra are a lot higher but needs medical supervision.

[@MHnatural]

don't lose hope keep fighting it will get better i was just like you if not worse i was in a whellchair now i'm using crutches and now i'm able to everything on my own. never give up may god help you overcome this terrible thing

[@amypeck4295]

No one understands how the littlest things in life can be so challenging. I have Multiple Sclerosis and each day is so hard. The worst is that your brain wants to do more activities in life, but you are trapped in a body that no longer works

[@frankgradus9474]

"The worst is that your brain wants to do more activities in life, but you are trapped in a body that no longer works" - precisely so ... sad to say.

[@sofiabanuelos4953]

That’s true sometimes my brain it’s so foggy

[@moez1774]

Thank you for the informative video. God Bless

[@livelife4228TBAS]

May you be blessed with strength, big dawg🙏🙏🙏

[@skipperry63]

Hang in there buddy. Thank you for sharing this.

[@adeelabbasi3714]

You are a brave man ... God Bless you ...

[@lisanyminute6613]

Thank you for doing these videos.....will there be more in the series? I hope your doing well

[@madymauro9767]

You are such a beautiful and I spiring person! thank you for sharing this

[@anthonyh.7661]

2 Corinthians 5: 1-5 is a promise from God. Be strong and have faith in God and his promise. My prayers goes out to you for strength and hope. Every good day we have should never be taken for granted, but should be taken as a blessing. God bless you my man!

[@wnapholi]

Thank u. You are an absolute gentleman.

[@aquietcenter4189]

Thank you for sharing!

[@selendriamuganogo7077]

This is the same stage my husband's ms is at... We don't have an adjustable bed so it's extra hard for me helping him get out of bed... His mobility is so bad... God bless you I know what you are going through

[@DONALD1951]

The dislikes are because they are mad he has MS. Nothing to do with the video.

[@harrisonhelms8035]

dude i give you props for battling this horrible disease my uncle has it hang in there man !

[@NNazirTV]

I respect those who live with MS! May Allah Almighty bless them all with His Guidance to his path (Ameen)

[@itzshft]

God bless you!

[@irenecruz1537]

I suddenly lost strength in my hands n feet. Dr had said it was some nerves dat maybe got damage due to diabetes. I cant walk normal as yet n my hands still haven't gain enough strength as should. We hoping it does not go further. Need to do an MRI to check which nerves are damaged or is being damage. But i applaud u sir. U doing so gud n God with u all d the way. ❤❤❤❤😊

[@meganhenry5795]

Oh honey. I'm sorry. Keep going! You're amazing.

[@wearemanyyouareone7596]

God bless you

[@leegutierrez4058]

except for the bed that is also me but I have someone to help me most times get out but I tend to sleep in my recliner for years in an upright position it doesn't hurt or I am not as stiff in the mornings, it helps me. Suffering MS patient also.

[@sarahwoolnough5626]

thank you for your very helpful video

[@asereth602]

I have had MS for 10 years now. It is worse than you could ever e.ver imagine. it really stinks. This video made me cry

[@kule510]

We needs to bring awareness to this issue please

[@costasandreou319]

I have so much empathy for you all my love and respect I've had Ms for 14 years and I feel my body is going in the same direction as you I'm finding it very difficult to not get mad with myself how do you stay so strong

[@RobertWelker]

I've been very lucky to be surrounded by an amazing support system. Best wishes on your journey!

[@sawyerramos3113]

I love your shirt, buddy!

[@megawati5415]

Hi,,, my name Ridwan from Indonesia,,, i love my wife, she living wiht ms since 2011 until now,, i very2 tired for asisstance her,, so this video help me to much..thanks

[@stevielovesdrugs7575]

My cousin has ms and it hurts me seeing her like that I remember her being so activate and always cleaning the house and running erins every second now she confided to a couch and can't even shower on her own it's a terrible disease I pray for a cure stay strong there may be a cure out there one day I have faith in science & doctors 🙏🏻 .

[@kimyoungblood7058]

God bless you.

[@robertthaler2390]

Go, Robert, go. It is seven years later and I hope you are still keeping at it. I get out of bed pretty much the same as your first way but I have some strength left in my arms. I am grabbing that bedside dresser and using it to get my self turned and sitting up. Thinking of putting a hand grip on it to give and assist. Sometimes my legs won't bend and then I am pretty much a beached whale. Makes it exciting when my bladder is giving way and I have got to move fast to get a hold of that urinal.

[@maxbef]

Thank you of the video. My friend has recently been diagnosed and trying to understand it better.x

[@RobertWelker]

Thank you for watching and best wishes to your friend.

[@slobor3]

Dude you are amazing. I have MS too btw.

[@roproart6529]

Hey brother, thanks for sharing this. How are you doing lately?

[@demoskunk]

I can sympathize, brother. The weakness plus the spasticity is really frustrating! I just want my leg and arm to listen to me again.

[@JCResDoc94]

incredible. thanks man ^^

[@AndrewKFletcher]

Would you say that your condition is worse in the mornings when trying to get out of bed and improves through the day slightly? Or does sleeping flat help your condition?

[@AdorableAcushla]

This video made me cry. I was recently told that I might have MS and one of my greatest fears is living to feel my body degrade around me. So having MS is pretty much being forced to live in a nightmare.

[@RobertWelker]

I'm sorry to hear that. Best of luck to you.

[@nicktucker2416]

I'm in the same situation although not as progressed yet. God bless you and your family.

[@RobertWelker]

Best of luck to you!

[@nicktucker2416]

@@RobertWelker and to you my friend. Stay strong.

[@emogurl14x]

thank you sir I know that's hard and very tiring I to live with MS

[@jennymarty7376]

Bless you ♡

[@alyssamacgregor704]

You are so strong

[@titanspirit7238]

I was diagnosed in 2013, presented with optic neuritis. Had a relapse in January 2016, again optic neuritis. I still don't feel like I have MS, no excessive fatigue, lack of mobility or pain. Upon my admission to hospital this year I inquired about Lyme Disease. I worked in a forest during 2012/13 and thought perhaps I was bitten by a tick and contracted Lyme. I was tested for Lyme along side a host of other bloodworks but it was a negative result. I plan on being retested by a Lyme specialist soon as the testing can often be false positive /negative. I don't believe it's denial, just want to thoroughly explore any avenue. Perhaps I've been lucky so far regarding symptoms, but the lack of them makes me question my diagnosis. Dunno if anyone will read this but I felt like rambling. I'm Irish/29/male btw.

[@elsakristian5713]

MS is tricky and insidious. Lays low and then explodes and then quiets again. The disease sucks.

[@traceybeltrano]

TITANSPIRIT you could have relapsing/remitting. which means things can be happening under the surface and you won't really notice until several years in. However, I obviously hope for you that it is indeed something curable. I have slow progressing MS and don't feel symptoms but see the scars on my scans increasing. so far so good though.

[@davem3031]

TITANSPIRIT MS sometimes hits someone very hard from the start, others are different. Each person is different.

[@kurt7937]

TITANSPIRIT how is it now? Any final verdict?

[@anisshbaro9984]

TITANSPIRIT my first ms year was normal and I used to do things like anyone normal but things have changed and I'm suffering from all these symptoms so thanks god you are good and wishing you to keep like that

[@raponmic]

god bless you

[@shantellmarie4285]

I was diagnosed with Ms when I was 17 years old and I'm 19 now so I know how hard it is

[@l.saucedod8865]

Seeing this man suffer for such a simple thing and the comments in which they regret their fate, makes me feel very sad since I have the same limitations with a disease considered more aggressive: Amyotrophic Lateral Sclerosis. It is what it is and we must accept it

[@brookfederspiel4739]

My dad has MS and is completely bed ridden. He's had it since I was 4 and I'm 12 now. We have since moved bed in with my grandparents who take care of him. Now he is on hospices care and it breaks my heart that I can't do anything with him but it happend to him and I have to accept that

[@DM-mn8nr]

brook federspiel I hope your family and you can find the strength to continue in the rough path you guys are in. I don't know you, but I wish you the best :).

[@Lugmillord]

This is a slightly frightening view into my potential future. I'll fight hard to keep my mobility.

[@Pinwormx]

Thanks for the video my fellow MS Warrior. Takes me a while to get up too.

[@RobertWelker]

Thank you for watching! Best of luck in your battle.

[@Traceyi1000]

Does anyone have twitching? Can be thumb, eye, leg? Pretty violent

[@kelseymarie6524]

i have m.s i was diagnosed at 14 but now ive realized cutting out meat and soda and not eating as much dairy products has helped ALOT

[@MrPugwash1]

+Kelseysonn16 Yes, dairy products have a negative affect on my body, in fact a small piece of cake flattens me. I am 54, had MS for many years (undiagnosed) and I am teaching English to grade 3 and 4's, so when it's a birthday party and there's cake I need to avoid it...

[@EMI-rk8sb]

I'm trying to cut out those again. Honestly life is hell right now.

[@greeksaint1762]

God be with You brother !!!!!

[@sallynutterutube]

I understand! I have MS too!

[@SDQuilter]

Thank you for sharing, it is just like me. How do you get your legs up on the bed? My husband does it for me.

[@Iseered198]

❤️ and light

[@rich7928]

Dude. I hope your condition has not progressed that much since this vid. Stay strong!

[@khalemabrown]

Does anyone know if this man is okay? He hasn't posted in a long time. I have MS... And i know just how hard it can be

[@YuhOnicx]

Me too

[@anninoschristoforou3442]

Stem cells therapy is good for ms

[@indie5826]

He has a fb page and is still posting

[@costasandreou319]

Your an inspiration for me you are amazing

[@RobertWelker]

Thank you!

[@shawnmcanthony5724]

Rob you need to exercise at least on a stationary bike and do stretches. This was told to me my a good friend of mine dad who turned 89 yrs an has ms

[@psyfactor777]

I'm curious what kind of walker that is. My PT is always after me to stand up straighter, but I say that if I do, I'll end up kicking the walker. Yours looks like it might address that problem.

[@janellewilson6395]

My mom has ms but its not this bad yet everyday i pray for a cure i really love my mother most teens dont have a strong connection with there mothers but I for sure do #MOMSQUADFORMS!

[@graciegladson4960]

Sounds really stupid but it works. I picked up cheap satin pillow cases from the dollar tree, lay them across the area where my hips will land. It helps me to move about all night and get up. Less friction from the sheets.

[@AndrewBechara]

Stay strong 🤗

[@joycewoodruff6594]

PRAYING FOR YOU IN JESUS NAME

[@protonjinx]

This is so similar to how my situation was one or two years ago. Im worse now though. I hope you're doing better than me. Live life dude, do what you can while you can. I miss doing some really basic things now that I can not anymore.

[@protonjinx]

+MikiCuriel no thanks, I prefer sticking to science-proofed treatments, not untested miracle cures.

[@protonjinx]

MikiCuriel anecdotal evidence from thousands of people is hardly conclusive. and "thousands of scientific studies" is clearly an exaggeration or lie. you say you have improved, good for you but thats very far from a scientific study with controls and checks. there is no way of telling what caused your improvements, or even if you objectively improved, its only your own subjective feelings.

[@protonjinx]

Yes the information is there. Have you read it? Dr Coimbra himself makes no claim that his vitamin D boost is a cure. He only claims it prevents further damage. It also involves massive diet changes and exercise regime. No independent studies has verified his claims.

[@protonjinx]

MikiCuriel No need to be inquisitive? Maybe that word doesnt mean what you think it does. If you really mean it then you are saying I should just take your statements on faith and not research it myself. To be a gullible fool and gamble my life away on an internet comment by an anonymous miracle cure advocate. Nope, nope, double triple nope.

[@TomRipley7350]

I wish I could help you.

[@CHRISRepAZ]

Robert do you think ampyra might help you??

[@aiki3110]

is it possible that i do have MS? i was diagnose with opitic neuritis twice the recent one was last july2018. (september 2018)and now both of my legs are numb for almost 3weeks . i thought its maybe with the medicines i take. but i stopped taking the medicines and still its numb. i can still walk though but i cant walk normally. i wanna cry so hard!