Living with Sotos Syndrome (A Mutated Gene)

Ava is diagnosed with Sotos syndrome, a rare genetic condition which is caused by a mutated gene. She hopes that others take the time to be her friend instead of being mean.
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[@SpecialBooksbySpecialKids]

It was great to meet you Ava! I can't wait to hear about how great you do in the 4th grade! I decided to bring back the classic animated intro and outro. What does everyone think?! Should I keep it in our new videos for a while? :)

[@aspergersgirl3386]

I love it

[@bmarie1203]

Yes!

[@hectorHernandez-bs7vo]

succssssxx

[@haillesmith306]

Yes please

[@mari11anna]

Keep forever

[@joelalexander5338]

I’m so thrilled that comments are available now. This amazing young lady should be able to know how many people respect and care for her! It was so terrible when your guests weren’t able to hear from the millions that truly care for them and their stories.

[@blahblahblahEMILY]

When she said she wants to be tough so she doesn’t get hurt, I started crying. Such big, painful feelings for such a young kid to be carrying around

[@erinaa9486]

So sad that she would fear bullies or pain... Also saddening to hear her lovely sister talk about bullies... If they were my kids, I wouldn't hold back on the bullies!

[@sanjithaaragulan205]

I cried at this part too! It's miserable for anyone to feel that way especially a kid.

[@155chipmunkz]

I’m 26 and I’ve been bullied for most of my life. It really sucks.

[@raymondlorbes7412]

reality bites. 🥺

[@derek4986]

Having worked with special needs in high school these videos make me so happy for my experiences. I will never forget Melissa who had downs, and would have the biggest smile when we would play games in the gym and always wanted to give me a hug. It was an honor being her peer tutor and I have always and still will stand up to those that bully.. That has always bothered me.

[@samreid6487]

My sister has Sotos Syndrome with the deletion of the gene, giving her increased intellectual impairment. She is now 31 years old and brilliant in so many incredible ways 🥰 she is forever a child in her mental capacity and as her caretaker, she never ceases to make every small engagement the most amazing thing ever.

[@AdRaf975]

And how tall she is? because there is someone who became giant Because of this syndrome

[@yms4355]

She has the cutest little teeth! What a brilliant child. When I was young, I wanted a friend like her.

[@magical571]

Only when young? I would happily be her friend at any point 😄

[@Bestbuddies2021]

Tbh same here

[@Pharphette]

I love that she’s proud of herself for being in the fourth grade. It’s a reminder to be proud of where you’re at.

[@marianitadelgado5795]

The innocence of children is such a beautiful rare blessing we have to raise our children right and protect that innocence 🙏🏼❤️🙌🏼

[@thesyphrits]

Ava you deserve compliments, hugs and friendship because you are so kind, caring, fun and beautiful! I wish I could give you a hug for every time someone did not appreciate you. Don’t give up there are good people out there! Thank you for sharing your story! ❤️💕🥰🌹☀️

[@Idk-dc7hv]

She seems so friendly, she seems like a great person

[@c.nightwriter1716]

Make a new youtube account so you can comment

[@sportsfan9040]

Ava is smart and beautiful. Glad she has a loving family. Good luck to her in the 4th grade

[@jacquicoder7160]

What a sweet girl! It's sad that some children don't recognize what she has to offer and instead want to make her feel bad about being herself. I hope Ava has a wonderful time in 4th grade, she deserves to be accepted and appreciated.

[@kyles5513]

The size of this man's heart is unimaginable.

[@jakefarenden7489]

She’s such a lovely girl, she would make an amazing best friend!

[@vimesjanitor5570]

she is mistake

[@magical571]

@@vimesjanitor5570 no she is not

[@nightslayer6951]

Ava is full of love and kindness, it's heartwarming to know how much her mom and sister care for her wellbeing.

[@ygts]

My sister has this. There are some differences, I'd say my sister is a bit less clear in general and for example her talking is worse. So far she hasn't had bodily issues. But so many things are the same, like her smile and the way she reacts. She's a really sweet girl with a precious soul and although it can be tough to connect with her on a deeper level I love her so much and it's easy to see the bond is there

[@clberka]

Bless you and your sister and your family.

[@meganmorris5105]

Hi Chris and Ava! I also have Sotos. I was bullied too as a kid. I’m 38 years old now, and I take care of kids who have many different abilities. Ava, you’re a sweetheart. Just continue to be yourself. Chris, I love how you give a voice to those who are different. I’ve seen several of your videos, and I love how you also advocate for those with mental health issues. I have anxiety and OCD myself, so I do relate. I think they are related to my Sotos, among other things.

[@Swissgirl2009]

I have Sotos Syndrome myself And I’m 14 years old and the thing that I deal with most is to explain why i’m different and to feel accepted at school and stuff do you have any advice for me and people with special needs?❤

[@sunzooli]

It’s great how excited you are for school - I hope you have a great school year Ava! Meeting new teachers was always my favorite part of fall too :)

[@meisteremm]

Had a rough twelve hour day at work today, so it was really nice to come home to a new video. Ava, her sister and her mom are all really sweet people and I wish them nothing but good things. Chris, you're doing great things and they mean a lot to a lot of people. Good luck to you and Alyssa.

[@user-de1fk9yx9k]

Ava you are so kind, tough, and beautiful! Keep being yourself! Mean people are not worth your time, there are lots of people out there who love you for being you!

[@sebveee5603]

I love your content man. You are truly an amazing person

[@deborahkelly1489]

I like both the intro and exit information. I enjoyed this interview. This young lady was very precise in her answers she is not only smart but pretty as well. I especially like her smile and the fact that she and her sister takes up for each other. Thank you for sharing Chris !

[@UnexpectedAmy]

What a beautiful, loving, and supportive family ❤ Thank you all for being the goodness of humanity. Go Ava! 🌟

[@georgiab4751]

Wow! this is so cool to see!! I also have Sotos and it's awesome to see representation!! Go Ava!!

[@thespagooti]

She is so sweet and beautiful! Thank you Chris for all that you do❤

[@SunsetVidsOfficial]

I was the first comment

[@hehaufhauxgs]

@@SunsetVidsOfficial Please don't comment that on a video like this

[@thespagooti]

Sorry! I didnt see that! My phone was catching up lol! That doesn't matter anyway..what's more important: I looove Ava and I wanna be her friend!!!

[@wired4933]

Seeing Kayne and his dog in the intro makes me happy but also sad. You're doing such a great thing making everyone heard that needs to be heard. Ava is amazing and so is her whole family!

[@annl8098]

Love the animation and how wonderfully you adapt to the various people you interview. You’re a special guy, spreading the word about special people.

[@suzannep]

5:54 I love how Ava knows exactly what makes a good teacher and what it truly means to be a teacher! I think she will be an awesome teacher when she grows up!

[@kristenchandler9030]

Ava, I love your pink unicorn outfit and your ability to open your heart to new friends and not judge them by things that aren't important. I hope you have a great new school year.

[@anmokain]

Thanks Chris for introducing us to Ava and her family. They are amazing. 💓💓💓

[@anonymus1009]

Hi Chris, I have been watching you since 2017 and all of these kids seem like angels! :D It is amazing how unique and different the world is. Thank-you for your amazing uploads.

[@mkptrsn]

“I got hurt and I didn’t cry”. You are tough and all around awesome 💪

[@amandacotten1654]

Ava, I am so sorry you have to deal with bullies and people who say mean things. You and your sister are very beautiful, intelligent and so loving to each other. You both deserve to have lots of friends and a great life. Thank you for sharing your story!

[@vimesjanitor5570]

u just a women. your opinion ........

[@19th-Nervous-Breakdown]

☺️😊

[@caleigh2114]

Ava is a very outgoing and cheerful girl. I hope she can make all the friends that she wants, and never has to become "tough" to protect herself.

[@jennthurston364]

Agreed! Keep being sweet Ava. You have a great mom that loves you and you can see the pride she has in her girls. You also have a wonderful sister. Stick together and keep teaching each other. Being tough can work in the moment but, being kind and loving lasts a life time.

[@JP-mn5iv]

Firstly I’m so happy that you won your fight with KZbin to get your comments turned back on. This is one of the most positive and encouraging and accepting online community that I’ve came across. Lots of love to Ava and her family. Lastly Chris man you have nothing but my utmost respect for doing what you do and spreading compassion and awareness and positivity in what can seem like a not so positive world. ✌️💚🙏

[@smithsage330]

Ava, you have such a kind and vibrant spirit, and I can see why you make your mom and sister so proud! I hope the 4th grade is spectacular and that you make as many friends as your heart desires. Anyone would be so lucky to have you as a friend! Sending you love and prayers, sweet girl ♥️

[@uwubeesh]

what a beautiful girl! i love her smiley cute face. Ava, the color pink looks great on you! Good luck in the fourth grade! you’re going to do great 😄

[@Elfizowa]

Ava is such a precious bean, I was smiling so wide at how cute and full of important thoughts her replies were! Also, Ava and Addy have such a wholesome bond, the part about learning via the other was so deep and smart!! Two amazing little ladies

[@Judymontel]

Oh wow! I was so happy to meet this family - Ava and her mom and her sister Addison - what a lovely bunch of people you are. I'm so lucky to have been able to meet you through this video. You guys - you make my heart sing. Thank you!

[@ivycollier8710]

I don't know how to describe how wonderful you are with these amazing people. My husband just began teaching and we watch your channel to get inspired!

[@Matoutie]

So happy your comments are back !! Sending lots of love to this bright young lady and her family :) what a sweetheart !

[@user-xz2kt4hz1b]

Your videos remind me to stay humble and positive and really put my life into perspective whenever I get down over things that don’t really matter, please don’t stop

[@sorcha-lydiaantrim7998]

lovely to meet you Ava! you seem like a very happy little girl keep on smiling and being yourself x

[@joshwelch9639]

Cool you went back to the animated introduction. Pleasure to meet you Ava & Fam. Thank you for sharing.

[@sof1675]

As soon as Ava’s mom cried I broke down. Seeing her progress and her emotional growth must be an amazing feeling!

[@natalieintheflesh]

Beautiful Ava! You are magnificent! Sotos mom here and I'm so proud of how well you did this interview - keep shining! We are cheering you on!

[@MsMsmak]

So much love and kindness in this video! Ava is just so precious, as is her sister and mother! Thank you for being you! Just wonderful!

[@lulumoon6942]

Hi Ava, I had a lot of bullies, including a few adults, growing up, and the one thing I can tell you is to just feel bad for them because they don't know any better, and you do! Be yourself always, you're one of a kind! 😊👍💖🌈

[@emaleagreaves8107]

I love that the comments were not only turned back on but that they’re still on! This is my favorite channel and I wish they’d never been turned off. Thank you for sharing your story(ies)

[@nataliatorres8342]

I love the new intro, SBSK!!!!!!! And I love everyone in this community, the interviewed people, the families, the people who comment here or on "Community" and Chris! My heart is filled with love with every new video posted! Thank you!!

[@zweij]

The sister is so mature and kind! And so is the mother. I am so happy that Ava has great people around her. I wish I could meet her!

[@NRCL57]

what a sweet video. My son (now in his 40's) has sotos. He too is the sweetest guy you could ever meet. I hope Ava keeps smiling (and I'm sure she will!). I understand the tears the mom had so easily... it can be so hard to see a child struggle. My love and wishes sent to Ava & her family. PS.. I love how kind and friendly your interviews are, thank you for doing these.

[@morganbudreau8957]

Ava, you are the sweetest little lady. You put a smile on on my face.

[@rustyjohnson5018]

Great job Ava! You really showed off your genuine kindness and intellect. School is starting soon. Good luck!

[@Dannibec55]

A beautiful, kind and thoughtful young lady! Great video, as a teacher I find your content really informative. Thank you x

[@aleeshanwnderlnd]

I appreciate the cute little intro and outro!! Ava seems like such a beautiful pure hearted soul and it was so nice to meet her. Cute horse shirt! ☺️✌🏼🐴🐎

[@IrisPamelaCalvo]

Ava, her sister and her mother are so adorable! I wish them all the best

[@torg398]

aw i remember having a horse shirt just like hers in blue and brown when i was younger. i hope u see this comment and know ur beautiful inside and out sweetheart, u have everything to give!

[@abdullahak2204]

Ava us so fun! I hope she makes life of friends and continues to be cheerful and learn a lot of things in school ! I have never heard of Sotos syndrome thanks for the information! 😊

[@cindys.9688]

Ava is a joy! I'm glad we got to meet her today!♥️

[@xLazarusEnvy]

What a strong, loving, caring Mother and such an unbelievably courageous little girl.

[@damarisrodriguez5118]

These children are so well grounded. Kudos mom! Thank you for sharing your differences with us, Addie. 💕

[@_OM3GA]

I think that your videos should be watched by more people. I think that around the world there's a lack of empathy and people don't WANT to hear what others have to say. Your platform is a gift and every time I watch one of your video I get reminded on what really matters in life. Thanks.

[@JuliaPedro]

This pretty and kind girl made me smile all through this video. Her sweetness shines through. Her reason for wanting to be a teacher reflected the kind (of) heart she has. Hee mum and sister are blessed to have. I noticed that she loves all compliments including those that talk about her kindness.

[@YvonneWilson312]

What a lovely, sweet girl - and what a beautiful smile she has! Ava's enthusiasm for school is such a delight and I hope she finds the new school year everything she hopes it will be. She would be the best friend anyone could have, of that I'm sure. Thank you for letting us get to meet her, Chris!

[@stephenmcgraw8871]

What an angel....another strong soul,it seems that Ava`s got no worries,which is the perfect way to be as a kid....such a beautiful girl and it definitely runs in the family....Mom,you`ve got this;just know you`re never alone....you`re amazing...

[@beckybetz6333]

Love your story also to Ava: don’t be afraid of fourth grade it’s very fun and you learn so much. Never stop smiling Ava.

[@TashJansson]

SO glad I got to meet Ava and her family! You guys seem very cool and kind! ❤️💕🥰 Very touched by Ava's desire to be a teacher all her sudents would like! That's the kind of teachers we need.

[@Jenny-wv9nq]

I really enjoyed this video, thank you for sharing your story Ava! What a kind hearted and beautiful soul you are!

[@MaryJo22]

Ava, once the video started playing my first thought was: "Oh, what a beautiful smile! And that's a nice dress too!" The impression you leave on people is of a kind and joyful girl, excited to meet new people and have fun with them. It puts a smile on my face knowing there are young people like you in this world. Keep on being who you are because you are a beautiful light! Props to your sister and mom too, you all make a sweet family!

[@ellie-bd2gk]

Dear Ava, You are such a sweet and caring person and I am so proud of you for your bravery and tough personality :) you are going to be AMAZING in 4th grade Ava!!!!! We love you! 💗

[@leandropotroel6844]

finally I can greet all the guests and the creators of the channel !!!! I am very happy, greetings and thanks for so much from Argentina !!!

[@livianeves13327]

Omgggg the introooo! I like it a lot 💙

[@snakeluvr1395]

She is beautiful! Absolutely beautiful! ❤ Not just beautiful outwardly but inwardly! I hope she has a great life and keeps being herself no matter what!! And her sister is adorable too 🥰 Let's all just remember to be NICE IN THE COMMENTS TOWARDS THIS BEAUTIFUL GIRL!!!!

[@donaldscaglione8983]

Ava I loved your interview! You are so kind and friendly! Enjoy fourth grade and keep smiling!!

[@JooleyGooley]

Ava is so beautiful! I love her bow and her braids. She is so sweet, and I hope she has an amazing fourth grade. Her mom and sister seem like really kind people, and I’m grateful they have each other.

[@3665Diana]

I loved this interview Ava , thanks for sharing ! Btw I love that pink bow 😊

[@steph.j.g5247]

Im so happy to see a video with someone who has sotos syndrome. I have a son who's 3 years old with sotos. Not many (if any) ive come across has ever heard of it. I myself never heard of it until my son was diagnosed. Thank you for spreading awareness 💜💛

[@ellie-bd2gk]

This made me tear up 🥺 she is such a sweet, selfless and caring person and it’s just so amazing.

[@aziz9921]

Such a sweet and lovely family. I love that Ava looks forward to school and meeting her new teachers.

[@sandraottway5618]

another great video, i love the way you go to their level of understanding chris.....fab x

[@abigaildee8644]

Ava, thank you for sharing your story with us! I love your sense of style and how kind you are, I can tell you would be an amazing friend to have. Wishing you all the best in the new school year!

[@JayleeParker]

love the intro and the outro! i would love if you brought them back and kept adding sbsk kids onto the intro. also that conversation about dogman was really funny 😂

[@ivane5110]

What a great motivation to be a teacher, Ava. You'd make your students feel wonderful! And cool view from a sister; she's right, when we have different ways of learning, we get to teach each other how to see and understand in a whole new light.

[@shoshannafachima1306]

Wishing Ava all the best of success.she is such a beautiful and positive soul

[@Sbskmama]

Welcome to sbsk family Ava! I will watch this when I’m back home from my trip in mountains.

[@clberka]

I know it's been a while, but i just wanted to say, i love this channel, and I am SOOO glad you got comments back!!!

[@Amber-rq7kf]

Ava is so personable and she does well with conversations. What a bright light she is. And a lovely young lady ❤️

[@Elvirabag]

I'm so glad that comments back! Ava you are such a gorgeous girl, I love that your whole face lights up when you smile. Sending you love and friendship from England. (my favourite season is Fall too, mainly because that's when my birthday is!) Keep smiling and enjoy meeting new friends.

[@Amanda-hw3zj]

Ava!! You are so cute 🥰 I love the pink outfit you chose and your smile is contagious. I think you’ll be a great teacher one day. Thanks for helping me understand a little bit more about how to spread kindness to others.

[@sarahd8093]

She's so sweet and has a beautiful smile!

[@moriganna67ify]

Oh Ava is such a gift. Wanting to be a teacher so she can make them feel happy. I said to myself "Wow what a beautiful gift she is!".

[@celestialcircledance]

Ava's got a lovely smile and looks a lot like her mom . I can tell she's also very kind and would make the best of friends !

[@TriForceTony]

Beautiful Souls ❤❤ This Channel Is The Beautiful Shining Light Of Love The World And This Platform Needs

[@JulianR]

Thanks Chris for teaching us about so many wonderful people like Ava!

[@Sonicfan-cc1te]

She seems like a really good friend! Also I know what it feels like to be different from other kids because I have autism so I have a hard time connecting to other kids my age so most of my friends are either a few years older or younger than me.

[@ballerbscott]

Ava, i think you’re incredible! You have a beautiful smile and personality and think that you’re going to be just fine growing up. You’ll make an awesome teacher!!

[@selyndahernandez9141]

Beautiful sweet young lady you can sure tell how sweet hearted she is I hope all the happy joy to you AVA 💜

[@bryjettagryffyn1982]

Love your shows, sometimes I wish I could meet some of the people you interviewed ❤❤ you have the most amazing job ever.

[@Chris-tn7hg]

WHAT, you got your comments back! so happy for the channel, thank you for your wonderful work. my little brother has downs syndrome and i appreciate you showing the personalities and depth of every human being.

[@kedamono1234]

her smile just made my day, im so proud of her