Long Haul Voices: Long Haul Patients (Episode 1)

[@littleangelsphoto]

Thank you to all who shared their stories. Our voices need to be heard! Thank you!

[@Ashlow86]

My heart goes out to each person. I’ve been battling ME/CFS for 8 long years now. Best advice I can give is absolutely do not push yourself over your limits. Listen to your body, rest when needed, and ask for help. I did all the wrong things, I kept pushing myself and never asked for help which truly made things so much worse in the long run.

[@R.C.R.]

Thank you for telling my story so bravely. I feel less alone know that they are more people out there who ACTUALLY understand what l am going through. I agree 💯 with the Doctor. I think we do put on a brave face to other because we don't what to be the wet rag in the corner. We want to be accepted. How can we expect people to under how we actually feel with out sounding depressing to other. The Expression " laugh and the World will laugh with you. Cry and you cry alone". Really explains why we don't actually tell people how bad we feel and pretend we are better than we actually are 😭

[@suehanna4044]

Very heartfelt and so true. I can relate to almost all. Sending blessings and love to all who suffer from ME/CFS - Long Covid and other life altering illnesses.

[@KidCity1985]

I knew it would happen from the very start. Welcome to my world. It's a rough one.

[@mihakavcic7237]

You knew what?

[@lokee7]

Nicely done

[@shawnrachelstanton936]

Beautifully done! Thank you! ♥️

[@AlexisOmnis]

Please test long covid-19 patients for XMRV (Xenotropic murine leukemia virus-related virus) using the precise methodology as the Whitmore Institute in Nevada, USA. I have ME & I tested positive for XMRV.

[@raymilland3413]

Judy Mikovits says that DMG (Dimethyglycine) could help. I'm trying it and it seems to be helping me. Also Ivermectin. Ozone, organic food, NAC, Zinc, vitamin C.

[@AlexisOmnis]

@@raymilland3413 wonderful! Thanks! 👍

[@maryfrances8959]

do we know what the stats are for those with long covid jabbed vu unjabbed ????

[@artroms1]

I am unjabbed by choice but got Long Covid in December 2021 while at a family Christmas dinner where everyone else except my wife and I were Covid jabbed. What evidence is there about vaccine shedding as I suspect that may be the origin of my persistent M.E./CFR? Urgent need for more research! Shocked no one else has replied to your justifiable post.

[@reanex12]

Fits me to a T