Low Risk vs High Risk MDS - What's the Difference?

[@philwhitcroft914]

Brilliant information. A absolute blessing. I’m high risk mds with 20% blasts diagnosed 12/12/23 and given 6 months to live I was placed on Inquovi 5 months ago and all bloods and markers have me in temporary? Remission. If I continue to trend with improving numbers I will have another bone marrow biopsy next month and maybe considered for a transplant after being knocked back in march by the transplant team in consideration to my blood numbers. Fantastic information Many thanks. Phil from Australia. Age 59 with no other health issues. 11/7/24

[@AAMDSIF]

So great to hear from you, Phil, and to hear you are getting the treatment(s) you need. You can find more webinars here: www.aamds.org/education/patient-family-webinars, where you can search by disease type. (aamds.org/webinars) Please take care!

[@philwhitcroft914]

@@AAMDSIF thanks for your help

[@jenishbastola7600]

​@@philwhitcroft914hey phil how are you now?

[@terrygermany2670]

Learning is hope is a great thing to remember. Thank you for this presentation. It has been the most helpful, recent information I have received since my husband was diagnosed in 2016. He is not eligible for transplant because he is on dialysis.

[@AAMDSIF]

Please remember we are here for you. Email [e-mail], and there are webinars for caregivers as well, like this one: www.aamds.org/webinar/emotional-and-health-impact-caregiving-2021-winter-patient-family-conference. Please let us know if you'd like to talk with someone who has experienced what you are going through as well - [e-mail]

[@amybradley5821]

Was diagnosed at 58 yrs old and am now 60. Hem/Onc is following blood counts which are dropping slowly. I have no idea what to expect in the future. I would never do a BMT but will this get me eventually? How long do I have in general? What is long term outlook? Thanks for the informative presentation.

[@juanzettawhite4540]

Have had MDS for almost year. Plates are low , and white blood low and blood 11.7 and I have diabetes. Feel good and take care of my self and 3 dogs. My dogs are my life. I start chemo today. O yea I am 75. God's will to be done in my life. Had blood 1 time and plates 1 time in a year. . .

[@juanzettawhite4540]

A very good ❤ speech

[@AAMDSIF]

@juanzettawhite4540, We hope you will be feeling better soon. If you want to chat with someone who has had MDS similar to you, we can make the connection. Please call 800-279-7202, Option 2 or email [e-mail]. Also, you can find out more about MDS here: www.aamds.org/mds, and you can find webinars and support groups under the "Patients and Families" tab. We're here for you - please call or write.

[@katherinevaughn]

Thank you for sharing this information. I just got diagnosed. I'm 64 years old and I have stage 4 lung cancer and ms. I hope 🙏🏼 I can beat this! This is my 5th time fighting cancer. I am trying to learn as much as I can to fight. I read that the bone marrow transplant could heal MDS and stop the progression of MS. Do you agree with these findings? Thank you for your time and services. ❤️🙏🏼✝️

[@AAMDSIF]

You may also find this recording useful about transplantation for older patients: www.aamds.org/webinar/transplant-older-patients-mds

[@jenishbastola7600]

Hey katherine how are you now?