Lupus र म- एउटा कथा संघर्षको : Pabitra Bajracharya (Lupus Warrior) : The Storyyellers

Ms. Pabitra Bajracharya is a Paleographer who is dedicated to making contributions in the preservation of Nepali historical heritage. Watch her full story shared at ‘The Storyyellers: Session 53’, where she spoke about the journey of finding resilience and strength in the face of unimagined battles and adversities with Lupus.
It was just another day of 2010, when Ms Pabitra Bajracharya felt an insufferable body ache, which was unusual for her. She dismissed it thinking it might get better but after certain days her joint started aching. This scared her. She went to an orthopedic doctor who told her that those were the symptoms of Rheumatoid Arthritis (Baath Rog) and he prescribed the medicines accordingly. Until seven months, she thought that the prescribed medicines worked.
But afterwards, a gland appeared on her body. Without it having healed, a lump appeared on her neck which started making her day to day life extremely difficult. The mere act of talking and eating was gradually becoming painful. So, she decided to visit the doctors for a diagnosis. Initially the doctors were not able to recognize the health condition she was suffering from, even though the medical reports were piling up month by month. Eventually, she was diagnosed with a chronic disease- Systemic Lupus Erythematosus (SLE), an autoimmune disease people barely know about. A disease where the immune system of the body mistakenly attacks healthy tissue.
With assurance from doctors, she was hopeful that the problem would go away as they told. However, whatever she hoped for was very distant from reality in fact; the problems like hair fall, blisters, blurry sight, diarrhea, headache and body ache kept on recurring. It was indeed a battle with oneself when an immune system inbuilt to protect her, started destroying her own ability to fight. Her attempts to get rid of this chronic pain were fruitless, even the painkillers were no more effective; in fact it seemed as if the problems were waiting for her in the queue. To know more watch the full video.
Supported by - Foodmandu
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[@sitashrestha888]

I can feel your shivering voice … i know how much courage it takes to talk about it in front of everyone while you do not wanna recall it … nothing is worst than health battle.. and you have to keep your mental health on balance too … i have also suffered alot due to health issue …so i feel you !

[@sreeyasharma8803]

Being a medical person and after seeing a patients of SLE ,I can’t believe how strong someone can be to stand and speak up confidently like nothing happen its just a story tellers❤ believe me you are a gem❤God bless you😊

[@rachanapoudel484]

Strong girl ❤

[@mahneesa8495]

Its really too hard and i can understand your pain😢😢

[@daisyrai9125]

I’m so proud of you . People with autoimmune disease know how it feels to deal with them everyday . You feel like you don’t understand your body , you feel like you’re healing but the reports show otherwise, you’re afraid of future but yet you still have to keep going .. and a lot of times you keep questioning-“Why Me ?” While the disease has had you, the hardest part would be the acceptance for this . But after all of this , we still get to live , love and feel. May we all have the courage and the capacity to share our part of story like you but until then , may we continue to try our best to win over our disease and see the world for more than just what doctors and the science tells us.

[@pratigyabhandari8317]

Being a nurse, I know how much problems, the SLE patient has to face. Just be positive and be strong sis.. Much power to you. God bless you dear

[@ratnashova1791]

My Strong lovely ❤❤❤ Daughter 💕💕💕💕💕💕💕

[@abcxyz4109]

Dear baini…I am also a lupus warrior. Been diagnosed since 2002 …and still living with it …I understand what u have gone through. I too had taken 13 cycles of cyclophosphamide and rituximab …and numerous steroids therapy. According to my experience over these years I want to tell you is that …please priorities your health… know your triggers… work ..friends family can wait…but once lupus gets relapsed it is very hard to treat..cos next time it comes with a boom. So ..slow down your life, take your own time to understand your body…and heal. Most importantly sleep in time…relax and just do light exercises… take care …and good luck 👍 ( do not exhaust your mind and body )

[@saralathapa1814]

You are very strong❤. Proud of you dd.

[@sarumhrzn3735]

I’m amazed the way image you shared all these experience standing strong. More power to you♥️

[@MissNoonaIva]

oh my god. I cant imagine what you've been through. Dear stranger i m proud of you that fought for it, did not give up and kept that will power within you. You are such a strong lady. Not lot of people in Nepal are still aware about Lupus. They dont even know what it is. I m glad that you shared your story.Thank you to The story tellers and to you as well. Please take good care of yourself. Lots of love and hugs. 💗💞💕❣🥰

[@TheStorytellersNepal]

we are glad you appreciated our effort in raising awareness for this disease.

[@nanditashakya]

❤

[@useme7348]

you've won many battles , truly bravest soul i have ever known.God bless you sister.

[@shristipanday2720]

My husband also suffering from lupus since 2002

[@priyeshagardenspaces4034]

Strongest girl ... Lots of love 💝

[@avrilchhetri6137]

Such a brave girl. More power to you. Stay determined and positive ❤

[@sabinashresthaa]

Ma pani lupus patient ho same mero jastaii sotry I can feel it kati pain hunxa mero ni kati time paxi SLE bhanera tha pako and also lupus mero ni part life nai bhako xa. God bless you and all❤️

[@supriyarai5067]

You are so strong sister ❤

[@SalishaGurung07]

More power to you ❤

[@trivhubanuniversity10k54]

Bahini who are you i don't know but i am proud of you❤🎉

[@barshaboyaju7066]

Went through same condition ❤❤

[@shilashakya1547]

You r so strong. We proud of u pabitra. lots of love❤

[@rubybajracharya3141]

You are so strong. God bless u. And get well soon.

[@vivekgurung3046]

You are a warrior. Keep fighting

[@jharnamarasini4871]

Sooo strong ❤

[@bishwomaskey8142]

Keep it up brave girl and know the law of inpermanence

[@SujataSB]

You are a pure dose of motivation , you inspired me from within. Im sending you lots of blessings and healings

[@manikarai3150]

Very proud of You dear

[@richamanandhar]

You're so strong baini !!

[@monikakaranjit746]

U r very strong prabitra god bless you ❤️

[@indirashakya8840]

Proud of you 👏 👏 ❤

[@Sonika_Dhungana]

More power to you❤

[@manishshrestha2789]

lots of love god bless you sister

[@JagadambaSharma-z5y]

You are strong ❤❤ bahini 🎉🎉❤❤

[@upashanashakya1838]

Proud of you ❤❤

[@pratimabajracharya9602]

Proud of you 😍😍

[@2gm605]

❤❤ May krishna heal u sister. 🙏 Hare krishna

[@ganga1575]

I’m just trying

[@ashmitaghimire1478]

Please go to patan hospital seek Rehumatologist doctor lucky sharma and the team you will heal soon

[@archanapanthi1183]

May your health get better in the days to come! Take care.

[@sacheenofficial2151]

Proud of you

[@deepenshakya878]

More power to you pabitra

[@yushanabyanjankar7511]

You are strong

[@enjoyingtime8678]

Same problem 😢😢😢

[@Anushreekarki]

I can feel ur psychological pain in ur voice

[@prinshabajracharya7275]

❤❤❤❤

[@rukmanisharma-f9u]

❤❤❤❤❤

[@mahaabi001]

❤ love your bravarity sister .

[@rituzashrestha1575]

❤❤❤❤❤❤

[@namsamrai]

Where I can get the lupus community ?

[@mahneesa8495]

Did you now also daily take your medicine or stop taking it?

[@pavitravajracharya7917]

I am on lots of medications. Pantop, Tacrolimus, emsolone, hcqs, mycofit, escitaloprám, telma, (DV 60, calcium, aristozyme, magnesium, bactolac)

[@mahneesa8495]

Is it necessary to take?nothing happens be calm.its only the state of mind that is always gone a through if something happens or bla bla....be positive nothing happens

[@mahneesa8495]

I am also sle patient.i took hcqs for 1 year and just stop.i didnt take any medicine now nothing is gonna happens.

[@suprasiddhabajracharya9693]

Brave....Girl aka Bunty....bravo.....

[@Lawaty_Roman]

Sabai janale like garum❤👇

[@namita2216]

Hello dear! may be I can help you

[@namita2216]

in healing your lupus if it hasn't affected more parts of your knidney. Or if you have normal urine output

[@pavitravajracharya7917]

@@namita2216 Thank you. It has affected little more.

[@lhamuhyolmo5245]

Nepal rehumatic hospital ratopul janus .best place to cure this disease. Cause my grandma also had this disease and now she is far better now

[@pavitravajracharya7917]

Thank you🙏 I had already been then . I guess from 2014 to end of 2017 I was treated there.

[@menshuggrg8842]

❤