LUPUS & THE SUN | precautions you should take

UV Exposure and Lupus:
resources.lupus.org/entry/uv-...
Photosensitivity and Lupus:
resources.lupus.org/entry/lig...
Sunlight and DNA:
www.sciencedaily.com/releases...
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[@Simplystarra]

It's makes me wanna sleep.... I can be driving, and I start falling alseep in wantedly... If I stay in a pool during the sunny time... I am in so much pain the next day and I feel an immediate difference in my body

[@itsmonicanicolle]

Girl me too! I was wondering why I would get sleepy driving . 💜

[@Alaw726]

​​@itsmonicanicolle I thought it was just me

[@MusicMan-bj4pt]

My mom was diagnosed with lupus when she was pregnant with me. She also has rhumatoid arthritis, diabetes, crainal hypertension, high blood pressure, macular traction, and other issues. You are doing very well and are an inspiration to many people through JESUS.

[@girl.in.rainbow.glitter]

It really does suck. Not just the sun affects us, heat in general causes flares. I had to stop going to the gym because my sweat would cause bad skin flares 😐😥

[@erfanasalim9886]

Ohhh Now i understood, whenever i used to b in sun, i become so lazy and feel very ill. Thanks dear. Love u...

[@RebaMiran]

I get extreme fatigue every time I get in the sun 😩

[@moebanshee]

For me it's the heat itself if I sit in bath water that's too hot I get dizzy if I sit in the pool that's too warm or even go to the lake we used to go to and the water was too warm I can't sit in the jacuzzi I will get dizzy and pass out

[@RebaMiran]

@@moebanshee omg that sounds terrible 😢

[@adriennecarrasco37]

I'm now vitamin D deficient from lack of sun exposure. I've been taking 50,000 IU of Vitamin D2 to help with that which my doctor says may be causing my fatigue. That's annoying because the sun drains my energy and the lack of sun is still doing the same thing.

[@SGRmoss]

You need D3.

[@ari-jv]

Take cod liver oil

[@keishlacruz136]

Being recently diagnosed and being told to stay out of the sun really disappointed me because family and I like going out to the beach every other week and spend all day there. Also living in a tropical island didn’t help. Something that I did is buy a beach umbrella, some uv long sleeve shirts and sunblock (hella expensive btw if u ask me) so I can continue to enjoy my family outings while taking myself into consideration. That way whenever I feel like I’ve had enough sun I reapply the sunblock and I can lay under my umbrella and stay out of it.

[@HealWithSamantha]

I'm glad you found a way to still enjoy the sun! & yes, All of that is soo expensive!

[@mina5307]

Hey Keisha, tell me, u cover only the top of ur body or also ur legs?

[@keishlacruz136]

nesrine marena imma be honest, it’s too hot to be covered all the time. I just put on a good coat of sunscreen all over if I’m gonna wear shorts pants or sleeves . I also wear hats and if the sun is too much carry an umbrella around 😅🤣

[@crystalmckinney3151]

Samantha, I too have Lupus. My doctor put me on astazanthin 12mg and beta carotenes, to create a sunscreen like pigment, which allows me to be outdoors. I also wear a hypoallergenic sunblock. It's working like a charm plus helps rid of free radicals. Hope you find this helpful.

[@koutoubyavision4738]

Really? I ve trying that but i feel it just made symtoms worse

[@OnlyGreenTea]

Do you get red if you exercise with the flair with it on?

[@aabhashastri3615]

Thank you.... This could be a ray of hope to me as I am getting hyperallergic day by day in sunlight.... I would like to try this... Here doctors don't have advance treatment for lupus they just put me on plequnil.... M not getting help anywhere.... Now m going to experiment with panchkarma in ayurveda..

[@peacemakerwolf8972]

I miss the sun, but every time, I start having kidney problems ( infections, stones, swelling). Need to find a new job, my employer decided that I am going outdoors to wash windows tomorrow...for minimum wage! NOPE What really sucks is that I don't have a car, gotta walk everywhere...so I stay sick alot.

[@meghankelie2107]

When I go in the sun I get nauseous and sooo tired. No rash but I get really sick. I need to get a floppy hat and uv shirt

[@alyssaann784]

I'm really surprised that my doctor never told me to stay out of the sun! ! Thank you so much for making this video so now I can protect myself

[@Hek87]

I disagree. I had lupus for 26 years before curing it naturally and i had never had any issues going in the sun. I go in the sun all the time now and think it is important for us. Everything thrives because of the sun. How could it damage our DNA?? I also don't put sunblock chemicals on my skin. When the sun cooks the sunblock chemicals on your skin it gets absored and that creates inflammation and cancer, etc. Of course, eeryone's body is different.

[@roxylane3314]

Great video. As someone with Lupus, I wish more people would raise awareness to it.

[@sallyrook2740]

I try not to use sunscreen unless it chemical free because your skin is your largest organ and can be very toxic for Lupies... I wear a large flappy hat and a UV long sleeve... and try and limit my exposure between 9am-3pm. When I am out there unprotected and even sometimes when I am, I experience extreme exhumation and start to feel sick.

[@mariabezymyannaya4219]

Thank you for the video. I don't have an official diagnose at the time, but it would probably be lupus. I had no idea, that being in the sun can result not only in rash, but other symptoms too. That was very helpful!

[@carolinamay8328]

Samantha, thank you for this information. I've been sick since 2001 and unable to work since 2003 but did not get finally diagnosed with lupus until this week--after twenty years. I'm trying to learn as much as I can. You are the first person or website to connect sun exposure to fatigue. Wow. Maybe that's why, after being in remission and feeling good enough to work in the garden I end up in yet another flare.

[@LAVirgo67]

Was diagnosed w/ Lupus two months ago, yet I've been super sensitive to the sun since I was a kid. I avoided the sun at all costs, but little did I know that it was a precursor to Lupus. I tend to use a sun umbrella vs. sunblock.

[@cherieteed7881]

Big hats and light weight long sleeves. ❤️ great vid - thank you!

[@loriey.3141]

every single one of my friends make fun of me because i’m always like “guys i can’t stand in the sun or else i might get a flare or rash” and they think i’m lame or whatever and like mock me like “hAhA iM goNNa diE bEcaUsE oF tHe sUn” and it’s super annoying and it kinda sucks.. and i was thinking of sending them this video to educate them but i’m scared they’re gonna say i’m being dramatic and etc. but thank you for uploading this because you helped me understand a lot more about the sun:))

[@HealWithSamantha]

This makes me feel like I should make a PSA directing some topics towards friends/family members. It is tough when they don't get it. Sometimes they need to see a video like this with all these comments to understand you aren't being dramatic, this is your life.

[@SGRmoss]

Wow, you have shitty "friends".

[@mardijohns]

Screw what they think! Take care of YOU!

[@branwithoutclaws]

@@robertnelson4590 shitty friends are better than no friends

[@carmenrecendez9923]

Get new friends... put your health first... may seem easier said than done but you gotta help yourself ❤️🙏🏽

[@magicalpatterns]

I love your videos you have no idea how much I have learned through you. My rheumy never told me about th sun and you don’t know how extremely sensitive I’m even a trip to the hospital and the fluorescent lights give me a flair.

[@HealWithSamantha]

Fluorescent lights are a whole different battle. I used to work in the dark at my old job!

[@Titan63994]

is severe migraines in exposure to sun normal symptoms? And also feeling like you have the flu the next day normal symptoms?

[@Amanda-ks5mg]

excessive sun (2nd degree burn!) triggered my lupus, but I'm thankful that I can manage getting some sun exposure throughout my days without it affecting my disease. doesn't mean fun beach trips without major planning and some anxiety, but it's nice that it's not one of my major triggers. I'm not obsessive about sunscreen every time I leave my house to get to my car to drive somewhere indoors. I'm allergic to most sunscreens except the physical block/zinc oxide ones, it's really a pain to put on all the time. if I know I'm going to be out in direct sunlight for an extended period of time, I'll lather myself in sunscreen, grab a hat, and I even started using an umbrella!

[@hindyehia196]

I owe you a bunch of thanks My doctor never told me about it in that detail While actually Sun is the most issue I neglect to care about

[@HealWithSamantha]

Hind Yehia I’m glad my videos are helping you be more aware!

[@nataliebryant8855]

I’m not diagnosed with lupus (yet) but it seems like the only explanation for everything I experience. And the sun is a huge issue for me!! It makes me so tired and I get a face rash almost immediately when I step into the sun. I love your channel! Maybe the next doctor will look into lupus. I’ve been to 5 different doctors and I’m going on 2 years of strange problems. Lupus may not be the greatest thing on the world but at least it would be an answer right?

[@lindamadden789]

It took me 5 years before I was able to convince a doctor to do a biopsy of my skin. The blood tests kept coming back negative. I waited until my rash on my chest was fire engine red and painful and itchy. Went to a dermatologist who immediately took a biopsy in the office. Painless at the time but hurt for a few days after. Not bad! I should have been diagnosed 20 or more years ago but I took overnight work because I felt stronger at night. Slept during the day which kept me from being diagnosed until I was 57 years old. My heart, lungs, kidneys, skin, and eyes have been terribly affected. Don’t wait! Keep trying to find help. You know your body better than anyone. Best of luck

[@sjord7]

@@lindamadden789 I have all the symptoms (5 of the 11 needed for a lupus diagnosis), and the sun rash that takes only a few minutes in the sun to explode from totally healed skin. I was having troubles getting a skin biopsy also. Saw my first rheumatologist, she wasn't impressed enough for a diagnosis. Went back to the dermatologist, and sadly before I went I put my hands into the sun on purpose to get a rash they could biopsy. The doctor was still reluctant to biopsy, and I told him I was desperate to get a diagnosis, and I needed this biopsy. He got another dermatologist to come in and take a look. I've now got three biopsy spots, and am waiting for the results.

[@Davineff1]

whatever happened can I ask??

[@moms9457]

Wasn't diagnoed with Lupus until recently, but the past 2 summers we could not figure out what was wrong with me. My best friend just had a pool put in, I would have a great day swimming with my kids, and the next day I would be so exhausted I could barely walk to the bathroom. I'd be fine for another few weeks, and then go swimming and bam. I figured it was something about her pool- maybe her husband used more chlorine or something, so I tried to stay out and let my kids swim. This last summer we went to our community pool a lot, and would go just for a few hours after work/summer camp. It didn't seem to affect me that much and I figured, well they must have less chlorine. Once my suggested that I may have Lupus, it all made so much sense.

[@HealWithSamantha]

Wow, that is an interesting story leading up to your diagnosis. Thank you for sharing and I'm glad the mystery was solved!

[@hindyehia196]

I think I had lupus long before knowing it and right before I was diagnosed lupus nephritis I had been staying 12 days in the red sea coast for summer vacation

[@morenag.7769]

This also includes heat.....blah. I’ve been in the shade when it’s hot. & I still got a “heat rash.” That later on blistered.😖☹️but this was maybe my second time that it happened. 1st time I didn’t know. Second time is when I found out. I had sle lupus. & those both times it kicked my butt! I ended up with the migraine headache nausea vomiting & three days of not being able to move.

[@irishchick5528]

Morena G. Me too even in the shade I get a rash I also have SLE, if I go outside for 2 second I get the rash. It’s bad.

[@morenag.7769]

Sherry Mercado gentle hugs....from a fellow lupie sister. 🙏🏽❤️🙏🏽it’s not easy. But we can’t give up hope let alone faith that one day they’ll find a cure. We gotta keep on pushing until the wheels fall off. As well as educated others about lupus itself.

[@HealWithSamantha]

Yes, forgot to mention the heat! Has been a killer for me too. You still get sun in the shade as well so be careful of that. Depending on the shaded area, most times it'll take care of half of the UV or less.

[@irishchick5528]

Live Hope Lupus I know today is a hot one and I’m staying inside. I’ll peak out and watch my husband do the planting from inside.😢

[@morenag.7769]

Sherry Mercado gentle squishes...I know the feeling. I’m not married. But I also look outside my window & see my 7yr old playing. Some times I get really bummed. & I even cry. I also have “risked” hanging out in the hot sun. Just so I don’t feel like I’m not bonding w/her....etc etc. & yes! I’ve payed dearly. She’s at the age now where she kinda understands what’s going on w/me. & is “okay.” But for the times she really wants me to tag along. Or play w/her & she gets upset. Ugh.......kills me. Breaks my heart. I have learned to “improvise” & do fun activities. That helps...& makes it a lil better. I still miss it though that’s for sure. 😕

[@troycrabbe4349]

Thankyou for quick response one this subject, perfect delivery thanks again

[@violetalight-ourrealm3518]

The sun makes me dizzy, makes me confused, headache, I feel like sun is my kryptonite... even tho I used to love it.. the way I protect myself is I barely ever go out during the day and Im mostly active at night or before sun rise.

[@bedaurahaseen7354]

Make sure your sunscreen bottle say broad spectrum because if it doesn't it won't have the full protection that you need

[@zachz96]

You are a beautiful young woman who has very beautiful skin. Baking it in the sun would make it less beautiful very quickly regardless of a lupus diagnosis.

[@lesliewilliams6013]

I was just diagnosed with Lupus had so many symptoms in and out of the hospital and was never diagnosed until I was diagnosed with uterine cancer I’m so confused and I’m trying to learn as much as I can about Lupus

[@sjord7]

I'm waiting for a lupus diagnosis. So far no luck, my rheumatologist told me women get lupus and seemed very dismissive (I'm a guy). Then she told me my DS DNA test was a false positive (to further her idea only women get lupus I guess). I'm working on getting a new rheumatologist. Ten to 15 minutes in the sun is a disaster I found out - my skin on the back of my hands goes from completely normal to a massive nasty red rash. Yes, in just minutes. I've got a bunch of new sunblocks, mineral as well as chemical to try. Sun shirts, a new wide brimmed hat, sun gloves even. I'm looking on getting my car tinted with Llumar Air 90, which is a "clear" tint, but blocks >99% of all UV light. I'm using the very light tint to try to stay as close to legal on my windshield as possible.

[@talliacrater9770]

Its scary because I just had some annual blood work done for the first time and told the doctor about some joint pain and stiffness I've been having. They tested me for auto immune issues and I came back ANA positive with 1:160 titer/speckled now I'm waiting for the referral to a Rheumatologist, but I work outside with airplanes and now I am scared I've already damaged myself so much and now waiting and working 8hrs+ in the sun makes me nervous.

[@ELewis-qj5dx]

I feel you guys I'm wore out with this heat In oklahoma. Puts Me down for days. And ppl do not understand they make jokes or its just lupus..

[@hurley685]

Thank you for posting this. I am newly diagnosed and live in Florida. I’m also awaiting a rheumatologist appointment for my daughter who just recently received a positive Ana test. This actually made me cry. It’s been very overwhelming and I can’t remember everything the doctors tell me with all the brain fog, and many unanswered questions from them because of limited time or they simply don’t explain in detail everything we need to know. I love your videos and will definitely suggest to my daughter to check them out. My heart is just breaking for her because she’s only 15.

[@Davineff1]

I hope all went well? a third of the population will have ANA and many of those without auto immune disorders. Wishing only the best to you both.

[@jhanasjourney7182]

Thank you for sharing

[@sherinkamal1053]

Great information...

[@jamielo6228]

I despise sunscreen. I try to wear an UV jacket whenever I get out but the thought of greasy stuff on my skin...bleh. There’s a certain type of sunscreen I can tolerate, but I only wear it when it’s really sunny outside because sunscreen is tough to remove.

[@kaitlynarchuleta5059]

Sun just makes my body so so weak. My family and I went to the state fair for a few hours and I think it was like 85ish degrees? I couldnt walk by the end of it. I was shaking and almost crying from sleepiness. I couldn't do ANYTHING for days afterward.

[@brittanyjones7986]

I have been dealing with Lupus for 21 years now. I work as a mail carrier and sun does not affect me external. My dr has told me to get out the sun. But looking at this video I wonder if I’m slowing breaking down my organs.

[@branwithoutclaws]

I've noticed gastroenterological problems as well.

[@katGuzman11]

It burns and my face can some times swell with rash face, top of my head chest and lower arms. I will feel nauseous and i just thought i was being poisoned by the sun after my body changed after having my baby.. finally a friend told me man you have lupus. She has it too. I brushed it off and i have had 2 kidney flairs and i was reading about it and lupus came up again and my joints ache and i am always so sleepy.

[@eh3611]

That's interesting I started a new gym and was trying the infrared tube because it helps with overall health. With that said I suppose steam room is not good either. Anyone know anything???

[@richardwalley2862]

Went to the dermatologist about 5 years ago and they did blood work to try and figure out why I got rashes on occasion and they said I have lupus. I want to say having lupus all of a sudden did not sit well with me being I like being outdoors but a big part of me thinks I don’t have lupus because I’ve gotten sun burns since and no rash. I want to think when these dermatologists can’t figure out something they just assume it’s lupus and it could be something else.

[@dermlover1]

Can you go out in the sun all day if you wear sun protective clothing and brad brim hat? Or does the sun still go through the UPF clothes enough to trigger a lupus flare?

[@farihaamber1369]

I have recurring discoid lupus and Systemic lupus as well. It has been four years but my rashes just keep deteriorating. My doctor wants to give me Rituximab injection. Can anyone share their experience or can you please make a video on that drig Samantha?

[@benkalhagen6449]

my 24 year old daughter was just diagnose a few days ago. as a parent i can not stand to see her in pain but i know there is nothing i can do or says to help. do you have any advice on how parents should help their child ?

[@yaraahmed5193]

I was diagnosed with systematical lupus a week ago and I am a kind of person who go to the beach every weekend and now I can’t and am very very sad 💔💔💔😪😪

[@eirinym]

I don't know if this is the right place to send a message. I'm struggling right now, wondering what exactly is wrong with me. Some of my symptoms are Lupus like and I've been seeing doctors for the past two months trying to figure everything out. I'm actually male too, so while my blood tests are indicating something like an autoimmune problem, I'm still not done with all the tests. And in the meantime I'm really feeling terrible. Some days are worse than others, and today I have an appointment. I'm hoping I can get some help in the form of treatment, I just hope my doctor will listen and help. I don't think I can get better without medication. I've been watching some of your videos and talking with people online and trying to work through this, but it's really not easy and I can only imagine what it's been like having a condition like yours as long as you have. I'm only just now getting sick and it's really anxiety inducing. I just want to get better. I don't know what to do right now.

[@josephrutz4248]

I hope your feeling better

[@aleannasinoben3518]

Hi my name is aleanna I’m 8 year old I have lupus it’s hard to have lupus because you need take a lot of meds

[@evettecorrea441]

Is Sjogerens Lupus, and is it the same way for Sjogerens to be out in the sun? I was like that for awhile until I started taking Plaquenil, but there are times that I start breaking out with a malar rash on my face. I always thought that I had SLE, but it didn't turn out that way. I still don't have a diagnosis yet, but found out a couple of weeks ago that I have dry eye. Im still learning about things about different kinds of autoimmune dieases . I just don't understand mine... Sorry to bore you guys...

[@lindamadden789]

Next time you have a rash get to a dermatologist. They do a biopsy of your skin that they put under a microscope and can tell you which type you have.

[@MrsLC-to9yd]

You can have Sjogrens and get symptoms of Lupus I was recently diagnosed with sjogrens because they thought it was lupus I just turned 40 and noticed whenever I'm in the sun I breakout in a bad rash on my face I'm a Nurse so I had one of the physicians look at me they sent me to the dermatologist he was awesome and order a ana blood test it came back positive but it was for sjogrens but the type of cell I had speckled I can also get symptoms of other autoimmune diseases which sucks lol so please if you haven't get tested and I hope I was of some help to you stay safe a lots of luck.

[@internationalmatt1]

I have been having problems with lighting in classrooms. After I teach for a little while, I feel tired. If I teach all day like I do on Tuesdays and Thursdays, I am wiped out the next day. I don't know what to do about that.

[@babybaby5893]

Wear baseball hat . It helps me s much while shopping. Especially at bright Target where I immediately had brain fog

[@martianqueen3553]

I drove from Houston to Austin and currently have sun rashes on my hands as I type this. I hate being in the sun. It’s really tough because everyone is like, “we all get hot.” “I get sunburn easily.” and it’s like, yes, that sucks but I will be in bed for days if I’m not careful at water park or something. Ugh, and it makes me sleepy. The sun literally drains mu energy SO MUCH! I love gloomy, outcast, rainy weather. I feel so energized when I go outside during that time. The sun just sucks me dry, energy-wise. I cope with the sun by always wearing sunscreen and sunglasses. I carry an umbrella with me when I can. And, although Texas is hotter than hell, I usually wear some sort of long sleeve and/or pants. I prefer layers I can take off to cool myself down. Separate question: Does anyone have tips for dealing with hair loss? It could be my thyroid but I’ve recently had extreme thinning and loss of my hair :///

[@martianqueen3553]

tecnoklaus My sun rashes are like faint red blotches. Sometimes they itch like dry skin and I’ll get these little bumps from scratching so much. Other times (and I think this happens because I have KP) I’ll get small dark red mark, almost like scabs. and thank you for the vitamin d info, I’ll definitely ask my doctors about it. Do you think a multivitamin would work to replenish Vitamin D? cuz I had started taking that and biotin to help with my hair like a month ago

[@HealWithSamantha]

I get that all the time too. It's hard because they don't understand how sick it really makes us. Wish I had some tips for hairloss for you.

[@Davineff1]

rosemary oil has been shown to be just as effective as womens strength Rogain. you can add it to your conditioner

[@lilh9984]

I'm avoiding getting tested for lupus. My grandma had it. I have severe migraines with vomiting and body pain if I spend too much time in the sun. I just thought I was being precious but the older I get the more symptoms keep stacking up :/

[@MrsLC-to9yd]

Don't avoid it if untreated it can cause serious harm to you heart kidneys etc.. try to stay out the sun just to see if you feel better and stay safe 🙏

[@ering4902]

Went shopping and as soon as I got home sooooo tired

[@SGRmoss]

Actually, with the correct car window tint you are filtering out over 99% of UVA and UVB rays which, to me, is far better than toxic chemical sunscreens or pasty white zinc ones.

[@laurakeyse9944]

It's not just the sun, .. Energy saving light bulbs sent me to urgent care with a terrible rash in October. Now we have LED light bulbs.

[@dianez7788]

What a pity that we could never get tanning !!!

[@novellag.thomas2574]

I love the SUN but the sun don’t love me back.I went to doctor with my husband we were in the sun for about 15 minutes I was drained the next day I stayed in bed for a day but I’m very fatigue badly.I drink water.But still fatigue.

[@novellag.thomas2574]

I have lupus lupus don’t have me

[@moebanshee]

25 years ago I was going to my old doctor but I was a sun bunny never had a problem with the Sun at all I was cleaning the grill and I got a little pinkish burnish wasn't even a burn just a little pink tint to my skin but when it was the next day it was like a dried blister like somebody took a thin coating of wax and put it on my skin so I went into my doctor and he said "you're done with the Sun" and I asked what does that mean he says I think you have an autoimmune disease I asked him which one he says that doesn't really matter right this minute but you can't go in the sun anymore the sun doesn't like you and it's going to try to kill you since then of course I have been diagnosed with lupus I've had it for 25 years hats long sleeve shirts umbrellas the whole nine yards

[@amelialavellan8689]

When I go in the garden to water my plants or let my dogs out, for a couple of minutes, I come out in hives and rashes all over my arms, my neck, the tops of my feet and legs. Anywhere the sun reaches really. It makes me feel sick, faint, I start sweating like I’ve just come out of the shower and I have to sit or lay down for a while. I’ll be fatigued that day, the next day will be worse and the joint and muscle pains will start and I’ll want to sleep all day. Always remember factor 50 sunscreen!!!

[@peacemakerwolf8972]

Amie Jacobs I have some SPF 80, still, it doesn't help much!

[@Inurwalls4everandever]

My biggest anger of this disease is not going in the sun(I mean you can but it is dangerous) which is annoying as hell because the sun is my life but now it’s not lmao (does that make sense)

[@jennifernybergpixie7958]

I have photosensitivity

[@zhenniL]

Does anyone have extreme hair loss? If so, any advice ! I am feeling so frustrated and exhausted

[@janicethomason2053]

Zhenni Li yes I have hair loss I got all of my hair cut off because of bald spots! Lupus sucks! The sun does drain me,and if I am in it to long,i feel like I want to pass out! I have fibromyalgia,diabetes,high blood pressure,Gerd disease,and just found out I have stage 2 kidney disease! So too everyone ,stay strong,live,laugh and love as much as you can!

[@devispandana4916]

Use less camical shampoo. Am using baby shampoo...

[@babybaby5893]

I used to lose hair like crazy. But it stops when I started anti inflammatory diet. Google it .

[@syazwanisyamsul]

I live in such a hot country, so its very hard to not be expose to the hot sun😭

[@ilghsthntr2006]

Hello, I am new here, just told I might have lupus and not fibromyalgia. I was diagnosed with fibro in 2004. They just now noticed the butterfly pattern on my face. I have had it for as long as I can remember. When I go out in the sun for one it really bothers my eyes. I wear sunglasses even on cloudy days. I burn easy, but I don't break out, or get a rash. Just makes the butterfly a lot darker on my face. However, I get extremely nauseated and feel like I am going to pass out, and it always brings on a headache. It makes me extremely fatigue, and this can even be while driving in the car. It is getting worse as I get older. Oh, I am 42 years old, and a man. I guess as I am finding out, it is more rare for men to get it. Doctors did all this blood work on me, but all came back normal. Does this mean I don't have it? I have a lot of problems, from chronic fatigue that never goes away no matter how long I sleep, stiffness, achy, painful right knee, numbness in legs and feet and sometimes face and lips, IBS that is 24/7, headaches, chest pains, and pain in my fingers and toes when cold that is unbearable!! When I get stressed, for example my daughter is pregnant. That's great but she asked me to do all the cooking for the baby reveal last week. Went from a few family and friends to 80-100 people. I got stressed, and I got sick. Not just sick, but I am almost bed ridden I am so weak. This happens like once a month when I am down for a week. Is this lupus? If so, why did the blood work come back normal?? Please help.

[@PescaitoFrito]

I have a friend of mine from Mexico Shes 22, she have lupus, she had like 4 chemotherapy and she used to take 50mg of a pill. So she was tired of feeling bad and bad, once a day she meet via KZbin an interesting biochemical doctor named Doctor Sonia, which she was indeed affected with 6 terrible disease: One of them were 1- VIH, 2- Skin Cancer, 3- Something in her heart, 4-5-6

[@0sardar]

Hii 😘😘😘😘😘😘😘

[@troycrabbe4349]

Its not me its my wife

[@VictoriaFilmsgroup]

Dna damage doesnt happen on the spot just because you were standing there. Bs.

[@89Kele]

The sun is the devil.

[@89Kele]

Ripley1156 and prevents people with lupus from living a full life...