LYME & REASON 2.0: FACEBOOK LIVE CHAT

[@angelonduty100]

Thank you for this....I have been sick for over 37 yrs w/ NO Doctor who knows anything about these diseases .....But hey, I'm lucky, I was put into Hospice 3 weeks ago, SO I get to Go Home soon !

[@iowabettyg]

angel, best wishes to you and so sorry you have suffered for 37 yrs. without any dr. helping or treating you. yes, heaven awaits us all where there is no more pain, suffering, and our bodies are 100% healthy; we are happy again! bettyg, iowa activist

[@iowabettyg]

OUTSTANDING info given by all. thank you for having this, the news videos, and ARTICLES galore on lyme/co-infections!! i'll share more info in a separate post since minute i hit enter; it posts PROMPTLY. betty gordon, aka bettyg, iowa lyme/lewy body dementia/parkinson's activist

[@bengreek9723]

thank you dr frid ..you got my vote surgeon general. trouble getting ivig but bee venom is working some for immunomodulation.

[@gypsyhobo3016]

More would watch if you have speakers on while filming! My speakers on my phone are on max, just a whisper coming across here.

[@sharon8312]

Something I found that helps is to put on earbuds or headphones if possible, then the volume seems to be higher, I understand how frustrating when you can barely hear a video. Hope this helps :-)

[@dotl.166]

Why isn't this aired in California? I was bitten in the 60's, in Calif. Sierra Nevada Mountains. Doctors for years have said "no way it can be Lyme Disease, it's NOT in Calif." Have met so many people that have been bitten here, including some of my doctors that I am not being treated by. Does anyone know what Insurance company will cover this disease? We have Kaiser, but they do not treat Chronic Lyme Disease beyond antibiotics for 2 weeks & was told that I-Genex testing was phony by Kaiser Infectious Disease MD.

[@aprilwilliams946]

Dot L. They lied to you!

[@honeybunny4real]

Talking about prevention? Ummmmm too late, everybody already has it

[@zolochnaya]

Hi Neil. I am Borrelia +ve but was not bitten by a tick in Australia.

[@gavinosolis6493]

How about writing our symptoms down and handing them to the doctor

[@kareneichelberger8378]

Can Lyme be the cause for Lewy Body dementia even if the Lumbar puncture does not show an active Lyme infection?

[@iowabettyg]

YES; read my post above this! my husband's brain autopsy PROVES this; he was 1st WORLDWIDE for them to find these 2 diseses NEVER found together before!! read the links I have provided above. Betty Gordon, Iowa LEWY body dementia/lyme/parkinson's activist

[@kareneichelberger8378]

I need more information on this and the name of specialists that know about this also more about the LEWY body dementia/lyme/parkinson's activism in the US.

[@iowabettyg]

karen, i typed out a long reply; it went to neverland...grrr! sorry, i was never notified i had a reply to this. i personally DON'T know of any specialist knowledgeable about these 3 diseases. email [e-mail] to barbara, exec. director of ilads hq. ask her who are ilads members with this type of expertise. go to lewy body assn. site; ask question there since these 3 diseases overlap. also email tom grier ... [e-mail] who is exec. director of DURAY RESEARCH FOUNDATION who specializes in brain autopsies for: lyme, MS, parkinson's , lewy body dementia, and glioblastoma. perhaps he might know of some for you. best wishes, hugs/prayers to all, betty gordon, iowa activist

[@fourshore502]

interesting what he said about his dad. i think this is exactly what has happened to me. at first i had some weird infection unlike anything ive experienced before that seemed to be causing all kinds of symptoms for example pain deep inside of the skeleton a cold feeling in my upper back, stiff neck etc. after a while more neurological symptoms appeared. i feel as if the lyme triggered the ALS. at this point i dont feel sick like before however what remains are all symptoms related to PLS or ALS, fasciculations in tongue and muscles and stiffness in fingers. ive also been having to fight constantly uphill to get taken seriously by the doctors.

[@brewton4]

I can hardly hear what they're saying. It's too quiet.

[@k-ro8639]

I know. I can barely hear it. My volume is on Max.

[@fourshore502]

reddit is a good source for lyme info also

[@lindalane7341]

I think my brain is dying unless it is perment damage. Never given I so is it permenant Lyme does oral Clarithromycin cross the blood-brain barrier that's what I was given 2 years to treat my life I feel no better my migraines have gotten worse and I now have dizzy spells all the time and heart issues. I have no llmd anymore as money and has retired and I can't find a new one am I being left to die

[@lindalane7341]

I was never given IV antibiotics in 18 years of an infection of Lyme disease

[@iowabettyg]

linda, go to LYMEDOC.ORG looking on left side for each state. go to your state and see who is available where you live. ****************************************************** these are llmds who have websites, speak at lyme conferences, quoted in newspaper articles, etc. many NOT shown on there. they are the ones out there. email ilads hq exec director, barbara, [e-mail] to find llmds in your area. good luck, hugs/prayers, bettyg, iowa lyme activist 48 yrs. chronic lyme 35 yrs. MISDIAGNOSED by 40-50 drs. UNACCEPTABLE

[@lambchop641]

Can't hear it guys.

[@phyllismervine7030]

Check Settings on your computer. Type VOLUME into the search box.

[@sharon8312]

lambchop641 try using earbuds or headphones, i have found this to really help, hope it does for you, I really understand your frustration.

[@antoinettealbarado2693]

Not loud enough. Very annoying. 😞

[@Big_Mouth_prick]

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