Lyme Story #2 - Jonah Cummings, Living with Lyme

“I woke up with a real discomfort in my chest and I had this weird sensation in my brain.” Le Moyne college junior Jonah Cummings shares his journey with Lyme disease and carditis through the lens of his sister Anna Cummings, Cornell senior. Anna created the video as part of a project for a Communication practica course called Writing and Producing the Narrative in Digital Media with professor Christopher Byrne.
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[@ehetnar]

Thanks for sharing your story! So many people don't understand the complexities of Lyme disease and what we have to go through in order to heal. Glad to hear you are doing better and that you were able to find the support and treatments that helped you get to where you are today.

[@deborahkish5411]

I was bitten by an infected tick in 1986. I had a bull's eye rash but there was nothing much known about Lyme disease then. I became very sick after 3 week's of the bull's eye rash. It took 27 years to get diagnosed with Lyme disease. Lyme destroyed my jaw joint and left mandible. I had a total jaw joint replacement and mandible replacement. It was a 9 hr surgery with 2 surgeon's. My mouth was wired shut for 3 and a half months. I still suffer from Lyme disease and was told it's late stage.

[@jaygarret2377]

I feel you Jonah… people like you help others. I been through it too. Thanks for this

[@g-unit67]

Wow. Very traumatic Lyme presentation. Every case is different. I’m glad he didn’t get horrendous lesions like some people do.

[@sajhaeden8021]

Oh honey, I understand.

[@bratgirlrules8094]

Ty for sharing!❤ I now remember the weird mind thing. I have been " sick as a dog" since April, after a tick bite. I had the bullseye rash and I seen it move through my body. I took pictures of it all and also wrote down my symptoms. I lost my appetite, I was soooo sick, tossing cookies and really sick. I've lost 15 lbs and still losing😢. Igenx is the best place to go for the best testing for true results, imo. It's not covered by insurance, which hurts, bc now I have to wait to save up the $300 or so to order the test. In September/October I realized all my symptoms and pictures are in line with Lyme disease. You are in my prayers, God Bless ❤

[@stamureanbianca1689]

Please see a lyme literal doctor

[@l.c.345]

Seems like you would have benfited from been tested by reliable labs like igenex and also for co-infections. Also 200 mg a day of doxycycline does not kill lyme it only keeps them from reproducing, you need 400 mg per day-or that was my program from a Lyme literate physician last year but they keep changing the protocols. I've had close to 30 embedded ticks so basically I'm too far gone for any help. No one even spoke of Lyme disease decades ago.

[@BruceSimons-xh9ze]

He does not have Lyme. Thank you

[@jiayouchinese]

Yes he does, he has the symptoms of it.

[@Josue-xd5ru]

You never had Lyme so you can say shit. Thank you :)