Making Sense & Science of CMT Symptoms

“Is this symptom related to CMT?”
This is a frequent question asked by many individuals living with CMT and their loved ones. Most of us are familiar with the most common symptoms of CMT, such as foot drop & hand weakness. However, many less-recognized symptoms can be just as disruptive to our lives but have not yet been studied or linked to CMT; the rarer the symptom, the more uncertain and isolated we may feel.
How do we know if our symptoms are CMT-related, and how can we drive research to better answer this question?
“Making Sense & Science of CMT Symptoms”
This 90-Min LIVE Webinar will include:
Is my symptom CMT-related?
CMT symptoms checklist
Most common CMT signs & symptoms
Less common symptoms
Finding support from Patient Resources
The importance of converting CMT-related social media discussions into structured queryable data
CMT Advocate Kenneth Raymond shares his experience & expertise
How does HNF turn symptoms into science?
The latest CMT symptom stats
How GRIN improves CMT clinical trials
NEW Platform demo - Creating an account
Sneak peek at CMT surveys
How data is shared & used by researchers & industry
LIVE Q&A
If you have questions for any of the presenters, please find their email addresses below:
Allison Moore: [e-mail]
Estela Lugo: [e-mail]
Joy Aldrich: [e-mail]
Kenneth Raymond: [e-mail]
Below are links to the many resources we mentioned.
Symptom Checklist www.hnf-cure.o...
Neurotoxic Drug List
www.hnf-cure.o...
Join GRIN
grinx.acrossma...
HNF Patient Resources Section
www.hnf-cure.o...
Kenneth’s Book
www.amazon.com...
Thrive Guide
www.flipsnack....
We appreciate your participation and are grateful for your support of HNF!
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