Malcolm and Barbara: Love's Farewell (Alzheimer's Documentary) | Real Stories

A talented composer, husband & father, Malcolm Pointon was diagnosed with Alzheimer's. Barbara, his wife, could only look on as the weeks and years took Malcolm further and further away from her.
This BAFTA-nominated documentary explores the effects of Alzheimers and Dementia, which affects 1-in-3 older people.
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[@terencedavis4141]

I have just read that Barbara Pointon died in 2020 shortly after breaking her hip. She had been suffering from dementia "most probably Alzheimer's" for the final two years of her life. She was correct in saying that life isn't fair. She was an absolute angel and may she rest in peace.

[@nolagirl7082]

Oh that’s so tragic! Thank God it was the last two years and not 15 years like her poor husband! I hope Barbara was able to find some sort of piece in between 2005 when Malcolm died and around 2018 it when she got dementia

[@blindsey1043]

trust me be glad life isn't fair we would all go through this if it was as horrible as this sounds glad that this isn't every1 fate it better when they don't know sad for the family tho

[@kimmoore0427]

If sure hope that some family took as good care of her!!!!

[@angelbabysqueaky3985]

I'm so sorry for the couple, .What they had is a terrible. My Mother and Aunt had Alzheimers is really a long goodbye. My mother's was shorter, but she was 99 yrs old when it. really got bad, shy died at 101 yrs old. My aunt suffered for over 20 yrs.

[@KristiLEvans1]

@@angelbabysqueaky3985 oh! Your poor aunt!! And poor you all. 💔

[@BenKellyMusic92]

Paul Watson needs to be given credit as well. He tread a very fine line between becoming almost a surrogate family member and remaining impartial for the sake of balancing the tone of the documentary. The result is utterly visceral. Well done Paul!

[@nannygoatj]

She herself was diagnosed with Alzheimer's in 2018, and died June 21 last year (2020). What a heartbreaking reality this program presents us. He lived for 16 years after his diagnosis, she, for two. May their sons and grandchildren be delivered of ever having such a diagnosis or life.

[@CMoore8539]

I agree.

[@Joliebebe2001]

Amen🙏🏽✝️

[@susanwarner8901]

Barbra deserve more than a medal for all her her beautiful qualities, love, patience and dedication to the man she loved so very dearly. God bless you, Barbra I am sure you made a difference in helping your husband Malcolm to be in true peace knowing you cared so deeply for him.

[@marygriffin7106]

0

[@beckyshebesta3567]

She passed away I believe 12 years later, from the same thing. Just so sad. She was a remarkable woman.

[@arrivingelsewhere1200]

Good god. My mother has Alzheimers at 97. I wish her grand old age to take her before the awfulness takes over. Such a shame this wonderful lady had the same.

[@Shaz73]

@@beckyshebesta3567 oh god no 😔

[@pinkcats7533]

She honored her vows, "in sickness an in health" very rare thing these days

[@lindauribe6872]

My husband was hospitalized the last 3 months. Then he passed away. He had cried Please don't send me away. I only did when he collapsed. I spent days beside his bed. I just lost him moñths ago.I cry a lot. We were married 38 years.He was a cop for 33 years.I never want another man I am75 and get his full retirement if I never remarry.I have my son with me.I know your pain

[@jack_knife-1478]

God bless you🙏

[@fallingleaves2672]

I'm so sorry for your loss. I lost my grandfather to it in 2012, and he raised me in place of my father. It's so cruel and nothing can really prepare you for how you feel both during and after the passing. I found solace in trying new activities, which in my case were things like acrylic painting and nature walks. I also try to smile as much as I can because it helped me see just how precious every moment of my life is. I hope you find inner strength, peace, and happiness. God bless.

[@victoriajo5683]

@Ron Harris I was thinking the same the way her wording was but idk.

[@darblanchard3968]

God Bless you 🙏

[@terencefield3204]

I doubt it helps, but you are in my heart and I would hope you find a happy time and good memories. Sorry.

[@raymondburton1838]

I'm literally over here crying over a man I didn't even know. Wow. As a healthcare provider myself this story really just hit me really hit me hard in the heart.

[@laverdajota8089]

Raymond Burton Me too , I’m sitting with tears in my eyes

[@lauren-bq7nb]

Laverda Jota me too, towards the end it was hard to watch

[@NinaNina-tm2mo]

Indeed very sad. Crying too. I can imagine those who went through this illness without anyone to care for them. Malcolm was blessed to have his wife Barbara to the end.

[@marie-angellove6074]

😭😰 I wish they could have find some kind of cure one day because this so painful for everyone and even harder for the family and caregivers.

[@JnTmarie]

💜💗🙏🏻💜

[@Nyquil5]

I lost my father to Alzheimer's in 2001. It was a five year journey for him/us. Thankfully he received excellent care (my parents lived in an apartment in a fantastic senior retirement place. My mother lived ten years after his passing and her mind was completely sharp til the end. From what I understand we were very fortunate as dad never showed any aggression or anger. Before Alzheimer's, he was a gentle soul and that never changed. He was much different from some of the behavior we see from Malcolm in this video. I'm very grateful not to have experienced that. Barbara took so much on herself, she was in dire need of respite throughout. I'm sorry to hear about Barbara's passing from the same illness.

[@katieoggy]

He looked a completely different man towards the end, so skinny, poor soul x His wife is an inspiration, a true hero, my heart goes out to you

[@amymamabear5227]

People talk about others losing the light in their eyes, it was very apparent with Malcom to me.

[@dee-deerichman9181]

What a beautiful woman.

[@airwolf61970]

I live in America and old people are cast away and all but forgotten. What a great woman to honor her husband till death. Salt of the earth...

[@chadbailey8152]

Sad, many will never have someone to care for them, weather never married, wife doesn't care, no kids, other dies first. Will Barbra have someone to care for her. It's all sad!

[@airwolf61970]

@Southern Mema you are not the norm. Just because you did the honorable thing doesn't mean, most Americans do. I've seen old people cast aside to die in a facility. Outa sight outa mind.

[@dennysmith7862]

"In sickness and in health... 'til death do us part..." wonderful to see loyal love ... kudos to his family for their caring ...

[@beckyhodges4185]

Denny Smith ,this lady was full of abounding love for Malcolm.She had to have some wonderful years with him in the past.I guess if u get enough love and caring from someone you can give back without limits.The end of this was difficult to watch.

[@njsmkmmsthatsit3518]

Not if it's killing you too. Like Malcolm my father must have had this from a very early age.It takes a massive toll on the carer and in our case, the children too. Of course no one expects a young, otherwise very healthy and active man to have Alzheimers so it took forever to have it diagnosed. The whole time we thought my father was just an awful person and that our mother was out of her mind for staying with him. I mean we didn't even remember him being normal so how else would we know he hadn't always been, well lets just say not great. Anyway apart from the violence aimed at Barbara, my mother wasn't physically abused by my father, he actually started out a very aggressive person to every one and became softer and softer as the disease progressed. Oh and yes like Malcolm the total opposite to his normal personality (as we knew him any way) My mother had an autoimmune disease and another very painful condition besides that. The absolute worst thing for autoimmune diseases is stress, it makes any autoimmune disease worse and my poor mum had plenty of stress with my father and her mother needing to be cared for at the very same time. My mother had both my grand mother and my father to look after together. Them both being the most demanding and least appreciative creatures on earth. My father with Dementia and my grandmother....... Well let me explain. My grandmother was 83 and had been living on her own and so was doing very well. She got unsteady on her feet and was told to use a walker. She went out one day without my mother and apparently wasn't using her walker and fell and shattered her knee. The Dr's wouldn't operate to fix her knee because they thought she was too old and would most certainly die on the table. Effectively them not wanting to operate on her made her bed bound and because my mother absolutely couldn't care for her physically, any more she had to go into a nursing home. My mother was physically unabIe to care for her once she couldn't walk, or do much of anything for herself any more. ( my grandmother lived until she was 98 and did end up having the surgery, which certainly didn't kill her) Unfortunately because she had been bed bound for too long, and she never walked again and had to stay in the nursing home. My father became too much for my mother too. After only 1 month being in the nursing home another man in the nursing home attacked my father and he fell and broke his hip. They thought he would be fine with surgery but all the drugs they gave him finished the job that Alzheimers started. We all think as terrible as it was a broken hip was a blessing in disguise. It was better for him and every one else that it didn't drag on and on, because I am sure my mother would have carried on caring for him until it killed her too. I don't think any one one would want that to happen. She deserves to enjoy the rest of her life. She had cared for others since she was 8 years old, would you people have had her die still caring or maybe die even before my father?

[@njsmkmmsthatsit3518]

@Southern Mema Thanks, you seem like you are an empathetic as well as sensible person. There was so much more to our story that could speak to my mothers decency. Life is so much more complicated than just staying with your husband no matter what. If I believed in an all knowing, all loving God, or any God at all I would say that he saw my mother was going to kill herself trying to care for both my father and grandmother at once, so he acted. I don't believe in God though and I was just glad my mother got a break for once in her life.

[@njsmkmmsthatsit3518]

@Southern Mema Thanks for your comment. Oh so much more to our story, than the simplification I wrote. You sound like a sensible and empathetic human being.................so rare in the comments section of KZbin, So glad to have come across you.

[@mircat28]

You've evidently never cared for anyone with dementia.

[@MrSoaringMan]

Thank you for adding this film. I've not watched it since broadcast for personal reasons. But tonight, for whatever reason, I decided to, despite owning my own copy on DVD. Which I've never watched. The story behind this film is just as important as its message, contrary to the media hell that surrounded its second release in 2007. Paul Watson painstakingly filmed the family over many, many years. There was no direction or mission, just the truth of this horrific illness. Paul turned up and pointed his camera at what happened, however brutal. He even chose to film it by himself, no lighting or sound person - just him and a camera using, at the time, the latest Sony digital camera. Not to be clever but because he cared that Malcolm would not react well to a full film crew surrounding him. Paul was a family member. Paul is a wonderful, sensuous and caring filmmaker - not the hard story-chasing hack some would have you believe. He points a camera and lets the pictures tell the story. Malcolm is my father. The music on this film is all his composition. I am his youngest son - the one who did 'nothing' and kept 'putting it away'. Still doing that!! Paul has my utmost, utmost respect for this film. He is a gentlemen, an artist and a filmmaker only ever interested in the truth. Thank you for putting the film up here. However painful it is, this film lays bare the truth of this evil illness. People, and the powers that be, need to understand how brutal the world of Alzheimer's is.

[@RashaHilal]

My heart goes out to you and your family, specially your wonderful mother, sending you my love all the way from Egypt

[@stacietexify]

God bless you and hello from Corpus Christi, Texas!

[@ddubfan]

MrSoaringMan thank you for sharing your Mom and Dad with us. My grandma had dementia and it was so sad to watch her just slip away. She was gone long before she passed away. Such an awful disease. Beautiful documentary 💕

[@Mans_Ruin1313]

I'm sorry for your loss. Both of your parents seem to be quite amazing people. It must have been a very neat childhood. Take care

[@freedomworks521]

MrSoaringMan Thank you for sharing. It brings a very clear, concise, and often painful reminder to love as much as we can because we never know when we will not have our loved ones taken. I commend you and thank you. God Bless You and loved ones.

[@happyskye6713]

I am going through this right now with my Husband. I am his caregiver 24/7. He has early onset Atypical MSA Parkinson's. No help, Medicaid only covers 1 hour per week. Not sure how long I can do this. A very lonely place to be. God Bless you for taking care of him as long as you could💜

[@sandgrownun66]

You just gotta love for profit medical care!

[@ksbordersjville]

@@sandgrownun66 how cruel. This dear lady deserves compassion not a political statement.

[@sandgrownun66]

@@ksbordersjville "how cruel." No! The way big business and greedy shareholders profit off the backs of the sick in the USA isn't cruel. It's a bloody disgrace! How a so-called "civilized" country can treat its people this way is beyond comprehension. What has politics got to do with basic decency and humanity? Why not just keep bare-faced Capitalism away from the suffering of others?

[@rosierosiecheeks768]

Big virtual hugs i lost my dad to this horrible disease I felt I lost a bit of myself when he left he was one of the most beautiful men I've ever had the pleasure of knowing and proud to be his daughter.

[@johnsonjack4611]

*DEMENTIA CURE:* Thanks for sharing some of your own story. I am a 74-year-old man, I was diagnosed with Alzheimer’s disease 15 years ago, I always like to use my experience in a positive way to educate others. It is common knowledge that Alzheimer's robs people of their ability to remember. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. Homeocure Worldwide is natural cure medicine. The professional had earlier told me there is no cure, I asked a professional to explain this to me? They said it is a miracle. All the patients I have directed to Homeocure Worldwide return with thanks. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, contact Homeocure Worldwide

[@MICKEYISLOWD]

Now you have seen what unconditional love looks like. I stand in awe of you Barbara.

[@barrywhitley2535]

What a wonderful story of love, loyalty and devotion. You are an amazing lady Barbara.

[@LynetteA68]

She passed away in 2020 after falling and breaking her hip. She to was sadly diagnosed with dementia in 2018!😢

[@barrywhitley2535]

So sorry to hear that. Rest in peace Barbara.@@LynetteA68

[@michellededmon5045]

This is a true example of a woman honoring her wedding vows, despite his physical aggression, his hateful words to her, and “losing” the man she married. Barbara, you are an inspiration

[@janetwright9700]

I worked for twelve years looking after people like Malcolm in residential care. I am in my late sixties now, and knowing what I know about the reality of dementia I will take my own life before I lose the ability to do it.

[@officetechtyping]

I agree.

[@gilbertranch1906]

I'm with you. There are worse things than dying and we just watched. RIP Barbara!

[@brandyhuffman8672]

Same, especially after years of being a nursing home CNA.

[@kaydee.shayd.]

I agree with you. I'm watching my mom go through this and she is only 61 years old. I do not want to die like that.

[@mandlin4602]

I worked just as a cleaner in a care home aged 17-23. It’s worse than cancer the only death I saw that was worse than dementia and it was a lady with every arthritis in her whole body who slowly died in agony in bed. With bed sores to the bone all over her back. It’s horrific, human enthansia is much more kind than keeping you alive that sick.

[@dennysmith7862]

My mother's final day... I begged the doctor to please end it as had this been my animal suffering I cld put it out of it's suffering so how much more so my beloved mom... he angrily said he cld'nt do anything even when I informed him that as a Nursing Sister she admitted to administering extra morphine to end the suffering of a patient... he looked at me and shortly after that she fell into a coma... I thanked him... I wld never divulge his name but am still grateful for his compassion....

[@mefford67]

Dementia is a "living" death... you witness the inexorable loss of everything you hold dear about your loved one. What's worse is fact that you can do NOTHING to stop or slow down the progression of the disease. It truly doesn't matter how much you love that person because dementia is a incredibly cruel and heartless disease.

[@nikkidimick947]

@Denise Vasquez Lemrick alzheimers IS a form of dementia. Smh.

[@johnsonjack4611]

*DEMENTIA CURE:* Thanks for sharing some of your own story. I am a 74-year-old man, I was diagnosed with Alzheimer’s disease 15 years ago, I always like to use my experience in a positive way to educate others. It is common knowledge that Alzheimer's robs people of their ability to remember. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. Homeocure Worldwide is natural cure medicine. The professional had earlier told me there is no cure, I asked a professional to explain this to me? They said it is a miracle. All the patients I have directed to Homeocure Worldwide return with thanks. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, contact Homeocure Worldwide

[@ucanleaveyourhaton]

Heather Mefford , you said it ! A living death. It’s appalling.

[@mircat28]

There is more than one kind of dementia. Only Alzheimer's is a death sentence.

[@mircat28]

@@johnsonjack4611 this is a scam. If it was real the whole world would know about it.

[@stephanierichards7228]

How have people disliked this video? It’s suppose to teach people and show commitment n love

[@jojob211]

The dislike may not be about the video itself. It might be about loathing the condition.

[@hayleydryden3137]

It's sad that's why all the dislikes..

[@bacicinvatteneaca]

Maybe somebody thought that showing that poor man babbling was disrespectful

[@ucanleaveyourhaton]

Stephanie Richards , ... I’ve stopped caring what goes through people’s minds when they dislike. I’m sick of having to digest everyone’s opinion on every subject. It was not like this before the Internet. It can be overwhelming. And after watching this video, I feel gutted, so I just couldn’t care less about stupid ppl and their opinions on everything. They must think that anybody noticing their feedback, will give a toss about it. Nope. I don’t.

[@kimberleymccabe4151]

Because most people in the world are evil heartless people that shouldn’t be given the chance to be happy it’s disgusting and horrible

[@heatherzlotyh7267]

Where were their 2 sons???!!!! How could they let their mother suffer to exhaustion that way??? They should be ashamed of themselves. That woman gives us all an amazing example of unconditional love that marriage should represent

[@CMoore8539]

I agree.

[@pattyfluegel7816]

As the filmmaker pointed out, there was in home help available but she refused it. This was her choice.

[@elainemarra9790]

You tube Dr Tam Cummings

[@cookiezandcream5434]

did it come to you that they have families of their own they have to take care of. i bet they visit from time to time.

[@lindasharp8523]

Probably working all hours God sends in this terrible day and age.😢

[@kennydo369]

What a loving wife to be by the side of her husband to soothe him care for him body and soul. God Bless You both.

[@claire99ism]

What an inspiring, brave women Barbara is.

[@steveellis7195]

claire99

[@dizzee6089]

claire99

[@lynette599]

I'm afraid she was NOT brave when it really counted...she put her own needs before Malcolm's when she lets 'love gets in the way' of mercy...she couldn't let him go (due to her own selfish need to keep him alive even though he is suffering to the extreme.). IF she was so brave, she would have let him pass away sooner with the little dignity he still had left.

[@Danielle33384]

Lynette what was she supposed to do? Overdose him? Smother him in his sleep? Have him starved earlier on so he would’ve died faster? I mean honestly, what other humane options did she have? No, she wasn’t selfish! If she was selfish, she would’ve thrown him in a home and forgotten about him. Instead she loved him and stayed with him throughout it all.

[@wollycatapillar404]

@@Danielle33384 people dont abandon their love ones when in a care home. Some cannot cope anymore

[@gailswetman]

The brain is amazing. He can’t take care of himself, yet plays the piano wonderfully. OMGOSH, poor Barbara !

[@caheddr]

Thank you for sharing this. My mother was diagnosed with Alzheimer’s, but, fortunately, she only suffered a year of it. While I miss her, seeing this makes me grateful she never needed to go this far. It’s heartbreaking to watch someone once strong and vibrant falling so far from themselves. Love to Barbara.

[@valdixon6076]

caheddr qd

[@joyceengland8781]

Falling so far from themselves. That’s so powerful.

[@theteddy906]

Even towards the end, his skin still looked in remarkably good condition. It is clear that Barbara cared for him so much despite how difficult he was to care for. Rest In Peace Barbara and Malcolm.

[@fatimamelo3858]

Brutal end of life! And no one know how it will for us 😢

[@marciaclegg6005]

I have taken care of many people in a nursing home just like this poor soul, his wife is a saint,

[@joannesharp8825]

Same here x although it's heart breaking its an absolute honour for me and I love our residents like family x have such deep love and smiles even though they are going through this, bless them

[@amymamabear5227]

I lost my dad two months ago. He was diagnosed with slow progression dementia several years ago, but 3 weeks before he died he was diagnosed with stage 4 metastatic prostate cancer (by the time it was found it was in his bones, brain, and most internal organs) My sweet 15yo son made the statement “I’m glad it was something quick that took him and he got to go knowing who we all were and that we were there, and he got to take most of his memories with him”

[@amymamabear5227]

Mark Haywood thank you for your kind words and thank you for a lifetime of giving to others. I also hope that soon that option is available to people, I’m here for you mark,

[@johnsonjack4611]

*DEMENTIA CURE:* Thanks for sharing some of your own story. I am a 74-year-old man, I was diagnosed with Alzheimer’s disease 15 years ago, I always like to use my experience in a positive way to educate others. It is common knowledge that Alzheimer's robs people of their ability to remember. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. Homeocure Worldwide is natural cure medicine. The professional had earlier told me there is no cure, I asked a professional to explain this to me? They said it is a miracle. All the patients I have directed to Homeocure Worldwide return with thanks. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, contact Homeocure Worldwide

[@lourdesdelapena1852]

Jesus mercy,Mary help !...🙏🏻❤️🙏🏻

[@user-vd5gj4nd9u]

❤

[@madeleine8977]

It is so heartbreaking for Barbara, losing someone you love a little more each day.

[@leereadman9940]

its an evil disease. it distroys the person ever so slowly, inch by inch. l live with my parent when l was in my 20's after my marriage fell apart while there my grandfather was moved in. it wasnt too bad at the start, but slowly it turned him into a stranger. he was put into a home. he didnt knows us for awhile then he did. it was so very sad, heartbreaking. all the best to all those carers and families who go through this its a nightmare

[@ingridakerblom7577]

It's horrible.. worse is the early onset alzheimers.. Imagine having a loved one in his/her 50s diagnosed & living with this, whilst kids graduating, getting married & having kids themselves.. Truly awful..

[@poppykok5]

I find this story to be so profoundly, deeply, emotionally painful that I literally feel weak...How I long to wrap my arms around Barbara in a comforting & loving embrace...I pray she's made great strides in healing her heart, & that perhaps she's found such enduring love again...

[@ddubfan]

The honesty of this documentary is heartbreaking and beautiful at the same time. Wow.

[@KristiLEvans1]

What a woman. Barbara Pointon is a hero. May she Rest In Peace.

[@peterroberts9900]

My mother is exactly the same. She’s 96 and it began last year. It’s been quite rapid. I’m 67 and her son, and moved back from the USA to live with her and look after her when she had cancer years ago, and now I’m taking care of her with Alzheimers. I don’t regret it and declined help which was offered from the District Nurses and Dementia Unit as my mother gets distressed when anyone visits. Yes it’s difficult when she gets aggressive and violent, but I’ve had to become more detached when this happens and not take it personally. She used to teach and it’s heartbreaking to see her now, a shell of her former self. She is sometimes coherent and can have brief discussions, other times screaming and talking gibberish, cuddling a giant toy dog. I don’t see this as a duty, just a journey we are completing from when she looked after me, and now our situations are reversed. I look for no pity or praise, it’s just a fact of life, and I’m fortunate to have had so many good memories of her. None of us are here for very long, and it brings into reality how pointless our accumulation of possessions are, and the need to prioritize. In the end there’s only love that’s left, and ‘our little lives are rounded with a sleep’.

[@KristiLEvans1]

This is such a beautiful post, I’ve saved it. Christ be with you and your beautiful mother.

[@peterroberts9900]

@@KristiLEvans1 thank you, and God bless you and your family, always…

[@ggav2356]

You are so correct. Thanks a lot for sharing a very beautiful true account of caring for your mother and the reality of life that Love is truly what plays the role when a person is no longer able to take care of himself.

[@lindasharp8523]

What a lovely son you are. She must be so proud.

[@beverlyanne5699]

Love and care has to be unconditional. I see this and I truly am homesick for my Nursing days at the Geriatric homes. I felt I had a place there everyday, the warm smiles and greetings no matter how jumbled made sense to me because I would look in their eye's and search for their light. You grow so much in your youth from learning how precious life is, to have sweet and gentle compassion. I still have a tender place for elderly in my heart. The wonderful stories I was blessed with from some of the residents were the most wise, profound, hilarious, and memorable. What treasures we have in these aged persons, what blessed treasures. May God bless and ease their burdens.

[@joyceengland8781]

You’re a beautiful person.

[@Suga29838]

I watched my great grandma, grandma and grandfather slowly deteriorate from it. I lost the three people in my life who truly cared and loved me. 1993, 2007 and 2016 are the years I lost them. It broke me when I visited my grandma in the nursing home and she was afraid of me because she didn't recognize me. It absolutely broke me.

[@ggav2356]

My mother has dementia. I feel my mom left long time ago. I miss so much her previous personality I miss my Mother so much! Because she invested time and gave so much love, respect against all odds to me, no judgement only unconditional love . My mother is so loved, respected and looked after now that she can no longer take care of her self . It is challenging to care for patients with Alzheimers. They need love and unconditional love. Caregivers need support and a break as well. Take care folks.

[@moondude7]

This is what dad went through while he looked after mum.I called him after I watched this documentary and I talked to him how much he means to me and how much I love him and we were talking for 3 hours ❤️ Thanks !

[@valeriereinhard2790]

It’s so very familiar to me. I helped care for my dad as he grappled with Lewy Body Dementia. It was a nightmare. So much of what poor Barbara dealt with is exactly what we dealt with. The only difference is my dad would have ups and downs, with periods of mental clarity and physical normalcy for several weeks at a time, every so often, right until the end. My poor dad expressed such fear and anxiety when he was able to express it. This breaks my heart, and I wish that no one ever had to endure such misery. It’s a monstrous disease.

[@steveclark1303]

Hi, Valerie, My Dad Kelvin suffered from Lewy Body Dementia and died in 2018 Aged 80 I was his first born Son, and as i lived close, helped my mum care for him. Watching his physical decline and general sadness and confusion. My mum did have a hard time looking after him but wanted to keep him at home as this was his wish and my wish too for him to be at home as it was home! Much of my help meant I would drive him around daily if I could, hold his hand while walking, help dress and go to the toilet. The Palliative care in his last week was so good and comforting knowing I many changes to say goodbye, now I remember his faith, love and family life. 😊

[@donnahague8983]

I am just shocked that they are both in their 50s, I would have guessed in their 70s...man that really took a toll by aging them both...so sad.

[@ailleananaithnid2566]

I thought that Malcolm was in his 70's. Barbara? At least in her 60's. This illness certainly took its toll on each of them. It must have started in his late 30's! He kept mentioning a strange 'vision.' So whatever his Alzheimer's is, it began with hallucinations. There's got to be some kind of abnormal deposit of proteins that the body attacks, perhaps similar to an autoimmune process.

[@BosisofSweden]

No, Barbara was born 1939 and Malcolm 1940. He was 51 when diagnosed with Alzheimer. At the time they documented this they are in their late 60:s and hen was 67 when he dies. Barbara died recently in 2020 at the age of almost 81.

[@thegracetofollow4194]

English (British) people usually looks older than what they really are I remember when i was 10 when i lived in Belgium i had a teacher who was pregnant. I thought to myself why this old woman pregnant come to find out she wasnt even in her 40tis she was in her 30tis But yea english people age faster than thier age

[@gazels11]

@@thegracetofollow4194 it's the harsh cold weather I think. It's so drying on the skin.

[@sammie20]

my darling husband asked me two days ago...'you won't leave me?'...He has been diagnosed with Alzheimer a little over a week ago...I responded '''I would never leave you Darling"...His smile and beautiful eyes...showed how comforted he was...23 yrs together....I suspected he had this illness for nearly 12 yrs...but refused to see a Specialist...now, in my research, I understand and feel so guilty for I thought he lost all common sense, in denial, agitated, etc etc...I need to forgive myself and just show him Grace and dignity as he deserves...

[@judithshalders6560]

My mum was diagnosed with early onset Alzheimer’s,the first year she lost all her friends as she became paranoid and combative and frankly very hard to manage. She was always threatening to kill her self and eventually she did by throwing her self down three flights of stairs,the long goodbye they call it😞

[@aprillovejoy4567]

I hope you are doing well? I had to realize that there are some things I can not change

[@timechangeseverybody3608]

Omg. I'm so sorry. That's horrible.

[@geoffcrew6732]

God bless you for taking care of him and not abandoning him as you surely could have . No one of good conscience would fault you for that.

[@amylu5567]

Oh my gosh, I cried so much, it's so sad how cruel life is sometimes

[@maryellenblount6376]

The fact he was still able to play the piano is amazing and also troubling because he couldn't do much of anything else. Seeing him be combative with Barbra was hard to watch.

[@angelbrokenwingmedicineflo6798]

He was so young for this to happen. Barbara was so good. I'm now so very sad. I took care of my Mother. This reminds me of her, I miss her everyday.

[@michellededmon5045]

It’s amazing how much music is an innate part of him. Even though his brains and communication are failing him, he can still play the piano so beautifully.

[@janhorton5197]

OMG, what a tragedy for both of them. RIP Malcolm and Barbara.

[@kimlines9905]

Barbara passed away June 2020 aged 80. So sad to hear this. She also died of dementia 😢 RIP BARBARA 🙏🕊️

[@ganniepeek5315]

This is truly heart breaking, my Grandmother which was my Mother's mom had Alzheimer's, my Mother had Dementia. And yes, it can run in families, 2 years ago my Dr told me i have Alzheimer's. Oh i can see some changes, but i told my Dr that both Mom and my Grandmother took meds, it didn't help, so I told him i don't want anything, he smiled at me and he agreed with my decision. I gave care to both of them, and i have no regrets. May my sweet Mama and Granny Rest in Peace. My Father who passed with cancer, may he Reast in Peace also. ❤️ 🌹 ❤️

[@bjsuggs2122]

Very handsome man, he has mischievous eyes, I bet they were a hoot when younger. My mom had Alzheimer's, very horrible diesease

[@sunnsyne]

God bless you, Barbara. R.I.P. Malcolm. A true love story.

[@sandgrownun66]

If this is your god's blessing, then what is your god's wrath?

[@bhumphries1360]

I hope their children know what a wonderful woman their mother was. Truly someone who helped make the world a better place for others. May she and Malcolm rest in eternal peace.

[@nativeopal6149]

My mom had sundowners. It was the hardest thing to watch for her to go thru. When she past I was called horrible things by people who didnt understand that it wasnt a sad thing for her it was a relief because she wasnt the person who raised me. I Love her....

[@MissTeaxox]

I never comment on KZbin videos but this documentary is by far the most touching , emotional programme I’ve ever seen ❤ what an amazing women Barbara was ♥️ Alzheimer’s is an evil disease !

[@janheard3826]

It’s amazing how quickly Alzheimer’s sufferers age. He looks like a bent over 80 year old rather than someone not even sixty.

[@martinasikk6162]

He is malnourished, he can’t eat. Makes him look older.

[@sanchezmesther]

Scary disease but Malcolm was blessed to have a wife like Barbara.

[@lisascott2449]

I’m actually crying for someone I never met. This story made my heart ache. I’m so sorry for your loss.

[@jossalyn5632]

I've been a nurse for 15 years and I work at a center dedicated to Alzheimer's Disease. It's such a horrible disease that impacts everyone.

[@Heeter_23]

As a nurse, I remember a family member becoming angry at the care staff for not doing things to her satisfaction, she was always so demanding and angry at us. We never had enough staff. The family just couldn't handle it and decided she could give better care at home so he took her hubby home to care for him. Three months later her husband returned to the facility. The wife looked so tired and haggered. She never complained to the staff again. This is the hardest but most fulfilling job I've ever had. 😔

[@Danielle33384]

She’s such a wonderful woman! She never abandoned him and loved him the whole way, through the good times and the bad!

[@deronbennett6431]

I think that anyone that crosses the street to avoid saying hello to them or chat when someone is in a situation like this and (she might just want some comfort by a friendly talk ) is utterly disgusting and it really shows your true self you should be proud We need more like you around

[@sharonsnow6295]

I call this 'The Walking Death.' My father died of Dementia on February 15th of 2016, my mother died of it on January 25th, this year. I prayed my mother would die before she had to go into the area where she would be locked in, He answered my prayer. My mother was riddled with osteo-arthritis, even with fentynal and oxycodone she found no relief. Dementia is such a horrible, cruel dilemma, you are constantly blind-sided by the behavior of the person suffering memory loss. I felt so sorry for my parents, I have siblings, but somehow it fell to me, the oldest to do the physical caring for them. Taking my dad's keys away from him was so hard to do, because I love to drive, he kept telling me that, I think he is stupid! In this small town my parents knew a lot of people, I hadn't lived here for 47 years. My dad turned me in to the police three times for 'stealing his car keys.' One time he left home and walked the block to the hospital and they got him a taxi to take him to the clinic so he could tell his doctor on me. He had to go five blocks to the clinic, when I got there, the taxi lady seemed to know I was looking for him, she said, "He owes me eight dollars!" There he was, sitting in the waiting room, he looked a little smug, but didn't give me any trouble in taking him home!! I could write a book about my experiences, like when my mom called me to come over and look at this stranger in her house. I went over, she was in the kitchen, she whispered for me to go in the living room and see if I think that is my dad. He said, "Thank God you are here I'm sick of that woman making me identify myself to her!!" That went on for some time, until one day she told me to take my dad his lunch, I asked her where he was, she said, "Your dad is in the living room, can't you see," just like that!! To watch my parents in their confusion was so painful, I could see the expressions of bafflement on their faces! I told my mother it was my privilege to care for her and my dad and it was! I am 75 and my parents both died at 94. I am concerned when I forget things, I tell myself it is the Fibromyalgia I have suffered for years with, it does interfere with your thinking, especially when I have what is called, 'Fibro-Flares. Life can most certainly deal out the blows, it can change our lives in the wink of the eye. My salvation is in knowing I did the best I could for both of my parents and I know for a fact the spirit absolutely lives on!!

[@judyfalin4213]

Sharon Snow k

[@judyfalin4213]

Sharon Snow o

[@LilyGazou]

Sharon Snow bless you for doing your best🌹

[@satpurush2592]

Sir, you say that you could write a book about your experiences... I thought you should probably do.. not for yourself but for others, if you can it may help some of us...

[@satpurush2592]

Sorry.. Madam..

[@catmilf79]

This is the epitome of true love. Malcolm reminds me of my Nana when she had Alzheimer’s. She was very paranoid and frightened at first but then she found peace. She is buried on a sacred mountain in New Zealand. Please donate to Alzheimer’s and dementia research. 🌸💜🙏🏼

[@cynthiaarons9373]

Heartbreaking! Malcolm was lucky to have had a loving and wonderful wife. I hope there’ll be enough life left in her after Malcom’s passing!

[@susiethomson4483]

unless you have taken care of a loved one with this horrible disease you have no idea how hard it is. There are times they seem normal, and other times they can be very mean and turn on you. It takes a lot out of you mentally and physically.

[@SemenTheSailor]

I love how the music never leaves him. Beatboxing until the end. Rock on Malcolm

[@debraolivier2147]

Her love for her Malcolm was truly beautiful.

[@SecretaryBirdable]

Life is so sad. Why can't it be good until the end? Why do we need to suffer?

[@NickanM]

Mimi *Because we live too long. Much longer than nature created us to do.*

[@Catherine-xf3pc]

Caramelle Montserrat Not to mention toxic food, toxic environmental exposure, and chronic stress.

[@ordeliaordones2977]

Agree

[@lornawoodruff5370]

I have never held such respect and admiration for a human being like I hold for Barbara. What an astonishing display of love

[@karenmee2062]

I use to be a CNA on an Alzheimer's unit. I was hit, bit, and bruised. People putting on layers of clothes or underwear on their heads or holding dolls to comfort them. It was a very hard job. I can't imagine being a caregiver 24/7 At the end he has the death rattle, I cried too :(

[@sweetlilcollector]

“We can’t expect life to be fair when it never is” truest words I’ve heard.

[@cBearTV-]

I've worked in the care sector and I must confess looking after those with dementia especially in the advanced stages is emotionally draining, it really was for me the hardest part of the job, it often left me teary eyed and for me it was a job I could go home from & have holidays from whereas loved ones who are carers don't get to home, they are at home... I have so much respect and admiration for Barbara and all carers who care so selflessly for their relatives, it really is like a living death. Such a terrible illness.

[@johnsonjack4611]

*DEMENTIA CURE:* Thanks for sharing some of your own story. I am a 74-year-old man, I was diagnosed with Alzheimer’s disease 15 years ago, I always like to use my experience in a positive way to educate others. It is common knowledge that Alzheimer's robs people of their ability to remember. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. Homeocure Worldwide is natural cure medicine. The professional had earlier told me there is no cure, I asked a professional to explain this to me? They said it is a miracle. All the patients I have directed to Homeocure Worldwide return with thanks. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, contact Homeocure Worldwide

[@tundrawomansays5067]

Johnson Jack Enough of the advertising, “Jack.” You’ve advertised your product repeatedly in the comments here and it starts to come across as crass. You made your point.

[@ajahnariyasilo9216]

TundraWoman Says man

[@cBearTV-]

@@johnsonjack4611 please stop posting about this....at present there is NO cure so your constant comments in this comment section are completely inappropriate and actually verging on exploitative.

[@thalassophile1665]

After watching my grandmother and uncle suffer this disease and now my mother has been diagnosed. Not hereditary? I find that hard to believe. So many silent sufferers behind closed doors doing the hard yards.

[@animalsareourangels93]

God bless you for all that you did! I lost my grandmother due to Dementia. I recently lost my blessed mother to vascular dementia! She died in my arms! So sorry for your great loss 😢 I really pray that they fine a cure! Love from Canada. xo

[@sandgrownun66]

“Two hands working can do more than a thousand clasped in prayer.” ― Madalyn Murray O'Hair.

[@drakos6790]

I watched my parents die within 5 months of each other. It was sad seeing their health deteriorate over the years but they didn't loose their mind to Alzheimer's or Demintia. I could not imagine anyone that has to watch their loved one's go through such a process. It would kill me inside to watch such a thing and I commend anyone that has to go through this. God bless the families that are faced with this situation.

[@angelforanimals7809]

Drakos 67 ~ it happened quickly with my mother. At times, it was heartbreaking. I watch the fear in her eyes when even some of her children would visit and she didn’t know them. She would look at me with fear in her eyes, look to m e to be sure I was going to protect her. At times it was amusing, such as when she constantly told me how she was keeping track of her family by watching them on television as cameras followed them around...it wasn’t happening, but the things that came out of her mouth were funny. Also heartbreaking was preparing for the funeral of my sister, the youngest of my mother’s many children. My niece was curling my mother’s hair and my mother looked up at me, asking about my sister, “Do you think she’ll show up for this thing? You know how she hates these family gatherings”. I assured my mother that my sister would be there. My mother’s siblings and very close friends, started dying, there came a point where my siblings and I decided that telling her about deaths was only giving her pain, we no longer told her. Perhaps the most heartbreaking was walking into her room and she was sitting up on the side of the bed, she was making piles of toilet paper squares. I asked, “Whatchadoin mom, do you need something”...My mother looked at me and said, “I’m keeping my hands busy. You know, I’m going to die and the only thing I wish for is to see my mother before I die and take her for a walk on the beach. You could go too, I know how much you love the ocean. It’s not very far you know”. My heart shattered, my Memere had been dead for many years at that point, my mother was born and raised in Maine and as a child, she almost drowned which caused her to hate water and never learn to swim. I told her that I would check into making plans. I was blessed that my mother never forgot who I was and that when the last breath left her and she stepped through the gates of Heaven, I was there, at her side. I’ll see her when I get there! ❤️🌻❤️

[@Leeh123]

Drakos 67 my mum has dementia

[@angelforanimals7809]

katebaby100 ~ I’m very sorry to hear this. I’ll give some really good advice...when people say, “You should go home, she doesn’t know you’re here. Tell them “I know I’m here”. Please never stop praying and never stop being there for her. 🙏🙏🌹🌻🌹🙏🙏

[@Leeh123]

Angel For Animals she’s unfortunately in a nursing home and had a bad heart to 😞

[@angelforanimals7809]

katebaby100 ~ I’m sorry, that’s a tough situation to be in. Luckily, my mother didn’t ever have to go into a nursing home. I hope you visit her often and I’m sure she knows you love her. 🙏🙏❤️🙏🙏

[@deedecorte9448]

I worked in Nursing Homes and saw staff yelling at people like him. They are in the wrong profession. These people need love and nurturing and understanding. It just made me cry. They can't help it. The poor wife. What a trooper. It is hard living with this. That poor man. Love and Prayers for both of you!

[@maipoina-xk5zk]

Anyone who abuses the elderly and or children need to be euthanized.

[@jewelhaines8842]

Malcolm is my age. I just turned 57. I often think about how young I still feel. Alzheimers has got to be one of the cruelest things that can go wrong with us. I felt so sad for Barbara. I think many times, the Doctors over medicate the patients, so they don't have to deal with them. I have a mentally disabled daughter, and that has happened to her. The whole thing is just heartbreaking.

[@robinsmith3987]

Barbara you were a very devoted, patient and caring wife. Rest in Peace Malcolm. The suffering is over, at last.

[@sherricopeland6393]

was such a wonderful program to watch, as I lost my mother to this terrible thing. rest in peace malcolm and barbara you have the heart of an angel.

[@vickimarston9742]

Beautiful family and wife. As a retired nurse, I appreciate her analysis of the abuse of patients in steeling funds away from supportive care to people with Alzheimer’s and other debilities diseases. Yes, it takes much love to persist in care. Such care givers need care also. God bless you.

[@Wouldyoujust_]

Barbara is an angel, her voice is soothing and amazing. It's almost like a song. I'm not surprised she and Malcolm fell in love with each other. It's perfect. I'm so ashamed of nature, and of the fact that Alzheimer's did this to them. It's so absurd, and so sad. His son is amazingly talented and I'm crossing my fingers for him, that he did well for himself with the absolute talent that his dad imparted on him. The entire family is gorgeous. Sad, but gorgeous. I had a family member in this position, and it was heartbreaking. They did the best they could, and more than most. I admire them.

[@KC-rf7dv]

I cried after watching this. The poor man. He had an amazing wife. May they both rest in peace.♥️

[@ricdavid7476]

Malcolm looked at the end like my dad did when he came back from the Burma Siam railway in the Second World War. It took the love of a woman to get him back on his feet so that he was able to live a reasonably normal life although he was ill most of his life and died quite young. My parents were an inspirational couple and I was privelaged to care for my mother in the last few years of her life after she developed dementia and had strokes. It is a gift from God to be able to care for a loved one

[@parbar12]

It is a privilege. God gives us very little we can do for our parents, but this is according to His plan.It would be wrong to expect a stranger to care for someone who has loved you and given you life. terribly difficult, but you have the assurance that you have done all you can, and loved them at the same time.

[@Oldergothmom9898]

I couldn’t imagine my husband like that,, it would shatter me and me as a person my whole life would stop. This wife has strength to keep pushing forward and i admire her for it.

[@joannepiasecka8449]

I’ve been careing for dementia and Alzheimer’s residents for over 30 years! Ive watched them over time deteriorate. Very hard at times to watch, especially the family photos around there rooms! Old Wedding photos, family photos really bring everything home. Bless them & there families🌺🌸🌼

[@BarthelemyLesaint]

Well... bless YOU ! I lost a family member to it. Thank you sooo much for your work.

[@johnsonjack4611]

*DEMENTIA CURE:* Thanks for sharing some of your own story. I am a 74-year-old man, I was diagnosed with Alzheimer’s disease 15 years ago, I always like to use my experience in a positive way to educate others. It is common knowledge that Alzheimer's robs people of their ability to remember. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. Homeocure Worldwide is natural cure medicine. The professional had earlier told me there is no cure, I asked a professional to explain this to me? They said it is a miracle. All the patients I have directed to Homeocure Worldwide return with thanks. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, contact Homeocure Worldwide

[@bevmcmullan-kungl8089]

My father looked like this towards the end. He hadn't eaten for so long and he was sleeping all the time. We all cried.

[@christinegizza1414]

What a beautiful wife, women, soft spoken, intelligent, kind and compassionate person they must have been best friends and had a tremendous love between them most women would have walked away forgetting about the love and life they had sometimes taking other men before they even died she truly still loves this man until he died Barbara no amount of the violence she was put through but continued to be there every step of the way until the very end so that he could die in dignity i

[@claudiamandini]

My sister in law is suffering from Alzheimer’s Disease too. She still can stand a conversation. I started watching this Documentary to learn and understand how it develops, so I can be with her as much as possible. Thanks so much for sharing your lives adventure with the rest of the world! We are all siblings in our Lord’s Love. I’m sure both Malcolm and Barbara are well together up in Heaven! God bless you guys!!! ❤❤❤

[@kkdoc7864]

The problem with this disease is that the brain deteriorates in different areas and at different times so you never know what’s going to change next. When the person becomes a shell of their former selves and are “locked in” it is absolutely ok to want the pain and horror to go away as soon as possible. One person cannot do this alone and should never guilt themselves into thinking that they can. You are literally trying to take the place of brain that has been destroyed. Anger, physical violence, incontinence, no communication, delusional thinking, no memories, huge danger of being left alone are what is left in various degrees. The caregiver must realize how destructive this disease is to him, but especially to her.

[@ddubfan]

kk doc absolutely agree. So many people don't understand what dementia is. They think it's just memory loss. Oh, if it were only that simple 😢

[@eireannkelly6791]

Barbara, you are a true inspiration to anyone who has to take care of a loved one suffering from Alzheimer's or dementia; God bless you for helping us all to understand xx

[@LRoy555]

Such tender loving care she gave to her husband.

[@pookab5905]

this summer my husband has been diagnosed with same condition by the Addenbrooke's team in Cambridge too. He has issues with understanding and processing language but at the moment it's quite mild . By the end of the film about Malcolm I was in tears for him and for Barbara. But also tears for what will happen to my husband too. I look at him now and find it hard that it will go like that as at the moment he is independant and driving. Most of the time is fine. We have good support from a lovely Dementia nurse for basic information. Thank you for this film that sadly shows the raw reality of this wicked disease that robs people's mind, thoughts and awareness of life and their surroundings. So very sad for Malcolm as so gifted and talented man.

[@BarthelemyLesaint]

I have to be honest with you. You should get help now. For both of you and all family members. Nurses and therapists to talk to. Each time it will get worse, it will be like a new death. At the end you'll be "glad" it's all over. Plz don't hate yourself for that coz you're probably a very good person.

[@leemillyruby887]

In Australia we have day care for those suffering from this and other diseases. Govt funded. So the carer as well as in home help can have time out for themselves - to keep their mental and physical wellbeing in line

[@GyseleTomlinson]

It's heart wrenching to see Malcolm changing before our eyes; my heart breaks for Barbara, though she is so strong. My parents just moved to back to Holland, they're 71 & 74, & my biggest fear is this reality happening to them.

[@sidorio100]

omg so sad that women was such a lovely person life can be so cruel it's hard enough to grow old then for this to happen. R.I.P Malcolm hope barbara knows how wonderful she is can't imagine so hard it must have being God Bless you and your family

[@sandgrownun66]

If this is your god's blessing, then what is your god's wrath?

[@Shaz73]

I lost my grandmother to Alzheimer's three and a half years ago and I've also worked with those suffering and it is suffering dementia. Barbara, her love and determination to care for her husband is what true love is. This was filmed a long time ago but what would happen to Malcolm if she wasn't there as his champion? Over medicated or given medication that was clearly having a detrimental effect on his wellbeing, Barbara was doing a better job seeing the harmful effect the meds were having on him over the doctors!. Dementia is one of the very cruelest diseases alongside MND. The families would come to visit their loved ones and I will never forget the pain on one daughters face when her parent didn't recognise or interact with her yet responded to the staff. My Gran travelled the journey very much like Malcom. She had a UTI and was taken to respite care where she attacked two members of staff and broke two windows with a walking stick she found. That night she was escorted off the property by the police and taken to a psych ward. She was never aggressive as herself but Alzheimer's took her down that path as it does with many. It took a couple of years for them to get her meds right and by that point she was in a care home, she wasn't capable to look after herself and home care just wasn't enough. Where Malcom remembered the piano my Gran remembered her cats some from my early memories. Alzheimer's and the UTI's took their hold (they often go hand in hand and have a severe effect) and over two weeks she had two major heart attacks, the first of which the doctors couldn't believe didn't kill her, the usual UTI and she even beat sepsis. She suddenly became very tired like her body had just had enough and she passed away a few days later. My last contact with her was on FaceTime and for all she was very much like Malcolm and nonverbal at that point when she heard my voice she opened her eyes and smiled that devilish smile I grew up seeing. If the comment below is true to Malcolm' and Barbara's sons I'm so sorry for your loss, your parents were wonderful people

[@dennysmith7862]

To watch this suffering is horrendous for all concerned... this really is so cruel for everyone but mostly for him...

[@miahleissa9599]

Barbara, you are an amazing woman. I wish everyone who had an illness such as this or dementia had a person like you to care for them. I don't know what else to say that would not just seem redundant. My heart goes out to you.

[@jayfurjill]

Ignore that, I just Found out she passed away quite recently, ironically she'd been living with dementia herself for two years. She broke her hip in a fall and was hospitalised, and seemed to be getting better, though losing weight. But she started refusing food and died two days later. I honestly believe she was ready to go to Malcom. She did amazing work as a dementia speaker and campaigner, and her work will live on. God bless Malcolm and Barbara's family.

[@violettaeve]

Where did you find that? I could find anything about her having dementia as well

[@jayfurjill]

@@violettaeve honestly, I can't remember - just a good search online, I don't recall the actual link.

[@junobardo376]

"She has got no sense of music" haha Speaking the truth there thats for sure! Music usually works very well with Alzheimer, but this is torture, poor man...

[@maipoina-xk5zk]

Agreed, I work in the memory care unit and music really helps my patients with memory. Something just clicks and they're able to recall memories from when they heard that song. We play a lot of music from the 50s, since majority of the patients are 70 and older, and they completely light up... it truly warms my heart to see something bring them joy. This doc broke me and I feel terribly for Malcolm and many who suffer from this devastating disease.

[@saffrongrass4607]

A wonderful though extremely painful tribute to real love. Whoever finds love like this is truly blessed because it's very rare.

[@MsTcup]

AMAZING. I cried and smiled. This woman is a beautiful person and the film maker was one of the best I’ve seen. Wow, I am so touched by this story.