MALS & SMAS Diagnosis Story

Hello! Welcome to my channel! I decided to create this video to spread awareness surrounding my chronic illnesses. I was diagnosed with Gastroparesis, Postrual Orthostatic Tachycardia Syndrome, & Mast Cell Activation Syndrome about two years ago. I have the choice to be hidden throughout this season of life or I can be Transparent about my struggles. If by sharing my journey & experience helps another individual, I will gladly share parts of my journey.
Please make sure to subscribe for more videos! Help me in spreading awareness by sharing this video. Knowledge is power, that is why conversations like these are so important.
Favorite Products -
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Social Media -
Instagram: @hayley.blogg
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About EDS -
🦓 www.ehlers-dan...
🦓 www.ehlers-dan...
About MALS & SMAS:
🧬 www.malsfounda...
🧬 rarediseases.o...
🧬 smasfoundation...
🧬 rarediseases.i...
About POTS -
💙 my.clevelandcl...
About MCAS -
💜 tmsforacure.org/
About Gastroparesis -
💚 www.mayoclinic...
💚 www.ehlers-dan...
About Dysautonomia -
❤️ www.dysautonomi...
About Feeding Tubes -
🤍 www.feedingtub...
🤍 oley.org/
🤍 www.theblendma...

[@cherrrriii]

thanks for sharing

[@paterpull]

I sure can identify with you.. My symptoms are no way as awful as yours but they are awful. I have had many tests and procedures over the last 4 to 5 years and next week is my consult with a gastric surgeon and mals etc, specialist. I am hoping she can rid me of this curse. Best wishes to you.

[@madelinelopp3610]

Thank you for sharing your story!! I had MALS surgery in August. I had a MTS stent placed in March 2021. I have NCS that needs addressed. And now suspected SMAS. These compressions are beasts!! I hate that there aren't many surgeons out there that know this stuff!!

[@tammyquinn8373]

I hope you were able to get surgery and doing better. My 18 to daughter has all the same things 😞 We had MALS surgery and now waiting for SMAS surgery in September

[@ChristinaTheWatercolorFox]

I have EDS and I’m pretty sure that my son has it and this. How did you get diagnosed?

[@HayleyBlogg]

My Rheumatologist initially brought it up & diagnosed me with Hypermobile EDS. My Doctor then referred me to a geneticist to rule out the other types of Ehlers-Danlos Syndrome & to possibly confirm the initial diagnosis. Hope this helped 💕

[@miamullins673]

My daughter has an appointment with Dr Thomas Scholbach in Germany. He checks for all vein compressions. Have one, you're more likely to have more. He designed to doplar imaging. It's a 2 hour scan

[@KatrinHofmann-jd1fi]

Ich war auch in Leipzig bei Professor Scholbach, leider gibt nicht viele Ärzte hier in Deutschland die sich auskennen, bei mir wurde ein sehr seltenes Syndrom diagnostiziert ( Leber) da gibt’s noch keine Namen Info bekommt man über die Selbsthilfegruppe von Frau Mayr. Österreich, steh am Anfang mit meiner Suche nach einer Behandlung