Managing hallucinations and changes in visual perception in Lewy body dementia

This is a recording of a webinar that took place on 5th July 2021.
It features Prof. John-Paul Taylor from Newcastle University and Rachel Thompson, Consultant Admiral Nurse at the Lewy Body Society. They discuss what causes hallucinations and changes to visual perception, and how to manage them with tips for people living with LBD and family members/carers.
We recently published a leaflet on hallucinations and changes to visual perception - download your copy on our website here: www.lewybody.org/downloads/.
Although The Lewy Body Society (LBS) strives to ensure that information on zoom events is accurate, the information on zoom events should not be considered medical or professional information. It is delivered as a general overview only. The LBS do not endorse any information discussed at the zoom events. The Society, its agents and others involved in assembling or disseminating information are not responsible for any errors or omissions therein, or any action resulting therefrom. If you think that you or someone you know might be experiencing symptoms of Dementia with Lewy bodies, please consult your GP or another qualified medical professional immediately.

[@barbaramoye6278]

Really interesting and helpful insight to hallucinations in LBD. Thank you.

[@sallyclay1974]

My sister had Lewy Body Dementia. She had hallucinations, the first year, and saw little green furry creatures. She suffered with it for 7 years. She couldn't walk or talk, at the end.

[@bluefluke7585]

Seeing spiders crawling on the wall is not a usual part of my day.

[@freddygigliotti7214]

My father suffers from hallucinations CONSTANTLY!!! he screams and tells and fights with these people he sees for HOURS! It is terrible. He is yelling at them right now. Then he yells at me and tells me I am "God damn stupid" because I let these people in all the time. He is yelling at them right now saying get the hell out of her you dirty bastards.

[@freddygigliotti7214]

Oops yells

[@izitmoi3036]

Yup my loved one is doing similar eg "get these people out of here" and lots more. Best wishes

[@debbieswartzentruber9900]

I am so so sorry.🙏🙏it has to be oh so hard for patient and care giver..

[@steveinqld]

What a great webinar! Very informative, I learnt a lot. Thankyou so much to everyone involved. This is a fantastic resource on LBD, I hope you don't mind if I share this with others.

[@Patlad5]

Found this really interesting & informative. Thank you

[@kmo6176]

so informative! Thank you

[@257rani]

Thanks for a Great Webinar ❤🇦🇺🌏

[@brendadickenson3547]

I always believe them and ask questions as to how if affected them. I found my aunt wanted to know why that lady was in the corner. I said well lets go outside and she can come, so we went to the corner. We wanted to fo to a cafe and my aunt said the lady left. I told my aunt she might saw wheresee

[@gordonmeeks2447]

Is LBD likely to be congenital?

[@victoriatrujillo8960]

My husband see lights landing on our yard at night and he thinks about sex all the time , even just watching a simple TV program. Is this normal ?

[@iPostiPodiEatiYuri]

no it is not normal

[@brendadickenson3547]

I always believe them and ask questions as to how if affected them. I found my aunt wanted to know why that lady was in the corner. I said well lets go outside and she can come, so we went to the corner. We wanted to fo to a cafe and my aunt said the lady left. I told my aunt she might saw wheresee

[@brendadickenson3547]

I always believe them and ask questions as to how if affected them. I found my aunt wanted to know why that lady was in the corner. I said well lets go outside and she can come, so we went to the corner. We wanted to fo to a cafe and my aunt said the lady left. I told my aunt she might saw wheresee

[@brendadickenson3547]

I always believe them and ask questions as to how if affected them. I found my aunt wanted to know why that lady was in the corner. I said well lets go outside and she can come, so we went to the corner. We wanted to fo to a cafe and my aunt said the lady left. I told my aunt she might saw wheresee

[@brendadickenson3547]

I always believe them and ask questions as to how if affected them. I found my aunt wanted to know why that lady was in the corner. I said well lets go outside and she can come, so we went to the corner. We wanted to fo to a cafe and my aunt said the lady left. I told my aunt she might saw wheresee