MAY LIVE STREAM - Ask Me Anything Multiple Sclerosis

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AMA Multiple Sclerosis: COMMENT with your thoughts and questions below! I look forward to reading and responding!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!

[@klburke]

Thank you for answering my question! I choose to believe your interpretation and opinion about life expectancy, for obvious reasons lol. Thank you for spending time out of your weekend educating us and empowering us with information. I really appreciate you!

[@grenachegirl]

I loved the MRI! My doctor showed me where they were that confirmed my diagnosis, but didn''t go through symptoms. I am also having serum reactions to Ocrevus, thank you for going over that, also. 1st full one last month. Scary, doctor not talking to me about it and said it was all in my head and called me "neurotic". I am trying to find a new Neuro. It's already scary enough being diagnosed 8 months ago, so I turned to YTube for anwers and found your channel. Thank you! Extremely helpful.

[@lemonpeelangelfish]

Thank you Dr Boster, just brilliant! Loved the MRI session. You got up to 277 viewers! Great on replay 😊 🔥🔥❤️‍🔥🔥🔥

[@AS-mb5ih]

I am being worked up for MS new this week. Found you and just wanted to let you know you that you were informative and easy to listen to. Thank you

[@belizabeth1471]

Excellent live Dr. Boster! Even though we couldn't see the pointer I loved the MRI walkthrough. Very interesting. Timestamps: 30:30 - Functional neurological disorder vs MS 32:30 - Are thoracic lesions same as spinal lesions? 33:48 - Statins and Ocrevus 35:25 - Optic neuritis and cataracts 36:15 - Vitamin D 39:28 - Traumatic Brain Injury(TBI) leading to MS? 40:27 - Mavenclad or Zeposia more effective? 42:17 - How does inflammation get in the brain? Can a skin infection cause inflammation? 44:07 - Is Kesimpta a good medication to take after stopping Ocrevus? Or would Lemtrada be better? 46:48 - What monitoring is done while on Ocrevus? 51:17 - Dr. Boster reviews MRI’s 1:02:01 - What is the biggest lesion Dr. Boster has ever seen? 1:03:07 - Life expectancy in MS 1:05:00 - Impotence in sexual activity and MS research 1:08:54 - IVIg 1:10:36 - Adderall 1:16:14 - Why would a doctor not prescribe Adderall for cog fog? 1:17:25 - Taopatch 1:17:36 - Adderall or Modafinil for idiopathic hypersomnia 1:20:00 - Which is better, Kesimpta or Mavenclad? 1:21:00 - Ocrevus and yeast infections 1:22:07 - Ampyra and erectile dysfunction 1:23:46 - Medications for incontinence

[@dharmacharinipasadanandi7110]

Thank you, watching on catchup, in London, UK

[@victoriajohnston3219]

Once again Dr Boster thank you, thank you, thank you 🙏🏼 for sharing all of your amazing knowledge. It helps me immensely and l can understand much more about why my body is doing what it does and more importantly what l need to be considering what talking with my neurologist. 😊

[@margueritereffitt3476]

Marguerite Reffitt nice win in California from Ashland Kentucky. I was in Kentucky, but then I stopped when I got here they don’t have no good just so I listen to you all the time learned lots of things about MS. I have relapsing and I’m stable but I still have terrible pain, but I keep going. Keep going.

[@kathikai2000]

I’m 64, in Seattle, and my doctor asked me to stop Tysabri. I just had a spine fusion, so agreed to a BREAK! Now she won’t represcribe it. I have started to have symptoms again. Specifically an inability to feel when my bladder is full. It’s getting worse and she said Aubagio would be fine. However, I have had liver issues, and I have CKD…started in Stage 5 and fought my way back to Stage 3. I don’t want to take a med that has a profile of liver or kidney damage. What do I do? I am JC positive, my Titre rate has never been above .25 and I do 7 week dosing, willing to go to 8 weeks. I know I am not going to go on Aubagio.

[@dougtagg9162]

Thank you for this livestream. I am a little late to be live but much appreciated, Doug coffee in hand from Lyndhurst Ohio.

[@maiabdulah9702]

Thank you, Doctor❤ I love the MRI explanation .. hope youwill show us a spinal cord. Lesson How can we ask a question?

[@suecolclough1268]

Hi ya Dr B thank you. I have learnt so much from you thank you. ❤

[@T-gp5tf]

Hello - missed the live stream but I have downloaded to listen. I am in the UK and newly diagnosed and deeply grateful for the amazing information that you so generously provided and your very layman friendly explanations. I am hoping to start a disease modifying drug soon and the leaky pool theory was really helpful to me and my family in making the decision to start a DMD. Thank you thank you

[@KarenBowling-jf3dx]

Hi my name is Karen Bowling I have had MS for 24 years

[@KarenBowling-jf3dx]

I’m from Florida

[@grinch4567]

I’m in the United Kingdom and couldn’t make it live for May, but great livestream 👍🔥🔥🔥🔥 If the tumourlike lesions don’t necessarily cause much trouble, does that mean small lesions can cause lots of trouble?

[@studiohost]

How can a MS patient know the difference between MS cog fog vrs. lacunae infarct ? Thanks

[@CarrieGalligan]

Hello from Northern Michigan

[@bigrigchristfollower9020]

Low volume, Pittsburg Texas

[@lab4389]

I’m very down. I have the diagnosis of MS on my brain. I’ve been through all kinds tests, including heart. I finally got my MRI back and they bring me in knowing the doctor is out, only to have a PA tell me that I have brain lesions, but she will have to consult with the doctor. Yes, because you’re not the neurologist. So I’m waiting to get into the doctors office-again. I just went through a nightmare of optical neuritis that had me in the ER screaming in pain. Now I’m scared of getting that again. I need someone to talk to. I don’t know anyone with MS. The other symptom I’ve been having is body tremors that at times make my body shake and get so dizzy that I fall. I feel like I could be taking medication to help me, but the doctor is rarely in the office. Yes, I’ve tried get into another neurologist here in Austin, but no one can get me scheduled until September. Apparently there is a shortage of neurologists in Texas. I depend on your vlogs Dr., They really help.

[@Carol-fm1kx]

I am 64 , have been on Ocrevus for 5 years . I have PPMS. How long should I stay on this therapy. My MRI’s have always been stable with no changes , all lesions were old , even at start of therapy . Thank you for all you do.

[@desiredecove5815]

These are always great Questions asked! I’m watching replay. ❤ Much love and respect always. Thank you again for all you do to help educate us, so we can be our best.❤

[@shirleydamore5667]

What important questions should I ask my neurologist as a new patient.

[@amandabuswell8052]

Calgary Alberta

[@ksmedlanberg8475]

hi Kevin in Seattle

[@maiabdulah9702]

Hello Dr .. i want to ask about the difference between brain and spinal cord lesions In the way of improve the symptoms ..

[@Rachel-be9ty]

I have a 3cm tumefactive lesion, will be asking a question about it if I can catch the next one!! Sad I missed it but enjoyed the replay 😁

[@janapayne1901]

Joining from Vadito, NM(replay)

[@lindamaxwell5773]

Hello from Linda in Oregon

[@shelveyphillipsbowman8037]

Goodmorning

[@josephvered3991]

Hi from Israel always waiting to hear your video thanks dear doctor

[@AaronBosterMD]

Thanks for watching!

[@user-pu5ys9he1z]

Hi everyone 🙏🏻❤️

[@cassdevericks3422]

Missed the livestream yesterday! Bummer!

[@AaronBosterMD]

Next time!

[@mitradavarpanah4151]

Hello, I am Mitra from Vancouvver.

[@AaronBosterMD]

Welcome!!

[@steveparkinson9853]

Steve from California.

[@mandyroach6717]

Mandy from South Africa

[@CSB012]

Christine from Michigan

[@elizabeththomas7185]

Sorry, I missed the live stream.

[@fruitypie3219]

I have frontal lobe shrinkage and something with myelin in the brain, have ms symptoms for years, seeing nurogiest very soon. Very worried.

[@ranakhouja9315]

I have ppms and i take Rituxumab 1000 mg every 6 months can you tell me please if Rituxumab has the same effect of Ocrevus for ppms.

[@penelopeskilton3855]

From Peterborough in England. question….., Can you still have MS if your MrI does not show any white spots at the first scan despite having most of the symptoms? Frustrated & very worried. Please advise ❤❤❤

[@keisharosswarren4086]

I was diagnosed in January with m.s. I have been having bad ear infections in both ears. My ears always seem to feel muffled and sensitive to sound. Why is this?

[@kelliebutler5307]

I have TMS and my tumor was in the middle of my brain stem

[@saras2302]

What advice do you have about foot drop? I just bought the newer shoes for it (Cadense). Do you have any advice?

[@mitradavarpanah4151]

❤❤❤❤❤

[@jilljenkins8034]

Doctor I was diagnosed in 2016. I began my treatment With Copaxone I never had any new lesions until recently and I had multiple new lesions. Does this drug just stop working it’s hard enough to pump myself up three times a week to give myself a shot but to have new damage what If your thoughts on this?

[@steveparkinson9853]

I've been hearing people talking about the carnivore diet. Is that safe or effective for ms ? Or is a keto diet better? Also should I avoid carbs? I noticed as my symptoms were getting worse it seemed like I was losing body fat. I'm wondering if adding more fat to my diet would be helpful. I've always been pretty skinny but now it seems like I don't have much body fat. Any feedback would be appreciated. Thank you.

[@shelveyphillipsbowman8037]

NORTH CAROLINA

[@naamamaria4188]

Haifa, Israel 🤗 I wish I had a doctor like you here, one I could respect as much and feel as much confidence in his knowledge and professionalism.

[@Jerusalem_Warrior]

Haifa - you have access to the new MS Center at Rothschild! It sounds like a they have a revolutionary idea of concentrating all the complimentary treatments into one framework! It's a smallish hospital, so I was surprised to hear that they will be housing a cutting - edge modern MS specialty center! 😊

[@naamamaria4188]

Thanks! Let's hope they'll have attentive doctors, a good doctor is truly hard to find...

[@estellasreborncreations6411]

Thank you so much for your information...your videos...and for being a great neurologist.... I was diagnosed may 1st ...and given a 5 day course of steriods I took at home ... Its been 3 weeks since I finished them...but my symtons barely improved...my right leg is still numb ...my right hand isn't as numb but still tight tingly and not feeling normal....amd still have bladder retention i have to now use catheter for 😩its not emptying properly and sometimes i dont even feel i need to go .....and partially blind in left eye after weeks of pain.... My question is How long do steriods keep working for? Do steriods keep working weeks to months later? Also I'm being put on kesimpta dmt? Will this help my current symtoms 😢 I hope you see this comment ...feeling lost and hopeless today 🥺

[@komoonkh]

They definitely stay in your body. I always had some skin problems after them. Like pimples. You can feel steroids leaving your body. For me, it was like a few months. You definitely need to let your brain and nerves do their thing (neuroplasticity) to see improvement. You need to exercise and take supplements to support it. Dmt will help too. Be strong!

[@grenachegirl]

I was never prescribed steroids and had some symptoms develop. I get solumedrol in the Ocrevus and nothing in between. Good to follow what others are getting prescribed.

[@Jerusalem_Warrior]

​@@komoonkhGood advice to this newly diagnosed.

[@Beemgee]

Can low vit D and low iron mimic MS symptoms?

[@staceyclark8796]

MRI Thursday showed Mild scattered foci of T2/FLAIR signal abnormality are seen in the periventricular and subcortical white matter, nonspecific, commonly sequela of chronic small vessel ischemia, and may alternatively be seen in the setting of migraine headaches, Lyme disease, and as sequela from inflammatory and traumatic insults to the brain. What does this mean?? My general practitioner hasn’t called me to tell me. Had bells palsy episodes with migraine with aura a few days before that. Had problems with vertigo, fatigue, . An episode felt like an Ms hug….. felt like I was having a heart attack… er found nothing.

[@margaretcollins8808]

How do I join online David from Christchurch New Zealand

[@elizabetheckert693]

If my mri takes 23 minutes for brain and cspine, can I rely on the result of stable?

[@margaretcollins8808]

How do I join online

[@CSB012]

My MRI shows there's too many lesions to count!! What exactly does that mean? It said too many lesions to count since the beginning of my disease which was 25 years ago!!

[@beckypike355]

I was also told too many lesions to count because apparently at a certain point they all run together. It is comforting to me that you have heard that for 25 years...I was diagnosed last April at age 52.

[@user-pu5ys9he1z]

Northern Ireland 🇮🇪👏🙏🏻

[@bigrigchristfollower9020]

My Nuerologist thinks I have had MS since my 20's but I didn't think to ask why she thinks this, do you know how you can tell this, thank you?

[@Jerusalem_Warrior]

I guess she sees old activity. Think back to your 20's - don't you recognize any symptoms with hindsight?