ME/CFS Recovery Story: Mollie shares her Rapid Recovery from 4.5 years of CFS & POTS symptoms

Mollie shares her ME/CFS recovery story (& POTS symptoms recovery story) and the challenges of getting diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS).
Like most spoonie stories, she got the old 'it's all in your head' when in hospital with cardiac symptoms which is how her illness started..
After over 4 years of illness, recovery or finding a cure for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis seemed unlikely and her only hope was some kind of spontaneous remission from ME/CFS.
Finally, she comes across an explanation for the cause of ME/CFS/POTS that makes sense to her and she throws caution to the wind and just goes for it.
To her surprise, she starts to make progress and begins her ME/CFS recovery journey.
The speed of her ME/CFS recovery was unusually fast, but 12 months after she felt cured of the illness, she shares her story and experience in this wonderful interview (took 12 months to get published)
She shares her thoughts about Graded Exercise Therapy and the difference in her approach, as well as many of the other strategies that she learned in the ANS REWIRE program.
To LEARN more about the ANS REWIRE program, check out the 4 free intro lessons here: ansrewire.com/info-request/
UNDERSTAND MORE with my book CFS Unravelled: Get Well By Treating The Cause Not Just The Symptoms Of CFS, Fibromyalgia, POTS And Related Syndromes visit my website here: cfsunravelled.com/cfs-unravel...
or on Amazon directly here: www.amazon.com/dp/0987509837
LINKS:
Here is a link to request the free eBook and join my email list: cfsunravelled.com/discoverhope
On these pages you can also watch other:
ME/CFS recovery stories:
cfsunravelled.com/me-cfs-reco...
and POTS recovery stories:
cfsunravelled.com/pots-recove...
LET'S CONNECT (follow Dan):
💌 Sign up to my newsletter via my website - cfsunravelled.com/
💙 Follow me on Facebook - / cfsunravelled
📸 Instagram - / danneuffer.cfsunravelled
📌 Pinterest - www.pinterest.com.au/cfsunrav...
🐥 Twitter - / cfsunravelled
#mecfsrecoverystory #POTSrecoverystory #GetYourHealthBack #MECFSRecovery #POTSRecovery #MECFS #POTS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome
**MEDICAL DISCLAIMER**: Dan Neuffer, CFS Unravelled or ANS REWIRE do not provide medical advice, and the information available in this video does not offer a diagnosis or medical advice of any kind. The content is opinions and information presented for EDUCATIONAL PURPOSES ONLY, and MUST NOT be used as an alternative to a healthcare professional's diagnosis and treatment. Only a physician or other licensed health-care professional are able to determine the requirement for medical assistance. Please seek the advice of your physician or other licensed healthcare providers if you have any questions regarding a medical condition.

[@Jolei33]

Her story is so close to mine. Symptoms, doctors and length of illness. I had the nerve testing too. Sweating and chills, pins and needles, dry eyes, sensory sensitivities, abdominal issues, tachycardia, exhaustion, chest pain and weakness. The dizziness has kept me unable to take my son to school. I can’t sit very long either. I am unable to work. All my tests came back normal. The brain fog and cognitive dysfunction is serious. Her initial goals sounds just like mine. I am very grateful for her sharing her story. I am looking forward to normal grocery shopping soon one day.

[@CFSUnravelled1]

Glad you felt supported by the video. Yes, so many symptoms - kzbin.info/www/bejne/m6TQnWWwbcx-fMU People are often surprised!

[@justritasimi]

I have POTS, CFS and fibromyalgia as well as chemical sensitivity. You have no idea how helpful these videos are💝

[@truthprevails7085]

Great interview! From another horizontal girl, I am very interested in your program. I especially like the part of how simple it was for her....what a shining light she is!

[@lkwillia77]

This was really inspirational for me. I can really relate to Mollie and it's been just over 4 years for me so that gave me lots of hope. Thank you so much for this interview! Ps. Luckily there are only 2 shorter parts with background music and even though it is soft, I'm unable to tune it out and hear you talking, and makes my nervous system very heightened and anxious so would be great to have no background music at all for future recovery stories as usually the people listening to them are often struggling with these sensory issues too. Thanks again!

[@in4moon]

even better if Dan could use ear-buds to eliminate echo effect

[@anewmomstrong1874]

Her interview and progress is the reason I enrolled in the program. It gives me so much hope.

[@Laura-ze4dp]

A New Mom Strong so we hav to buy some program? I dont unederstand

[@nick-vq1ef]

has the program worked for you???? how are you now ???

[@alexandraalbertz1442]

@@Laura-ze4dp yes, he has a program called ANS Rewire

[@alyssanic]

How have you been feeling

[@rynconnor2555]

Thank you Mollie & Dan, that was a breath of fresh air.

[@lisakaylanemorris]

soooo super happy for Mollie and family! And her symptoms and story seem very, similar to mine.. always have hope! always try to take care of yourself and make progress, even slowly! Thank you guys for doing this video.. I definitely appreciate you all!

[@azalea1404]

Hi Dan, could I ask you a favour? The videos are very long, and some of us are so sick, we don't have the energy to watch the whole video. Most of us watch your channel to learn how some me-patients manage to recover. So could you write in the info-box below exactly what each person did to improve, and which treatment(s) were the most efficient pertaining to full recovery? NB I have already read your book. Best regards - and thank you so much for sharing your knowledge - from Anna, Denmark

[@CFSUnravelled1]

I have had this request many times and totally understand where you are coming from. It's my opinion that it isn't about what people did to recover, so that's why I haven't actually created these summaries. Because you would see treatments or approaches that you have tried and didn't work! Instead, it's about HOW people engaged with various strategies. Now if they are in a program like ANS REWIRE, you can easily attribute it to that program and guidance, nonetheless, listening closely to how the person actually engaged in the program again is where the wisdom is. Does that make sense? What do you think?

[@truthprevails7085]

CFS Unravelled That makes sense, but I would also like to know more about what worked for them-in the video. This one was great because of her description of how her daily dose your program worked for her. Most here are already seasoned enough to hear about something that did not work for them. Of course, it’s always a combination of strategies and I am glad to hear what didn’t work for that particular individual. Thank you so much for these videos, Dan!

[@geethanair5803]

Infact , the ppl who recovered will have to explain their details as they recovered from long term sickness. Its also making them so excited to give their sufferings as well as the effort put in to heal same. So i feel though we suffering should hv patience to listen, how they got it done..also which give natural feelings. Thanks

[@marialeon4129]

Thanks a lot for all the interviews you publish Dan, they are all inspirational and there's always something new to learn from them. Hope is a really nice present you are giving to people like me, a very nice Christmas present. I wish you all and your family all the best.

[@CFSUnravelled1]

Great to year Maria - thank you for the Christmas wishes - hope you make the most of the season also! ❤😉

[@claudiagoodelltv]

Wonderful interview Mollie! Thank you for sharing your story and all your pain so others can better understand the depths of these debilitating illnesses and their symptoms. My takeaway is the recognition of so many of my own symptoms and experiences that hadn't surfaced during my interview, like the necessesity to be alone when the body/mind had reached Max capacity, and that a person cannot even be in the same room because of the anticipation that interaction might be required. Also, the perspective you express about your process through such a dark time reflects the courage and strength that those of us with these illnesses demonstrate. It's easier to see that in someone other than yourself ;)

[@CFSUnravelled1]

Thank you for your comment Claudia - yes, the experience is a bit like a trauma and part of us just doesn't want to remember does it!? Indeed the more distance we get from it all, the more our perspective changes.

[@truthprevails7085]

...and I personally really benefit from the hr. Or longer interviews...so they include all aspects.

[@lorrainedettbarn9384]

Molly I have many more symptoms than you. Lol this is third time since I was born. Thankyou for your share you said you were hot that helped me. I sweat look like jumped out of shower with no towel. Now I can't breathe molly as I was writing you mentioned you couldn't walk. God bless you I am sick of my day out is in a hospital. And also feel depressed. Beginning to think I don't have more symptoms than you. Thankyou I've had this now since my adult children died. And I was attacked and almost killed by my son in law. I also have hoshimoto since age 12 years old. Your wonderful again thankyou.

[@IslandLife273]

My daughter was 1 when I got really sick. She doesn't know me not being ill. I used to be so active.

[@TJ-bs4wv]

My Son was 6 month, when I got sick, and also haven't known me what I was before. Now he is 11 years old. I did manage to get on during the years on 50% on energy level. For some month ago after an courtcase against the system, my symptoms got worse, with dizziness and nausea and more fatique. As a dad it's hard not being able to really participate with my son and family and life. And sometimes when I lose hope, I wish I will sleep and never woke up again

[@prathamrballal1229]

@@TJ-bs4wv how r u now

[@natalijaacimovic6562]

Beautiful story!

[@Naturesrhythm44]

Great interview. So happy for you Mollie ☺

[@amygregg1658]

Thank you, Mollie! This was so encouraging! I’m doing Dan’s program and needed to see someone further down the road!

[@bjarke8510]

Amy Gregg did the programme help you? I consider buying it. Thanks ☀️🙏🏻

[@Philfalki]

Does it help you?:)

[@in4moon]

Dan, it would be great if you could apply some volume normalization, while post processing these videos. I was hoping this one is going to be esier to listen given its a recent one, and given that recording equipment is better these days.

[@CFSUnravelled1]

Yes, there are some issues on Mollie's side of the recording - tried to fix them but was unable to achieve this - very sorry - frustrating. Going forward, I am encouraging more people to use a headset which reduces these type of problems.

[@NickFontana]

I would love to know why every time she implemented something new and heavy like intense yoga, didn't relaps, which is exactly what happens to me. I made a huge recovery but still when an activity is intense or heavy my ANS can reacts very bad. I would love some advices for that!! For the rest congrats Molly and Dan, good job!!

[@CFSUnravelled1]

Have another listen to her in the interview talk about the activity. You may remember her saying that she was very gentle in her approach and made sure she didn't shock her system with something 'heavy/intense' - she built up gradually.

[@NickFontana]

CFS Unravelled thanks Dan 👍🏼

[@sarahbennett1923]

This girl is adorable.

[@sandrawheeler1521]

Brilliant

[@joshrinconnn]

Hi Dan, is there a way we can get into contact with mollie?

[@in4moon]

Hi Dan, I've watched the three intro videos from cfsunravelled.com, and just started reading the book. The website mentions the "programme" ... so I'm not sure if I'm going the right route in the right order?

[@CFSUnravelled1]

Yes that's fine - do whatever works for you. If after watching the 4 free intro videos for ANS REWIRE (ansrewire.com/info request) people still have any doubts, I suggest they hold off enrolling and read CFS Unravelled (cfsunravelled.com/cfs-unravelled/). Don't rush into anything, make sure it feels right for you and that you are fully committed.

[@deilen961]

Really inspiring interview. I'm curious about the resting in the afternoon... I got cfs 6 years ago and feel like I've been stuck at 60-80% for the past 2 years. I know a large part of that is due to past trauma and I am working with a counsellor on that but resting during the day used to stop me from sleeping later on so I cut it out a long time ago. I sometimes feel like I need it just don't know exactly what type helps as meditation is beneficial but not for that specific type of tired, napping makes me groggy and by the time my energy gets back up it's too high and I can't switch off etc

[@CFSUnravelled1]

Building up a healing environment and scheduling rest time is an important aspect of recovery, but how that look is different for everyone. I really think it is important to go with your instinct and do what works for you, rather than trying to follow a one fits all formula.

[@michaelfortune9997]

dkshjxosjd Counsellors don’t heal trauma. You will be doing consultations with them for months or years. You need something way more superior than that,

[@CFSUnravelled1]

@@michaelfortune9997 What have you found to be most effective? have you healed trauma?

[@michaelfortune9997]

@@CFSUnravelled1 I can share one with you, which is NLP. I am currently experimenting with different modalities so cannot comment on anything else yet

[@emmakerrigan7036]

Did you definitely have POTS? Did you get blood pooling in your legs and feet and a rise in heart rate by at least 30 beats a min or more when standing?

[@redheadedfreckles2]

Must of us have that

[@lavoter]

It makes me sick to spend my whole day's energy allotment hearing about people who had what I had & then not being able to hear what the solution is. I gave this youtube channel 2 days that could have been used trying to solve my problems.

[@CFSUnravelled1]

Sorry, I can appreciate how frustrating it is. We all want a simple solution - however, there is no cure for this condition and so recovery results from addressing our personal triggers which varies between patients. Mollie used the ANS REWIRE education program which contains education on a range of physical strategies and brain-training strategies. We go into a lot of detail of her journey - I would have hoped it was clear what she did.

[@dominic2446]

whats the diff btwn "rec" and "pub" under "recovered"?

[@CFSUnravelled1]

rec and pub??? Sorry I am not sure what you mean.

[@dominic2446]

@@CFSUnravelled1 right hand side of video. 1 yr when rec. 2 yrs when pub.

[@CFSUnravelled1]

@@dominic2446 I'm so sorry - seems obvious now! Mollie was 1 year recovered when we recorded the interview, but the interview was published a year later. So she is recovered 3 years now.

[@steveharris1132]

I asked this already, but my comment is not here, can you get better just using the book? Or do you need the program.?

[@CFSUnravelled1]

Hi Steve - people can well in many ways. I have received feedback over the years by people who read the book and recovered by going and finding their own strategies and support systems, so it's definitely possible. In any case, it's a good start to see if the explanation and recovery framework resonate with you.

[@steveharris1132]

Thank you for your reply, much appreciated. I will have a look at the book.

[@hollylockman9363]

Can hardly hear her talking the sound is not good quality. Keeps gojng in and out

[@dommccaffry3802]

Not many recovery stories recently at all

[@CFSUnravelled1]

Sorry Dom - I haven't had the chance to publish more. It's been a bit of a rough year at my end since my surgery last year. Hope to get more to you soon. (I have many more for publishing)

[@dommccaffry3802]

@@CFSUnravelled1 great ! Sorry you've had a rough year

[@tessgirl383]

If your recovered why do you then go backwards

[@VViNeTu]

Please be little bit more considerate with editing, audio/video...some of the people who are watching/listening this are not able to follow it. God bless

[@CFSUnravelled1]

Why?

[@VViNeTu]

@@CFSUnravelled1 'sensitory overload'?

[@winniecash1654]

​@CFS Unravelled for me it sounds like rambling. My attention span is short. Either that or my patience since I'm anxious over the many symptoms that I need relief from. Sounds to me that in order to get the real helpful stuff we need to enroll in the program? Can we do that online? I've been dealing with autoimmune since my 20s. I'm 60. Trust me when I say I've tried everything I thought possible to deal with this. Can we get straight to the point on what you have to offer for healing? That for me would be most helpful.

[@CFSUnravelled1]

I totally understand. Well, I think there is a lot of helpful stuff in the recovery interviews.. No, I don't think I can get straight to the point for healing because the illness is complex. The program is very expansive and detailed given the complexity of the illness, so probably not a good fit for you in the moment. However, if you can find a way to enjoy some of the interviews and other videos, hopefully the support you to move in the right direction. Sorry you're feeling frustrated, been there myself.

[@bigchungus1924]

Vitamin d cured my pots

[@CFSUnravelled1]

Did it stop the tachycardia or have you completely recovered from the syndrome (ie. no more symptoms)?

[@bigchungus1924]

CFS Unravelled it stopped everything, I’m practically cured now. Im going to the gym again doing cardio and weight lifting so that should answer your question. I was extremely deficient in vitamin d and as soon as I started taking it in high doses that was the magic charm for me. That and vitamin b-12. It’s definitely worth getting your vitamin levels tested!

[@bigchungus1924]

CFS Unravelled i couldn’t even bare to stand before I was bedridden it truly is a miraculous supplement

[@CFSUnravelled1]

@@bigchungus1924 would you be interested in sharing your story? You can contact me via the website: cfsunravelled.com/contact/

[@MrApplewine]

@@bigchungus1924 I've tried high dose vitamin d before. I think it may have caused some nerve side effects but nothing positive. Maybe it is having the steroid effect on you. It might not be the cause though. That is a lot of vitamin d I suspect. Are you going to keep taking it. Cause can be different for many too which is complicated.

[@garypawliw3982]

Get to the point.

[@mr.a1643]

and don't laugh after saying really serious things, it's not funny...

[@designbuild2534]

These are marginal rare ME recovery stories and should never be used as a base for definition of this horrible disease.

[@ravenslair117]

D & B, that isn't true. There are a LOT of people who have recovered. There are a LOT of people who stay ill or are sick for a long time. But, to not give credence to the cases of recovery is a mistake. For people who have been ill with ME/CFS, hope is essential and can be the string that helps pull them into recovery.

[@redheadedfreckles2]

@@ravenslair117 yes!!!