Hope you enjoy the video guys! The mnemonic is helping me a lot with these diseases! Don't forget to like and subscribe for more free medical school videos!
@VAMPIREEDITER4 жыл бұрын
Sir my son have neurofibromatosis patient..plz advised a lab test for diagnose a level plzz help me
@dr.rabiaakhtar43422 жыл бұрын
Thank You So Much, I was always afraid of this topic and you just made it soo easy to grasp. It would have been great if you added pictures too.
@tinasepulveda18952 жыл бұрын
What do you mean by mnemonic? I have Neurofibromatosis type1 and your younger son has some symptoms of Neurofibromatosis type1 had a blood test and it came back negative. He has some café Au lait spots, a few tumors growing on his face and private area and has curvature of the spine. I have had too many medical problems regarding nuerofibromatosis type1. I'm bedridden and immobile. They older I get the worse it gets along with all my other medical disorders that there's no cure for any of them either. I'm disabled senior citizens on a very fixed income. I'm almost 62 and some of my families have passed away from colon cancer and adrenal gland cancer and ovarian cancer. It's easier to spell it those ways. I post these videos almost everyday. Also Jay's biology on nuerofibromatosis type1. It seems like I have ALOT of the medical problems in GARD as well. I appreciate them. They medical industry has no idea what they are doing trying to give me the right medications I need to live a good quality of life left. Neurofibromatosis type1 has effected me from migraines to hammer toe. Its just doesn't stop growing. If the blood test came back negative what other way can they finally give a diagnosis to see if he has it or not? He can't work at all and doesn't receive any income whatsoever either from disability benefits to unemployment benefits whatsoever. He has had curvature of the spine since he was little. I was misdignosed as well as my birth mother stated we had the elephant man's disease until I was pregnant with my 1st born son and the tumors growing everywhere inside and outside of my body. I had 1 tumor removed from my bottom side and we think it grew back and I don't want another surgery unless imperative. I've had 5 botched surgeries. My DNA doesn't respond to majority of most medications EITHER.
@QuiescentCookie4 жыл бұрын
2 also looks like a swan, which helps me remember schwanoma
@MedicalMania3 жыл бұрын
I like this!
@tinasepulveda18952 жыл бұрын
I went to the eye Dr years ago and was told I was "balanced" in 1 eye. I was born with NF1. They medical industry doesn't understand anything at all regarding this disorder. I have too many medical disorders that there's no cure for any of them. My DNA doesn't respond to majority of most medications. I'm 61 year's old and I am bedridden and immobile. Every surgery I have had has been botched. My brain doesn't click like it used to. The older I get the worse NF1 gets. They wanted to try a fluoroguide for spine injection trial but we have decided not too. I don't know why I am the only one in our line of family member's who have been so effected drastically by the NF1.
@tinasepulveda18952 жыл бұрын
I am in PURE TORTURE PAIN, PURE TORTURE PAIN, PURE TORTURE PAIN EVERY SINGLE SECOND OF EVERY SINGLE MINUTE OF EVERYDAY LIFE I'M BEING EATING ALIVE RIGHT NOW AND EVERY SINGLE SECOND OF EVERY SINGLE MINUTE OF EVERYDAY LIFE
@YuvrajSingh-kb7qf2 жыл бұрын
We got the diagnosis.. What should be the optimal treatment procedure?
@damanjeetbal10942 жыл бұрын
You just made my life easier! Lol. No, but seriously awesome 👏. Thank you!
@dinamore20054 жыл бұрын
Perfect job doctor thank you a lot .
@wanswabejamilgregston34956 ай бұрын
this may be out of line but as a person with NF2, why do I experience frequent muscle pulls on the side where the tumors are
@kavithanagarjunakonda19965 жыл бұрын
Thank you ...you made this topic so simple
@MedicalMania5 жыл бұрын
Kavitha Nagarjunakonda I’m glad this helped you!
@kingsleyobiajunwa43613 жыл бұрын
great video. thanks. very helpful with the ease to recall
@clee888 Жыл бұрын
best best best NF lecture!
@oisess96478 ай бұрын
perfect job , also i remember F of NF1 for focal neurological leison
@ravindulakshan6527 Жыл бұрын
I also have neurofibromas type 1. I was diagnosed about 6 months ago and I have about 19 cysts in my body. I am 20 years old. I think it's going to fade away, I want to know about this. Whether there is a cure or cure. Are the ones that have been removed coming?
@umarfarooqkhan82084 жыл бұрын
Very good presentation and cleared my concepts
@irereomio1797 Жыл бұрын
Thank you for the mnemonic ❤
@napoleontesfaye4984 жыл бұрын
Very Awesome and simple presentation... Hope to see more from you...keep up the good work
@tinasepulveda18952 жыл бұрын
Do you have severe bone and muscle pain due to NF1? Why does my DNA doesn't respond to majority of most medications? I saved Jay's biology on my clip tray. I have loss of equilibrium as well. I had a hip replacement year's ago and ever since then I have been bedridden and immobile. Can this be associated with my NF1. They medical industry doesn't understand anything at all regarding NF1. What is mecune albright syndrome? My son's doctor did a blood test and he said he didn't have NF1? I appreciate everything you said
@HaiderAli-yk9ve4 жыл бұрын
Thank you so much ❤️💕💕❤️ you deserve Oscar ❤️
@raghiammu74833 жыл бұрын
I have 1 month baby boy. He have 5 or more cafe au lait spots, does that means he will develop nf
@hemkumaribk81542 жыл бұрын
Hello sis do your son have nf1 .. because I also have many cafe au lait spots and my one month old son have one spot so will he have nf
@maboshadimoseki11652 жыл бұрын
Hey, can we talk privately I have type 2.
@tinasepulveda18952 жыл бұрын
What did you just call the other medical problems before NF1.
@shamumool41534 жыл бұрын
My kids have also nurofibrosis what can do
@MrJamiez3 жыл бұрын
If you have NF, you should not have children. I've got two kids & one of them has NF1 which I feel horrible for. I am getting the snip. You must as well. Please do not have any more children if you have NF. Please Do not pass this illness on to anymore children. Please. Don't not make them suffer.
@itoldyounottotouchit33363 жыл бұрын
@@MrJamiez So I'm 21 and I have mild NF1. If I decide to have a child in the future and he/she also has NF, is there a chance that it will impact them more severely?
@MrJamiez3 жыл бұрын
@@itoldyounottotouchit3336 There's a 50/50% chance. One of my kids of has NF. I got a vasectomy to stop having children. Because I don't want to pass NF on to anyone else.
@MrJamiez3 жыл бұрын
@@pradyutlal first thing I'm sorry that you have both NFs. I'm not a real doctor, it's just a nickname. I could try & help you with info about NF.
@himanshurana1897 Жыл бұрын
Thank you brother. You're very smart brained ❤
@ferashijazi12994 жыл бұрын
Thank you...concise and easy.. awesome.
@marka.47874 жыл бұрын
DOMINATION LETS GO!
@folashadeyusuf31014 жыл бұрын
Thanks a lot for simplifying thus topic
@onyangooscar933415 күн бұрын
This is so great
@kittenlover76763 жыл бұрын
I have NF1 but its not that bad when I was younger the doctors though I wouldn't be able to walk well I showed them they were wrong
@vigneshs4714 Жыл бұрын
Sir is it contagious??
@tinasepulveda18952 жыл бұрын
What is lisch nodules? I was informed by the eye Dr I am balanced in left eye. I'm blind in 1 eye. I have freckles and tumors growing everywhere inside and outside of my body. I have so many medical disorders that there's no cure for any of them. It sounds like I have many of them NF1 symptoms associated with NF1. Can you get NF2 if your family members have NF1? I am the only one who has so many medical problems due to NF1.
@MarshmellowTheCute5 ай бұрын
thanks doc! a big help indeed
@mutmainahjirulaode62354 жыл бұрын
hello I'm ina from Indonesia ?? I was diagnosed with a neurofibromatosis doctor, is there any solution to recover ?? and whether the only way to operate ?? please the solution
@Gbeans-rq5st4 жыл бұрын
Mutmainahjiru Laode there is no cure to nf saddly but there are doctors that understand it as well so i would look into finding doctors and there are treatments as well to help
@mutmainahjirulaode62354 жыл бұрын
@@Gbeans-rq5st thanks doctor for the information ??? and doctor if I may ask again what things should be avoided so that the lumps cannot spread more??
@Gbeans-rq5st4 жыл бұрын
well they dont spread like crazy and the lumps are not that bad but u can possible talk to doctors about them but u will possible have to deal with them in life
@favorobinna57562 жыл бұрын
hello please is there any solution to recover from neurofibromatosis?
@jennifermitchell57132 жыл бұрын
I have them my Dr . gives me Gabapentin to treat the nerve pain and if need to be removed they do surgery I've had all together 4 surgeries and maybe more to come their is a medication that might shrink their growth of the tumor its called Koselugo I have MRI every 6 months to check the growth of them I hope this helps and prayers for you
@dropadikhanna61044 жыл бұрын
Agar Family Heriditty ho to 4 years child ka kya Test karana chahiye taki vo iss problem se safe Rah sake
@MrGopalrawat3 жыл бұрын
sir neurofibromatosis ka koi treatment he
@vrreemm49683 жыл бұрын
thanx a million ! couldnt be more helpful
@Helga-iv4uf Жыл бұрын
Thank you ! You explain it greatly. Also you can die from the tumours from nf2 . My brother had a tumour on his brain stem . Died 11months later . Smothered his ability to eat , breathe ect . My mom has both symptoms of nf1 and nf2. It’s a terrible condition/ disease.
@vitiaariasramos6031 Жыл бұрын
Hola cuántos años tiene tu hermano
@mamam8063 Жыл бұрын
How old is he
@Helga-iv4uf Жыл бұрын
He was 32, had a facial cheek tumor that got removed ..when he was 10 . We never even thought to check the brain stem . He had leg pain for 2 years. Couldn't work towards the last year . He was in a lot of pain .It was to late to remove the tumor according to drs..in Seattle. So he just suffered alot , my poor little brother .
@joanandahafa81324 жыл бұрын
Really understanding... Thank you
@sashak67984 жыл бұрын
Very helpful; thanks!!!!
@MLCPM5 жыл бұрын
Thank you so much! amazing video
@MedicalMania5 жыл бұрын
Np! Glad it helped.
@helmuthnachtigall41614 жыл бұрын
Como é o nome dado ao exame pra ver se a pessoa tem neurofibromatose?
@mansourmahdavi72804 жыл бұрын
amazing technic to teach Dr
@arnabbiswas94613 жыл бұрын
My Newrofribama problem titmant please help me
@fatimasuleman19805 жыл бұрын
Thank you so much!
@shlath4 жыл бұрын
Excellent , a great help.
@vishnu_1042 жыл бұрын
good video...but your voice isn't loud enough without headphones
@secretvloggerMR4 жыл бұрын
Hello Sir,I'm speaking from Bangladesh.I'am 22years old. I suffer from Neurofibromatosis Nf1.If these tumors are in operation be any problem? For example,there any possibility of becoming more likely later?
@MedicalMania4 жыл бұрын
Usually they can grow back if you have surgery. Does that answer your question?
@primitivodominguez47424 жыл бұрын
Zhaura mojumder hope this message finds you well. Has diet affected your condition, have you felt any change when adjusting your diet ?
@secretvloggerMR4 жыл бұрын
@@primitivodominguez4742 Sir, I do not have a diet. But this tumor is growing in my body. I am very worried. Can you help me? I am suffering from depression
@parvathychandran50032 жыл бұрын
@@MedicalMania i have neurofibromatosis.. Does it need to be removed?
@dr.pragyanamdev29674 жыл бұрын
That was simply gr8👍
@elisamayondi41452 жыл бұрын
awesome video
@el-adcohen82014 жыл бұрын
Solid crash explanation.
@ayakhairy93524 жыл бұрын
Great 👏👏👏 Thank you so much
@meggy46702 жыл бұрын
I have NF 1
@motasemsalih52004 жыл бұрын
Thank you man!!
@JasashreeChoudhury Жыл бұрын
Very nice
@navnathghule69783 жыл бұрын
It was damn simplified👍
@TLilacTwilight7 ай бұрын
Anyone want to look at my mri results, labs and medical history to make an opnion about if I could have neurofirbomatosis or Miccune Albright. I these cafe au lait spots all down my right shoulder. One on my back and one on my left but cheek. I have had uterine fibroids treated, skull tumor removed, Spine lesions and bulging disc, and spine fluid removed to treat idiopathic intercranial hypertension. Have had positive ANA labs, recurring anemia despite treating fibroids taking iron supplements. Currently have a aching shoulder and swollewn trapezius. Anyone willing to help me. I have been diagnosed with Sjogrens, neuropathy, fibromyalgia, and intercranial hypertension I am desperate 😔 I can email records.
@الحمدلله-ف9ح4ن4 жыл бұрын
Ils ont trouvé le médicament pour nf1☺☺😀😀😀
@karna64194 жыл бұрын
Good one sir
@yurdindiaz240 Жыл бұрын
Mi hermana lo tiene, mi hermano posiblemente lo tenga, mi mama murio a causa de esa enfermedad, mi hermana tiene 7 tumores en la cabeza, somos de escasos recursos 😢 y no se si lo tengo yo y no se si mi hija lo abra heredado aparte mi mujer esta embarazada, y supimos de esa enfermedad hasta que mi hermana empezo con los sintomas :'c
@Trafie3077 ай бұрын
Thank u
@Rod-bp8ow3 жыл бұрын
When it is x and y chromosomes and pairing as well as the factors that affects the formation of the neurofibro it can be related to the environment of the x and y chromosomes where the genes originated. Water as an example, can be increased in its atomic charge from O2 into the highest compound that can bind and repel the atomic structure of the molecules, where the genes and chromosomes x and y order can be cured from the genetic structure as water molecules behave or recharged in order to prevent the free radical that causes the fibrosis from the gene x and y. As centrifugal forces have different charges in an atomic structure of a water molecule where the leukocytes are and so as the genetic order. Something to reflect in order to clean the waters by the word, as the waters cover the sea. KJV 1611 respectively, of sciences. laws of nature and the beast, every little thing that creepeth the earth.
@hemkumaribk81542 жыл бұрын
Then is it possible to stop fibrosis to form and increase