Meet a Man Whose Body Is Turning Into Bone

[@InsideEdition]

If you'd like to learn more about FOP, check out this story we did on people with the rare disease in the past: kzbin.info/www/bejne/bWS0mXuGa7CnpdU

[@TheRealBizWiz]

Beautiful families. What an incredible example they set. They make me want to be a better person and a better man. Peace and love to everyone from Houston, TX. ♥️🙏🏼

[@joannab.763]

@@TheRealBizWiz beautiful

[@joannab.763]

Ok thank you! Never heard of this! 😢

[@syncz.4590]

Nice It sucks that these kids and adults can't live like regular people

[@skinnypenis614]

Inside edition cringe

[@psnisplaqqy9753]

it’s so sad to think that some kids can’t even grow up slowly turning into bone or stone

[@fantasea4460]

Bone. Its not stone.

[@TerminaC7]

@@winnermatt1180 Calm down.

[@postalone8267]

Bone*

[@manuelumana64]

Misael Duenas what was the point of assuming people’s age’s second of all that was rude.

[@GamerBoss-fn2mo]

WinnerMatt11 he didn’t do anything.

[@FancyScanty]

That’s horrible to be stuck in the shape of the way you slept

[@lanekelso3603]

Im scared now.

[@slick453]

Its not like that

[@slick453]

Its only if you stress or tear a muscle and it doesnt change instantly, it just when it heals it turns to bone

[@FancyScanty]

Crazycarman same

[@jonc.m8717]

@@slick453 one mom said her son woke up one day with his arm like that.

[@reinasnotperfect8984]

"He woke up one day and it was just stuck like that." *New fear unlocked.*

[@nirvankarki993]

I KNOWWW I HAVING GOOSEBUMPS RN

[@tacticalfloridaman8595]

Wait, so does that mean I can get it at some point with no warning-

[@reinasnotperfect8984]

@@tacticalfloridaman8595 Yup

[@HazMedic]

@@tacticalfloridaman8595 you won’t

[@_phong.huynh_]

@@HazMedic There’s never a 0% possibility;

[@Vociferous]

I hope this rare disease gets cured for them to have a normal practical life

[@TacticalDroidTF-]

Vociferous Me too but I think the people that have already been severely affected may not be able to ever have a normal life....

[@JustJohn505]

Getting fame from commenting is a bad idea...

[@SnishyFishy2]

I always see U

[@monistermat2093]

Is it possible to amputated the place that is getting affected before the entire body gets infected or it doesn't work that way

[@alloushi27R]

@@monistermat2093 not how humans work

[@real_raveline]

If someone had the power to turn them back to normal. This is no joke, i wish there is a cure

[@zain6008]

There is no cure. There cannot be a cure. Maybe if they were extremely young, but there muscle has become bone and there is no way to reverse that.

[@davidperry4013]

When lab grown organs become a thing, there will be a cure.

[@gosuleo8835]

There is someone who can create a cure and cure them all...

[@joyfulleader5075]

@@zain6008 Doctors believe there's a possibility of a cure in the future, they're not 100% sure but they believe so

[@brodiecollier5841]

@@joyfulleader5075 Maybe it can be treated at birth, but once your turned bone, that's permanent.

[@sahmommamang]

This is so heartbreaking 😭 Hopefully there will be a cure for it one day!

[@aayan47378]

No kddididkd

[@anonymousaxolotl1757]

@@aayan47378 you alright there mate

[@thelegion8770]

@Just some weeb on youtube what does age have to do with anything?

[@JossPayne]

@@thelegion8770 True

[@robinlrice]

@Pewpew there is no treatment or cure, &.surgery is absolutely out of the question,.as that only makes the disease start spreading in the body faster, because FOP is triggered by injury & trauma to the body,.anything that damages any of the soft tissue,.such as cutting, or even vaccinations.

[@SalmanM190]

That mom really must be hurt inside knowing her daughter will have the fully fledged disease later in life 😔

[@LB_Firelord]

Salman M although there is hope for finding a cure

[@rickykoon4430]

It’s heartbreaking 😭

[@SUBZER0GREEN]

@@LB_Firelord With genetic disorders like this, there's not really such thing for a cure to use on an already-developed person. Even gene-editing isn't very useful after birth.

[@LB_Firelord]

Jovanni Rodriguez oh well then sorry I should have done research

[@SalmanM190]

Ricky Koon really is 😔

[@ladyirene123bey9]

Imagine living and having your body turn to bone untill you can't move and die...that's sad 😢

[@Pk-gy6lu]

Ya

[@JupiterKnight]

No

[@goldensun7702]

They die? 😭 Thought they just couldn't move.

[@sarcasticklutz]

@@goldensun7702 everyone dies at some pt in life some earlier than others

[@goldensun7702]

@@sarcasticklutz duh, but it's sad when people die earlier, like in their 50s or younger. A human is suppsoed to live around 80-100 years.

[@Dopelenii]

I've never realised how much I've took for granted.

[@Floodpro-ol8wj]

Always be thankful. ❤

[@Floodpro-ol8wj]

@Jay and? People like different things, and I play roblox, nothing is wrong with that. You can't force me to stop doing what I like. Have a good day 😌

[@itookanl9634]

@SH4WN What's wrong with playing ROBLOX? What did we do to you?

[@Kakjajx]

@SH4WN and what is the exact problem with playing roblox?

[@Gummible]

@@Kakjajx toxicity. Just toxicity is the one problem and it happens mostly in games murder mystery and breaking point. Maybe he/she was referring to the kids playing, but what's wrong with that. It is just a normal roblox player

[@aves8326]

I can’t imagine getting frozen in a certain position

[@MrPeterPan]

But you’re Kermit, literally a puppet.

[@tyleroliveira10]

Kermit The Green Boi *what if it was in a downward dog position*

[@theonewithdoggo]

@@tyleroliveira10 *hold up*

[@AnarkyWYM]

someguy156 “FREE BLOWJOBS” Girl:😭😭

[@tyleroliveira10]

TheOneWithDoggo //Duanesil2 dua *I forgot it wasn’t a yoga position*

[@laurahorton3591]

I can’t imagine going through this. I pray they find a cure.

[@SKLG03]

There might be a cure

[@lindahull4801]

Keep praying Laura Holten. The Lord works in mysterious ways.

[@lindahull4801]

@øranuto husband Everyone is entitled to his or her opinion.

[@lindahull4801]

@øranuto husband give it a rest. The end.

[@cartier3545]

øranuto husband You clearly don't know the difference between a fact and opinion. There’s no proof that God doesn't exist and there isn't proof that he does exist.

[@sillysara657]

i feel so bad, the fact i can just move my neck is a blessing.

[@jackthegod9988]

A blessing ?

[@n1kobefan]

@@jackthegod9988ohhh someone saw the word blessing and was immediately triggered would you prefer the word lucky instead? What’s go you so perturbed dummy

[@davidcook680]

Some of them read your comment. They cried.

[@frazix8293]

Imagine being in one only position forever damn i feel bad

[@nat8695]

all she wants to do is missionary, I already only do one position 😭😭

[@Too_li]

padz yeah well don’t it’s not like feeling bad will do anything. If you feel bad about it try to do something about it. Sorry that was mean and Nothing personal I just wanted to say something

[@dana-fq3zq]

what if u get a itch 😭😭

[@Y_drag]

the skull Don’t wrry I kind of agree with you too.I don’t think the people with this rare syndrome want people to pity them.

[@fbi9346]

Imagine u wake up with ur neck twisted and and it freezes

[@sarahburggraf907]

And i thought i was having a bad day. I feel ashamed.

[@daddygreen9399]

No one has a perfect day especially these people who can only stay in one position for maybe the rest of their life but yeah I honestly do feel ashamed in myself

[@vcvcf1896]

Sarah Burggraf what happened?

[@sarahburggraf907]

@@vcvcf1896 i had foot surgery last year. Instead of fixing the problem, it actually made it worse. Ive had trouble walking ever since. Ive spent a lot of time feeling sorry for myself since. I swear after watching this video i plan on making a conscience effort to get over it and be thankful for the mobility i do have!!! My problems seem silly compared to what these brave individuals face daily. Im envious of their grace.

[@lindahull4801]

I hear you. Makes every day problems seem so small.

[@miso6758]

Sarah Burggraf just because other have problems doesn’t mean urs aren’t valid

[@benchnyc]

Don't take life for granted, dead ass appreciate what u have rn.

[@agavesauce]

i think there's better wording than "dead ass" on a video like this. maybe lowkey

[@FreakingPlane]

@@agavesauce ye i agree. Its quite insensitive ngl

[@yoshkabosh7979]

Reminder: The heart is a muscle. This disorder will rot you down to the very core.

[@gamester512]

As is the tongue....it could very easily reach a point where these poor people even lose their ability to *speak* and literally become little more than a prisoner trapped within their own body.

[@Mrwiseguy101690]

It only affects skeletal muscle fortunately

[@PortugalMatt]

@@gamester512 unfortunatelety fop isn't the only disorder that makes you feel like a prisoner to your own body. My grandma's brother has ALS and can't even talk any more

[@graceynextdoor]

ah yes they need a reminder everyday that they could possibly die from this disease

[@Brickbuilder128]

Pretty sure it only affects skeletal muscle like in the arms, legs, Etc. Not the organs...

[@adamjustadam]

I can’t imagine the hell they go through. But they’re incredibly resilient fighters and that speaks volumes.

[@tessarenee1774]

Adam Hill true💛👌

[@damienrubio2097]

3:15 that broke my heart omg ❤️so sweet

[@awtzy1148]

Why you never upload to your subscribers?

[@zyenapz]

Ikr, what a selfless woman. More power to her!

[@turtle_6067]

@@awtzy1148 bruh, they have 78 subscribers. It doesn’t matter

[@awtzy1148]

@@turtle_6067 wdym

[@CharleyCheno]

w0t

[@notagain8509]

Awww that’s terrible. I feel so bad for them ): no one should have to go through that at all.....

[@Tolohtony]

@Patrick Kearns HA HA HA, WOO-WEE, BOY, THAT WAS A GREAT ONE! Never would have seen...that....one.........comingggg......

[@camoman132]

If I ever had this syndrome I honestly could say I would let scientists do whatever they need to do on me to help the other people.

[@camoman132]

@im gay but I didn't like my own comment 😂

[@camoman132]

@im gay but lol good one I noticed after I replied 😂

[@austrinivanderfanly745]

god is cruel sometimes, if you didn't know.

[@Rc3_Vinny]

Makes you realize the silly things we stress about aren’t so serious

[@awashrelic]

depends on what is is lol

[@colinmcguire3662]

@@awashrelic yeah this dudes dumb af

[@shapsugh1864]

Yeah maybe, but to some that little thing you find unworthy is their uncharted forests.

[@apmaz6112]

manermans like?

[@antisimptrooper4635]

Yea.. but it also depends

[@keyradelgarcia1581]

I swear to myself, why every disabled is so independent more than me.

[@chadmorgan6942]

Because there people☕ and there disabilities doesn't stop them being independent🗿 if you want to be independent don't be lazy🙄🥴

[@morganayling]

@Chad morgan you don't have to be so rude about it

[@justsomerandombananawithin3705]

@@chadmorgan6942 yea she was just making a point

[@dogdog7883]

@@chadmorgan6942 the people with these types of struggles try REALLY hard, and they have to be their own hero. They weren’t trying to come across as lazy, its just that people with such disabilities go to extreme lengths to stay independent

[@IchimatsuTrashneko]

They probably don't want to feel babied so they grow up wanting more independence. Someday you'll find yourself becoming more independent. It comes with time :) I grew mostly independent due to home life at 10 and others at 16 so there's really no true age where you become independent.

[@rarted2541]

man I was going to make a joke but that’s a fate worse then death damn

[@alextieng]

lol me too but I wasn't about to get attacked

[@braq4231]

alextamago imagine liking ur own comment abt how ur a terrible person

[@goated-yt2370]

@@braq4231 calm down man. You probably liked his comment just to comment that about him, like choll

[@KiwiPaws76]

BRAQZILLA almost like it's a joke KAREN

[@KiwiPaws76]

BRAQZILLA so maybe don't comment unless you want hate because you insulted someone because they care unlike you

[@kerriskuce4430]

The woman who is doing the trials is so brave as well as all these poor people. I can’t imagine this.

[@zyenapz]

This disease has always scared me ever since I found out about it. I can't fathom how these folks have the strength to power through it, huge respect to them and I hope they find treatment!

[@pi3.145]

And I thought I had real problems. Feel bad for these people, don't know how they stay so optimistic.

[@gamester512]

Hope for a better future is probably all that they really even have left at this point....being optimistic is probably the only thing even keeping these people sane. :(

[@bonsoirnon7966]

Pi3.14 don’t compare your pain lol

[@CosmicalAstro]

No, just because they have it worsening life, doesn't mean that your problems aren't real. Stop it with that mentality.

[@dannyaguilar4870]

This is horrible can’t imagine being stuck in one position for the rest of my life wish them the best 🙏

[@dano7843]

For Jessica skully. ”i won't let it stop me, it makes me look tougher” what a warrior

[@Mitsuri.Kanroji..]

so brave

[@retsreinyrelgeinthrelaveri1456]

Damn

[@hillyplays29]

My great aunt was diagnosed with that and was told she’d live for nine more months. She lived for nine more years until she passed away.

[@_tirrell]

damn thats sad, I wish good luck to the other people diagnosed with this

[@saff1257]

wow that’s incredible she stayed strong that long. bless her x

[@eyeless7772]

@YaBoiSoggyFirewood probably didn't know back then. Internet wasnt around. Doctors didn't know as much as they know now. The internet is our greatest compendium

[@1trickwootang]

Not my problem

[@Damianizthebest998]

Hillary your great aunt died a madlad and I respect that

[@MrCTheUkGamer]

The woman with FOP using herself for the drug triels is a hero in my eyes, shes using her own body to help find a cure and my heart goes out to them all and hopefully a cure is found

[@trebsquad1568]

I suddenly realize that I’m extremely lucky and fortunate. God bless these people.

[@emma9085]

My best friend had this, she died at the precious age 26. She would of been 29 this March. I miss your smile Stephanie. Fly high.

[@Raneem.s]

emma9085 I’m so sorry. I feel really bad😔

[@emma9085]

@@Raneem.s it is still heartbreaking but she did so much for the fop community

[@chelsea2018]

emma9085 im so sorry for your loss 😞💔

[@AOSMAKAKMS]

Stephanie is flying high with the lord!

[@indydd]

Rip Stephanie

[@hu.n.arianna]

0:53 When someone is near you, and you're on the weird side of KZbin.

[@catsdogsrule6584]

Or on P-

[@loribell3407]

@@catsdogsrule6584 oh na-

[@chickenroars8786]

@@catsdogsrule6584 oh no.

[@catsdogsrule6584]

@@loribell3407 what’s the matter I just put p you must have been on there before 😂

[@broaddaybooting8796]

@@catsdogsrule6584 uh oh lol

[@jonida_u3709]

Imagine being frozen your whole life.... I pray for these people.

[@dragonslayermc12aj34]

imagine if you woke up, and couldn't move. horrifying

[@Pk-gy6lu]

Ya

[@libbyyyyyyy]

DragonslayerMC12 Aj it happened b4 but it was sum sleep thing

[@tevinklyce8710]

Sleep paralysis

[@aishaamd3301]

Libby love 4 years ago and it’s sleep demons who hold your body still and whisper in ur ears demonic curses

[@libbyyyyyyy]

Aisha Artz that didnt happen to me that only happens some times to ppl

[@LineofBorax]

I wish I could just give these people a hug, even if they can’t hug me back. It’s sad asf that people have to suffer like this.

[@yeye7013]

This is so sad. But I hope they find the cure. ❣

[@AleroaTheAlta]

@@negan7110 F I N D the cure.

[@peachygirl5861]

0:13 I feel bad for that guy worst position possible-

[@saruzero]

Rabbit Face yeah

[@youtubecroissant3251]

Austin Tally facts

[@lestercrest9780]

Yeah i agree i feel so bad

[@gothdays4037]

He was in a club when it happen

[@david-xp3rs]

Rabbit Face hes kinda bad doe😳

[@myth0295]

Im felt so bad that everybody can judge them and not liking them for not being healthy I wish they deserve a good life

[@eddie587]

0:53 why’d he put it away so fast 🤫🤔

[@Slayerrrrrr]

LMAOO SUS

[@TopNoff]

*He was watching a fortnite montage and didn't want to get exposed*

[@giannaem5525]

Syphic_jellyjam DEADASS LMFAOOO

[@jazzyangelflower3344]

I'm not sure whether I should laugh or be disappointed in these replies 😄😥

[@user-yo4dz5np7g]

LMFAO

[@memadelrey5099]

I will never, ever, complain about my body again, forgive me Lord😭

[@Snakexkiller1]

Lord? who or what is that?

[@pullermatz5677]

@@Snakexkiller1 lord voldemort?

[@memadelrey5099]

He is our loving creator. His name is Jesus 🙏 call upon His name and demons flee. He holds all power in heaven and earth. Get to know Him my friend 🧡

[@oldpeoplecore]

Mema Del Rey amen🙏🏼

[@Chey1812]

It's a fake idol, don't bother listening to these idiots XD

[@willberry6434]

The resilience of these people is astounding

[@kidkitkat1619]

I really hope they find a cure to this soon. People don’t deserve to go through this and turn into a bone statue.

[@hibernatecharscar6253]

Life before the difference between the words “soft” and “stiff” were discovered

[@TomFromYoutube]

Huh

[@russianspy1650]

should I be laughing

[@BesNewFails]

I mean come on show some professional courtesy 🤦‍♂️😂

[@BesNewFails]

@@junezapitron8990 it's a meme kinda

[@saraswinerton7202]

@@junezapitron8990 what doest

[@Al_Man9oori]

At least they can talk :( I am so emotional and broken by this I wish I could go there and hug them all

[@MySerpentine]

For now. The jaw is a muscle . . .

[@AAALLDAY07]

I wish there’s some kind of cure to this horrified disease. No one should live they’re life like this

[@zerolayne8245]

Inside Edition: Meet a man whose entire body is turning into bone! Me: But... But there's... Multiple people here... With the same- Nevermind.

[@obesegeeseanimations1205]

Dude i was gonna comment this, guess I'm not quick enough

[@Cappy.Capnut]

I also was gonna comment this....oof...

[@Shamrock737]

Imma be honest id rather die than go through this.

[@paxton_6569]

Same

[@JohnnyjohnJ]

Theres stil hope in their eyes.

[@realrtot9138]

“Body turns into a bone”

[@GamingBurger115]

Roblox teh Object thingy With 4 Brothers *CALCIUM LEVEL 1000*

[@policelife1291]

@@GamingBurger115 ew a fortnite kid

[@GamingBurger115]

Police Life k

[@winnermatt1180]

Police Life agreed

[@RayoTheTomato]

@@GamingBurger115 this is not a good time to joke rn

[@whatispie8380]

2:39 when I saw his back I low key curled up knowing how much that’s gotta hurt

[@corazon7871]

So I watch inside edition a lot and I am very shocked to see him!! He's one of my friends

[@corazon7871]

@Meher Zubair I unfortunately haven't seen him since the pandemic started and haven't heard from him

[@corazon7871]

@Meher Zubair I honestly hope so

[@Caden2008]

It breaks my heart it's really unfortunate that people have FOP

[@melonchaa07]

Meanwhile.. Me: *being a couch potato with a perfectly healthy body*

[@sisner7246]

e

[@funk7490]

e

[@holdthisoak5767]

E

[@jakeryker546]

e

[@Claudia-bm9bw]

e

[@josephvazquez3718]

1:50 i have a little sister JUST like that little girl in the video and that little girl seems so happy and so playful and reminds me of my sister and it makes me so sad knowing what is going to happen to her as she grows up literally broke my heart and brought me to tears

[@FakeExotic]

Imagine how relieve all of them will be when they become normal

[@bean-oe6rd]

The sad thing is that they won't,

[@spurilly9782]

This really makes you thank god for not having to go through things like this. I hope they find a cure

[@jeremiahcall1722]

True, especially since we all deserve worse than that

[@jalisareid5778]

This made me cry and realize they can’t do so many things we take for granted.... I pray there is a cure🙏🏽

[@Deebo277]

Why aren't politicians talking about these peoples issues, instead of tax break for corporations.

[@NotVeryRandomDude]

L. Soto Because there’s only 800 of them in the world.

[@moneyway8178]

@@NotVeryRandomDude good point

[@englishpaper6421]

only 800 cases known as of right now*

[@xavier4563]

Why would they?

[@AAAAA-es8zn]

Yeah let's focus on a problem that only affects 800 people in the world rather than a problem that affects millions

[@billyjeanjones9271]

When your playing freeze tag and none of your mates come and unfreeze you

[@kristiaiaian]

dead

[@Villosa64]

hahaha ur joke is funny but i have the high ground its over anakin

[@wildlyzeus]

LMAOO

[@tiredcitizenz1925]

@@Villosa64 none of what you just said makes sense

[@jz4nnx]

This is so sad... 😔 I really can’t imagine the pain they must be feeling.

[@not_charlize1858]

i feel so bad for everyone who goes through this god bless them all 1 like=1 prayer for them all (please stop commenting haters!)

[@aquaticmaniac8979]

I'm praying for them, but I mean using that for like is kind of messed up

[@bunniallure]

Aquatic Maniac exactly, people take advantage of bad situations to get 5 minutes of fame. that's sick and disgusting

[@tiktokvictory7644]

How about if you were in this video and I begged for likes, you wouldn’t like it. So stop it and it’s rude and disgusting, have some respect!

[@not_charlize1858]

@@kirkster1508 I'm not begging

[@not_charlize1858]

@@aquaticmaniac8979 it's to show how much people support them and who they have on their side helping them to stop this all

[@ladyterrestrial1679]

I’m never going to feel sorry for myself ever again.

[@jaxxoceans3866]

Why the hell wld 5 people dislike this? I dont get it

[@boychief250]

But at the same time who would like watching this ...

[@adcgdsin9320]

Why would you care? Who freaking cares?

[@SUGAR_XYLER]

cause I don't like to see kids suffer

[@faithbabiesrebornnursery1895]

74 dislikes***

[@adagi--hiko7110]

Maybe because they think its sad or somethin. Damn

[@SidWalter]

0:47 he do be throwing it back doe

[@shinden1736]

Yo that's not funny man, btw I know your joking, but seriously, that's rude.

[@ASlipknotFreak]

God bless them all! I was born with spinabifida and cancer and I’ve been through a LOT, but I’m sooo lucky to be able to get around still, granted not the best, but without help. I had no idea FOP was a thing. The courage they have is incredible!

[@andreacarrillo9060]

Glad to see that Ashley from Mystery Diagnosis is doing good. She’s done a lot for the FOP community :)

[@asiaadelane3427]

“How far can you turn your head” “Not very far”😭😂 I think that’s the only thing that lightened the mood in this video. But seriously, this is sad😫

[@skxzzie2276]

Fireboltr2 Gaming you shut up

[@kaidyer8761]

😂😂😂

[@vontw33zy]

😑

[@Secroo]

😔 i never knew that human flesh can turn into solid bone..

[@poopfartlmao2986]

the flesh doesn’t, the muscles and joints do

[@смиренный-х2б]

Kudos to those kids. There's no way in heck if I were a kid diagnosed with this and had to see what I'd turn out to be in 10 or so years. I'd have to take the other way out.

[@bananamonkeygaming14]

deep

[@ephreumwinslow4831]

@@chris_the_midget5256 I think he means he would take his life

[@1450sturpin]

Ugh the lady who said she is doing the drug trials so they dont have to ♡ hero

[@kyu9233]

A moment of silence for these families

[@Chestnutcow]

When I get tired of my legs being straight, I’ll want to bend my knees, or if my my shoulder is falling asleep I can shift it...I can’t possibly imagine being stuck in a pose. I take so much for granted.

[@faizdhiya7258]

Can everyone do a prayer for these ppl hwo have FOP i feel really bad for the one hwo cant move :(

[@noellealdi881]

I always will🙏

[@Jlsuer]

I see this story as one of gratitude. I’m so grateful to see so many people with FOP able to live a full life. It is different from mine and undoubtedly harder due to the way our world is set up. I see lots of love and support within their community. I became acquainted with FOP back in the early 1980’s. I am so very grateful for the medial advancements made since then.

[@basmalahal-korsan6503]

No one: Literally no one: Swedish people: I'm from Sweden

[@prinsarnaproduction1133]

Lmao that's funny because IM GROM SWEDEN

[@basmalahal-korsan6503]

@@prinsarnaproduction1133 me too

[@basmalahal-korsan6503]

@Kevin Montrond I always tell my friends at school that I'm from sweden and they keep telling me that I've probably told them a billion times😂😂

[@krepler]

Im from America 😢

[@minzh.09]

krepler I’m from Asia

[@NLFlyFisher]

Imagine being the gentleman with the fused jaw and having a stomach bug, vomiting must be horrific. God have mercy on their souls

[@robinlrice]

"Imagine beingbthe gentleman with the fused jaw" its not just him, more thsn half of all people with FOP have fused jaws, and the others will soon, its just a matter of time. Also, imagine not being able to lift either of your hands up to your mouth, to be able to eat or drink, or use the restroom on your own. There's so much more that we can't do, that most everyone else takes for granted..

[@NLFlyFisher]

@@robinlrice like I said, "god have mercy on their souls".

[@robinlrice]

@@NLFlyFisher as a person living with FOP,.thank you for your kind words!

[@mamamoose23]

Give thanks and praises to these drs and parents who put their all in what they do🥰

[@toohao]

imagine just being cramped in the same position for your WHOLE LIFE

[@robinlrice]

I don't need to imagine, every joint in my body is locked in place, including my jaw. FOP is the most crippling disease known to man. I'm also completely paralyzed & bedridden because of it.

[@leolyboi]

May God bless these people. I can’t imagine living like that.

[@messiah7344]

I legit feel bad, no person deserves this.

[@aa329809]

The woman who's doing the drug trials Ashley Carpile is my hero her story is an amazing one

[@JackieO1992]

toothy hogwartz101 I saw her story on Mystery Diagnosis. She’s truly an amazing person.

[@aa329809]

@@JackieO1992 she is she has a Facebook and Instagram Ashley Kurpiel I spelled her last name wrong

[@isaacvp2]

0:48 why he got all that cake tho

[@03kodahills88]

xDe5troyer 😂😂😂

[@slimy1863]

LMAOOO

[@terrurist813]

everyone in the comments is saying how sad this is and i see this, truly amazing

[@vathanarajthambiyappah2567]

Pattern up man😂

[@leviosa5580]

God this is just so sad... Dear God please bless these people and give the courage their family needs.

[@lloydgutierez9291]

and some people still complain about their lives....

[@Fur4all]

Their disease doesn't Invalidate others Problems

[@thecreaturefrommonsterisla9619]

Lloyd Gutierez Just because the people suffering from the disease have bad lives doesn’t mean that other people can’t have bad lives either.

[@saraha8305]

I hope they find the cure for those kids and for all of them they deserve anything

[@NaazyD]

Notice how happy and friendly everyone in the video is. They truly making the most out of life. Inspirational people

[@MahdiQasem3]

What the boy said to the girl how far can you turn your head I felt that

[@openlyracist8055]

Watching this makes me feel a bit relieved that even after going to war, and being born with a bad heart. The other side of the pond, is far worse.

[@t_aco1812]

I feel bad for all these people. May they live a long life.

[@pigielok8329]

Hope they could live thier life happy and not put themselves down

[@bobdaniels8449]

"How far can you move your head" "not very far"

[@saharasafari4529]

😂😂

[@MC-lf6xq]

2:18 wait I literally know that guy. I went to school with him since kindergarten. He used to talk about his disease to the school every year and gave us these wrist bands. I still have mine.

[@funktubegh7694]

I know not everyone would like this but there is a man who can help his name is Prophet T.B Joshua just search his name on youtube and see

[@santimeek5063]

Not even God can save these people

[@cfh86]

@@santimeek5063 Why not? As in, why don't you think so?

[@funktubegh7694]

@@ryana1400 how is God imaginary when there was proof of Jesus christ's existence

[@robinlrice]

@@funktubegh7694 people writing a book, os far from peoof

[@robinlrice]

Sorry to tell you, but your TBJ can't do a darn thing to help, fix or cure anyone.. stop spreading voodoo magic spell fairytales.

[@bigbanpros1065]

Am I the only one moving my arms and legs to make sure they aren’t stiff?

[@michelleshocked2010]

I may have my own set of problems but i will never take being able to move freely for granted again!!!

[@sophiebyers5496]

When FOP have a cure; that will be the most happiest day in my life.

[@wayjohn]

How the mom said “we’re from Sweden!” Was so wholesome

[@drunkenfist3084]

people need to give more credit and support for caregivers they go through a lot and lot of the time they never get any recognition or help when their social,mental and physical state decay drastically as years pass.

[@floppychzcake7936]

I was gonna make a mean joke as usual, but i wouldn't wish this on my enemies. I don't think i could stay mentally stable if i was in their position.

[@mitzxba1407]

Imagine living like this, but in a uncomfortable position 😣