This Young Man Is One Of Two People In The World Coping With A Rare, Nameless Disease | NBC News

[@sabastiantaylor7209]

It’s no longer a nameless disease. In 2020 they named the syndrome “Mitchell Disease”. He donated his body to science to help them understand his disease more. RIP Mitchell. My heart and prayers go out to the loved ones you left behind.

[@mirandaherndon2798]

He always said he wanted to donate his body to science so that they could try to find out what was going on.

[@LavaAnime]

There already exists another condition called Mitchell's Disease, though, so they may or may not change it in the future to avoid confusion.

[@FantasyGirl365]

What a brave and amazing young man 🥺🥺

[@insertusernamehere8575]

Screw u u ruined my day I was gonna name it

[@meganversteeg61]

@@LavaAnime ''Erythromelalgia, formerly known as Mitchell's disease (after Silas Weir Mitchell), is a rare vascular peripheral pain disorder in which blood vessels, usually in the lower extremities or hands, are episodically blocked (frequently on and off daily), then become hyperemic and inflamed.''

[@_samaa]

They need to try to reach out to the girl in Korea. She's probably feeling lonely too.

[@bingbongcentralhq]

I was also wondering that. But would HIPPA laws make this impossible?

[@cutienerdgirl]

@@bingbongcentralhq Nope, Korea releases all medical info to the public.

[@533134]

Pink really?

[@magnumxlpi]

@@cutienerdgirl that's gotta be awkward sometimes

[@butteredbananas1394]

@@magnumxlpi glad I don't live there. I went to the hospital for hemorrhoids once 😶

[@rydemk4168]

Kudos to this guy for not being super negative and even smiling and making jokes.

[@inessa5923]

Ryde Mk Eh, not all people with a sickness/disability go around being sour over it all the time

[@mavibaso]

datbig304 dude, that’s not what he said. He just said he respected the guy for being able to look at the light side of things. Don’t be such a downer

[@inessa5923]

@@mavibaso Never denied that, just thought it was weird that he should be extremely praised for not being "super negative" and even smile (oh my, can you believe it??) and make jokes (Yabai!!!!!) as if being disabled is the most horrible thing in the world that should really make you miserable

[@tareqal-hasan4975]

Meanwhile you got perfectly normal people that are blessed and go all suicidal. No appreciation for what they have and its pretty sad.

[@Sweetzhu]

@@tareqal-hasan4975 I see what you mean, but to some people life is the opposite of a blessing. Honestly can't blame anybody for feeling whatever they feel.

[@ocn_palm]

It’s really sad hearing him talk about how one day he wanted to be a father and knowing at the same time the he passed away 6 months later R.I.P.

[@GaminGilmore]

God dammit yeah I'm bawling my eyes out right now thinking about he wanted to meet a girl and him talking about his plans for the future. ffs the world is a cruel place.

[@ceezb5629]

He may be reincarnated and have an amazing family in his next life… I’m not Buddhist or anything but who are we to say we understand God or a higher being/consciousness? RIP

[@rikrishshrestha5421]

@@GaminGilmore At least he died,world is even more cruel to those who fell in love with the girl that doesn't love him back and now he just has to live rest of his life knowing this.

[@NvS-oj9xi]

Rikrish Shrestha That seems quite personal I'm guessing you're talking from experience? Do you want to talk about it? It's only the comments of KZbin but I'm sure whatever you're going through someone can help? It's better to talk than hold everything in!

[@rikrishshrestha5421]

@@NvS-oj9xi you're right . This case is from my experience But no worries, those painful days came and now i'm somewhat fine. But, as i said, you still Have live through knowing that the person u loved will never be with u, and its always stuck like a nail in ur heart.

[@志瑜杨]

I hope he and the other girl can meet. Being the only two people with this has to feel lonely.

[@mitchellherndon5343]

It most definitely is lonely

[@Adulting_Sucks]

@@mitchellherndon5343 I admire your honesty. Most people try to downplay their struggles for the camera and masquerade as happy-go-lucky when the reality is that they are not. It is wonderful that you have a supportive family and I genuinely wish nothing but the best for you. I know you don't have all the answers you seek but I hope through treatment and the love of family and friends you at least find some peace and comfort in your life. Sending lots of love and encouragement from NY. ❤️

[@志瑜杨]

@@mitchellherndon5343 I am sorry that your two are going through this.

[@maryrosedipiro7363]

Stay strong dude. Your story is one of a kind, and although that means it’s lonely, it also means you get to see a side of things no one else can see. Best of luck in the future!

[@TheChickenRiceBowl]

@@mitchellherndon5343 Just subscribed! Sending positivity and hope your way! 💖💕

[@uzuvert7542]

Never really notice how lucky I am to be able to walk, run, jump, grip, all without effort or rehab. He’s a true inspiration. Wow.

[@tanner5718]

we’re fr blessed

[@KathyAnne28]

As someone who has multiple autoimmune and joint conditions, you really are. ♥️ Do something that we can't today.

[@uzuvert7542]

@@KathyAnne28 yes. may i ask for something specific? not to be ignorant but i wld hate to think to myself “what wld someone who is is handicap-able, do?”. hope this greets u positively. thanks.

[@carolineprizty2485]

@@KathyAnne28 just saw your videos on your channel, you're so pretty. I hope you're doing okay & happy, GBU ❤

[@AlmostaFlipinSkater]

We gotta count our blessings

[@kandiasoverton6671]

Rest in peace Mitchell. He lost his fight on October 2, 2019.

[@هدي-ه8ظ]

what- 😭🙏

[@xselinarose]

@@هدي-ه8ظ it states that in the description of the video 😢

[@rogeretiennedelacruz3000]

So sorry that he has passed on.

[@nnnooo6788]

Oh no...

[@mommyandzamchannel1823]

So sad 😥😥😥😰😭😢

[@ohmanyourecool1]

Fortunately through the research conducted by the team at Baylor, and the generosity of Mitchell and his parents’ DNA, Mitchell Disease caused by abnormalities in ACOX1 protein via amino acid substitution of N237S was observed treatable with the drug bezafibrate. Bezafibrate was proven to suppress these deficiencies in fruit flies that lacked ACOX1 (mimicking Mitchell Disease) and had a significant improvement in lifespan, vision, motor coordination, and neuronal function (Rodriguez, 2020).

[@KaylaTheKindOne]

oh thank god

[@mallorykane2843]

Thank science

[@ohmanyourecool1]

Yes thank science. It’s amazing that the first of only 3 global cases for a new disease put his body on the line for scientists to discover the primary causes and develop a therapeutical treatment.

[@SeekingTheLoveThatGodMeans7648]

@@mallorykane2843 Thank God for sane science.

[@coach9313]

@@mallorykane2843 u must be fun at parties

[@adammougharbel6752]

The way he talked about loving a girl, getting married and having kids made me tear knowing he couldn’t live and get any of those bcs he passed away...

[@ren0552]

No, don't be sad. Just think of it more like this: God simply hear his wishes, take all of his pain/suffering, and grants those wishes by taking him to the beautiful Heaven way before us. Just believe that now, He can finally be happy, forever.

[@samdiaz3533]

😢

[@nazomius7033]

If reincarnation does, surprisingly, exist, then I hope his next life is a great one...

[@Maya-Hayden]

@@ren0552 it's so sad, meanwhile there are young men out here just existing with no plans whatsoever

[@MsBhappy]

I cried because he encapsulates countless qualities that I look for in a partner. He deserved the experience of romantic love.

[@ikhlasbenhmida1711]

Knowing he actually lived for 5 months after this was filmed makes this really hard to watch. Especially when he was talking about dating and his future :( My heart goes out to his family

[@SquirrelModeller]

He will forever be an inspiration for others to look forward to the positives in life. His story and perspective might have saved others.

[@taochi100]

@@SquirrelModeller People like me. It did. I do hate sometimes just how much empathy I have. To not even know someone but to get so sad for their pain.

[@kayd.926]

Wait he died??

[@kunokoaeri3505]

@@kayd.926 Written on the description box !

[@jodiecrofts2190]

@@kayd.926 unfortunately he did

[@nguyendang6178]

His mom smiled in every part of the interview... It’s like when you already cried too much and ran out of tears...

[@miketas7665]

Dang

[@cloroxbleach2581]

It's her mask.

[@virgocx7178]

Naw I just don’t think she was sad at the time

[@jadeyjoestar7459]

@@virgocx7178 You can literally hear her hold back tears at 6:51 wym

[@quoraexpert6295]

just because you expect someone to be emotional doesn't mean they have to be. grow up, the fact that you think tears equals sincerity is so immature, cringe and ignorant.

[@james.mcdonaldtv]

Rest In Peace, Mitchell. He seemed like such a kind soul. He’s at peace now, prayers to his family. Seeing a story like Mitchell’s makes me inspired to be grateful for life.

[@zxz4410]

Spoilers smh😕

[@ceezb5629]

@@james.mcdonaldtv where? I don’t see it? Did he really die? Someone just said they’re giving him fruit fly medicine which extended his lifespan.

[@RyanMarc12]

@@ceezb5629 the description says he passed

[@yamd8114]

No way ):

[@ruspotter2037]

Guess he never found that special someone

[@amazinggrace5692]

My daughter, Laura age 32, died in April 2019. She had many diseases and disorders that developed through the years, many were autoimmune related, but some were rare or undiagnosed. She eventually got the flu and her body was so weakened and damaged that she couldn’t recover. She often said to me, “mom, I won’t live past 40” and she was right. Her greatest wish was that we donate her body to a research lab so that if she had to live with so many painful and limiting diseases, at least someone might benefit in the future. So we donated the organs that we could and then sent her body to the lab as she wished. Laura made the most of her life and lived more in her 32 years than most. And her example and legacy lives on. We should all do so well. Much love! 💕🐝 #Bee Kind

[@tishadash9439]

God bless her soul 🙏🏻 . She was an angel 😊

[@DarthFurie]

She sounds like she was a beautiful, wise soul. May she rest in peace, and may her memory be a blessing 💕🙏

[@babe8917]

Cathi Shaner i am so sorry for your loss. I know Laura is at a better place

[@crappyaccount]

Rip🙏

[@chad9015]

I'm sure Laura is happy in heaven. RIP and sorry for your loss

[@idk-mx7kw]

How unfornate and sad hearing he already died, he even donated his body to professionals to examine his disease. Such a good and selfless person, may god bless you.

[@BruudaOsas]

He died wtf.......

[@arraikcruor6407]

@@BruudaOsas read the description.

[@marster_1203]

@@spaceranger8856 can’t wait for your turn

[@spaceranger8856]

@@marster_1203 that’s weird but okay

[@ethurrrnet]

@@marster_1203 yeh me too i wanna see his loved ones just get over his death

[@strongside4565]

My man knows that his time is extremely limited and he's still happy to serve as a case study, that's a strong mindset.

[@TubboDaKittyCat]

Strongside He wishes to help advance the study of the human race so that future generations who potentially get this disease will have a cure for them and not have to suffer as he did. He’s an icon of what the human race lives for. To strive and advance

[@maxplaysgamez-sharesgaming1756]

*Respect [phone]* For Him.

[@Just_Joe]

This is a moment of realisation when most of us dealing with useless crap everyday find ourselves burnt and stressed out, and this young man on the edge of progressive dying stayed positive and still had aspirations. It's a paradox how most of the people who suffer from diseases have much more optimism and energy to live than anyone else who's healthy and consistent in life. Rest in peace, warrior :(

[@blazer7731]

They really are some of the strongest people imaginable😢

[@silverdemon1530]

That's cause they were born that way for example someone who was born with the ability to walk wouldn't care about it but when someone is born later on can't walk they'll wish to walk and they'll be often nicer then others

[@chumbue6537]

Maybe because they are born with it? You think some people are born losing their job, born with the various other issues they face? Clearly he's doing fine and coping fine with his issues, because he's gone his entire life like this.

[@facelessandnameless]

@@silverdemon1530 He wasn’t born that way. It didn’t start until he was 12 years old.

[@facelessandnameless]

@@chumbue6537 He wasn’t born that way. He was 12 years old when it started.

[@riverrebel1]

I really like this kid said thank you to everyone who helped him

[@mitchellherndon5343]

I certainly try my best

[@dddila]

@@mitchellherndon5343 you are a kind and sweet human being. I hope the future holds a solution for your condition. Keep fighting!

[@dddila]

@brett linthicum whatta narcissistic 👏

[@Tatacchan]

@@mitchellherndon5343 You are an AMAZING person. I am blown away by the wisdom, maturity and compassion you possess. I know this will sound cliche and I hope I'm not being insensitive.....but you are a very special person. I firmly believe you have a special destiny in front of you. I think you will change the world and improve the lives of millions people around the world. You are meant to do something great. Even this documentary, the way you explain things and the way you smile....you are already changing the world. Please do not give up. You are the shining light for many of us who are suffering with medical mysteries. I look up to you and admire you so much. One last thing I would like to add is this (it will sound like a lot of new age nonsense, but I'm going to say it anyway).....the mind is a powerful tool. We are spiritual beings having a human physical experience. We are not our body, we are far more powerful and vast than we realize. I'm not saying that we use our minds to fly and stuff like that. But there have been people who have been cured of the most atrocious diseases....spontaneously! And doctors were equally baffled. Dr Joe Dispenza has healed himself through the power of the mind, for example. If these people did it, then there must be hope for others too. Anyway, that's all. I hope I didn't bore you or insult you in any way. You are in my thoughts, in my prayers and in my heart. I wish you all the very best. Take care

[@hoffmathsmathematics8027]

@@mitchellherndon5343 I'm from Brazil and I wish you all the best and hope you reach your dreams. You have a beautiful family that loves you and this is something very special in this world. Try to look to the good people you have in your life and be sure someday things will get better. 🍀🤞🥇🌟🏆

[@brett8460]

It's scary being diagnosed with a disease even if it's curable. It's even scarier to be diagnosed with something that doesn't even have a name and therefore no general plan of treatment.

[@veronicam2942]

Must be terrifying.

[@ssadpeach7666]

If I found that out about myself at 12 I wouldn’t know what to do other than break down in tears

[@brett8460]

@chris madsen Yeah, that's what I said.

[@hayleystark5130]

And it's even scarier not to be diagnosed at all.

[@AmericaNeedsWeed]

Ps4 is better than Xbox 1

[@AbigaleKirsten]

He said he wanted to find love and one day be a parent.. and then i read the description.. 😭😭😭 To the family, I know it must be hard even after a year, honestly through a camera his smile was seriously contagious if not brightening, his laughter made me wanna laugh. I hope all of you are taking your time to grieve but admire his strength and positivity through it all. And i hope life after this comes much easier than having you bare any more heart ache. Best wishes and loads of love ❤️❤️❤️

[@donttestmypatience6864]

Bruh if I hadn’t come across ur comment I wud have never known....

[@user-zr4od4qg7s]

I know right. He deserved better. He is sleeping in heaven :)

[@shojimujoshojimujo3315]

Same here. Extremely sad :( It's a reminder to appreciate everyday that we wake up relatively healthy and able.

[@sacred-chan157]

If he didn't had that disease he would have been the best parent. Some diseases are so dangerous and rare that doing research is not easy.

[@dr.zombiex]

I literally broke down crying at that moment. Poor boy never got to experience any of it. 😭

[@ShadowSorcerer]

For people being like "I'm not gonna complain about anything ever again" No don't do that. Yes what he went through sucked and he was able to be happy about things but don't put your problems aside cause others have it worse cause really everybody is going through stuff. Your problems are valid and you are valid for what you feel so speak out when something is wrong. Complain when you want to cause its not good to bottle stuff up. Don't compare your problems to others cause we all deal with stuff.

[@hollywoodbelongstosatan6557]

umm your weird dude!😕😞😒

[@ellw7830]

you’re right and you should say it !!

[@troublesmcg]

@@hollywoodbelongstosatan6557 Your weird dude

[@defrostedwinter]

@@hollywoodbelongstosatan6557 *you’re

[@ellw7830]

@Rodent omg we love a philosopher! fr tho you're so right :)

[@SamuelSamuelSamuel1]

It’s sad, because the South Korean girl is now the only person in the world again... :(

[@clomyst]

Who is the other one?

[@AiyaaaJenny]

@@clomyst the guy in the video you just watched was the other one, but he’s no longer here.

[@jimhcanencia8245]

@@AiyaaaJenny When did he die? 😭

[@Nicholas-Salazar]

@@jimhcanencia8245 October 2nd, 2019

[@clomyst]

@@AiyaaaJenny no i mean what's the name of the girl?

[@GrahamPhelan]

There's just something so genuine about him. He tries his best to get on with life but doesn't hide that he goes through suffering too.

[@mitchellherndon5343]

GrahamPhelan I try my best

[@tracieross9928]

Mitchell I hope GOD heals you. Ask HIM and he will do it. GOD bless you.

[@mariahwilliams5333]

@@mitchellherndon5343 you are so handsome 😍 thank you for being inspirational and allowing everyday people to have a glimpse into what life is like for you. We are rooting for you!

[@p.denisa9287]

I hope he finds someone as amazing as he is. He has a beautiful soul and he deserves to be happy.

[@danielmoore4707]

Tracie Ross no

[@totoromags]

MITCH IS MY FRIEND YOOOOO HE’S A RADICAL AND STRONG DUDE I’M SO PROUD OF HIM

[@RAVIOLl]

Tell him I said that I have high hopes for him

[@jessicamedina5251]

Tell him to make a youtube channel to keep people updated and maybe spread some awareness

[@mitchellherndon5343]

yoooooo mags

[@totoromags]

Mitchell Herndon yoooo mitch how u livinnn

[@user-hb7sj1jm6o]

he really is strong, sticking through this

[@rossc0917]

To be able to live life to the fullest and be happy even with such a rare and life-changing condition is quite special. I hope that someday answers will be found. May he Rest In Peace.

[@Erik-uo1cx]

You only see what you see on tv he’s obviously really strong and showing this best attitude to set an example for others who will suffer like him one day, but I’m sure he suffered deeply inside and had many outbursts

[@TheWelchProductions]

It’s not really that special. People learn to appreciate life more when they have less than others or when they know their time is more limited. They try to make the most out of their situation.

[@grainiac7824]

@@Erik-uo1cx He VERBALIZED that. He said he didn't want people to think he didn't have hard times and that yes it sucked etc but he still tried to make people feel comfortable around him. How lonely it looked when he was in the w/c at that event sitting in the STAIRWELL b/c there was no place for him with others... : (

[@iiCounted-op5jx]

@@TheWelchProductions 💯💯

[@tppb1064]

I was so hopeful when he said he wanted to meet that special girl, get married and have kids. Then I read the description and my heart broke into pieces when I saw that he had died. My condolences to his family and friends that knew him.

[@itsbritneybyotch7471]

Ikr

[@kaypierce4441]

Yes, me too! I was so hopeful for him and wanted to even reach out to him and his family to show support! My heart just broke to pieces when I read the description. My prayers go out to his family, friends and the young girl in Asia who is also battling the same disease.

[@kaito-fukasejam8387]

What if the korean girl is 12

[@jammedyam3389]

@@kaito-fukasejam8387 he meant to meet the girl (to talk to her) and get married with someone else

[@notmyname806]

@@kaito-fukasejam8387 the girl was 14, they said so in the video, not that that’s better, but I think he just wanted to meet her.

[@allme2547]

I'll tell you this, he certainly had the right mother. What a genuinely loving person to say: "Why anyone?" She expressed her sorrow so well, but never came across as self- pitying. I pray she finds strength & comfort in knowing she did her absolute best for her son.

[@Guineapig-yo6fi]

Ikr. Also 771 likes and no comments? I’ll be the first.

[@kittykat3796]

Guineapig1227 frrr

[@cruisepaige]

And the Dad! Amazing.

[@frisco61]

She will have her answer one day, when she’s reunited with him. Sometimes that’s the only thing we have to hang onto, and it is enough.

[@HarshDude126]

@@frisco61 There is no answer, there is no reason why this happened. It was totally random. She won't be reunited with him. People cease to exist when they die.

[@mariangelcarr]

He’s honestly very well spoken and mature, truly a strong person

[@EmceeIntricacy]

An?

[@TheSP33DFREAK]

He is an hero.

[@EmceeIntricacy]

@@TheSP33DFREAK no, just no.

[@nicolasmartinez4337]

ᴍᴀɢɪᴄ sʜᴏᴘ ღ a strong not an

[@josephfraire4505]

He needs to try medical cannabis

[@karenguan6082]

The fact that he can still smile is just unimaginable.....I wouldn't even be able to maintain my sanity

[@NoName-fo7mz]

That’s pretty pathetic for you then

[@nafreal]

@@NoName-fo7mz bruh

[@YGK-]

@@NoName-fo7mz bruv

[@tylerray9136]

My grandfather is suffering from creutzfeldt-jakob disease he is progressively getting worse everyday but he still smiles and kinda chuckles at jokes even though he can't really talk anymore. It's very sad.

[@crazyentertainment4842]

He died tho according to other comments

[@milliemouse6525]

I am sorry to learn his no longer with us. He seemed to be such a lovely young man notwithstanding his terrible disease.

[@vepm]

H-he died?

[@Laika4895]

@@vepm sadly. As far as i can find, he passed in October of 2019

[@vepm]

@@Laika4895 yeah, im just read the comment, also the video's description. You know i've been crying for 1 hours cuz he passed away, like this video published on May 2019 and he passed away on October 2019.i can't deal with this

[@holly712]

Omg no

[@tx725]

I’m literally crying omg:(.

[@joalexander8775]

He was my classmate and we graduated high school same year. He past away Wednesday morning 10/2/19 after losing his battle with the illness after being taken off life support - his request. He didn’t want to be unable to interact with those he loved. Give prayers to his family and friends please. He was a good guy. Rest easy Mitchell ❤️

[@catalina4474]

eh pretty sure you just got that out of the description

[@a.e.i2409]

@@catalina4474 but if he didn't you are probably the most inconsiderate and rude person in this comment section

[@a.e.i2409]

@@catalina4474 and if he did get it out of the comment section, that's actually discusting. Using someone for likes is really shallow

[@vepm]

Hey jordan, may god give u strengh. I watched this video often in my free times. He's such a beloved person, talk-active and so friendly. I always bursting into crying everytime i watched the video, especially when he said he wanna find a girl that loves him as he is, build a family and raise a childern, that's make my heart can't accept his passed. Afterall i hope you and his family doing the best. -passanger

[@nerdomatic2489]

Yeah and my grandfather was a member of The Communist party of the Soviet Union. Get your disrespectful clout-seeking bs outta here

[@Geronimo2Fly]

When he was talking about wanting to find that special girl, I was thinking, "You definitely will!" Many young women would be attracted to his kindness, honesty, compassion, humor, great family, and of course his good looks. I was so sad to read that he'd passed away shortly after this was filmed. What a very special young man. Rest in Peace Mitchell.

[@ShatnerLover]

He was so handsome, too! I had high hopes for him and then I read the description after watching. His family is amazing

[@rexman971]

Sadly the majority of women see the illness not the heart

[@gregsmith2973]

So unbelievably sad. Makes my problems seem petty. My sorrows go out to his family and friends.

[@Zphillyy]

Seriously the things I stress over seem so minuscule compared to his situation, kind of angers me that I take my life for granted when there are people with far far more serious problems.

[@TheWisePongo]

Nice

[@nanyabiznus4738]

Ikr I would rather live happy and disabled then normal healthy body with sadness

[@reddd-77]

@@nanyabiznus4738 as if you can't be happy and have a healthy body?

[@nanyabiznus4738]

@@reddd-77 there is always people like you isn't it. Twisting people words.

[@nataliehill7481]

He looks like a mix between TheOddOnesOut and Mr. Beast

[@arlenek.604]

Natalie Hill YES EXACTLY

[@rossbullock7013]

I was looking for this exact comment

[@ankush-kl2nf]

exactly I felt like is Mr beast trolling or something

[@aulaire617]

I was about to say that but was scared that people would attack me 😂

[@gwengwen3769]

I cannot unseen this

[@BarelyNoticeable]

Mr. Beast come support your lookalike twin Update: this comment is a year old. Rest in peace my g

[@michaellavelle1002]

Anne Tan Ya! I thought it was Mr Beast when I saw the thumbnail...

[@jiiva1063]

Anne Tan EXACTLY WHAT I WAS THINKING

[@Performak_YT]

😂😂😂😂

[@veganvampire5643]

Omg I just posted the same comment (almost)

[@tommytimmy8441]

1:18

[@cristianpadilla6178]

Man, I cried, he seemed like a gentle, strong and caring person, he had so much energy, so much ambition and positivity. May he rest in peace forever❤️

[@alexosow]

I almost cried cause he reminded me alot of me until I saw the description and it reminded me of how limited our time is :(

[@cristianpadilla6178]

@@alexosow Oh... hope everything gets better for you, stay strong!

[@vepm]

I often watch mitchell video on my free times but yeah always ended up bursting into crying. I always remember what mitchell said in the end of video make me so freaking hurt, so odd , feels like he just born yesterday. I can't deal with this

[@aegisreflector1239]

I cried

[@sukiserjeant9110]

Lovely lovely young man! Whole his family are loving people! So unfair!such a beautiful attitude he had for life , even his face was gentle and happy...💐💐💐💐💐💕💕💕💕

[@ashn7146]

So sad to have an extremely rare disease that turns out to be fatal. R.I.P Mitchell, you will no longer have to suffer. 🙏🏾

[@madzgville]

Why did this have to happen to him?? 😭😭 how did he die. Oh May he Rest In Peace

[@dvchel]

@@madzgville Not in vain. It's now been named Mitchell's Disease. Treatment maybe coming in the future.

[@finleygray417]

@@madzgville read the description it explains it

[@SeekingTheLoveThatGodMeans7648]

Sad for the life to be so relatively short, but being born is always fatal eventually.

[@nothankyou1088]

he seems very positive and kind. I really wish him and his family the best. Also to the young girl in South Korea ✨

[@gearrode]

Why couldn’t it happen to someone evil, like a criminal who murdered a whole orphanage or something?

[@itsoutlaw_]

@@gearrode Genetics and inheritance. The world is a random place after all

[@gearrode]

Static Outlaw true, but with some things you could say luck or coincidence comes into play.

[@manuelgallegos2761]

ciel phantomhive if she was in North Korea they would have instantly killed her and they wouldn't have any information on this disease at all

[@failedtoloadpleasetryagain1862]

@@gearrode the world doesnt care if you are good or evil only humans care

[@DeidresStuff]

I wonder how many people have had it that didn't have access to medical care and so were never diagnosed.

[@iimuffinsaur]

Or even misdiagnosed.

[@isunlloaoll]

I can relate so much with this. Finding the right doctor who conducts the right test at the right time are all so important. It's a very difficult thing for people who deal with less common health problems, even in this modern age.

[@etamlous]

@@valeriavagapova Even in first-world countries, many times it is an uphill battle to get access to the right doctors who will listen to you, who have affiliations with elite research hospitals and teams of experts who will coordinate between each-other. It's very frustrating and EXPENSIVE when you have to hop around different specialists before someone gives you the right answer.

[@paigecook4750]

Ya they can’t be sure it’s just those two but probably still really really rare

[@g.e.9227]

Yeah, what if this happened to people in like, medieval times, or something? They would literally never know.

[@prestonlin5796]

Imagine if he became friends with the other girl who had the disease. They would have the rarest friendship in the world. (Edit: Wow thx for the likes, never got so many. It’s crazy 🥰🤩 Rest In Peace Mitchell, we will miss you ❤️)

[@naturegirl51]

first of all, you are not funny... secondly he passed away more that a year ago :(

[@bulletsfordinner8307]

@@naturegirl51 He wasn't trying to be funny. Many people with rare diseases get to know the few others and are able to form stronger bonds.

[@o_o-uv6eq]

@@naturegirl51 first of all he's not trying to be funny... secondly you being a jerk

[@naturegirl51]

@Prestonio Lin ... ok lets try this again - did you try a touch of humour with your second sentence?

[@ash71168]

I wonder if the girl is still alive and well (as can be). If he died at around 19 and she was 14 at the time of this, she might not have long left if he represents the average lifespan of this disease. Nature can be very cruel.

[@SadTown99]

This dude is an absolute LEGEND. All the horrible medical run arounds he had to be part of, sacrificing the already short time he was given just to give hope for someone in the future that may have the same issues. Much love brother 🙏

[@re-dna7099]

Yeah RIP

[@ianchandley]

He wasn’t getting the run around. His case was so rare that the scientific and medical community had never heard of it. Doctors and scientists were doing the best they could with the information available. So they had to invent treatments and therapies - this trial and error is basic to science.

[@wheezinged9007]

MR. BEAST needs to give this guy some money cuz he sorta looks and sounds like him

[@jamess5153]

Wheezing Ed that’s what I was thinking

[@yukikanegawa7470]

I sincerely doubt his family is completely paying for his treatment. They're more likely to pay him since cracking his case would mean you were the first to come up with a cure and therefore you can name the disease or the treatment and doing so would mean instant noteriety and success. His existence is scientifically important.

[@rfk9719]

yuki kanegawa I would imagine there would be fundraisers for him and his family

[@FatherVisa]

I kinda look like bill gates

[@wheezinged9007]

@@FatherVisa Yeah I sorta look like jesus

[@lunacomo]

Rest in Peace, Mitchell. It was so good to be able to know you.

[@DancingDevil89]

He died???

[@gabsusa7419]

@@DancingDevil89 Yeah, he passed in October of 2019.

[@paigeherrin29]

💔

[@BtwinUnW]

Rest in peace ! He seemed as so very likeable person.

[@carolineprizty2485]

Did you know him in real life? How was he? He seems so genuinely person, Rest in Peace for him ❤

[@americommando6915]

"I don't know if I'll be wearing this out in public" -Puts it on Television

[@j.w.213]

yeah the difference between thoose is too hard to understand for you and 101 like minded fools.

[@jackielana9993]

Yeah because making people aware of his mutation is the same as him being worried of being judged socially Get over yourself lol

[@EmperorBob]

@@j.w.213 Is spelling "those" right hard as well?

[@GewelReal]

On TV your mood is already set up to not laugh

[@PKLO9727]

Too soon, chill bro 🤣

[@merily429]

My daughter has a very rare genetic mutation as well same story but her symptoms started at birth. There was only 2 know cases which ended in death when she was diagnosed. She has a very rare form of genetic epilepsy called SCN8A. They had no idea how to treat it still don't now we have around 190 kids around the world. Her case was really severe doctors said that they didn't think she would last past 6 years old. She had 8th birthday 2 week ago!

[@ThinWhiteAxe]

God bless y'all. I hope you are able to find help for your little girl.

[@nameless.artist1513]

Oh that’s amazing!! Congrats!! 💕

[@lilyyoung1002]

@@griffenriley6998 amen

[@gamechip06]

How about 10?

[@holistic.health]

Does your daughter do a high fat diet for her problem? Have you tried it? Look into the Charlie Foundation and also the carnivore diet...

[@michaellim4165]

He should meet that 14 year old girl from South Korea. He will at least feel better.

[@terenarosa4790]

Explain?

[@theinnocent6303]

How can that make him feel better. Feeling glad someone else suffering the same condition he is?

[@GuadalupeGuacamole]

The Innocent it’s called ‘bonding”...when two people share something so rare it will undoubtedly help them feel less “isolated” in their disease. It’s exactly why nearly every chronic disease...like cancer, diabetes, etc...all have therapeutic support groups available for sufferers...sharing info and feelings always helps one heal...souls get healed as much as the body when we share.

[@theinnocent6303]

@@GuadalupeGuacamole I see. Thanks for enlightening me.

[@VladGrim]

Only the two can truly understand what the other is going through

[@georgeremang2354]

He is so polite and every time anyone help him he would say THANK YOU... I hope he get well soon. 😊

[@ymhktravel]

How to get well when you don't even know what are the causes of it? And even if it's known, has research found a way to cure or arrest the degeneration is the next question. It's not like having a flu or common cold and knowing you will recover in a few days. It's living with something unknown and it can be frustrating.

[@tomasroma2333]

Unfortunately it cannot be cured because its a genetic mutation just like down syndrome. The only hope is for him to get treatment but he cannot be cured.

[@curlybrace4984]

This dude seems hella funny, he's the kind of buddy I'd love to hang out with.

[@gizyjab1997]

Yeah me too

[@YoXeV]

Ok

[@shmockette7158]

Btw he has a twitter. twitter.com/mitch462?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor

[@nefarioussovereign]

How sad he didnt get to live out his ambitions... I hope you are doing everything you wanted in the great beyond

[@carinadominguez22]

His soul has reincarnated! And he's a bean spout! PRAISE THE LORD!

[@river.]

@@carinadominguez22 I think he is a bird now.

[@chillvibed]

@@carinadominguez22 no such thing has reincarnation. This life, is the only one.

[@carinadominguez22]

@@river. Nope. Bean spourt.

[@carinadominguez22]

@@chillvibed Tell that to the guy in the video. He's a plant now! So he probably won't remember. Or be able to talk to you.

[@jollspe]

That coconut oil spray from trader joes is a struggle for anyone to open

[@Mylkies]

Spencer Jolley 🤣 this comment is true

[@julianunyabiz2193]

Omg for real

[@mitchellherndon5343]

Thank you

[@ariapinku7346]

I don't get it 😅

[@ElSauxy02]

Spencer Jolley WTHHH while I was trying to open the coconut oil Spray from Trader Joe’s , I saw this comment 😭😭😭😭😂😂😂😂😂

[@greendaylover629]

This is my friend’s cousin. It saddens me to say that he has passed away 💔 RIP Mitchell, I know you meant so much to Phil ❤️

[@jetforceexe8170]

I'm really sorry for you.

[@mohammadrayiseenmohammad5313]

Hi.... I'm from India.... Pursuing BSc.... Me and my friend going through project about this condition (ACOX1 mutation) by seeing this video we r working on dry lab ..... So if I get little help from his family it would be easy for us........

[@kasperorganics-organiccott6881]

He seemed like such a lovely young man. I'm so sorry to hear that he didn't make it.

[@naylak5694]

He was such a beautiful person inside and out, sending prayers to his family and friends, I just know he would be with where he belongs now ❤️

[@DancingDevil89]

Why did he pass away? I'm so sorry for your loss!

[@tophat5516]

This is so sad, he seemed like such a positive kind young man. RIP Mitchell. I wonder why it is the nicest people with the worst luck.

[@francis6301]

He was nice yes, but life changing events usually cause a person to appreciate the world for what it is and try to make the most out of their time on earth I wish I could be as humble as he would be in that state of living though

[@xtraradi6070]

life can curse anyone

[@shaunsaega]

Its just the way it is. Life is not meant to make people happy. It's not an end in itself. Its a passage to reach one's true home.

[@xtraradi6070]

@@shaunsaega life ends but legend dont make the best out of it before u die

[@curdy15]

The way I heard it best described to me, “why does God take the best people? Well when you go to a flower garden, you pick the best flowers.”

[@chutcentral]

Going to live for this young man and never take a day for granted. Rest easy Mitchell. Maybe one day I'll see you again, in some other form 🕊

[@swikabl5965]

But the afterlife isn't real tho ecks Dee 7777777 🤣🤣😂😂🤣🤣😂🤣😂🤣😂🤣👌👌👌🔥🔥🔥💯

[@VinellAngel_111]

Living is hard. But i respect this man. I shall continue to live

[@Melody-jk8eu]

Hopefully I become a bird

[@darvynm541]

@@Melody-jk8eu 💀💀💀

[@Hystial]

@@swikabl5965 Hey, little buddy, your idiocy is showing! Now, I know it's hard to keep it put away, and this is forever going to be an issue for you, but try to keep it down, okay, little buddy?

[@5000foxman]

"This Young Man is One Of Two People In The World Who Are Mr. Beast"

[@ezteal5665]

Csanad Tamas right tho

[@thebevilofbellskitchen]

YES

[@rigo.acosta]

Bruh😂

[@ezteal5665]

Bruh chain

[@somedonkus69420]

Bruh.com/bruh.bruhtml

[@evakanyagia7088]

He is really good looking. You can tell he is a beautiful human being. All the best to him.

[@meh6274]

Kai Evans she’s just complimenting him. Chill out

[@ohyeahyeah3718]

Kai Evans just kuz your ugly doesn’t mean you have to get all upset when someone calls someone else good looking

[@marcelvalue]

Yeah Ted bundy was a really good looking too. It helps convince unintelligent people. I'm very handsome, but don't hate or lump me with bundy.

[@scientificatheist9381]

@Kai Evans look at all the snowflakes getting offended. Its a fact.

[@0boro]

@Kai Evansmakes comments like this then says "I'm a good guy but for some reason I'm still single! Must be because I'm ugly!"

[@blugreen123]

I appreciate his homesty in saying that he deals with a lot of crap, and that it's hard. It seems like so many people with disabilities and chronic illnesses try to sugarcoat and be "inspirational" about how their lives really are. RIP Mitchell

[@PoeLemic]

@Teal ... Yes, same. Like I had a conversation shortly ago about my life situation, life isn't easy for everyone. And, not all of us have the same choices, problems, nor opportunities. My life was very good at one time, but it changed a few years ago -- through no fault of my own. Now, I'm a care-giver for my mother, who is disabled now. And, people just don't realize how hard things are -- at home. And, no one wants to help. So, yeah, I am honest with people about the situation -- if they ask; but saying it to someone, is differnet than living it. Trust me.

[@kerirobicheaux6629]

@@PoeLemic Bless you for caring for her. I am sure God will bless you for doing that.

[@ajurgo]

Disabled people don't want to be inspirational. We want to be people. Others force us into situations then act like we're so brave for breathing...

[@fruitygarlic3601]

Disabled people don't try to frame their conditions as anything other than conditions they just live around. But even if they did try to "sugarcoat" them or make themselves martyrs, why do you care? If you don't know what life is like for them, why are you so hostile about how they tell their stories? Living with a disability can be extremely difficult at times, whether you're dealing with social or economic factors, and there is no problem with someone acknowledging their experiences.

[@ajurgo]

@@fruitygarlic3601 this this this this this. The reason we smile is so that we don't cry infront of you!

[@abbyjordan8835]

Dear Mitchell’s family, I am a sufferer of “ Erythromelalgia “ another rate disease which is the other Mitchell’s disease. I send you strength and love. Your son will live on and his legacy will be that he wanted to help others who might also develop his disease. I think they should honor him by calling the disease by his full name, Mitchell Herdon Disease “. Thank you for sharing his story- especially in his own words. He is a brave, articulate young man. May he now be free to run and live on without pain or any limitations. Abby

[@Adelicows]

I would never want a horrible disease to be named after me 😬 Also, why Mitchell and not the 14 year old girl in South Korea?

[@squigglyverm]

@@Adelicows he likely helped with the study of the disease more since his parents were involved in the process too. A previous comment also pointed out that they could find a potential cure thanks to his and his parents' dna

[@IOwnKazakhstan]

probably because 1: he was the first person to get it or at leas pass away with it and 2: he contributed a lot to the study for it@@Adelicows

[@ArohaStill]

It required both patients and two medical teams two medical teams to bring about this discovery. Of course it should include both if that is what the Korean family desires

[@Stacey0909]

​@@ArohaStillThank you for sharing this information.

[@emilzamudio1972]

He didn't lost his fight just because he died. He, instead, inspire most of us to stay positive no matter how severe our condition is. Big salute to this guy💙💙💙

[@Predestinated1]

stay positive? like... suffering everyday?

[@emilzamudio1972]

@@Predestinated1 dude? Wtf? What I meant was even tho he literally suffered everyday, he was still so willing to live. He stayed POSITIVE about life that he can still smile and socialize with his loved one. I sincerely got triggered about your comment, pardon me. But yeah, that's what I only meant.

[@emilzamudio1972]

That's also why he greatly served as an inspiration for the ppl who doesn't feel worth to live anymore. There's a lot of ppl like him who literally suffers everyday but are still thankful on his everyday life.

[@Predestinated1]

@@emilzamudio1972 on the inside he suffered every day. Not all people want to live with eternal pain

[@emilzamudio1972]

@@Predestinated1 ok dude. It's my fault. Sorry for that.

[@slimlokz559]

Damm man this makes me grateful for everything

[@ubiquitouspanda4466]

@no u he's not wrong though

[@JustGOC]

He can’t feel pain from half of his body

[@veteranfanaccount.8333]

@no u ok...?

[@animeboyrara]

Catako idk sometimes people on KZbin worry me lol

[@tumezu2807]

We all know it really doesent make you more grateful

[@senam23]

That is so unfortunate... I hope something comes up and he beats the condition, disease or whatever that is.

[@pippilongstocking9634]

undiagnosed disease network how can anyone get them to look at your medical records?

[@FaithandNova]

@@pippilongstocking9634 maybe try contacting them

[@samy_bouzaglo]

Easier said than done, who will pay to get that research for his treatment, instead of supporting trump to build the wall,vote for someone who will invest to drug research for a better humanity

[@Rapidbeatsofficial]

That is highly unlikely to be realistic but I hope so too

[@VulcanHestan9]

Rapid unfortunately no cure can be developed to genetic conditions like this as they affect every cell in the body. Altering the DNA of each cell is impossible

[@nydelgomez]

When he started sharing his hope of finding love .... dang. He seemed like a wonderful young man with no hatred.

[@birch_tacos]

welled up when he talked about finding a girlfriend who loves him for who he is...beautiful

[@Lilafelden]

Dylan Jr yeah mr beast does have a lot of money

[@brendon1689]

Then he said that he wanted children. That's an incredible lack of foresight given the fact that they have identified his condition as a genetic disorder. While it is not certain that it can be inherited, it is not certain that it cannot either.

[@bobbybaeX]

@@brendon1689 Just becuase he dreamed about getting children, doesn't mean he actually is getting kids. Stfu now

[@humanperson2205]

@@brendon1689 Yeah that's why he said he WANTS kids, not going to have kids.

[@brendon1689]

@@bobbybaeX No need to be rude.

[@harshuttarwar1027]

KZbin, Thank you for this recommendation.

[@OO-qo4gt]

I hope the best for him

[@lilys9268]

Not that anyone cares but I was 1.1k like lol

[@xanderbose974]

Agreed.

[@patiszonek97]

Mitchell, if you're reading this, I just want you to know that you're one of the bravest people I've ever seen. Despite this disease you stay optimistic and I really admire that. Stay strong and know that we believe in you❤😊

[@urekmazino2485]

hello boys awww how sweet of you XD

[@uniteto0o0o]

It's a good thing he's replying to most of the comments in this comment section

[@orange2352]

Couldnt agree more!

[@hamzamahmood9565]

I'm never going to complain about anything else in life. Thank you Mitchell and rest in peace.

[@NoMustang273]

Hey dude, even when some people are going through awful stuff doesn't make your own problems invalid. Everyone is dealing with stuff, some worse than others but you should still take care of yourself.

[@Student0Toucher]

@Kazumaf Wheres the hyperinflation thats bs

[@mr.games5883]

@@Student0Toucher there’s definitely some inflation happening.

[@hoshi6182-c8u]

Doctor: You have a very rare disease Patient: How rare? Doctor: You pick the name

[@shalindelta7]

Dayum

[@gil_11]

Yay?

[@asherschmidt9820]

Love your username, lmfao, also he might not be the first of the two people, and that's only those who we know are alive

[@infelicitas]

Watch the last hoodbender

[@bruh-dj5uo]

spooky vaginosis

[@dc3565]

man this is horrendous, from going to a normal 12 year old kid enjoying life to not being able to do even the basic of things and then ultimately dying extremely young. he seemed like an amazing guy too

[@carinadominguez22]

It's always weird when life takes a hard right turn.

[@bubblesawesome3284]

I’m glade you have a positive attitude. He is so strong.

[@pyro7358]

He passed away 2 year ago

[@zedpremiergaming9118]

When you start valuying your every day life god has provided you, you become positive

[@brontejulianna1821]

As somebody who has a disease only 200 people in the US have, I connect so much with this person. Being rare is really hard, I'm sorry you lost your fight Michell, it's really not fair

[@rupeshmurali2884]

Hey! May i know what disease you are suffering from? and also, you are brave! keep fighting! We all love you!

[@kaek1597]

❤️

[@sukuna4396]

❤

[@pembatamang8233]

❤️

[@unO-Gang]

@@rupeshmurali2884 I guess Dubowitz syndrome

[@mattthedestroyer2804]

I like how we all thought he looks like Mr. Beast

[@EjDaddyyyy]

Haha I did

[@imamhidayat5141]

Lol yea for a second

[@nycetomeetyou]

He doesss

[@Iamreallycoolful11]

Yup

[@Gabeleeen]

Mix between MrBeast and Odds1Out

[@isabellaraylahrose570]

From his voice and demenour, he sounded so nice and sincere. I feel sad the world lost a good human being.

[@mastercheif3071]

This weekend im going to volunteer and a childrens hospital. Bring a portable monitor and gaming console and play games with kids that are sick. We all have more to give. We all have the time. We need to do better as people. We need to love eachother more.

[@joerogaine7984]

Well said bro. Good on you

[@weltenunder]

No you're not 😂

[@SexyFace]

polarization @@weltenunder

[@brookejohn283]

How did it go?

[@hawkin5309]

Now you are a hero

[@Rose-dz5re]

He seems like such a genuine sweet kid :) He’ll find someone for sure

[@RNCHFND]

What if his soulmate is that Korean girl?

[@M4rili4]

He's really cute

[@shitpostcentral1802]

@@RNCHFND she's only 14.. It's a little weird to even consider it this early on. ^^; lol.

[@Overqualification]

He shouldn’t have kids though as that will spread this.

[@onemore9454]

press x to doubt

[@aniltoor3154]

The crazier thing is that there are most likely other people like him in impoverished countries who don’t have the money or resources he does which is why you don’t see a documentary on them

[@IsleNaK]

Yes, the disease might not be that rare. Others just don't have the means to connect with a doctors network or get any information on what is happening to them

[@peterpereira3653]

Not just likely, there definitely are people, who very few will know, who go through their entire life with very rare diseases, that we won’t ever know their stories.

[@ajaarmstrong4423]

@Martin Shepherd centuries of blood, sweat and tears from whom though?

[@aniltoor3154]

@Martin Shepherd I'm not saying he doesn't deserve it, in fact the poor kid isnt with us anymore. To address your opening question; one is not able to "create" resources when a corrupt government is at the top taking everything for themselves. Funnily enough, the very attitude is caused by colonialism where everyone had to be ruthlessly selfish while their country was being robbed at the expense of other countries' progress. RIP Mitchell

[@thisissupposedtobeanonymous]

Apparently, one in every hundred thousand are affected. If my math is correct, then about 70,000-80,000 people have it worldwide. It is now called Erythromelalgia.

[@newbooksmell4163]

Oh, he should have NO problem on the dating scene. He's freakin' adorable.

[@taniajennifer4717]

I agree😊. I have a friend who was in a bad car accident when he was in high school. It was a miracle that he survived, but now he's a quadriplegic. One of his biggest concerns after the accident was that he wouldn't find someone willing to see past the disability. Well fast forward a few years later and he ended up marrying one of the nurses from the rehab center😀😄.

[@dddila]

@@taniajennifer4717 aww this should be on a short movie or sum

[@kayleemikulec1848]

@@taniajennifer4717 can I get some more information like a name or something I wanna make a book out of that

[@mitchellherndon5343]

♿️♿️

[@beckash6416]

@@kayleemikulec1848 make it up yourself, don't rip off someone else's suffering for a profit. You can't use people's names without permission anyway. If you want to write about real people and their struggles, at least learn to respect them enough to _ask_ if it's okay for you to write about them instead of just demanding personal info.

[@fireice2037]

Such a kind and caring soul. Its sad that his life was so short.

[@raleemay]

The end got me when he was talking about hopefully meeting a girl and starting a family. 😢 He never got the chance.

[@b8iley]

Did he pass away

[@raleemay]

@@b8iley yes ☹️

[@salifyanji2893]

I want to cry now. Life is too short

[@sacred-chan157]

Some diseases are so rare that doing research is hard. Hope no one else gets it.

[@CarloFuller]

@@raleemay life sucks man.

[@a.human.]

The kindest people are the ones who fight the toughest battles. His eyes say it all. Rest in peace, man.

[@MysticalStd]

It's because they go though the most hardship and so they don't want other to feel that to My theory

[@xtraradi6070]

@@MysticalStd as long they have the will to continue

[@3alaiyer]

psychopaths with abusive past: *no*

[@calebalex_ander]

I went to Missouri Boys State with Mitchell. Great, charismatic dude. One of the better residents of Pershing City :)

[@mitchellherndon5343]

Caleb Alexander hey man long time no see! Model City represent

[@theolopez3299]

mitchell i wish you good health during the coming certain amount of time.

[@me_TJ_MrB]

My son started having these symptoms at the same age. His illness also came with periods where he couldn't recognize us. We didn't know if it was due to vision or mental or unseen seizure disorder. No seizures, no nothing prior to this, just a kid being a kid. We had clear CT scans etc. I was scared silly and couldn't get anyone to see how terrifying this was for him and us. He would stop walking,talking reading, writing rapidly. I started looking at things from onset and back. After months of this and no doctors help, I found a Dr in New Zealand who was writing about food additives and dyes and long story short a food color agent from a South American plant called ANNATTO was building up.in his body and could not be processed out. It is still ongoing that we must look at every last else if anything he eats and he takes several vitamin and nutritional supplements, drinks distilled water, and other things to help flush this stuff out of him. Even beverages it a cube of cheddar cheese or a cup of vanilla pudding or ice cream can set him back WEEKS to a non communicative state for 3 to 5 days, but we are diligent and he is homeschooled to prevent outside "mistakes" in his regimine. I would have never believed that a waxy plant used as a flavor and food dye could stop a person from the simplest tasks, but I have seen it first hand and pray every day there is not another substance out there that could affect him in this way. I pray for this young man and the doctors who care for him, that they find his cure or at least a treatment VERY soon.

[@blugreen123]

I appreciate how he expressed how hard things were, and that it sucked. There is so much toxic positivity in the chronic illness community, it was refreshing to hear him be honest.

[@bankaispirits]

I've seen and talked to him before,we both live in st.louis. He's such a nice freaking guy, hope of the best

[@mitchellherndon5343]

bankaispirits okay wait I think I know who you are but remind me

[@TheJulio2205]

@@mitchellherndon5343 are you one of the guy in vídeo?

[@mitchellherndon5343]

Julio Cavalcanti I am indeed

[@abluntdaily]

@@mitchellherndon5343 Hi sorry for hijacking this Convo but I just wanted to ask you a question and make sure it got to you. If Im understanding correctly, the video says that your symptoms are caused by a mutated enzyme that prevents your from properly breaking down fat, and that this leads to a backup of waste products in your cells? I couldn't help noticing that you're eating a lot of fatty foods in the video. I was wondering if you've ever tried any dietary changes? Maybe a low fat "detox" diet could help remove that waste and improve your symptoms. Just wanted to provide a different perspective that a traditional doctor probably wouldn't give you, in case it might help you. If you find this interesting and want to talk about it in more depth, just let me know and we can exchange emails or something. I don't want to scare you off by immediately mentioning some "extreme diet".

[@doreenrhodes9828]

Mitchell Herndon hello i see someone already offered a suggestion but i thought i should too anyway.. am a scientist, plus a phd in neurology and all that.. i think i can help.. pls get me in contact with the young man

[@veronicam2942]

His brother helping him in the shower, was so sweet. Thank God he has such a supportive family. 🙂

[@mitchellherndon5343]

V Medina ha that's my dad

[@king.kthebest6158]

He looks like Mr. Beasts brother or somthing.

[@sallyabreu9367]

Tru

[@-mae-5524]

Tr

[@HomelessSoldierMan]

T

[@gagsiege1238]

Homeless Soldier 

[@gagsiege1238]

Homeless Soldier 

[@72bd]

this guy was so strong, emotionally and mentally if not physically. his determination to keep on going even though he was going through such a tough time is absolutely astounding. i can't even imagine what it's like waking every morning and knowing that you will probably never get help, and that you just have to keep going. rest in peace mitchell herndon, you will be missed.

[@itsmiahtime]

He’s a hero in my book for keeping his high spirits. I hope that something is discovered for him.

[@WiktorFPV-]

Remember, respect an "I don't know" from a doctor. When doctors don't know, they just don't know.

[@blay6170]

SuperSausage3 Who are you to tell a stressed mother who’s going through something like that

[@Helica123]

You wouldnt understand how frustrating it is unless it happens to you. We're used to being able to go to the doctors for help. Some people even go last minute because that's how much trust they have that the doctor will help them. No getting that help is so terrifying

[@dontfall2476]

@@Helica123 it is, but you can't deny it. Remember, doctors themselves will say this. They are only 60% to 65% right.

[@Dakayto]

@@blay6170 An honest person. Remember, a doctor who lies to make people feel good is far worse than a doctor who is honest.

[@eiarsan]

@@blay6170 what do you hope? a placebo?

[@tomgreaney1]

Oh this is heartbreaking.... he seemed like such a nice chap... R.I.P.

[@jovo21]

RIP man 😔🥂this guy has motivated me so much with his positivity no matter the circumstances

[@dedyefendi8282]

Guy: so what kind of disease i have? Doctor: its so rare Guy: how rare is it? Doctor: you name it

[@piratecandy6310]

I thought that diseases are named after the first person who had it... so... Herdon Disease?

[@drizzy6302]

Dedy Efendi memes man its funny 😣

[@haritzheng]

That makes sense. Since Lou Gehrig’s disease (aka ALS) was named after the famous baseball player who suffered from the disease. Sooner or later this disease will be named after him.

[@kapioskapios1568]

Doctors are not Gods :S they are humans too..dedicate their life to medicine,they also get sick/die....unfortunately always will be something new that is completely unkown for them...

[@cotijapatitas]

Pirate Candy Or the Drs that discover it too right? My niece has Devics and the condition is really rare. Named after the dr that discovered it

[@hibye-hq9qi]

Imagine being the other person who has it and you find out you weren't chosen for the video lmao

[@andrewwang2602]

hi bye why an American news network would go to Korea for a girl when there’s a American kid right here in the states. It’s probs to drum up American awareness.

[@_chadrose]

Like Lil Wang said, now imagine in Korea there's another video about the disease but Mitchell wasn't chosen.

[@swill3677]

Chad Rose he was making a joke he didn’t mean for it to be taken so literally lmao

[@_chadrose]

@@swill3677 ah, don't worry. I realised the joke. Just wanted to comment something xD

[@Theyarehere6]

Chad Rose but if both of them met it might be nice to watch the conversation between them

[@Bugoy_ADHD]

Being the guinea pig for others that will have it in the future...such strength. You're a good person.

[@tatebutler600]

What an inspiring story. So blessed to have seen this. RIP Mitchell. ❤

[@jordantampubolon8694]

Doctor: You have got a rare disease Patient: How rare? Doctor: You name it Patient: ........

[@UnhealthyTherapy]

And that's how lou gherig's disease was named

[@bengixd]

Or "we named it after you"

[@adulthumanfemale420]

call it ligma lmao

[@EricMtuhuru]

@@adulthumanfemale420 why is the actually a great idea lol?

[@davecrupel2817]

"wtfosis"

[@mothastrud]

He looks so much like Mr. Beast omfg

[@Risingofthephoenix]

Omg He does!!

[@einna3706]

I know right??

[@arlenek.604]

I was searching for this comment to be sure it wasn't just me

[@newbooksmell4163]

As soon as I read it. It clicked and I can't unsee it.

[@Hannah-dc7fr]

I just comment the same thing before seeing the comment.

[@kazutonarusaka0318]

There's just something so genuine about him. He tries his best to get on with life but doesn't hide that he goes through suffering too. He knows that his time is extremely limited and he's still happy to serve as a case study, that's a strong mindset. He was so beautiful, inside and out, you deserved all the love in the world Mitchell... My condolences to his family and friends that knew him. Now you can run happily in heaven... RIP 🕊 ♥️

[@stunnagirl8465]

Wait he died?!

[@PallidTrash]

He was such a handsome little dude. My sympathy for his parents. I know they are feeling a great loss. He seemed like a good kid.

[@Bananaaimingforsubs]

Despite all this he's trying his best to be positive. Massive respect for this *man*

[@AlexCass1515]

I like this guy’s personality. His optimism is super refreshing! Sad to hear he didn’t survive the fight :(

[@neoeseniosinvestigaciones]

He did. He finished it in his own terms.

[@gabrielcaetano6318]

@@neoeseniosinvestigaciones yep, idk why when someone dies ppl say they "lost the fight". no one wins the fight if u think about it.

[@bruniipain]

_he's a beautiful human being, and we're glad to hear his story before his passing. Fly high man._

[@mrcrossovermark1153]

It makes me feel ashamed that i often times take my life for granted and forget that there are people out there that cant even enjoy life because of what they’re experiencing. Its a great reminder that when you’re going through something hard someone’s going through something harder. I hope the study of his body can one day lead to a better understanding of this disease

[@ShadowSorcerer]

Like I said in my comment don't be ashamed of what your going through. Everybody goes through stuff and your feelings are valid. I've been told to not feel bad about my depression and think I shouldn't feel that way cause others have it worse.

[@mrcrossovermark1153]

@@ShadowSorcerer yep exactly.

[@cweestal7502]

you can just see that he has such a beautiful soul-- and that makes everything 100x more tragic,, i hope they're able to help him and that he lives his best life