Lost my friend to this disease yesterday morning..... I want to start fundraiser dedicated to the people who are fighting this disease. ❤️
@shauntayecooper9489 Жыл бұрын
I am sorry for your loss
@judystewart3563 жыл бұрын
I lost my nephew from CF ..he was 35 years old ..we were SO Blessed to have him that long.
@abbieprice34304 жыл бұрын
I wish we could’ve heard Addy speak during this interview as well! Also I wish they could a segment where her sister spoke out about what it like having a sibling with cystic fibrosis!
@jennamichelle2001 Жыл бұрын
I’m very happy to hear that this clinical trial is helping her!
@summerdelaney55294 жыл бұрын
Who else has Cystic fibrosis like me? And Addy u are amazing and so brave :)
@Zahra-ky6rb4 жыл бұрын
I have, hope you're doing well
@BellaThePomeranian4 жыл бұрын
I have cf
@isabellb88534 жыл бұрын
I do!!
@kesha52484 жыл бұрын
i have and its really hard :(
@dttsf89664 жыл бұрын
My uncle died from it
@abigailhurstfield94214 жыл бұрын
I have this and I hope she keeps breathing and has no problem fighting this
@ashleykevin3809 жыл бұрын
I wish someone would find my best friend a cure I really wished he could live a normal life as well
@zoeey_1046 Жыл бұрын
my little cousin, Lilliana, 8 has cystic fibrosis and a few months ago she got her feeding tube out, I’m so proud of her. She won’t be able to donate blood or have kids. She most likely wont make it to 22. A meal of pills she has to take, and treatments two times a day. Sometimes she so happy I forget she has cf.
@AmyAndThePup4 ай бұрын
Lift expectancy is in the late 30s, and that's without these genetic modifier meds that are out there, if her genetic mutation is one that allows her to take it. Amazing she got her feeding tube out.
@catlover187310 жыл бұрын
i am 13 and i also have cf it is hard you have to take a lot of meds and your in the hospital a lot
@taniabernal80873 жыл бұрын
I’m sorry
@KatieThibodeaux-n1q Жыл бұрын
I wanted to say this, I was born with cystic fibrosis, my name is Adey, and she is a sweet girl! Hopefully she started tricafta. I have a question does she go to the children’s hospital in Houston.
@theartempress61003 жыл бұрын
my friend has cystic fibrosis and i hope by the time he reaches the average lifespan scintests come up with a cure
@gamerqueen57208 жыл бұрын
hi im Elizabeth and i have Cystic fibrosis and the parents of Addy i believe they are working on a cure
@erikagarcia-oj7zn7 жыл бұрын
My baby Victoria died of this cf😭😭😭😭😭😭
@plastiqueedwards27225 жыл бұрын
So sorry to hear that 😭 Keep spirit sweetheart! Dont be sad ❣
@oofo59825 жыл бұрын
Omg i am gonna pray for u and ur family 😢
@charley9534 жыл бұрын
God bless you poor soul. Just know that even though I do not know you I am prying for you. 🙏
@aprilbequette26068 жыл бұрын
I have to do treatments
@emmaquiring27919 ай бұрын
1:21 When Will My Life Begin? from Tangled
@victoriak23585 жыл бұрын
I have CF, you got a semi cure. Ya better plan on sharing that!!!
@chaoticghost_x4 жыл бұрын
I have CF too I got diagnosed at he age 7
@emilylittlewood322911 жыл бұрын
CF is absolutely genetic. I know the brother of the RESEARCHER who found the cf gene on the human genome map. whysoseriousmister you should probably do a little more research yourself.
@dazzle_slimez81446 жыл бұрын
I have cystic fibrosis
@diyazaveri39585 жыл бұрын
God bless you!
@summerdelaney55294 жыл бұрын
Same here
@muhammadhanifkhan5 ай бұрын
Great dear You are doing a great job you are just like my real sister Please study Holy Quran and accept Islam you will get success in both worlds
@ElleKathleen12311 жыл бұрын
So you're using one source against thousands? You need to realise that just because you hear one thing doesn't make everyone else wrong. It probably just makes you wrong. Know because you speak.