Meet Addy, Cystic Fibrosis Patient

  Рет қаралды 58,036

VCU Health

VCU Health

Күн бұрын

Пікірлер: 63
@t.maryyy8037
@t.maryyy8037 4 жыл бұрын
Lost my friend to this disease yesterday morning..... I want to start fundraiser dedicated to the people who are fighting this disease. ❤️
@shauntayecooper9489
@shauntayecooper9489 Жыл бұрын
I am sorry for your loss
@judystewart356
@judystewart356 3 жыл бұрын
I lost my nephew from CF ..he was 35 years old ..we were SO Blessed to have him that long.
@abbieprice3430
@abbieprice3430 4 жыл бұрын
I wish we could’ve heard Addy speak during this interview as well! Also I wish they could a segment where her sister spoke out about what it like having a sibling with cystic fibrosis!
@jennamichelle2001
@jennamichelle2001 Жыл бұрын
I’m very happy to hear that this clinical trial is helping her!
@summerdelaney5529
@summerdelaney5529 4 жыл бұрын
Who else has Cystic fibrosis like me? And Addy u are amazing and so brave :)
@Zahra-ky6rb
@Zahra-ky6rb 4 жыл бұрын
I have, hope you're doing well
@BellaThePomeranian
@BellaThePomeranian 4 жыл бұрын
I have cf
@isabellb8853
@isabellb8853 4 жыл бұрын
I do!!
@kesha5248
@kesha5248 4 жыл бұрын
i have and its really hard :(
@dttsf8966
@dttsf8966 4 жыл бұрын
My uncle died from it
@abigailhurstfield9421
@abigailhurstfield9421 4 жыл бұрын
I have this and I hope she keeps breathing and has no problem fighting this
@ashleykevin380
@ashleykevin380 9 жыл бұрын
I wish someone would find my best friend a cure I really wished he could live a normal life as well
@zoeey_1046
@zoeey_1046 Жыл бұрын
my little cousin, Lilliana, 8 has cystic fibrosis and a few months ago she got her feeding tube out, I’m so proud of her. She won’t be able to donate blood or have kids. She most likely wont make it to 22. A meal of pills she has to take, and treatments two times a day. Sometimes she so happy I forget she has cf.
@AmyAndThePup
@AmyAndThePup 4 ай бұрын
Lift expectancy is in the late 30s, and that's without these genetic modifier meds that are out there, if her genetic mutation is one that allows her to take it. Amazing she got her feeding tube out.
@catlover1873
@catlover1873 10 жыл бұрын
i am 13 and i also have cf it is hard you have to take a lot of meds and your in the hospital a lot
@taniabernal8087
@taniabernal8087 3 жыл бұрын
I’m sorry
@KatieThibodeaux-n1q
@KatieThibodeaux-n1q Жыл бұрын
I wanted to say this, I was born with cystic fibrosis, my name is Adey, and she is a sweet girl! Hopefully she started tricafta. I have a question does she go to the children’s hospital in Houston.
@theartempress6100
@theartempress6100 3 жыл бұрын
my friend has cystic fibrosis and i hope by the time he reaches the average lifespan scintests come up with a cure
@gamerqueen5720
@gamerqueen5720 8 жыл бұрын
hi im Elizabeth and i have Cystic fibrosis and the parents of Addy i believe they are working on a cure
@erikagarcia-oj7zn
@erikagarcia-oj7zn 7 жыл бұрын
My baby Victoria died of this cf😭😭😭😭😭😭
@plastiqueedwards2722
@plastiqueedwards2722 5 жыл бұрын
So sorry to hear that 😭 Keep spirit sweetheart! Dont be sad ❣
@oofo5982
@oofo5982 5 жыл бұрын
Omg i am gonna pray for u and ur family 😢
@charley953
@charley953 4 жыл бұрын
God bless you poor soul. Just know that even though I do not know you I am prying for you. 🙏
@aprilbequette2606
@aprilbequette2606 8 жыл бұрын
I have to do treatments
@emmaquiring2791
@emmaquiring2791 9 ай бұрын
1:21 When Will My Life Begin? from Tangled
@victoriak2358
@victoriak2358 5 жыл бұрын
I have CF, you got a semi cure. Ya better plan on sharing that!!!
@chaoticghost_x
@chaoticghost_x 4 жыл бұрын
I have CF too I got diagnosed at he age 7
@emilylittlewood3229
@emilylittlewood3229 11 жыл бұрын
CF is absolutely genetic. I know the brother of the RESEARCHER who found the cf gene on the human genome map. whysoseriousmister you should probably do a little more research yourself.
@dazzle_slimez8144
@dazzle_slimez8144 6 жыл бұрын
I have cystic fibrosis
@diyazaveri3958
@diyazaveri3958 5 жыл бұрын
God bless you!
@summerdelaney5529
@summerdelaney5529 4 жыл бұрын
Same here
@muhammadhanifkhan
@muhammadhanifkhan 5 ай бұрын
Great dear You are doing a great job you are just like my real sister Please study Holy Quran and accept Islam you will get success in both worlds
@ElleKathleen123
@ElleKathleen123 11 жыл бұрын
So you're using one source against thousands? You need to realise that just because you hear one thing doesn't make everyone else wrong. It probably just makes you wrong. Know because you speak.
@oofo5982
@oofo5982 5 жыл бұрын
My sis has cf she got it at birth
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