Meet the woman facing ALS with heart and humor

Рет қаралды 91,804

Күн бұрын

Brooke Eby was in her early 30s when she was diagnosed with ALS - but she is determined to show the world what it is really like to live with an incurable disease by sharing her journey on social media with grace and laughter. TODAY’s Savannah Guthrie shares her story.
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#als #tiktok #socialmedia

Пікірлер: 138

@SandraBugler-vq6co Жыл бұрын

My friend's sister just passed from ALS on April 14th. Horrible disease. She went downhill very quickly after diagnosis. But she kept her sense of humor up until the end. At the end, she was there one minute and gone the next. Please donate.

@chrisfreemanmastin9358 Жыл бұрын

My husband died from ALS at 46. He was a remarkable person and it seems that many with ALS are as this YOUNG lady is.

@skygazer6898 Жыл бұрын

Sorry, Chris.

@savagemoni. 9 ай бұрын

I kindly appreciate your kind gesture @Dr.ubarlo YT channel, you have always been able to help me with any kind of health issues, the ALS is something the world thought it has no cure, but I'm happy to say today that I've been cured and I'm happy to have you as my doctor

@jeanetteh.9240 Жыл бұрын

What a precious human being. May God keep her in His care.

@al-pan Жыл бұрын

People who struggle with serious illnesses deserve great respect.

@danazyskowski6580 Жыл бұрын

This disease killed my mother when I was young. She never got to know her grandchildren. This young woman deserves a chance to live. Someone has to stop this disease.

@jolynnhill8502 Жыл бұрын

What a beautiful person dealing with a horrible disease. My husband died from ALS 14 years ago and it is still difficult to deal with. He lived 9 years and walked until he passed. It started in his upper body first. I pray they find something to help, but first they need to find out what causes it.. Same with Parkinsons and MS, all neurological dieases.

@savagemoni. 9 ай бұрын

@amandamiller6656 Жыл бұрын

This hits close to home. I had a friend who fought als for a while. I was so close with her, and ive been thinking about her a lot lately. Brooke reminds me of my friend. Her sense of humor is amazing. Super inspiring.

@savagemoni. 9 ай бұрын

@3554Ladybug Жыл бұрын

It seems ALS takes the very best among us. Lost my husband in 2018 to this horrific disease. He faced it with a positive attitude as well. He was determined to live his best life for as long as he was able.

@yvonneplant9434 Жыл бұрын

Stephen Hawking lived many years longer than he probably should have. I don't think anyone knows why he did.

@3554Ladybug Жыл бұрын

@@yvonneplant9434 My understanding is that he had the type of ALS that is considered familial (meaning genetic). Sporadic ALS patients don’t live as long (for some reason). A large percentage of sporadic ALS patients are military veterans.

@anneturner2759 Жыл бұрын

My deepest sympathy ♥️

@savagemoni. 9 ай бұрын

@AbdulMajeed-hr1gp 2 ай бұрын

How many years he suffered in this disease

@littlemissshihtzu Жыл бұрын

What an amazing human being Brooke Eby is! I hope ALS gets the funding and attention it needs so that a cure can be found! Love, hugs, prayers, positive vibes and best wishes to you Brooke! 💓💞

@alexshatner3907 Жыл бұрын

I just saw whoopie goldberg on her second job, right at 0:45 job wow interesting

@rachellllhines Жыл бұрын

What a beautiful person.

@joannadee3565 Жыл бұрын

God bless you Brooke. My sister died from ALS when she was 69 in 2021.

@natasharodriguez2579 Жыл бұрын

My mother died of ALS she only lived 2 years after her diagnosis. May God bless her to forward and speak up for the ALS community

@anamericanprayer1967 Жыл бұрын

This is inspirational. Social Media has a positive side ❤

@kellymudd4908 9 ай бұрын

My husband has just been diagnosed with ALS and I'm so heartbroken. I'm not sure what to expect as we go into this next chapter of our lives together, I know it's not gonna be easy but I know we'll get through it. I have a huge support system already so one day at a time, that's all we have. Life can be difficult for us all, some just have a little extra to deal with

@savagemoni. 9 ай бұрын

,I kindly appreciate your kind gesture @Dr.ubarlo YT channel, you have always been able to help me with any kind of health issues, the ALS is something the world thought it has no cure, but I'm happy to say today that I've been cured and I'm happy to have you as my doctor,

@figmo397 Жыл бұрын

I'm glad it hasn't yet affected her speech. When my uncle had ALS, that was one of the first things that went.

@juliannelouman Жыл бұрын

Same with my dad. His voice was the first thing affected

@savagemoni. 9 ай бұрын

@amitk4139 Жыл бұрын

ALS found our family 20+ years ago and so little has changed sadly. Thanks for bringing attention to this debilitating and fatal disease❤

@savagemoni. 9 ай бұрын

@michele5695 Жыл бұрын

She's beautiful, inside and out

@kristenjones3965 Жыл бұрын

So happy to see Brooke on the today show sharing about ALS to bring more awareness!!! She has such a light!

@graydmg Жыл бұрын

Brooke, watching you on Today, I truly admire you and your are so inspiring!!! While I feel bad, at 59, recently being diagnosed with arthritis and a slipped disk, your story put things into perspective!!! God bless you along every moment and thank you for making me smile!!!

@savagemoni. 9 ай бұрын

@kathivargo1743 Жыл бұрын

I lost my mom to ALS…. God Bless you

@birgittekristenyogaandmedi9941 Жыл бұрын

I learned so much from her! What a beautiful woman inside and out.B

@christybezzant1176 Жыл бұрын

This is so close to me, my Mom had ALS... you have a beautiful soul and such a great attitude... may God heal you in every way...

@savagemoni. 9 ай бұрын

@adrianagonzalez8868 Жыл бұрын

Let’s donate anything we can to ALS🙏🏽❤

@savagemoni. 9 ай бұрын

@gerardpritchard657 Жыл бұрын

My aunt passed away from ALS in 2004. Your humor in the face of such sadness is inspiring! May God be with you 🙏 ✨️ ❤️

@Tracy-rf7ri 10 ай бұрын

Omg. Brooke, you are an inspiration. Don't ever change. Bless you.

@cherylhart5955 Жыл бұрын

My brother passed away from this monster. Wish her health

@kellyrobinson6220 Жыл бұрын

My daddy died of ALS 5 years ago 😢 I miss that wonderful man.

@63Jax 8 ай бұрын

I love this girl, i watch her almost everyday, she's so very strong!!!!! ❤

@Shadowfax85 Жыл бұрын

I just lost my best friend Miacha about 7 months ago. It was heartbreaking. She lost her ability to walk a few months before her diagnosis.. Slowly, everything just started to stop working. It was like aging backward. She couldn't feed herself, dress herself, or get to the bathroom. It was devastating when she lost her ability to talk. She used a notepad to communicate with me as long as she could. Difficulty swallowing is what put her in the hospital. They did everything they could but it wasn't enough and she died. 😔 I miss her so much.

@leannesmith9809 Жыл бұрын

Sorry for your loss

@MToya-dv1xz Жыл бұрын

As a medical student, you’re the best kind of teacher! Thank you for sharing your story.

@vicmaine05 Жыл бұрын

I have ALS at 58. However horrendous this disease is, my heart goes out to Brooke!

@savagemoni. 9 ай бұрын

@shelley7209 Ай бұрын

How are you doing today?

@angelachinnis3154 Жыл бұрын

Extraordinary attitude! Wish all of us could look at life this way! My sincere thoughts and prayers are with you and your family! 🤗

@pattiducato8461 Жыл бұрын

You are amazing! You make the world a better place!❤

@romanaecavallaro2283 Жыл бұрын

Brooke My cousins wife had ALS. She lived in Jersey. I am her former husbands cousin. I helped her for a few months as I am a caregiver. Shes no longer with us. She was a fighter, you be too. Hugs, Ro

@savagemoni. 9 ай бұрын

@stanogrady893 Жыл бұрын

You are a wonderful light to the universe. Bless you.

@jennymassengill8319 Жыл бұрын

God bless this girl 🙏Please do a miracle in her life🙏

@suestephan3255 2 ай бұрын

We can all learn & that heed to this disposition.

@geneziogenezio3299 Жыл бұрын

SHE IS GORGEOUS GOD BLESS HER

@emmarubenstein9085 Жыл бұрын

Such a brave young lady...sending healing angels...light... prayers...lots of love from Melbourne Australia 💜💜💜🙏

@beckymigdal3140 Жыл бұрын

God bless her.

@DannyGautama Жыл бұрын

Such an inspiring kid. All the best to you.❤️❤️❤️

@debisusan1037 Жыл бұрын

You are amazing! Helping others is awesome. You are too young to be dealing with this ugly disease! Bless you.

@markkearney Жыл бұрын

wow such a strong beautiful woman you are helping a lot of people go strong girl

@sallyphillips9175 Жыл бұрын

My second cousin Doug died from ALS. He really suffered, cos ALS is horrible. It paralyzes your whole body, and you eventually die from not being able to breathe. I can't imagine dying like that.

@hayleyhibbard7875 Жыл бұрын

My neighbor has ALS. It's such a terrible thing. It's wonderful, though, to see how positive this woman is.

@savagemoni. 9 ай бұрын

@louisefitzgerald4400 Жыл бұрын

What an inspiration. Bless her!

@cherylbelcher4507 Жыл бұрын

My partner died of ALS in 1995. She managed to live with ALS for 8 years but lost her ability to walk, talk and use of arms very early on. She was truly amazing. She never gave up and on the last day of her life she typed me a note with the one finger she could still use. This is a horrific disease and there is still no cure. This young lady is truly an inspiration to me and I am so grateful that she is bringing needed attention to ALS. Anyone that can, please donate to the ALS Association. They are behind funding research for a cure and need your support.

@cecilyrodriguez6698 Жыл бұрын

My mother passed away from ALS. She was a woman of faith and she gave me the strength, to go through the journey of ALS.

@savagemoni. 9 ай бұрын

@jenniferg749 Жыл бұрын

What a beautiful, amazing soul! She is incredible! Love her sense of humor!!💗 Proving it is the quality of life that is so important when you are not sure about the quantity. Prayers and hugs to her!

@marcylevitt278 Жыл бұрын

Puts things in perspective. Thank You for this story

@Bella7bella Жыл бұрын

This girl just "CHANGED MY LIFE"...

@jillcnc Жыл бұрын

That there are no survivors is not entirely true. Jason Becker, who was a guitar prodigy, well-known in heavy metal circles and briefly the guitarist in David Lee Roth's band, was diagnosed at age 19. He is now (I think) 51 or 52 and not only still alive, but composing music. There is a documentary about him called "Not Dead Yet" and it's fascinating. You might also consider doing a segment about him. Yes, it takes a small army to maintain/sustain him, and he's the exception rather than the rule. But it's an extraordinary story. I'm grateful that this woman is out there raising awareness.

@edythesandefur1298 Жыл бұрын

im thinking maybe he was mis diagnosed. cos i have known 3 who died from this horrible disease. and my hubby has MS. so im thinking maybe jason has ms instead of als. big difference in the outcome, but not different in the symptons. just a thought.

@wildanimallove859 Жыл бұрын

@@edythesandefur1298 no he has ALS and has had it for around 30 years. Stephen Hawking also was very young when he was diagnosed and lived until 76. It's obviously very rare for that to happen.

@savagemoni. 9 ай бұрын

@skygazer6898 Жыл бұрын

Brooke's positive outlook puts many people to shame, myself included. Wishing this beautiful, vibrant lady all the best

@savagemoni. 9 ай бұрын

@nannettesteyn4913 Жыл бұрын

Joy is the flag that shows the KING is in residence ! Shero ! Inspirational ! ❤

@ElaineR.-ft6tu Жыл бұрын

I sure hope something helps her and others. It’s taken 10 years to get a diagnosis for my daughters MS diagnosis. Because he took so long to diagnose it, she’s far gone. What a shame.

@michele5695 Жыл бұрын

@Elaine I'm so sorry for your daughter. Hugs to both of you. It shouldn't take so long. I have a disability also, that if diagnosed early wouldn't have ruined my life.

@ElaineR.-ft6tu Жыл бұрын

@@michele5695 it’s awful. 2 years finally on disability. This year she just went onto Medicare. 5 meds she can take and 2 are out of production as companies went out of business, all in all awful. She cant use a regular pharmacy, has to use a compounding one, of which there aren’t many near here. Right now she’s on nothing as there trying to figure out what they can give her. Anyway, life goes on, I guess. I hope you do well, I’ll be thinking of you. Hugs❤️🌺

@michele5695 Жыл бұрын

@@ElaineR.-ft6tuYou both are going through so much. At least she has you. I was recently taken off of a medication by a pharmacist, not my physician. I can't get this medication now and am deteriorating.

@ElaineR.-ft6tu Жыл бұрын

@@michele5695 thanks hon, but I’m not much help. Wish I could be. My health is shaky too. We do what we can. Take care of you. Hugs

@ElaineR.-ft6tu Жыл бұрын

@@michele5695 Michele, as I said she is too. Do you get migraines ? She’s been getting Botox and it does help the migraines but it’s a month since she’s had Keysimpta and it was helping. No longer on her list. It’s all so awful that you cant get Ned’s. Hers was 20,000.00 a month but of course the trial paid quite a bit, insurance covered some and she paid something. It’s a scam, what can I say. How are you failing? Right now I’m good enough to help, let’s pray that continues. I’ll be hoping you get a break in this awful disease,

@Calicokit101 8 ай бұрын

What an amazing person

@umama5531 Жыл бұрын

I love her I follow her on TikTok she is so sweet.

@theweysermanisback5205 Жыл бұрын

I saw a picture of Savannah Guthrie with Brooke Eby. These 2 are great together.

@metime4325 Жыл бұрын

Now, we call such person a true "influencer".

@PrincessK880 Жыл бұрын

My good friend was diagnosed at 64 and died 16 days before her 66 birthday. She went quickly. It is a HORRIBLE disease. Everything goes- except your mind.

@user-vc9kw2my7b Жыл бұрын

What a Positive, inspirational human being. Truly A gift from God to humanity.

@4UStevePerry Жыл бұрын

Three years after my brother s wife diagnosis she past away from Lou Gerigs another form of ALS.she lasted 14 months. God Bless you.

@aprilstar3572 Жыл бұрын

What an angel 😇

@thecougarexperience Жыл бұрын

My mother in law, aunt in law and brother in law all died of ALS. It’s devastating.

@savagemoni. 9 ай бұрын

..I kindly appreciate your kind gesture @Dr.ubarlo YT channel, you have always been able to help me with any kind of health issues, the ALS is something the world thought it has no cure, but I'm happy to say today that I've been cured and I'm happy to have you as my doctor

@carolbantegui2193 Жыл бұрын

So inspiring lady!

@mjblue84 Жыл бұрын

They need to find the "CAUSE" in order to find the "CURE". I notice more and more people are suffering from this horrible disease.

@oceandreamer1958 Жыл бұрын

What an inspiration! 🙏🏻🤗

@jedaholmberg3211 Жыл бұрын

My prayers are with you❤

@Laila-ss8qy Жыл бұрын

Saying a prayer for u my child n all those who r plagued by this horrible disease,enjoy every moment u have left ,this world is not our home,Jesus is on the other side waiting for u

@barbsedlock3388 Жыл бұрын

God bless you.💕❤️. Donate!!

@judyavelar3237 Жыл бұрын

I lost my mother 20 years ago to this terrible disease.

@annallen1421 Жыл бұрын

I see me in you. I to have als fus with mosiac. I am in clinical trial . 1 year bedridden and now 95 % normal

@savagemoni. 9 ай бұрын

@brendaciraola3831 Жыл бұрын

Bless you!!!! I am praying for you!!!!!!🙏🙏🙏🙏🙏😇😇😇😇😇

@masonstarship56 Жыл бұрын

I’m crying

@ina-wo2xl Жыл бұрын

Sad that so many of those who can give spend their billions /millions on trying reach for the stars” . While so much needs to be done on EARTH. So many children dying from potentially treatable conditions if RESEARCH WOULD BE FUNDED. And same for other diseases including ALS. What’s wrong with humanity? Life does not matter,only profit matters. So wrong on so many levels.

@michele5695 Жыл бұрын

@ina too much greed in this world

@Gemmarose9012 Жыл бұрын

We can ALL give. I give $25.00 per month to the ALS Foundation. That’s less than the monthly cost for a daily cup of Starbucks.

@nancyflaherty7038 Жыл бұрын

Bless you!

@joylong8897 Жыл бұрын

Love her! Just a girl❤ cane and I'm Abel❤❤ thank you so very much for sharing. Laughter is best. I use cane. You're beautiful ❤❤

@amamo22 Жыл бұрын

I have known two people who have died from ALS

@strajearocks11 Жыл бұрын

Many blessings to her. What is her KZbin channel?

@metalpunkergrrrl Жыл бұрын

LIES Jason Becker is a survivor of ALS, got diagnosed back in 1989, is 53 and alive today

@ShelbyFarrow Жыл бұрын

I'm surprised that after so much time since diagnosis that she can still talk normally. I saw a guy here on You Tube that had been diagnosed two years prior and he could hardly talk.

@suhasinibaliyarsingh6958 8 ай бұрын

My father is suffering from this desease how can I prevent i don't know please help me

@SherrysReviewsandResearch Жыл бұрын

The true God loves us and never forgets us. He has the power to and will resurrect on a grand scale one day. Death is like a long and peaceful sleep. One that we will be awoken from. ❤ Im sorry to hear this news for this young woman and my prayers she will keep her positive spirit.

@carolablue5293 Жыл бұрын

God and Jesus have the power to cure. Perhaps they will use it to cure this woman.

@alexshatner3907 Жыл бұрын

I just saw whoopie goldberg on her second job, right at 0:45 job wow interesting

@alexshatner3907 Жыл бұрын

@@carolablue5293 I just saw whoopie goldberg on her second job, right at 0:45 job wow interesting

@ahoward3819 Жыл бұрын

So why does God let this disease exist in the first place?

@kevinraymcgaugh7164 Жыл бұрын

ALS isn’t an illness it’s A word to Describe music 🎼

@bess8523 Жыл бұрын

🙏🏻

@alexshatner3907 Жыл бұрын

I just saw whoopie goldberg on her second job, right at 0:45 job wow interesting

@savagemoni. 9 ай бұрын

@Memory_Bears_by_Grams Жыл бұрын

❤❤❤

@settingthewheelinmotion4978 Жыл бұрын

For every one dollar from the federal government that goes towards ALL medical research around twelve dollars goes to the military. Seems like we could do better.