Misconceptions of a Pain Pump @ 29 Years Old.

[@kristishaffer4484]

Thank you for sharing your experience. After 15+ years with CRPS, 4 SCS units, and a host of injections, the war on opioids has left me grappling with a “now what” scenario. In Feb 2024 I underwent the trial injection like you described, and OMG it was incredible how much it reduced my pain. There’s a part of me that wants that, but I’m worried about 2 things, and 1 I fear will sound petty. You mention how you feel the “puck” shift under your skin a bit if you move a lot. How much has your pain pump affected your personal life? I used to be active, go dancing, go hiking, and had an active romantic life as well, and I’d like you to reclaim some of the life I had before CRPS started stealing bits and pieces of it, but if it means sacrificing some of the peace I still have, I’m not sure I can do it; that’s like swapping one hell for a different one. The second thing is finding a surgeon I trust. I had a fabu neurosurgeon for most of my SCS implants, but sadly he doesn’t do pain pumps, and the two surgeons that do I have zero trust in. The first time I met the one was during a routine SCS battery swap (from BS to StJ) and he started telling me how he was worried about scar tissue as my original unit was put in 7 years prior. So he wanted to completely remove my unit and leads, let me heal completely, then do a second surgery to put a whole new unit. I asked why did my leads need to be replaced, and he couldn’t give me a real reason. So when I said battery swap only he turned into a petulant child who’d been denied a new toy. So knowing I don’t trust these surgeons I’m not even sure how I’d go about trying to find a reliable one in a neighboring state, and how my insurance would feel about that. I’ve tried reaching out to people in my community, but can’t seem to find anyone which doesn’t boost my confidence at all. 😢

[@hvac7377]

Your family is very blessed to have you. God Bless you and your family

[@kriskossack7231]

Thank you for making this video! After all the different surgeries for endometriosis, I am a little worried to have another surgery. Have a great day!

[@Britesmyls]

You are so incredible! I love the way you tell your story and all the little factors involved and concerns that you had. The pump is my last hope because my back is inoperable. I love and appreciate your guidance. Thank you so much for sharing your story.

[@mp180170]

I really liked how are you clarified the difference between addiction and dependency I’m an Adhesive Arachnoiditis sufferer and I understand the difference between the two thank you for sharing & wish you luck

[@healthteaspoonie]

Thank you Mark, I hope you are doing well!

[@mio_m_]

Sorry for your suffering. I m suffering due to a sciatic nerve root atrophy. A neurosurgeon told me going into a new surgery either for a nerve block injection or a pump placement, there is a risk for forming arachnidites. Wondering how you got yours and how are you dealing with this. If you don’t mind. 🤍God bless

[@MsCmeehan]

This is so great! Thanks for sharing. My younger sister has cancer and tonight texted me that her 3 pain meds weren’t working so she went into hospital to get a pain pump. Your boy is really cute.

[@healthteaspoonie]

Thank you! Sending gentle hugs to your sister!

[@stillaknickfan4838]

Great video. Been looking for a good real world review.

[@joanminske2498]

Ty for sharing your story I to am scheduled for a implant and I am so SCARED

[@jenspencer6913]

How did it go? How's recovery? I'm scheduled on 10/28 here a little nervous

[@LexingtonB09]

Good for you for researching everything, including your doctor. That’s how we all should be

[@edwardhopf2654]

Thank you for sharing your story. I’m getting the prometra 2 pump implanted august 24 2021. This is the last option for me because I have tried everything else. Oral medication and patches make me extremely sick and further cause more complications on top of the severe health problems I already have. I’m looking forward to getting my pump.

[@healthteaspoonie]

You're Welcome! I hope your surgery went well!! Please let me know!!

[@TuppyDog]

I’m sorry you’ve gone through so much! I got my pump at 25 and will be having it permanently removed next week. I’m 38 now. I eventually got to a high dose of morphine and was still having breakthrough pain so I decided to have it removed. It’s taken me almost 3 years to reduce the meds but I’m finally there. I have Ehlers Danlos Syndrome and autonomic neuropathy. I was misdiagnosed for years and would not recommend someone with Ehlers Danlos to have this. It lead me to have persistent CSF leaks. Had I known I had this, I would not have gotten the pump. That is just my experience.

[@jamessoho6825]

Im glad you shared and i bet your husband is happy no doubt! My marriage didnt last through 12 surgeries! But im finely going with a Flowonix next monday, my Dr using Fentanyl. I guess eveyone is different? Oh the headache you had , you should of called your Dr right way, thats from a spinal leak and they fix it with a blood patch they called it? By taking alittle blood from you arm and shoot it in your spine and your good to go in 10 mins! Dont suffer next time, if it happens?

[@healthteaspoonie]

My doctor was in the loop! He refused to patch me :) he said When you patch spinal weeks they have a risk of causing a clot in the tube near your pump and I was so soon after surgery he was worried it would wreck all the new work he just did so he wouldn’t do it I had to suffer

[@Britesmyls]

Thank you so much for that information.

[@richardbarron816]

Thank you so much you were very informative, my pain management doctor wants me to get the pain pump so I am taking your advice I am doing a lot of research.

[@nick9463]

FYI...Just remember one thing my friend, there is no euphoria from the pain meds if you do get a pump, good luck with pain free life brother!

[@healthteaspoonie]

Yes! I’m glad you are researching it!! Find a reputable physician, do your research, have conversations and I wish you the best. And yes, as nick stated, this is for chronic pain…. No euphoria- you will always stay mentally clear, no rushes like oral medications… if you are seeking that in medications then you may need to have a different conversation with your physician

[@nick9463]

Thank you!.... you've given me new hope and strength, oh by the way you look pretty all the time. Stay positive no matter what, you can do this!

[@healthteaspoonie]

Thank you!

[@nick9463]

@@healthteaspoonie you are very welcome...you helped me more than you know. One last thing I want to say is, don't let your challenges and your situation define who you are because you are a strong beautiful human being and a woman first before and above anything else.

[@cindyreisman4419]

Thank you❤

[@CanYouSmellWhatTheRobIsCooking]

How are you doing today? It’s been four years since this video was posted. Hope to hear from you.

[@findyourrself]

I really like your info.. I have had a similar pump as well.. I just have had it a little bit longer.. I'm up for my second pump.. An education is crazy .. I try to change people views.. My crazy thing was I had my pump implant done the day before I went on vacation.. My Dr thought I was crazy.. but I did so well with my test pump.. my test was 2.5 months long.. . I'll leave it at that for now.. Thank you again..

[@healthteaspoonie]

findyourrself Thank you! And wow! I am definitely interested in hearing your thoughts having had such a unique and interesting situation! I believe knowledge is power!! You are right Education is a must!! Thank you for watching!

[@findyourrself]

@@healthteaspoonie Thanks for the reply.. I'll definitely be getting back to you.. I seen to get my better answering at night.. Just to say I have had multiple surgeries as well.. But mine all deal with my neck an head..

[@CanYouSmellWhatTheRobIsCooking]

Oh I just had mine put in on feb 6 2024

[@rhondawest8027]

That's the exact same day i had my pain pump surgery. So far im doing pretty good. I have been tied to the bed for several years my pain level is better now my problem is very low energy from not being active for so long. I just need a boost. 😂 Im 57 and should have had this years ago but didn't know it even existed.

[@mariarico677]

Hello I'm looking into the same procedure how do you feel?

[@alexisnicole3965]

Hello hope you are fine. Can you please give us an update? Also what if you have to move to an other state how easy or hard is to find a provider?. Do you have to take more medications via oral? Thank you and blessings

[@FibroSurvival]

I have had fibromyalgia and interstitial cystitis and I've had gallbladder, thyroid, and hysterectomy removed. I'm going ask about this at my appt next week

[@maggieaguilera309]

I’ve been researching also for the pain pump. This video 3 yrs old how are you doing now. Friday I have appointment with my pain management in florida. I hope my doctor can help me!

[@healthteaspoonie]

Fantastic! I have updated videos :)

[@mariarico677]

My question as well can this cover C spine T spine and L spine?

[@randyfry242]

This is a great video. Do you know if these can cover more than one area on your spine, such as pain control for both lower back and upper back?-thank you

[@sherriestone94]

@Randy Fry i was wondering the same thing because i need upper /lower back pain relief ,did you ever find an answer

[@rogerarndt6416]

@@sherriestone94 I too had this question for my Doctor, as I'll be getting my first pump next month. I have 3 locations that need attention, when I ask I was told the drug will effect all the areas of what's causing the pain. (it better) After almost 30 years of dealing with Doctors and pain, with No one really understanding this is the next step...I hope it works as well as all the people that have had to deal with pain that I've been reading about, I'm really tired of telling my story. So to all those doing the same Good Luck.

[@sherriestone94]

@Roger Arndt thats great your getting your pump soon ,me to just had a visit with my pain dr last week ,and i dont know if its like this where you live but i have to see a psyc dr next week they want to make sure i have a good support system at home ,dr decided he wants to use diladid in my pump so after i see the pysc dr i get my injection test im so excited im sick of drs and pills and pain that never ends

[@rogerarndt6416]

@@sherriestone94, Hi Sherrie, I too had the psyc test, I hope this does the trick, this boy is tired of the games. I'll know more in a few more weeks...I hope, good luck Sherrie

[@healthteaspoonie]

I’m so sorry I missed your comments! I just found a whole bunch!! Yes! I have heard depending on the physician they can get a large area covered such as the whole back!! Or even body!!

[@christa526]

Please please please record a new update

[@stacey2991]

Thank you so much ❤.

[@FibroSurvival]

Does it help with leg pain?

[@deniseblackburn33]

Thank you I'm so scared to get this you helped so much ❤️

[@LesleeYoungRamirez]

Thank you for taking the time to do this video. I am having the great debate as to whether I should do it or not, but I am 74 years old. I see that this was posted a year ago so I'm wondering how your refill went and if you have had any problems with the pump itself. I know that they had to recall some of the model you have. I have not had a life for 5 years due to my back, and I live in a Cleopatra style on my bed. Any help you can give me since you've had it a year now would be great. P.s. I also had a hysterectomy at 29, after 4 kids that was fine with me.

[@healthteaspoonie]

Im sorry I missed your comment!! your welcome!! My refills go great- I have since posted a refill video. i hope you find the pain relief you so deserve Leslee!

[@Dinelie]

Does the medication goes to the brain?

[@healthteaspoonie]

It goes through the spinal fluid and into your pain receptors

[@Matt_E_1986]

After your implant surgery did you need to wean off your oral meds as they started to activate the pump doses? I am on Lyrica (pregabalin) Jurnista (Hydromorphone) and Cymbalta. Given it is all for neuropathic pain and spinal cord tethering from a spine injury. I have had several surgeries including artificial disc replacement. I tried a spinal cord stimulator and it didn't work for me and then it failed so I had to have it removed. I have been looking into the pump to try and get rid of the meds as I have ADHD also and the meds give me such bad brain fog and increased the ADHD Symptoms. I have been watching your videos which are quite helpful and informative.

[@healthteaspoonie]

I had to wing off all my meds prior to pump placement. It was hell- but well worth the journey ❤️

[@TheCaliKidz]

I just had mine put in April 16th. I am still recovering. My Dr. had put my machine on the back . Left side. My dad lives over seas and my worry is when I am on that 19hr flight. Have you traveled at all after putting your pain pump in ? Thank you for that video. It was great.

[@healthteaspoonie]

I’m sorry just found all these comments!! Yes I have travelled ( ALOT) and I travelled to D.C to talk about PAIN 2 weeks after my pump implant!!! Traveling is easier since I’m pain free!! Just make sure your all filled up before you travel!

[@deniseblackburn33]

I thought they put it in the stomach

[@sharonparker7148]

Thank you I go 10/27/23

[@krazymammaw3040]

I have chronic pancreatitis I have severe arthritis all down my back ,my body is not agreeing anymore with oral pains. They don't work like use to I know I will be getting dilate im allergic to morphine .I just want my life back . I am very scared to death of pain pump u have helped me some .I'm going to keep researching any suggestions

[@jackattack9799]

any updates? im looking to get one

[@healthteaspoonie]

Hey there!! Im very happy with my pump!! I will post a update video this weekend!!

[@LexingtonB09]

Thanks for making this. Did you have to stay in the hospital when you had the pain pump put in?

[@healthteaspoonie]

Outpatient!

[@Kalui33]

Any updates ?

[@phyllisingram1167]

Have you had any problems? I had extreme problems with falling. I felt like I had Alzheimer’s, my memory has faded, I can barely walk down to the mailbox. My pain is horrible. My brain was in a horrible fog. I am currently having my meds lowered and going to have it taken out.

[@mrossomx2]

I’m working on getting mine out too. The damage it has caused me is unforgivable

[@diamondstar9438]

Thanks so much I decided not to get it

[@healthteaspoonie]

I have only had great success with mine :( but I’m still on very low dose. Type of medication and location I have heard can be a factor for issues or simply just not having a connection with the pump.

[@wilcoxtactical3716]

What is the medication that is injected? Is it morphine?

[@healthteaspoonie]

It depends! Whatever your provider puts in. I have dilaudid.

[@PauletteLandry-e1j]

I have a pain pump for neck pain, several failed surgeries, I wouldn’t recommend it to anyone. Had to give up my nursing career.

[@krazymammaw3040]

Mine will also have dilada because morphine makes me very sick

[@krazymammaw3040]

I suffer from chronic pancreatitis daily pain I have been a candidate for it for over a year but im so scared and I also have narrowing of my spine canal there pinched so that causes alot of back pain also from pancrease getting worse I have nafld I wake up in pain daily so I'm really considering it but im scared

[@sillysloth261]

I just wanted to comment and say I also suffer from chronic pancreantitis for the last 3 years. I also have Sphincter of Oddi dysfunction type 2 and Cyclical vomiting. I'm actually on disability and was approved immediately due to tons of er visits and week+ stays. My pain Dr had approved a pain pump in 2019 and my ins denied it. I was just approved a second time last week in hopes ins will approve it this time seeing my history the last few years. If not when my Medicare takes over in November will automatically approve it, so either way, it's coming. I'm so excited, but also slightly nervous. If youd like any support through your journey, I'd love to offer my ear!

[@krazymammaw3040]

@@sillysloth261 thank you nobody in my family gets what I'm going thru daily I don't drink haven't in over 20 yrs and then it was occasionally but I use to love to cook i use to love to bake my hearts no longer in it and it breaks my heart that hubby has to eat alone he tells me not to cook he will figure it out then I get more upset and cry I can't commit to nobody cuz I never know how im going to wake up then I. Cry if I'm in pain first thing in the morning and believe me when I have a good day I used every minute of it to clean cook and bake we have been married 40 yrs all are kids grown and have families of there own and they don't understand why I can't commit I don't want to hurt my grandchildren 2 of kids have had one time acute pancreatitis and they hurt so bad I asked them to try living in that pain daily ironic is im getting a bigger stomach and there something going on im gaining weight in the stomach I have developed also nafld doctors say it from pancreatitis im on disability if u want to call it that 400 don't buy shit nowadays but because my husband works I don't get the least amount im on ssdi they the lawyers said it was the best and when hot my first check I bawled that's only half om my income I was bringing home im sorry I keep pushing wrong button nobody knows till they go thru it there self I take day to day and pray every night for a good day. I hope all the best im still seriously thinking of pain pump but im so scared pill wise I have control with pump I won't have control that scares me that I won't nobody no how it is till they live it it controls you daily life and it's sucks .sorry but I can't help getting upset

[@sillysloth261]

@@krazymammaw3040 I'm so sorry 💙💙 I can definitely relate to that. My sod gives me the pancreantitis usually 6-8 times a year for 2.5 years now. When I don't have that then I deal with my sod symptoms of throwing up, awful abdominal pains, fatigue, headaches, nausea that never seems to go away. I have a 7 year old son, and I know this has a large affect on him. Last year I was in the er 32 times for iv pain management and bags of fluids for being so severely dehydrated. This year thankfully only 12 times but my weight is suffering more then ever and it's causing kidney issues and bone density issues. It's hard to make people understand your struggles when you appear to be physically OK. I totally understand that with all my heart! Have you approached your primary or if you do have a pain Dr, about being a candidate for a pain pump? You are your best advocate in your health journey. I've learned that very early in this. I've had to push some of my Dr's to go the extra mile bc it's my quality of life that's suffering.

[@krazymammaw3040]

Thank you I have read so much which I shouldn't of because that scared me more I think some people do it to get the meds I have heard horrible stories on that too

[@healthteaspoonie]

I’m so sorry I missed your comments- I just found a whole bunch!! I hope you meet with a specialist and have this conversation. It was the best decision I could have made for me but it’s not for everyone. I hope you both are having good pain days. Gentle hugs!!

[@tinae47]

How long was your trial, and how long did you have to stay for each trial time?

[@healthteaspoonie]

My trial was one day outpatient! My mom took me, stayed with me, drove me home and tucked me in. Some doctors will do inpatient trials for 24 hours.

[@tonyc6331]

Hi , is that pump visible?

[@healthteaspoonie]

Not really :) I have lost some weight and it protrudes a little in my belly.

[@janpoole910]

@phyllis Ingram The reaction you had was from them using Prialt! It's horrible and it's for people with spasms!! Just have them stop the Prialt!!

[@daniellegallegos9298]

Hello ,I just found your videos ..Im going through surgery for the pain pump on the 28th of this month March.. I have some personal questions would you be willing to email me back.

[@healthteaspoonie]

Hi Danielle!! Sorry I’m just now seeing this!! I hope your surgery went well!!

[@timbrawdy257]

Pain meds are known for interfering sexually. Does the pain pump do this as well?

[@healthteaspoonie]

No issues reaching my O, but I do have issues with my initial pain from endo. I have a whole video on sexual issues with the pump

[@RussellD11]

This is so sad to hear.. Every single surgery/conventional medicine she had done, made her situation much worse! Doctors are VERY DANGEROUS to your well being!

[@dawnmartin1732]

I’m reaching out for answers. Can you pm me, don’t want to leave to much details on here.. Thank you so much!!

[@healthteaspoonie]

Dawn Martin hi! I have no idea how to PM! But please feel free to email me and I will happily respond to you! [e-mail]

[@bry4christ2nda25]

You’re really cute

[@mio_m_]

Glad you have such a good outcome! I’ve had a lot of back surgeries, including spinal cord stimulation implanted and removed. I m suffering due to a sciatic nerve root atrophy. A neurosurgeon told me going into a new surgery, either for a nerve block injection or a pump placement, there is a risk for forming arachnidites. Have you heard of a similar situation? Were you told something similar? 🤍God bless I m suffering due to a sciatic nerve root atrophy. A neurosurgeon told me going into a new surgery either for a nerve block injection or a pump placement, there is a risk for forming arachnidites. Wondering how you got yours and how are you dealing with this. If you don’t mind. 🤍God bless

[@krazymammaw3040]

I am supposed to get one and im at the point where I'm going to talk to my pain doctor again I can't keep going on with chronic pain anymore it controls my life I want it back. Can u give me the facebook page