MORE SEIZURES & BACK TO HOSPITAL | A Tough Few Days

[@WalkingwithGod-u6b]

Crissie, my heart is breaking for you. You look great, you never need to say you look awful, you are a fantastic mom and wife whose priority is her children. I admire you and all you do for your family. I pray you get some answers for why Avery gets so sick frequently. Praying Avery gets better and stays well. God bless you and your beautiful family.

[@mummyandavery]

Thank you I appreciate it ❤️❤️

[@doodlebug4022]

Chrissy have you done a mold test in the house? Here in the USA you can go to the large hardware stores such as Home Depot or Lowe’s and they sell the kits there. I’m concerned that there might be mold in the house causing Avery’s issues.

[@mummyandavery]

I haven’t I will have to look into this xx

[@Jdjustsaying]

Good thinking ❤

[@aliciakillen1940]

Good idea! You never know right?

[@lindsayforney7575]

Yes this is what i was thinking. Or severe allergy to something. Try to think of anything new around her. Material if clothes, lau dry soap...think of random things

[@kbmkj]

Aww 🥰 sending prayers for little Avery! She has really been going thru it and just needs a break. Get some rest yourself, if you can.... You're a good Mama! Lord bless!

[@mummyandavery]

Thank you so much ❤️❤️

[@pelicannurse7397]

Thanks for showing how to change the Wild cartridge. I love Wild becuz I am very sensitive and it works so well all day. Hang in there! You are a great mom.

[@mummyandavery]

Thank you ❤️ I really enjoy wild, their shower gels are nice too xx

[@karenfitzpatrick6256]

You are not a mess. You look just as lovely as always. Just understandably stressed with concern for your daughter's well-being and the resulting lack of sleep. It's a very rough season, with so many Winter bugs around and dear Avery still so vulnerable. I'll continue my prayers for little Avery to be able to resist and recover from these infections better as her immune system matures. And I'll also continue prayers for your strength and stamina to hold up as you see her through all these challenges. You are amazing! Much love to you, Avery and your family. From a mom/grandmom in Vermont, USA 🙏 ❤

[@mummyandavery]

Thank you you’re so sweet ❤️❤️

[@candace9236]

i cannot imagine what you go through during her sick periods which happen often it seems but let me just say god picked you to be her momma for a reason ❤❤

[@mummyandavery]

Thank you so much ❤️❤️

[@sandrasmith5943]

I’m so sorry you have all this to worry about Crissie. Let’s hope the next treatment works for darling Avery. Try to keep thinking positively. Everything you can do for her you are doing. Best parents she could ever have xxx👧🏻💖

[@nadiaf1229]

You look gorgeous in your dressing gown I love having a Chrissy day and wrap mine around myself if I’m dressed underneath then I don’t feel guilty , sending healing prayers to your princess ❤

[@mummyandavery]

Aww thank you so much ❤️

[@nadiaf1229]

Do you think the chest problems are coming from gastrointestinal they may suggest Avery goes to a G-J tube if it’s such a reoccurrence like this it could all be down to reflux coming back up silently and seeping into her airways X

[@elizabethorr9372]

Oh Crissie. What a few days you have had. Poor Avery. Seems crazy that this could have potentially not happened if she had been able to have the Clobazam. Hopefully this issue gets resolved as its so not fair on Avery and you guys. Crisssie you ate doing a great job despite being so tired. Hopefully you arent getting worried about going away and leaving Avery and the potential of something like this happening. Take care 😊😊

[@mummyandavery]

Thank you ❤️ we have clobozam now so hopefully we can avoid a bigger seizure if she starts to twitch again. We are worried but I think we would have been anyway, that’s why we feel better knowing a trained nurse will be caring for her xx

[@candicesailsbury1355]

I can only imagine the amount of stress you and Josh go through. You are the best parents Avery could ask for. Poor baby girl you know all the coughing wears her down. I pray she gets over this soon and you get caught up on your rest. Love y’all bunches 💙🩷💙💙💙🩷

[@mummyandavery]

Thank you so much ❤️

[@theresamclaughlin8655]

Awe you poor wee soul she having a hard time again bless her xx hope you sleep gets better my dear xx❤

[@mummyandavery]

Thank you ❤️❤️

[@sandrasmith5943]

I’m so sorry for you all and especially lovely little Avery. She goes through so much. You are such a lovely Mummy Crissie. Lots of love xx👧🏻❤️

[@mummyandavery]

Thank you ❤️❤️

[@aimeesalter9521]

I'm so sorry poor little Princess she needs a break so do you all hope she well now xxxx

[@mummyandavery]

Thank you ❤️

[@debbielibby8036]

Oh dear Pudding, I hope you feel better real soon!!

[@Kanik84]

Sweet baby does not get a break. I can only imagine how hard it is for you all when she is sick so often. Sending hugs 🤗

[@mummyandavery]

Thank you ❤️

[@paulagrant1073]

So sorry for Avery being sickly again and how exhausted you are. I pray for her and you to have some relief from all this constant illness.

[@mummyandavery]

Thank you ❤️

[@miamartin479]

Hi Chrissy how are you and Avery doing? Sorry to hear that Avery has had more seizures. This video made me shed a few tears, it must be horrible when she has seizures but the way you deal with them is inspiring! hope you and Avery manage to get some rest today. Sending prayers and love to you all xx

[@mummyandavery]

Thank you ❤️❤️ we’re not great at the moment to be honest, will update next week xx

[@miamartin479]

@@mummyandavery HI I'm so sorry to hear that. Hopefully this rough spell will pass. Big hugs to you and Avery. Take care, see you in your next video xx

[@thehattersmadness1957]

Poor Avery!❤ I have had an iv in my foot before and it is no fun. Take care of yourself or you will be sick again too. Easier said than done, I know. Maybe nap when she does. I hope they get her meds figured out so no more seizures. Happy, healing vibes sent your way! ❤😊

[@mummyandavery]

Thank you so much ❤️

[@janicehedley1006]

Poor Avery, but poor mom too. You look exhausted. But still look great. Just a tired look. Praying for Avery that she starts feeling better soon and on the road to recovery. Hugs to all of you.

[@mummyandavery]

Thank you ❤️

[@mariabottiglieri3047]

😃 Hi, Chrissy. It sounds like you've had quite a weekend ! What did the doctor say? Is avery doing better now?

[@mummyandavery]

The only thing Avery tested positive for was Rhinovirus again. She’s on antibiotics again though incase there’s an infection that wasn’t picked up. She’s ok in herself but still twitching so that’s worrisome xx

[@mariabottiglieri3047]

Here's hoping she gets better quickly!❤❤

[@FairyBoots]

Massive hugs to you both xx you are an amazing Mum to Avery and I hope she is over this nasty bug soon xx

[@mummyandavery]

Thank you ❤️

[@kathleenweems2909]

Poor little thang, I pray she gets better. She sounds so congested and nasaly.🙏💕

[@mummyandavery]

Thank you ❤️

[@suzybausch8587]

Feel better soon, Avery! ❤

[@mummyandavery]

Thank you ❤️❤️

[@jeanniefox3350]

Crissie it’s just sad seeing Avery struggling again with that nasty cough, I was glad to see she got the clonazepam and got a bit of sleep with it and I’m sure helping with any seizure activity. I truly pray for your family everyday that Gods healing and blessings rain down on y’all! Try to get rest yourself and make sure you’re eating. 👋👋for now🫶🙏coming your wayNC, USA

[@mummyandavery]

Thank you so much ❤️❤️

[@manuelanusche6917]

Ohhh... poor Mummy. Although you Look great it is terrible to be so tired🙄.... you are a hero and I hope you get some Rest sooooon❤❤❤

[@mummyandavery]

Thank you so much ❤️

[@millisagable3018]

Get well soon Avery!!! My mom and little sister and my grandparents all have a werid sickness its a werid flu and cough. Get well soon baby girl!!!

[@mummyandavery]

Thank you ❤️ I hope your family feel better soon xx

[@Jennygeee]

Oh no, I’m so sorry you have had such a hard time again! I really hope that she is feeling better now. Poor little Avery and poor mummy too but don’t worry you look beautiful as always ❤❤

[@mummyandavery]

Thank you so much ❤️

[@smokindragon04]

I wish I could hug you,it’s heartbreaking 💔 to see you so stressed and Avery so Sick😢I’m praying for a quick recovery

[@mummyandavery]

Thank you ❤️❤️

[@Lin-id9qc]

Hey I hope she is better soon..you need a suction machine when she coughs she could be aspirating if she can't swallow properly...also breathing treatments at home? You need that too ..

[@mummyandavery]

We do have a suction machine but no oxygen or anything like that. We’ve tried xx

[@miamartin479]

Aww that cough sounds really painful. Her throat must be so sore. There is a nasty cough going around. I had a bad cough over Christmas. I'm much better now but occasionally get intense coughing fits. It drives me crazy so I know what it feels like. When I had it, it was really getting to me too because I was not getting any relief. Thank goodness I was on antibiotics. That definitely calmed it down but was still coughing. You're right she deserves to be well. Hopefully she can get back to the long stretches without be ill. Fingers crossed 🤞. Lots of love🥰🥰❤❤

[@mummyandavery]

Thank you ❤️ I’m glad to hear you’re feeling better xx

[@miamartin479]

@@mummyandavery Hi, thank you me too xx

[@ginnywyatt5720]

🙏🙏🙏🙏praying for you guys... sending love and hugs.... you are an amazing mum❤❤

[@krafttee1]

Awe sweet Avery, hope she’s feeling better

[@mummyandavery]

Thank you ❤️

[@pjk1714]

So difficult, hope she responds to the medications. If something triggered like mold, it's hard to rid. Her SAT level is reflecting inflammation. Mine would have seizures when it dropped with bronchitis and little to no fever. I'm sure they did an x-ray. Just sorry you are on the marathon to get her reset. Try to take care and keep documentation over this time.

[@mummyandavery]

Thank you so much ❤️❤️

[@samjones9465]

Aw poor Avery, she really needs a break from all this illness. You don't look awful - you look like a mum who has a sick child - we've all been there - survival mode. Hope Avery picks up soon so you can get a proper sleep or as proper as you can with a child in the house who has a sats machine. My grandson (asthmatic) had one for such a long time and I don't think any of us slept very deeply always one ear awake lol. Take care and fingers crossed Avery rallies quickly.

[@mummyandavery]

Thank you so much ❤️ no it doesn’t feel like you ever fully sleep 😂 xx

[@carolynwalker9920]

Hope you feel better soon avery sending love and prayers ❤❤❤❤❤

[@mummyandavery]

Thank you ❤️

[@aliciakillen1940]

Poor baby A, she’s looking very pale. It’s surprising to me that they aren’t able to identify what’s the root of this illness. I can’t imagine how frustrating this must be for you! Im hoping for a quick return to wellness for her! Best wishes from Colorado! P.S. we are perfectly fine with you in your robe, looking comfy!😊

[@mummyandavery]

It’s really frustrating it feels like she can’t catch a break. Thank you ❤️

[@tanyagilpatrick8531]

Oh poor Avery. I now how she feels. Iv had seizures in the past. I still have some but now there considered non- epileptic seizures. I am always really really tired after my seizures no matter how long they last. I also always have a headache after them. Avery u and Josh and the boys are all in my prayers this week. I live alone and have a therapy cat named Oreo and I trained him as a kitten to wake me up or help bring me out of them. He is now 13 years old and he still helps me out of them and will tell someone I'm having one if someone happens to be here. I also have tourettes syndrome and he helps me if I'm having a tic episode. He helps me with many other things too. Anyway I hope and pray Avery is getting better. Love u all. 😊😺😻🤗❤️

[@mummyandavery]

Bless you. Oreo sounds like one in a million, I love cats xx

[@juliegilbery2522]

Sending lots of love to you all ❤️❤️

[@ThomasEmslie-u5h]

Sad to hear Avery is ill again. I hope she gets better soon. Did she have to stay on the iv medication?

[@mummyandavery]

Thank you ❤️ she switched to antibiotics via her peg after 2 days xx

[@kathyferrara4444]

You know Chrissy. I have epilepsy and I have not had a seizure in years! I will pray that for Avery. I know how it is. I am here if you want to chat. Poor little darling. I used to get bronchitis too and cough like that. I pray too that this shall pass as well!

[@mummyandavery]

Thank you ❤️ I’m happy to hear you’re seizure free xx

[@kathyferrara4444]

@@mummyandavery thanks Chrissy. I appreciate that. I had my last one at 21 and I am 66. We are going to pray healing for Avery. You are so sweet and I love watching your channel.

[@louisemason2006]

Sending love to you all ❤

[@preynoldsja]

Poor Avery can't catch a break 😢😢😢. I'll continue to pray for her healing and your strength to deal with it all.

[@mummyandavery]

Thank you ❤️

[@aliciakillen1940]

Oh one last thing. What do you think about asking doctors about a shaker vest, the kind they use for cystic fibrosis patients?? It loosens up all the thick mucus and maybe she could use it everyday?? Just a thought, trying to help ♥♥ Alicia from Colorado

[@mummyandavery]

I have asked, they don’t fund them here. Apparently there’s not enough evidence to suggest it works xx

[@biddiemutter3481]

Poor thing, coughing is the worst... well, it's not but you know what I mean. I really hope that the medication sorts out the seizures. well soon sweetheart. Praying for all of you

[@mummyandavery]

Thank you ❤️

[@janicemichaloski5292]

Crissie ? Is that Wild deodorant aluminum free ? And i hope Avery feels better ❤❤

[@mummyandavery]

Yes it is, the case is made from aluminium alloy but the deodorant itself is aluminium free xx

[@jeansmith6639]

Poor baby my heart goes out to you all x you always look beautiful God Bless you all ❤❤

[@mummyandavery]

Thank you ❤️

[@martinascharf5306]

Poor sweet Avery 😢😮 always sick is not good I wish Avery all the best❤ recover fast angel pray for you all 🙏 best mom I ever seen dear Chrissy 😊

[@mummyandavery]

Thank you so much ❤️❤️

[@paulamariaeaston8952]

Aww hope Avery is feeling better now, poor little sausage. 😢

[@ppthegreatest3941]

Poor darling Avery, she just doesn't get a break 😢 so frustrating for you crissie. Hope the doctors get things sorted out very soon, she must feel awful ❤❤ xsuex

[@mummyandavery]

Thank you ❤️❤️

[@a.life.reimagined]

Crissy, she sounds so bad. My daughter had seizures also. Its very stressful. Wish they had had sensors when she was little. I hope you get some rest. Momma needs a break❤❤❤❤

[@mummyandavery]

Thank you ❤️

[@ashleywright3315]

Do u mind me asking how u get a open access pass for hospital xx

[@mummyandavery]

Avery has open access because she has a g tube xx

[@lisatague305]

Aww , Avery is such a beautiful child . It appears that her seizure threshold is lowering and why is she getting sick ? Here in the States it seems like everyone is sick . Nasty viruses out there . Poor little Avery I feel so sad for both of you ! Is Reflux also playing a part in all this . She doesn’t have the same accessory muscle ( because of her neuro muscular issues ) . Sending cuddles , hugs and ❤ to all of you!

[@mummyandavery]

Thank you ❤️ it does seem as though her threshold is lower xx

[@aliciakillen1940]

My son is sick right now too. Negative for flu, covid and strep but has sore throat, coughing but no fever. Doc says some kind of virus but they don’t know. It kills me to hear him coughing as well 🥺 You’re not alone, sick kids suck! From Colorado ♥

[@mummyandavery]

It’s awful isn’t it? I hope your son feels better soon ❤️❤️

[@sk-nb5tl]

Poor baby. Inshallah ( god willing) she feels better soon

[@mummyandavery]

Thank you ❤️

[@kimberlyforrest3676]

Has Avery been checked for fungal/yeast infection?

[@mummyandavery]

She’s had labs and swabs done for bacterial and viral infections. I’m not sure if the culture would have shown a fungal infection? Xx

[@kimberlyforrest3676]

@@mummyandavery antibiotics damage healthy gut Flora, which can lead to excess fungal/yeast invasion. This can cause similar symptoms to those Avery is exhibiting.

[@kimberlyforrest3676]

One type of yeast is called candida albacans... It may be a possible contribution to her symptoms.

[@shoshanaackstinee3465]

Please send video

[@bunglejoy3645]

Wasent there a on duty neurologist and couldnt they hsve faxed him or emailed him it uk good grief, doctors are generally great but i dont know professionals of all kinds sometimes dont use common sense glad Averys okay now❤

[@mummyandavery]

Tell me about it, averys neurologist cancelled her appointment last week at the last minute. She’s been assigned a consultant closer to where we live now for epilepsy but I don’t know her well enough to feel comfortable yet xx

[@sk-nb5tl]

This video was uploaded 16mins ago but theres comments from 4 days ago

[@mummyandavery]

Yes that will be from my channel members ❤️

[@marilyndekker1541]

Channel members get it to view it early

[@melodysmithey3172]

She sounds like whooping cough, tell the drs. My daughter had this

[@jodiupchurch]

🙏

[@allisong2159]

Have the doctors given any more thought about the Nissan fundoplication? I know that seems so drastic but she acts like she is aspirating….even silents aspirations can happen, poor thing.

[@mummyandavery]

We are still waiting to get an appointment with the children’s surgical team to discuss it xx

[@christinavonheidenstam3206]

Can Avery crawl and roll on the flor 💌💌💌💌💌💌❤️💖🙏☺️✋🏼

[@mummyandavery]

She can’t crawl, she used to roll from back to front but it stopped after a while xx

[@christinavonheidenstam3206]

@@mummyandavery ok i understandnd may be it Will come back again

[@christinavonheidenstam3206]

💌💌💌❤️💖

[@christinavonheidenstam3206]

💖🙏❤️🙏

[@jennyrose2200]

she can barely breathe

[@mummyandavery]

Her oxygen is ok it’s just the secretions xx