So Many Appointments! - Special Needs Doctor Appointments - Special Needs Healthcare

This was a busy week of doctor appointments for Kyle and in this video, we take you along to some of them. With SYNGAP1 and special needs in general, we have so many appointments for Kyle’s overall healthcare, not to mention appointments for me and my daughter. I share the total number of appointments we had in 2021 and a few things I do to prepare and make going to the doctor a little easier.
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“Minute Masters” Educational Videos: www.minutemasters.org/
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Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnosis in this video: • What is SYNGAP1 | Rare...
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Order my COLORING BOOK for Special Needs Moms & caregivers here: amzn.to/3hVa6kt
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Mentioned or Used in this Video:
“Minute Masters” Educational Videos: www.minutemasters.org/
Chewie for Calming: amzn.to/37T5Y2u
Kyle’s Dinosaur Book: amzn.to/3M6PdiR
“Syngap Warrior” T-shirt: www.syngapresearchfund.org/pr...
Weighted Lap Blanket in Car: amzn.to/3vsQU3M
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FTC Disclaimer: This description contains affiliate links. Clicking the links do not cost you anything extra; thank you for your support!
#syngap1

[@corkipollock7617]

I always get such a good humbling feeling after your videos❤️ you have a loving support system from your parents. You tell your dad that his daughter is an angel 👼🏻. And Kelli, you are! I know how demanding your role is in Kyles life. I love you videos and love seeing how great Kyle is doing. Thanks for getting footage at the dentist. I was worried about that one, but he did so good! My prayers for you and your family continues🙏🏼🙏🏼🙏🏼

[@KelliKyle]

Thank you so very much!!! ❤️

[@fatimamohammad6358]

My weeks are incomplete without your sweet vlogs kelli 🤕🤢love you n kyle

[@josevladimiraustria2736]

I’m happy for you that you a supportive parents. With the number of appointments you need to attend it’s a relief that there’s people that you can count on in times like this. Seeing Kyle smile and laugh really brightens my day.

[@mandimc]

What a sweet grandpa! Thank you for sharing a look into your week!

[@jeanniesherman3591]

Im glad you have family, to help out. Hes such a sweetheart !!! 💛💚💙❤💛💚💙❤💛💚💙❤💛💚💙❤💛💚💙

[@fatimamohammad6358]

I have to share this video with family n friends...you shorted my all struggles in one video ... although i have 2 special need kids n one child with food allergy...n my self who is chronicly ill from 2014 ..so you can imagine the amount of appointments i have to go weekly

[@KelliKyle]

Yes, I can imagine! You are not alone. ❤️

[@patriciamcfadden869]

The amount of appointments is unbelievable! Goodness. You are so blessed to have local family to help. You are a great mom!

[@KelliKyle]

Thank you! Yes, I don't know what I would do without the help!

[@christinareece607]

I am so glad I found your channel through Grace. I am binge watching your videos. My parents passed away in August 2021. My brother Evan has Down’s syndrome and Spina Bifida. I am his guardian and caregiver. I always knew my mom spent a lot of time taking Evan to appointments. But I didn’t realize how time consuming it is. Over a year later I am still learning. Your videos are so well put together. And full of useful information. ❤

[@KelliKyle]

Thank you! I'm so glad you found the videos; Kyle is blessed to have his Mamaw (Grace) in his life. I'm glad Evan has you! ❤️

[@emilyt.2317]

I loved the look of sheer bliss on Kyles face when the doughnut hit his taste buds. 🍩

[@KelliKyle]

Haha! Yes! It's always so much fun to watch him eat something sugary like that. ☺️

[@haleighrebekah489]

I like Kyle new leg brace

[@lornasharp]

Kyle your a sweet lad 💙💙💙

[@meganharrell1021]

Hi Kelli wow that is a lot of Doctor's Appointments for Kyle!!!! Kyle is so Brave like a superhero about going to the Doctor. Great Job Super Kyle!!!!!!! also you are a great mom to Kyle supermom!!!😃😃😀😀🤗🤗💖💖💖👏👏👏🦸🦸🦸🦸🦸🦸🦸🦸

[@KelliKyle]

Thank you! 🥰

[@suzybausch8587]

I’m so impressed by your creativity in coming up with games Kyle enjoys.

[@elleneirk8066]

You are so calming and you have amazing parents.

[@lizzyleverone7253]

Wishing you all very Happy Easter and thank you for sharing theses videos of Kyle you make my day

[@wincharles1195]

Love it

[@justintedford1803]

Hi Kelli doctors always scare me and aren’t fun, thank you for showing me fun at the doctor!

[@robbieweston5439]

Hi Kyle and Keli I love your videos my name is Robbie I have cerebral palsy with affects my codanation my spalling and I have hearing loss in both ears and I wares nappies so I know the challenges u have to go though and myself have lots of appointments the boots specialist made my boots wich help my walking and it I get tied I use my power chair or my Manuel one to help around my flat I live alone.my mummy is si helpful but can’t do everything now as she has illness I well leve it thair I am off to bed now probably day in America now uk is 1.41 in Thursday morning night love you too ur amazing mum ❤

[@KelliKyle]

Thank you so much for sharing! ❤️

[@rachelwilkinson8798]

This was one of my most favorite videos you have made yet! It made me curious as to how many appointments we attended last year. I am glad you have someone to help you when you need it. I have taken your advice and started treating myself to coffee or some other treat after our appointments. Sometimes I struggle and forget that I need to take care of myself. 💜 I am amazed at how well Kyle was doing during his dental appointment. That is super awesome. Way to go Kyle! Ps we love donuts too 🍩 it’s one of the only things my son will eat. :)

[@KelliKyle]

I'm so glad you liked this video AND that you are treating yourself! It's the little things that brighten my day. ☺️

[@Zozi974]

Hello Kyle 😀

[@fatimamohammad6358]

03:11 may i ask you what is this child life ???

[@KelliKyle]

Child life specialists are pediatric health care professionals who work with children and families in hospitals to help them cope with challenging appointments.

[@braceletsbykatrina1424]

Does he see ENT

[@KelliKyle]

He doesn't have an ENT doctor but does have a GI doctor and has done swallowing studies.