More seizures | I’m a mess Freya is fine

  Рет қаралды 17,723

Freya’s Lucky Arm

Freya’s Lucky Arm

Күн бұрын

Пікірлер: 280
@judithdoughten682
@judithdoughten682 Жыл бұрын
I’m a retired nurse and I have witnessed seizures outside of work. They are scary and do leave you feeling like discombobulated. All you can do for Freya’s when she is having a seizure is keep her safe. You are doing everything right. You and the family are scared and I think that is normal. You r also sleep deprived and that makes everything worse. Freya looks happy and content and that is always a good thing🙏🙏🙏
@trishrichardson4263
@trishrichardson4263 Жыл бұрын
Don’t second guess yourself as a mom. You’re doing the best for your family that you can.
@kathryndomer2109
@kathryndomer2109 Жыл бұрын
One step at a time Marci. We are all behind you. God bless. 💋💗🙋🏼💕❤️
@conniemaniaci3612
@conniemaniaci3612 Жыл бұрын
Having a child with seizures is a difficult road to travel. It usually takes time to adjust meds. You have great doctors. Hang in there. We all love you and your family. You aren’t alone. 😊
@mirandamccoubrey1714
@mirandamccoubrey1714 Жыл бұрын
This video spoke to me. I feel like all my intuition is gone too. Having children with special needs is so so tough. Hang in there❤❤❤you're an incredible mom and your videos always lift me up on the hard days
@veldalacoste8186
@veldalacoste8186 Жыл бұрын
Wow. Life is hard. Why does it have to be so hard for such a sweet little girl like Freya and her sweet family. You will get through this. One day at a time. I'm so glad you have good support around you. But I know that you, as MOM, carry the biggest load. I'm glad you started this channel because I'm sure it helps (at least a little) to have a place to unload your feelings. Hugs and prayers for you.
@DevonLass
@DevonLass Жыл бұрын
Oh Marci, I am so sorry you are going through this. I just want to give you a big hug. With lots of love from England 🏴󠁧󠁢󠁥󠁮󠁧󠁿 ❤
@carolpulaski4687
@carolpulaski4687 Жыл бұрын
You have a beautiful family. You do not need to apologize for your feelings of human emotions; like the overwhelming need to cry and feeling overwhelming need of whats happening to Freya. I usually hate Facebook or as I believe, 'Fakebook'... When all you see are other people only posting beautiful happy times, you begin to question why my life is not full of these wonderful moments. I applaud you for sharing the real side of it all; the moments most others are too afraid to share.
@mariageldenhuys6309
@mariageldenhuys6309 Жыл бұрын
Prayers for your family Marci. May the Lord lay his healing hand on our dear little Freya According to the Word, when you are weak, then you are strong.🙏
@suemuster9826
@suemuster9826 Жыл бұрын
I'm sorry you're going through all of this. Freya is growing. She looked so big when she was on her knees at the shelving. She loves the teapot. Better days have to be coming. I know it's scary with her having seizures. Sending prayers for all of you 🙏 and please know you are loved❤❤
@lovesmesomelilacs-ke5rz
@lovesmesomelilacs-ke5rz Жыл бұрын
She sure does love that little teapot.💝
@kathleensicard6053
@kathleensicard6053 Жыл бұрын
So sorry to hear! Hopefully the meds will get them under control! Freda is soooooo adorable as are her sibs! Hang in there mom! Hugs! K8
@patriciaharkin1571
@patriciaharkin1571 Жыл бұрын
You are right Marci flashing light are not always a trigger for epilepsy. I took care of an elderly lady who had no common occurrences when she had a seizure. Your motherly intuition is fine Marci, sleep depravation and the worry over Freya's seizures has just knocked the wind out of your sails for a bit. It's hard not to want to have her within your sight and in your arms at the moment but you need to take care of Marci too. Leave the kids with Chris for a few hours and take yourself out for a walk or a run and clear your head. It is hard right now but God does not send us to a mountain that we cannot climb, He is with us to push or pull so we can reach the top. You got this girl, you and Freya will be ok. BIG HUGS 🥰🥰
@cbass6002
@cbass6002 Жыл бұрын
I am so sorry!! You all have been in my prayers 🙏🏻!
@catharineedgar9011
@catharineedgar9011 Жыл бұрын
Thank you for sharing your and Freya’s life with us. Your thoughts in the car after visiting the grocery store brought me to tears. I love my disabled son, but I don’t always have to like the stress that comes with his disability. Sometimes it does just suck 😂 Thank you for helping us mothers feel seen. I hope that you can find a way to take care of yourself this next week.
@jackielong9927
@jackielong9927 Жыл бұрын
My go to is junk also. Prayers ❤️🙏✝️✝️🙏❤️
@JoanHenderson-bn1yz
@JoanHenderson-bn1yz 9 күн бұрын
I love the way she plays and truly enjoys her toys. She is just herself and mom just go with the flow day by day hour by and babe you need av break. Wish and pray for
@DesMowadeng
@DesMowadeng Жыл бұрын
Newly diagnoses of seizures is a scary thing to be facing, it's usually madness in the beginning when getting meds sorted. I doubt the lights are triggering the seizures because it tends to be strobe lights that trigger seizures because of the speed, not the actual change and like you said it's not a trigger for everyone. People who have seizures live active almost completely normal lives going about daily life as usually when life allows. You'll get there in time and fall into a new normal. It's a tough balancing act of being cautious but not letting it control your world.
@carolynwilson9782
@carolynwilson9782 Жыл бұрын
Frey’s smile melts my heart. God has your back. This is a time of growth for all of your beautiful family. You are in my prayers.
@beckinana-n.2103
@beckinana-n.2103 Жыл бұрын
You are doing everything you can. And the best is love and pray. For safety, strength and patience. Her smile makes it all melt away. Great Job Mom and Dad!
@DaynaMathews
@DaynaMathews Жыл бұрын
Sending you so many great vibes that Freya’s seizures stop and you can find comfort. Lots of hugs to sweet Freya. ❤️❤️❤️
@suzybausch8587
@suzybausch8587 Жыл бұрын
I’m so sorry, Marcy. You’re doing everything you can, and Freya is being well taken care of. Hang in there! Fingers crossed that things settle down soon. ❤
@virginiaterrore7784
@virginiaterrore7784 Жыл бұрын
Have you all in my prayers! ❤
@pattijacobs1
@pattijacobs1 Жыл бұрын
Oh, thinking of all of you and sending hugs💞. Freya’s smile playing with her teapot was priceless😊
@tracyfinch918
@tracyfinch918 Жыл бұрын
I love the realistic sound of Freya's new teapot pouring. Too cute!❤️😍💯 I'm sorry she scared you with another seizure earlier this morning!💔
@lorimangus1233
@lorimangus1233 Жыл бұрын
Keeping you and your family in my prayers..
@teresawright4424
@teresawright4424 Жыл бұрын
I'm sorry you are going through this with Freya. Hopefully the medication will help. I have a special needs child who is an adult and you hit on something today that resonates with me. I have 3 other typical children and I thought of myself as a good mom who could handle most parenting situations...until it came to the special needs child. It did make me doubt myself and all my abilities to not be able to "handle" or fix everything. I don't think I've ever heard another person express this feeling as well as you did in your video. Thank you for sharing as I think this is important for other moms to hear. You and the Freya and the family are in my prayers. Try to get some time away when you can to recharge.
@dianakaplan4970
@dianakaplan4970 Жыл бұрын
God bless her little heart. Your doing great with Freya. She always gives you a big smile when you talk to her. You are Freya’s rock. ❤❤
@pattijareo7423
@pattijareo7423 Жыл бұрын
I think her seizures are probably harder on you in some ways than they are on little Freya! What a difficult situation to try to adapt to. Thank you for sharing this though. I can pray more specifically. 💕💕💕
@donnathomson4048
@donnathomson4048 Жыл бұрын
Prayers that sweet Freya gets the proper meds that help her get better. You look awesome for what you have gone through hon❤
@karenligus8224
@karenligus8224 Жыл бұрын
I'm so sorry that your family is going through a this difficult time. The other kids can definitely feel the stress. I'm sure they're worried about Freya as well. Try not to be hard on yourself Marci. You're in a new area but you'll figure it out. You and Chris are great parents . You'll get through this with support, love and prayers.
@melodysmithey3172
@melodysmithey3172 Жыл бұрын
Sometimes a hot shower and a good hard cry helps....when I had my daddy in my house on hospice that was my stress relief....love ya girl
@beckylongoni4881
@beckylongoni4881 Жыл бұрын
From the outside looking in, you are a great Mom and great decision maker. Life does suck sometimes, but you will come out the other side and feel the blessings in your life.
@colleenford5398
@colleenford5398 Жыл бұрын
My gosh Marci....I can't even imagine even witnessing a seizure. It's lovely when you have people around you that can lift you up even in little small ways, ie: sending you a diet coke...so sweet! I hope some of our encouraging words help as wel. I'm not sure about anyone else but I tend to get invested in the family. You let us in, and in some weird way we become a part of your lives. Does Freya's medication have cumulative effect? Or do you think the dosage itself is not high enough? I think that you're just exhausted, tegarding you instincts. Maybe a Mommy day, a mani/pedi, get your hair done, go for a massage. You've got this girl! Once you get some good rest you'll get your MoJo back..lol. Seriously though, if some of us could fly out and help you we would! 😊 And NEVER worry about how you look to us! Now I'm not a Mom, but in my lifetime I've been around enough to see...although seeing isn't feeling. Anyway, TRY to get some rest and we'll wait for the next update. Even if that means that you need to take a break from that...we'd understand! Much love to you all, I'll be praying for you and the rest of the family especially Freya! ❤❤❤❤❤❤😃😃😃😃😃😃
@dawnrex3712
@dawnrex3712 Жыл бұрын
Marci, just take things one day at a time, even one hour at a time if you need it. When Freya is at school use that time for yourself. Relax in a hot tub. Listen to soothing music. Light some pretty candles, all these things can help calm your nerves. I'm sure the Dr. can adjust her meds for her. The phrase all good things come to an end, that goes for bad things too. We're all with you. you're totally not alone. 🥰
@denisewilliams7018
@denisewilliams7018 Жыл бұрын
Bless you Marci and family. Sometimes meds take a little while to be effective, not sure if this falls under Freya’s new med. Hopefully the doctor can get the right dosage for Freya soon. I’m glad you have a good family support system. We’re here for you too….anytime…..as sometimes talking can help. I do see some good feedback from your subscribers. Does the CDLS organization have a hotline for parents/caregivers that can help? Also, not sure if this is an option for you but there are natural OTC’s for stress/anxiety. Take care Marci. Hugs from Texas💜🤠
@racheltessmer925
@racheltessmer925 Жыл бұрын
Oh, Marci. You take care of you You must be exhausted. It is hard not to be discouraged. Always praying for your family. Love from Minneapolis ❤🙋‍♀️😊
@laraotto916
@laraotto916 Жыл бұрын
I have walked this walk with my son. You are doing everything well. It's a dark and scary place when your waiting for the right meds. Stay strong your a great mom.
@flossyflue4305
@flossyflue4305 Жыл бұрын
I don’t always think there is a right or wrong way, common sense, your good Marci. Trust your own instinct. Your a brilliant Mum. X❤
@hazel1766
@hazel1766 Жыл бұрын
Hi Marci, Let the school take care of Freya for awhile and have some time out for yourself. The doctors will help you through everything with Freya. Gentle Hugs ❤
@philipbrazis8732
@philipbrazis8732 Жыл бұрын
Ruth here, the children see you struggle, that will be a guide for when they struggle cause life has it's ups and downs, l grew up with a lot of struggles
@deb60862
@deb60862 Жыл бұрын
I have to be honest when i watched this video the tears welled up. Whenever i run into hardtimes Marci i always remember these words: "Your strength has moved mountains; your story will change lives". If you ever need a break from all the Chaos you are welcome to come to Wisconsin for a visit 🙂
@carolynholcomb8105
@carolynholcomb8105 Жыл бұрын
So sorry for this issue at this time. Know so many people are thinking of you and baby girl
@Madcaps215
@Madcaps215 Жыл бұрын
The neurologist will have more answers and help for Freya. You will feel so much better after talking to him/her. The Keppra adjustments will work. Also, epilepsy cause, triggers etc are so mysterious. We really realized my grandson’s first grand mal seizure ( I’m old school 😂), really was not his first seizure. After getting info from the neurologist, we realized there had been petit mal seizures previously we just dismissed as nothing. They were so slight. Like short periods of “zoning out”, starring spells. So brief and fleeting. There were other things. I’m sorry you and your family are going through this. It is so unfair. But, as another poster mentioned, keeping Freya safe during the seizure is all you can do at this point. I’m praying for you. Because I know. When you’re exhausted, things look overwhelming. Try, to rest and sleep. You need it. ❤️
@ThewaughCW
@ThewaughCW Жыл бұрын
Praying for all of you.
@tinahauser8864
@tinahauser8864 Жыл бұрын
Love your channel and ALL videos regardless if they are happy or sad. It shows you are human with a real life. We all have ups and downs. It’s how you handle them that matters. To me it sounds like mama needs 24 hours by herself.
@Jennifer-qo4kz
@Jennifer-qo4kz Жыл бұрын
Awwww so sorry to hear about Freya. It can be quite scary. Prayers for her and the whole family. Sleep deprivation is so hard. Really plays on the whole body.
@user-vk2ki1si7l
@user-vk2ki1si7l Жыл бұрын
Praying for sweet Freya that these seizures get controlled or just go away as quick as they came. Praying for you Marcie, your husband Chris and the kids. I’m so sorry your all going through this. My heart breaks for you all but the power of prayer is powerful 🙏🏼💜
@susie934
@susie934 Жыл бұрын
I'm so happy Chris is an understanding, hands on Dad! You need someone to take the wheel sometimes.
@Freyasluckyarm
@Freyasluckyarm Жыл бұрын
He is amazing
@kerryprzytula7
@kerryprzytula7 Жыл бұрын
❤🙏🏽 Thinking of you and prayers to you all. 🙏🏽 🤗
@Angela-zp2gy
@Angela-zp2gy Жыл бұрын
So sorry ...its always harder on us emotionally. Poor baby. Youll get this figured out and shell be fine
@laurileiter8323
@laurileiter8323 Жыл бұрын
You are doing a great job! Do not doubt yourself. You are stressed from no sleep. You got this!!❤️🙏
@LadsandCas
@LadsandCas Жыл бұрын
I have traumatic epilepsy and even though I'm an adult, certain things will always trigger a seizure. Flashing/blinking lights, for example, always do it for me. I will always keep Princess Freya and all the rest of you in my heart and prayers. Peace be with you. Much love, Michelle from Colorado
@joytotheworld2100
@joytotheworld2100 Жыл бұрын
I wish the doctors had better treatment for her. Her sweet soul should not have to go through that. Seizures are scary and im sending hugs and love.
@janetsheart3139
@janetsheart3139 Жыл бұрын
Marcie, I am keeping you in my thoughts. This is a rough patch that you are enduring. You need to give yourself some grace-You are an awesome Mom. You need to sleep and take care of yourself too!
@denisia1111
@denisia1111 Жыл бұрын
Thanks for sharing the sucky days. Seizures are so freaking scary, it's good to know Freya is recovering quickly, but it takes parents a lot longer to get over the shock(or adjust to it). The single diet coke from you friend explains why she's your best friend. I'm including a easy recipe for crap days(or holidays)that my bestie and I have made for years. It's good when you NEED chocolate and want to smash something. 1pkg Oreos now gluten free 1 or 2pkg Cream cheese depending on taste 2cups Chocolate chips milk or dark 2Tbls Butter 1Tbls Corn syrup Place oreos in a large zip lock bag and smash the living daylights out of them. Or use a food processor. In a bowl add softened cream cheese to oreos and mix/smash again with a wooden spoon until well combined. Or on less sucky days use the food processor. Roll oreo mix into small balls and try a little. Place on a sheet pan lined with parchment paper and place in fridge 10-15mins. Open bag of chocolate and eat some.. Set a handful to the side. Melt chocolate however you prefer with butter and corn syrup(makes it shiny). Once chocolate is melted start dipping one at a time and place back on pan. Or eat a messy one before the chocolate has set. Refrigerate after set and don't bother covering because the kids will hear you going back for more. Feel better and take care of yourself.
@irenedavo3768
@irenedavo3768 Жыл бұрын
Wow!
@grammabarb7869
@grammabarb7869 Жыл бұрын
Don’t second guess yourself you are an amazing mom. Freya is lucky to have such a great loving and caring family. I love watching your videos….seeing Freya’s beautiful smile always brightens my day. Your children are all beautiful and special in their own ways…you are doing a great job mom…. You should be very proud of the job you are doing😊
@heleenzuidhof8780
@heleenzuidhof8780 Жыл бұрын
I can see that you are tired Marci, are you taking care of yourself? Very sad to hear that Freya suffers so much from epilepsy. Thinking about you and your family. Take care.💜💜🙏🙏
@bonniemeyer1301
@bonniemeyer1301 Жыл бұрын
I was so sad to see the title of this video, Marci. I am so sorry that Freya is having seizures. I can imagine it is extremely scary and leaves you feeling very powerless. I think you are a great mom and need to give yourself some grace. As moms, we want to fix everything, and sometimes , we just can’t. That sucks!
@judyashton3030
@judyashton3030 Жыл бұрын
I agree with what I've seen many people say. You are doing everything right, but there are still so many times life is just unfair. On a bright note, Miss Freya is getting so strong. I think she will be standing and walking before the end of the year. That smile of hers is so beautiful and absolutely melts my heart. Hope y'all have a quiet, uneventful weekend. Saying prayers for all of you but especially for you, Marci. Sending hugs from Texas ❤
@barbhelle5481
@barbhelle5481 Жыл бұрын
Freya, you and your family are in my prayers. The Dr will probably up her medication.
@lisasampson5314
@lisasampson5314 Жыл бұрын
Hang in there!! Better days are ahead! You are a terrific mom! Sometimes, things do get really rough, but they will pass ❤
@donnahart823
@donnahart823 Жыл бұрын
Ohhh, I love the Dove dark chocolate. Great choice😊. I’m sure it’s an adjustment to the new meds. I know it’s tough on you, and I’m sure Freyas doctors will get the dose correct soon. You got this Marci and you always have us. Love you and your beautiful family.❤️
@marjonvandingstee6771
@marjonvandingstee6771 Жыл бұрын
I am following you but never react. Now I want you to know that your motherly instincts are certainly not gone. Letting Freya go to school because she was doing fine was the absolute right thing to do. A bit of wait and see how she is was also a wise thing to do. The other children will understand that you can't be happy always. A good example in my opinion. You're a wonderful Mom. Times will charge again. Love from the Netherlands.(excuse my English)
@marywilliamson1260
@marywilliamson1260 Жыл бұрын
You're a tough cookie Marcie- your family is very lucky to have you... I think you need more alone time... get out of the house atleast once a week- get a manicure or whatever...something to even out hectic life 🥰
@hermanklump8983
@hermanklump8983 Жыл бұрын
Freya’s smile makes my day. I hope she gets good meds for her seizures and you get some rest. Sending you and your family love and light. Eat lots of junk and try to take care of yourself.
@lindapita2941
@lindapita2941 Жыл бұрын
I’m sure the drs will figure things out soon for your Precious little girl and the family . Prayers going your way 🙏
@allysoncouncil2833
@allysoncouncil2833 Жыл бұрын
Prayers that the doctors find the right meds to control sweet Freyas seizures. Also praying for you Marci as well as your husband and other children. I know her seizures terrify you they would me too and I know they are harder on your mama's heart then they are on our precious freya. You can see in this video just how stressed and worried you are amd rightly so bit our Freya is all smiles as always. Her smile always makes me smile. She is a precious little doll baby.
@Freyasluckyarm
@Freyasluckyarm Жыл бұрын
Thank you
@kirstenvc81
@kirstenvc81 Жыл бұрын
You’re an amazing mom, just in case you haven’t heard it yet today.
@marilynluurtsema7793
@marilynluurtsema7793 Жыл бұрын
Praying for your family and especially Freya. Praying the doctors can get it under control.
@user-si8gp8ou1j
@user-si8gp8ou1j Жыл бұрын
You have great people around you because you’re a great person! My prayers are with you and the famil! ❤
@colleenclarke7718
@colleenclarke7718 Жыл бұрын
Oh Marci, my momma heart aches with you for your sweet Freya. I'm praying for her healing from the epilepsy and medications that will control the seizures. You are both so strong and brave. God bless you and coveryou with His perfect peace.
@issamifijjaj9508
@issamifijjaj9508 11 ай бұрын
Freya is a fruit of Paradise! ❤
@amyb2646
@amyb2646 Жыл бұрын
I’m so sorry that Freya had another seizure, Marci! I pray that the seizures get under control. Freya looks wonderful, so beautiful and happy. I pray that you get the reprieve you need. I know that feeling so well! I hope you get some rest and feel better. I was a very nervous Mom raising my daughter, she is about your age now. I admire your calm demeanor, you and your husband are wonderful parents. Sending you all of my love and hugs, God bless you all in Jesus’s Name 🤗🙏❤️
@amandamaynard3514
@amandamaynard3514 Жыл бұрын
I'm sorry to hear Freya had another seizure! Yes, this is a rough patch but you and family/friends will get through it! You're a wonderful person who cares sooo much that you are hurting and don't know how to fix it. Please cut yourself some slack. I have been in rough situations before. Life will get better ❤😊😊😊
@theresamaleady7721
@theresamaleady7721 6 ай бұрын
Oh Marci I am so sorry to hear the news. I do agree it is very frightening for you and Freya I hope the neurologist will be to help her
@oldladybird8528
@oldladybird8528 Жыл бұрын
I'm sure sorry Marcy. I will pray for Freya an family. God's got this. ❤️
@garsu1229
@garsu1229 Жыл бұрын
Self care Marci good for you it will calm down it will❤
@toyamack9290
@toyamack9290 Жыл бұрын
I just LOVE your realness Mom..I simply can't say it enough. And as much as I enjoy watching the "Happy" I do understand it will not always be and I will watch and 🙏no matter what. You and Dad are so awesome at wearing all the hats that you have to. Dealing with such a scary matter with Frey Frey and having no true answers has to be very trying along with doing all you can to help Liam, Fiona and Jessie understand what's going on with baby sister. It hurts to see the pain in your eyes (your're still beautiful🌹)and I'm 🙏 with that support of family and friends you remain strong🌻
@kellybarnes4516
@kellybarnes4516 Жыл бұрын
I understand how this make you sad and confused. Sweet little girl doesn't deserve anymore problems. But you are strong and so is Freya. Get some sleep and regroup. We love you, Freya, and your family.
@janetrobichaud4176
@janetrobichaud4176 Жыл бұрын
Miss Freya may grow out of these seizures..I worked with a gal that son started at 4 yr and seizure free by 7yrs..one never knows with our kidos..Take care of you wonderful momma and dad and your kiddos. Your family is so strong..youll get through this bump in the road..❤
@kathryndomer2109
@kathryndomer2109 Жыл бұрын
Chocolate for you too Marci. Enjoy, you deserve it.
@antjeneumann17
@antjeneumann17 Жыл бұрын
She is in such a good mood and it is okay when she is in school. They know what to do with a child with epilepsy. You'll find your way wirh the seisures. I promise. ❤
@TinekeWie
@TinekeWie Жыл бұрын
I’m so sorry to hear that Freya is having these scary seizures, luckily Freya is holding strong and does develop as her normal. Mom take good care of yourself and it’s no failure to bring Freya to school so you can have a good nap. You don’t have to be perfect to be the best and perfect mom for your kids. Love and prayers for you and your family. ❤
@mtrevino3993
@mtrevino3993 Жыл бұрын
Enjoying your company on my lunch break. Lots of prayers and hugs your way! Beautiful little smile ❤
@carleen2841
@carleen2841 7 ай бұрын
I enjoy seeing Freya so much and I just want you to know that I am sure that God chose the perfect family for Freya!
@Freyasluckyarm
@Freyasluckyarm 7 ай бұрын
Tha k you!
@beverlyarnold4991
@beverlyarnold4991 Жыл бұрын
You’re doing okay…I’d feel the exact same way. It’s very upsetting when something is going on with your child. Take it one day at a time and get some rest… it’ll be okay….you’re a great Mom. Love, hugs and prayers! ❤
@SandraBugler-vq6co
@SandraBugler-vq6co Жыл бұрын
Life does suck Marci but as women we soldier on. Maybe the meds need time to build up in Freya's system. You'll get through this with your beautiful little girl.
@brendabolin7178
@brendabolin7178 Жыл бұрын
My mom has 3 kids with epilepsy. I understand that Freya is a little bit more challenging and can't talk. ❤
@rosalievanvooren3721
@rosalievanvooren3721 7 ай бұрын
Vous êtes vraiment une femme courageuse. J'espère que le médecin trouvera le traitement adapté pour votre petite princesse. Je vous envoie tout mes encouragements. Rosalie
@lisarhodes3206
@lisarhodes3206 Жыл бұрын
I know you must be exhausted and scared! It's a horrible feeling when something bad is happening to our child and we can't do anything to stop it! I know you are doing everything in your power to figure it out! All we can do sometimes is just comfort them as best as we can and I know you're DEFINITELY doing that! You're a great Mom! Fresh knows!!! Hugs and prayers to you and that sweet little angel you have! I pray that you find out what (if anything specific) is triggering the seizures. I know it would be comforting knowing for you and your husband and other sweet kids! ❤❤❤🙏🙏🙏❤❤❤
@lisarhodes3206
@lisarhodes3206 Жыл бұрын
I mean Freya knows!!!! Dumb spell corrector!
@beckywiese4484
@beckywiese4484 Жыл бұрын
Sorry the last two weeks were the worst. Prayers to you and your family. It's a change with the new diagnosis.
@Djsexton25
@Djsexton25 Жыл бұрын
Bless her heart 😢. I don’t know who said all seizures are caused by light but that’s not true. It can be brought on by body temperature change such as fever, lack of sleep, infection, low blood sodium & medication it could be a number of things and since lights haven’t really bothered her before it may not be anything to do with the lights. You feel helpless far as what to do for her but it’s because this is a new unknown to you, you don’t know what’s causing the seizures so you can’t do anything to stop them to try and help her, that has to be so frustrating. It’s hard not knowing how to fix things that’s happening to our kids. Hopefully they will figure it out and get her on the right medication she needs. That big beautiful smile of hers brightens up my darkest days 😊 you sure can’t tell she went through what she did from how happy she is. I know for my family member it takes everything out of them for the rest of the day but everyone is different. Sending love & prayers. ❤🙏🏻
@debrapalmer9772
@debrapalmer9772 Жыл бұрын
No one expects seizures which makes them so alarming. And you feel helpless when they happen. You will get through this because you are stronger than you know. Keep up the chocolate and try to get some rest.
@jennifer_duncan
@jennifer_duncan Жыл бұрын
I’m so, so sorry Freya had such a long seizure! Life does indeed just suck sometimes. I’m glad you have such a thoughtful, loving support system. (And chocolate. 👍) And you did have something happy to share: When Freya was playing with the teapot and smiling so happily, she hadn’t a care in the world! And snoozing after a fun day at preschool! And choosing two kinds of cookies! 😊 As someone who is also very intuitive and has experienced something that flipped my whole world upside down, it makes perfect sense that your confidence in your own intuition would be shaken. You’ve been living in a whole new world for four years, but it’s one that can change quickly and unexpectedly, and it just has. Your intuition is still there-it’s just really, really difficult to feel confident when the world is spinning. I hope things calm down soon, that you regain your footing, and that you can all rest and enjoy some peaceful time together. 💜
@Freyasluckyarm
@Freyasluckyarm Жыл бұрын
Thank you so much
@susanhebert2461
@susanhebert2461 Жыл бұрын
Lots of prayers and hugs!! 🙏❤🙏🌻🌼🌻🐓
@betsyslat7326
@betsyslat7326 Жыл бұрын
Marci, I think you have remarkable intuition! I love how you relate to all your kids. You are calm and patient and rejoice in small steps as well as big ones. From one mom to another, you need a nap today - a nice long one!
@eliatone5842
@eliatone5842 Жыл бұрын
Big big big Hugs to All the Family, so sorry to hear Frayer has suffered this, she is such a light , you all are. It's ok to share the bad days , it's ok to be sad, it's ok to be frightened, it's ok to be real in your videos , we will light some candles tomorrow, for strength. Love and health, sending love and prayers for you all. Just keep the faith and boy I know only to well how hard that is in times like this but your great parents and Frayer is a ray of sunshine and light in an often very dark world because of your love and faith, so all we can do in those times and I know you know this already ,is love every second, minute, hour , day , week as it comes , the good times will come back it's just hard to see beyond that at the moment there is lots of us praying for you Frayer and the family big hugs. ❤️😕😭🙏💗💗💗💗💗
@jenxstv1067
@jenxstv1067 Жыл бұрын
She sure brings joy to my heart every time I see her. 🙏 Hang in there Mama everything is gonna be ok and you look fabulous 🤩 you are the best Mom, don't ever think any different 🤗 I'm so sorry your going through a tough time hun and yes we all have been through rough things. We're all here for you 💗 hang in there
@vdeniceeckert3494
@vdeniceeckert3494 Жыл бұрын
Glad she's OK, so glad to see her chewing on that instead of a metal can tab, I'm older it made me nervous....lol
@CraftySar
@CraftySar Жыл бұрын
You poor sweet lady. I’m sending love and healing energy to you and your family all the way from Australia. Keep fighting hard for beautiful Freya. You are a wonderful village surrounding her.
How did she do? | pediatric EEG
19:47
Freya’s Lucky Arm
Рет қаралды 19 М.
Catching up | what I do for myself
16:43
Freya’s Lucky Arm
Рет қаралды 8 М.
Just Give me my Money!
00:18
GL Show Russian
Рет қаралды 1,1 МЛН
나랑 아빠가 아이스크림 먹을 때
00:15
진영민yeongmin
Рет қаралды 15 МЛН
Incredible Dog Rescues Kittens from Bus - Inspiring Story #shorts
00:18
Fabiosa Best Lifehacks
Рет қаралды 37 МЛН
Люблю детей 💕💕💕🥰 #aminkavitaminka #aminokka #miminka #дети
00:24
Аминка Витаминка
Рет қаралды 1,3 МЛН
Procedure day at the Childern’s Hospital
18:44
Freya’s Lucky Arm
Рет қаралды 20 М.
Epilepsy trigger - Is the flu to blame?
7:30
Just A Different Life
Рет қаралды 79 М.
4 Tricks for when doctors gaslight you - Dr. Kaveh LIVE
13:50
Medical Secrets
Рет қаралды 1,4 МЛН
Understanding Bipolar Depression
57:58
Stanford Health Care
Рет қаралды 252 М.
Q&A with Freya’s Dad | Being a Dad to a disabled child
29:28
Freya’s Lucky Arm
Рет қаралды 9 М.
Happy school day after a scary weekend
15:26
Freya’s Lucky Arm
Рет қаралды 15 М.
Freya’s eye surgery (Ptosis)
16:01
Freya’s Lucky Arm
Рет қаралды 14 М.
Realistic bedtime Vlog! 🥴 Update from infectious disease.
15:25
Stephanie George
Рет қаралды 176 М.
The reason I don’t work | Feeding therapy and medical bills
16:05
Freya’s Lucky Arm
Рет қаралды 8 М.
Just Give me my Money!
00:18
GL Show Russian
Рет қаралды 1,1 МЛН