MPFL + TTT Surgery | My Experience Days 1-3

After dislocating and subluxing my left knee numerous times throughout my life, I finally made the decision to pursue surgery. On 6/14/19, I got a Tibial Tubercle Transfer and a Medial Patellafemoral Ligament (MPFL) Reconstruction. This video shows my experiences during the initial three days after surgery.
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The views expressed in this video are my own and do not reflect the views of Mount Sinai Hospital.
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WHAT’S EHLERS-DANLOS SYNDROME?
The Ehlers-Danlos Syndromes (EDS) are a group of more than 13 genetic connective tissue disorders that affect the joints and ligaments, blood vessels, gastrointestinal tract, and autonomic nervous system, among others. The most common type of EDS is hypermobile EDS (hEDS), which used to be known at type III. Some of the most common symptoms and co-morbidities of hEDS include chronic joint pain, joint instability and dislocations, dysautonomia, and GI tract dysmotility.
MORE INFO ABOUT EDS:
🧬 www.ehlers-dan...
🧬 bit.ly/2N95xTE
MORE INFO ABOUT POTS:
💓 www.potsuk.org...
❤️ cle.clinic/2p1...
MORE INFO ABOUT GASTROPARESIS:
💚 mayocl.in/2BRQTuR
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
🤍 bit.ly/2MLUYXI
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[@susanlevine779]

I'm glad to see you vlogging. I was very worried about you. That was a major surgical procedure. I understand about the pain med side effects I had breast cancer and had bilateral mastectomies ten years ago. They had me on a Dilaudid pump. The Dilaudid made me so sick that I insisted they disconnect the pump. I managed with no pain meds. It was better than the side effects of the Dilaudid. They did give me Tramadol which was somewhat better but still caused side effects. You look a lot better today than you did when you were in the hospital. I'm hoping that you'll improve day by day.

[@claudiamartinez1631]

You're literally the only person I could find on KZbin who has had the same surgery I did. I was wondering if you could share how your recovery is going, and what your doctor has told you as far as returning to regular activities, like running, jumping, etc?

[@mosphere123]

How are you today??

[@betterwiththeirish]

Pupil different sizes, large pupils, unreactive pupils happens with dysautonomia and POTS as well as the pain meds. Double whammy! So glad you have great support.

[@flamablegas6308]

Im going to have a lot of knee surgery today, prayers will never fail

[@khadib94]

How was it🥺

[@flamablegas6308]

@@khadib94 went astonishing, I wasn't scared just wanted it to get it over with, however there was absolute horrible knee pain the next day and was in bed for roughly 3 days without getting up and my god was it horrible

[@jj4christ]

Gentle hugs and praying for quick recovery. I do so much better on duilud too. Been so sick dealing with suspected IIH and have been loosing my vision in my right eye. Moving to Denver to be near to university so they can take over my care. They breathing thing is important to protect you from you from getting pneumonia. So keep doing those breathing exercises. It will get easier and easier to do them.

[@kecrn4132]

Tramadol works better with Tylenol.....so funny that tramadol makes you loopy! I take 100mg as my regular dose and it doesn’t affect me at all!! I don’t find it to be all that affective- but, like you, I’d rather take the tramadol over the oxycodone!! I hope recovery is quick!

[@MrTurtluv]

I’ve had one of these. I’m getting ready to go in and have my second one on the other knee. Your description is pretty spot on. Hardest recovery ever. But it’s worth it. Ps,I have Ehlers Danlos also.

[@IzzyKDNA]

Good luck!!! You've got this!

[@bigdave6655]

Wow really, hardest recovery? My doctor thinks I’ll need a TTT also

[@chronicallyantonia5310]

I’m 2 weeks post op with my mpfl and a year with my TTT and it’s definitely hell your so much stronger then me your doing amazing keep strong 💪 ❤️

[@TeshuvahBibleStudies]

Hope you feel better soon... how are you so cheerful... OMG... you’re a warrior!

[@AllThingsLeftBehind]

I have to say, the bending is the worst part in my experience. I also took Tramadol, but also had a continuous nerve block that infused over 3 days. It gets better! I was told that it was okay to take tramadol, especially at night for a good amount of time with the guidance of my pain management doctor. Feel better! It is worth it! I have 0 regrets with this surgery.

[@laurabunn2993]

Thank you so much for this content! I just found out that this was the surgery I'm going to be getting for my patella dislocations. My left knee is also the problem knee and I'm really hoping this surgery will be worth the pain to get through things soon. Really hope you're feeling better now!

[@taigaforest..]

Izzy regarding different meds. I was curious and decided to Google one of the meds you named. And this is what was presented. Mythbusters: Ketamine: not just for horses, also for badgers Ketamine is a short-acting general anaesthetic used for both human medical and veterinary purposes. It is termed a ‘dissociative’, because it impedes the brain’s sensory connection to the body. ........ Well I found it interesting that it was used for equine medicine,,, hmm

[@vanillasnowflake]

Not to scare you, but when my pupils are different sizes like that, for me it's a sign that my ICP is high. I have EDS, IIH, chiari, POTS, etc. Since I got my VP shunt, my pupil sizes aren't as off as they were. Opioids can raise ICP, at least in some people (not necessarily to a dangerous level or anything). Hope you heal well and quickly, for a zebra. :)

[@katbgood1]

Hi Izzy, I have finally found an awesome surgeon who has perscribed surgery for my left knee after some severe dislocations throughout my life!! Finally, it has been so debilitating. and depressing..The op is the same as you've had the Tibial tubercle transfer thingy....I hope you are doing better now!!! Cannabis is stiiiiiil illigal in NZ...

[@aly7843]

i hope you recovery quickly and smoothly. sending love and positive energy your way💞

[@gabrieldesantanalacerda]

Just had my MPFL reconstruction today. Will follow your progress with mine haha.

[@liamodonovan3437]

I hope the knee surgery went well I hope everything gets better for the future love you izzy

[@giabarrone7422]

I hope you have a speedy recovery! I was wondering why they gave you an epidural if you were under general anesthesia? Was it for post surgical pain relief? I had open heart surgery last summer (aortic aneurysm from "hEDS"), and the majority of my pain was in my neck and back, even though my sternum had been sawed open and cranked apart. It was suggested later on that I had multiple subluxations from laying on a cold hard operating table for 8 hours. I was unable to lift my arms or head, and the physical therapists at the hospital refused to assist with anything but yanking me out of bed to walk a few steps. The pain seemed to build over my 10 day hospital stay. I'd beg anyone who came into the room to put a fist or balled up towel behind a trigger point. When they wouldn't, I'd beg to be knocked out so I could just sleep for a few hours and get a short break from the pain. I would cry until I vomited and sat in darkness due to a constant migraine they wouldn't treat either. I am terrified of going into surgery again because of pain I now know is not proportional to the surgeries I undergo, and the fact that I am unable to control EDS pain in a traditional hospital setting, especially after a major surgery that significantly limits my mobility. Do you think you were were you able to avoid a flare of "hEDS pain, because you generally had mobility of most joints afterward? Did they take any special precautions because of your EDS? Have you had other surgeries?

[@IzzyKDNA]

I'm sorry this all sounds so horrible. The precautions they took were to use a cadaver's tendon to replace my ligament, whereas most people use their own hamstring. They didn't use general anaesthesia - but I wasn't totally sure why they use an epdiural but it's pretty standard for this type of surgery

[@donnaoconnor3119]

Feel better soon miss Lizzie 🤗just take one ☝️ day at a time u will be back up and running in no time 😎👍

[@nicholasvanbeveren2029]

Having my left knee worked on in 2 weeks and they are gonna do a Mpfl reconstruction ( Medial patella-femoral ligament ) with allograft on the 22nd of April what should I be looking forward to and/ or ready for when the day comes . Great Vlog

[@doricoldwell29]

Your looking so much better on day 3. Praying pain keeps lessening.

[@IzzyKDNA]

thank you!

[@briharris7074]

I have EDS as well! My knee cap dislocated for years. And I was really pigeon toed. I made the decision to have the TTT....I was non weight bearing for 3 months, when I was able to put weight on my leg about a month after my knee cap started dislocating again and my feet started turning in again. About a year after my TTT I had a partial knee replacement. Also my TTT was outpatient. (Which was horrible!) I hope you have great success!

[@TheBeanie2k]

So glad your making it thru the surgery and aftermath... Hope that recovery is going well...

[@jessicamccarrick6874]

Continue to feel better ❤ wishing you a smooth recovery

[@Tiffythompson17]

I found out at a surgery a few years ago that I've become allergic to dilauted... had an instant response team...it was scary for me and especially my mom.

[@brooke8124]

The numbness around the scares is normal and won’t go away but you will get used to the feeling where you don’t even notice that it’s there. I know because I have had the same surgery on both my legs. Hope you feel better and recover super fast.

[@averyb5260]

Still must be better than the pain and hassle of reoccurring knee/patella dislocation! I’m on my 2nd one in 2 months. I hope you find relief and recover well!

[@Phonicszn]

I have recurring dislocation for many years, have to see a specialist to potentially have this surgery, surprisingly when my knee dislocates it honestly doesn’t hurt too bad and I usually pop it back in myself

[@72Disco1998]

I will have to get this surgery at the end of this month. My biggest fear is being placed under, thank you for posting these videos. Is the pain different from the initial injury?

[@IzzyKDNA]

yeah the pain now is a bit different than just after surgery, but neither was too bad

[@xcalabur18]

Thanks so much for posting this, girl! Very informative. I'm actually getting surgery soon, too. I am wondering if you could explain more about what it was like to get put to sleep? This is the part that freaks me out!! Like, what does it feel like? How do they do it? What does it feel like when they put the stuff in, like do you get sleepy or is more like wide awake to instantly out? Could you have stayed awake if you would have tried or is it impossible? Haha. Basically whatever you remember about that part would be helpful. Thanks so much!

[@IzzyKDNA]

you just kind of feel sleepy and really quickly fall asleep. I don't remember much honestly, but it's not scary AT ALL. and no hahahah you couldn't stay awake if you tried

[@peytoncaffrey3836]

I had my ttt surgery over 2 years ago and still my skin is a numb feeling x

[@TheSnickers329]

I just hit the one year anniversary of my surgery and my shin still has a numb section. I will sometimes get pins and needles sensation though.

[@christiamark9184]

I had mine in 2015, my graft site is still numb.

[@penelopepolinsneemeyer4757]

So glad to see you safely on the other side darling. Onwards and upwards and I hope you’ll be able to walk pain free again xxxxxxxx

[@cillianblue]

Are you allowed to ice your knee? After my knee surgery, icing helped to decrease the swelling, thus decreasing the pain. I was allowed to ice 20 minutes on then 20 minutes off as long as I wanted. If your dr didn’t mention it, maybe you could ask if it would be helpful in your case. The knee bending exercise is tough, but gets easier every day😁

[@IzzyKDNA]

I've been icing constantly!!! It totally helps

[@MrTurtluv]

@@IzzyKDNA They give you an ice machine with a pad that straps to the knee. Beautiful thing.

[@Lailavvv]

The different sizes are because of the epidermal. I had it too. I hope you’re good soon.

[@madmarx7801]

i just got the ttt surgery yesterday. im in a lot of pain rn. my shin feels like I was whacked in the shin by a crowbar. thanks for the video.

[@bigdave6655]

How do you feel now? I’m meant to have one of these the doctor thinks

[@matchestrace1065]

I hope you are feeling better! I have craniocervical instability and my nearsightedness goes out and I have the same pupil problems. If your symptoms continue I would look into that. HTH. 😀

[@NoelSeymourEST2023]

I’ve been praying for you!

[@madse268]

I need to get knee surgery and I've been so scared and this really helps realize it's okay and not super bad even though it will hurt

[@IzzyKDNA]

yes, you've totally got this! I thought it was going to be so so so terrible, and it's not. It just obviously hurts and it's sucky but it'll be so worth it in the end im sure!

[@TiffanyGrey]

Could you explain more about showering and the bedside bathroom? I'm supposed to have this In a few weeks and I dont get how you're supposed to shower or go to the bathroom after?

[@rmjames83]

I was awake for my epidural-I’ve had LP’s & was traumatised, but an anaesthetist doing it-MAGIC!!! I didn’t feel anything except for the local (tiny bee sting then it’s over!) They also put a nerve block in my leg after the epidural (didn’t feel that either!) I HIGHLY recommend it-if ur not offered it, ASK!!! I couldn’t feel my knee for 2 days, so by then, the absolute worst was over!!! Because of the epidural & nerve block, they were able to do my surgery with heavy sedation (I remember nothing, but they even let me listen to music!!!)-so I escaped all the post op nausea & vomiting-I had a tiny bit of nausea. The biggest issue was my blood pressure-it was in the 70’s & 80’s systolic-had a couple of emergency medical responses called (20 med professionals around u in seconds). I was REALLY dizzy lots of the time, close to fainting, but it did get a little better over the course of week 1. I’ve just started week 2-hopefully things will improve!!

[@MillsSkits]

Hope the pain gets less and less each day as you move farther away from the surgery! 💐Take care to be kind and patient to yourself during this time. :)

[@alexisbell9389]

Hope you recover soon Izzy! Love you! 💖

[@elisaforman7932]

I am about to have the same surgery. I also have Ehlers-Danlos.

[@theeverythingkid]

I might have to had this when I'm older because I mainly had problems with my right knee and right ankle but I'm only 15 so I do no if it's a must have

[@tornadoes91]

Hope you have a speedy recovery and stay strong! I'm in the process of recovering from shoulder surgery and I was told from my doctor I have to get both my knees done next. 27 and I feel like I'm 60 VEds life.

[@juliewilson7656]

Hi Izzy. I hope you will quickly heal and recover.

[@johngarcia9592]

I had the mpfl surgery and couldn’t pee too, I think it has to do with anesthesia.

[@chadbivona3572]

Hope u have a fast recovery!

[@ariesambully5620]

You're super brave. I would be freaking out and maybe crying in pain like a baby. lol I hope you heal fast with no complications and the surgery has provided you with the results you were hoping for. Also, your cats are so adorable!

[@micalaraymond1994]

@lizzykornblau hi am Micala Raymond and I was watching this video and I was wondering if you have any tips or any suggestions for me because on November 18th of this year am go to have Tibial Tubercle Transfer done or (TTT) for short and I was wondering what helped you out what should I bring or get before my knee surgery so please let me know thank you and God bless

[@MzClementine]

I cannot take any strong pain meds without phenegran. I hope they gave you some of that. Bless you.

[@PAMELARUSSELL79]

I just had mpfl surgery on 6/12/24. the healing is going well even though i do get discouraged at pt sometimes when i can't complete a exercise. Do you have any advice that you can give me. I try not to get frustrated but its hard cause i have to be in a brace the whole summer.

[@MissLeopard28]

I don't blame you for the Dilaudid. I HATE that drug with a passion. That's what they gave me after my tonsillectomy and I actually threw up so much the day of the surgery - which you are NOT supposed to do because it can break the scabs and cause bleeding which then needs to be cauterized. Thankfully, the scabs did not break, but the Dilaudid made me feel sh*tty and, in addition to vomiting, I had dizziness, nausea, lowered heart rate, and lowered BP. I put it on my list of allergies so I never get it again. I don't like Dilaudid or Demerol (I probably should put Demerol on my allergy list since my respiratory drive was severely depressed to the point that the alarm kept going off). Glad your doctors worked with you to find a medication that didn't make you so nauseous. I don't like narcotics at all, but I found that I did well with low dose Vicodin for surgeries (I had it after my first two laparoscopies and the liquid form after my tonsillectomy). I had oxycodone (Percocet) after my endometriosis surgery and I thought it was WAY too strong so I tried to switch to Advil and Tylenol as soon as I could. I tried to request Vicodin instead, but my surgeon said she was concerned that the surgery would cause too much pain and wanted to provide better pain control.

[@alanacase8366]

I’ve have had two MPFL reconstruction and both were cadaver ligaments

[@aly7843]

i would really recommend cbd oil for your pain!! my dad just had a total knee replacement and it really helped him. i know it’s not the same surgery but, it might still help!

[@balazsluca637]

When I had my scoliosis surgery they found out Im allergic to morfium. It makes my palse go very high. I was very dizzy and almost fainted. The meds make me feel so nauseous.

[@moussamoussa902]

إيزي .انا من الجزائر.. كم مقدار الألم من 1إلى10 ?? في هذه العملية.. وخصوصا الأيام الأولى؟؟

[@kimberleylingsvlogs]

I was on high morphine after my knee surgery. it made me very sleepy. i was in severe pain after surgery it felt like someone had chain sawed my leg off it was that painful. i was in hospital for a week then sent home then next day back in hospital as i developed a blood clot on my leg. so had another surgery to get rid of the clot and stayed in hospital another 3 nights. it was awful

[@Katie_Jo_21]

So happy that you r ok! One major step down. You r tough.

[@katkaplan3]

Surprised and happy to see this! But take it easy girl- rest!! That’s great they did the epidural when you were already out- never hard of that- but it’s not so bad- u just have to stay still and curl over so they get it in right space of spine. ❤️🦓💪

[@aryjohnson1805]

Omg!!! I had a MPFL surgery and Im going for my second one in OCT. I also have symptoms of EDS but have not been diagnosed. Any advice? Plz respond.

[@cht3008]

Your Dad reminds me a little like the Dad Danny Tanner from Full House 🏡 Feel better Dear! Also keeping a written diary 📔 of taking meds helps EVERONE remember when and what was taken last 🤓🧠 If you already do this, then forget what I said lol, but feel better!

[@IzzyKDNA]

hahah I TOTALLY agree! I think he looks a lot like him! also yes, we have a HUGE schedule of all of the meds. I have so many to take now

[@taliakirsten1143]

Feel better Izzy!!!

[@eyesonmarymahaney1731]

I have torn my ACL in my right knee doing cheerleading and I had to have surgery on my knee and they did a artificial ACL and I was out of the hospital the same day after my surgery and I went home and by day three I was up and walking but it took me a long time to recover

[@MrTurtluv]

Yeah, this is nothing like that. Imagine nearly every ligament in your knee is shredded, your knee Is severely unstable, and your kneecap isn’t even sitting in the right area...that’s what we have. At least me. The only ligament in my knee that is intact is my tubercle tendon. Even my cartilage is shredded to non-existence. I’ve had this issue for 31 years, since I was ten. It’s like someone hits you in the side of the knee with a hammer, then sticking an ice pick in there and wiggling it around. Basically, horrible.

[@eyesonmarymahaney1731]

@@MrTurtluvI hope for a safe surgery and a full recovery I hope everything goes well for u

[@joanneduval5532]

Do you think the epidural may have contributed to low oxygen, urinary retention, dizziness and nausea? I had quite a few surgeries where epidurals has left me in the ICU longer than expected due to medication administered this way. Heart valves may also be affected with hyper mobility and if toxins regurgitates back into the heart, then the oxygen levels drop. The blood circulation slows down and increase the toxins. Kidneys may malfunction. It happened to me a couple of times. I’m just wondering. Sending you blessings and gentle hugs 🤗

[@IzzyKDNA]

I'm not sure what caused it! I'm assuming it's related to the epidural, anaesthesia, or my dysuatonomia. One of those

[@yadiarafat8686]

Just Had the surgery 2 days ago... did your foot/ankle swell up?

[@IzzyKDNA]

i dont think so but i could be wrong. i'd definitely tell your doctor

[@theannechann642]

Your so strong!

[@CaseyJackson447]

I have the same surgery in two weeks

[@cd1673]

Zofran... isn't that anti nausea med? Didn't they give you anything for it?

[@lilacole4721]

My prayers are with you love you

[@heidibullock1853]

Thoughts and prayers 🙌

[@melonie42O]

I know when they do surgeries that affect your lower body sometimes it sort of numbs your bladder and you just can't pee. As for pooping that can take days even with laxatives sadly. I think that is one of the worst things about narcotic pain meds. As for the pupil thing I had something similar happen after my neck surgery last year. Did they put a nausea patch behind your ear? They put one on me, and those actually contain an ingredient that is used by eye doctors to dilate your eyes. I was supposed to keep mine on for 3 days and take it off. When I took it off I managed to somehow I guess get some in my eye. So I had just one eye dilated for several days. Which made my vision blurred if I didn't wear sunglasses. It was a crazy freak thing.

[@IzzyKDNA]

yeah they gave me the patch! maybe that caused the pupils

[@melonie42O]

@@IzzyKDNA Probably, if had touched it at all and then got your hand near your eye that was probably it.

[@catyb6059]

I had a mpfl but i was in hospital for 1 week I'm from austria but i didn't know that it's that different

[@viviand7110]

❤️❤️❤️

[@ConestogaCreek]

Is dizziness & being nauseous a common side effect from pain meds or is that another complication of EDS? Did they give you anything for the nausea? Compozine that's it.

[@IzzyKDNA]

it was a side effect of the medications! and yeah they gave me a bunch of meds for it

[@lavranaware4229]

I m just search related to leg surgery .....I watch u r video of explain u r all experience about surgery ....👍........but I m also go through this pain becoz of my accident ......u r 1 knee operation is done .........but my 2 hand broken and two leg .........and 1 rod and 1 plates is implant in my hand and leg .........I know what condition that time I m all night 😭 ......I m on bed total 2 month no movement becoz of 2 hand and 2 leg break. ............and my teeth also break in accident I m taking only juice........becoz my jaw also dislocated in accident ............. doctor say to me don't open u r mouth more then 2 fingers size ............I know my condition is what ...........I m not talk total upto 1 month becoz doctor say............. don't open u r mouth .......😭😭😭😭😭..........that experience in my life I m not figure out........u r leg bend total nice ...👍 But my leg not bend that much so I require chair for sit .....I m not able to sit down on floor. ............u r dad mom talking with you but I m not talk with them 1 month ......u r this video after watching me I all remember my that days .....in hospital.......😭😭😭............nice u r walk normal....👍........I can't.......this life .....so upset me......🙏🏻 Tc by

[@donnaoconnor3119]

Sorry 😐 I ment Izzy 🤦🏼‍♀️

[@lavranaware4229]

U r 1 operation is knee but in my body total 9 fracture and 9 operation are done my fingers also break in this accident..........

[@melaniemcaulay9748]

Glad you are doing better now Izzy. On a side note: has anyone told you that your dad kind of looks like mike myers? lol

[@IzzyKDNA]

thank you! and lol no not Mike Myers! I think he looks like Bob Saget

[@melaniemcaulay9748]

@@IzzyKDNA yeah i can kinda see bob saget too. I think its the hair and glasses and shape of face that made me think of mike myers.

[@ebonylowe6171]

i'm getting surgery on my knee soon.

[@thepopstarpanda]

A peek flow? The device

[@_ybbag_]

How old are u?

[@IzzyKDNA]

22!