Ask the Experts: Medical Panel Discussion | Multiple System Atrophy Awareness Month March 2023

This webinar provided the opportunity for MSA patients, care partners and those impacted by MSA to ask our Medical Panel questions about this disease. The panel included Vikram Khurana, MD PhD, Brigham and Women’s Hospital and Harvard Medical School and Nikolaus McFarland, MD, PhD, University of Florida College of Medicine.
THIS EDUCATIONAL SESSION IS NOT INTENDED FOR THE PURPOSE OF PROVIDING MEDICAL ADVICE. All information, content, and material is for informational purposes only and are not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. The information supplied through webinars or on our webpage, or by any representative or agent of the MSA Coalition, whether by telephone, email, letter, or other form of communication, is for informational purposes only and does not constitute medical, legal or other professional advice.

[@MSAstrong]

Continuing my battle with MSA at 43yrs old, thank you for this video. There's a couple of interesting drugs and treatments like the biopsy I look forward to asking my doctors.

[@crystalcorl9872]

If you have any recommendations within Pennsylvania that specializes in MSA and movement disorders it would be greatly appreciated!

[@crystalcorl9872]

Part of Aitonomic disfunction is that your body cannot regulate body temperature. So when it’s hot their body can’t cook and when cold it can heat. So external help may be the only way to help with this symptom.

[@brendadickenson3547]

My husband had his. Brain and spine donated to Shands as he filled out the paperwork beforehand and itook it to the hospital and also the funeral home in town which handled this. He died in 2004 and had dystonia and had his back fused due to an injury. Thiswas at his neurologist suggestion and he took botox.

[@anakock297]

No perspectives yet 😢