Multiple System Atrophy Q&A with Dr. Vik Khurana - Multiple System Atrophy Awareness Month 2022

For Multiple System Atrophy Awareness Month, The MSA Coalition invited board member and scientific liaison, Vikrum Khurana, MD, PhD, to answer questions about MSA research, diagnosis, treatment and more.
THIS EDUCATIONAL SESSION IS NOT INTENDED FOR THE PURPOSE OF PROVIDING MEDICAL ADVICE. All information, content, and material is for informational purposes only and are not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. The information supplied through webinars or on our webpage, or by any representative or agent of the MSA Coalition, whether by telephone, email, letter, or other form of communication, is for informational purposes only and does not constitute medical, legal or other professional advice.

[@shellyruble559]

Where can I find doctors with experience with MSA-C? My husband is 7 years into this with no solid diagnosis and we need help.

[@leobates8783]

I’m 49 Canadian. Sign me up for any studies you need. I’ve been fighting for seven years already and very slow degeneration. MSA-C

[@damonenkiller]

Der Leon, I'm from Switzerland and got the last August the MSA-C diagnocies. Bilod preassure, Speech Problems, weak Memory , ....... what ist a slow progressing in your case?

[@teresabaker-carl9668]

When the term “failure to thrive” is applied to an MSA patient, what is the doctor meaning in terms of the development of the disease?

[@PrincessGodBotherer]

Drr Khurana was speaking from Australia. What was he here for? Was there a relevent conference held here?

[@dinorabianchi9488]

Where in Pembroke Pines Florida would I find a msa group

[@teresabaker-carl9668]

Is pneumonia common in MSA?

[@teresabaker-carl9668]

At what point does one need a wheelchair; what determines when one has reached that point?

[@karensmaizys3240]

The. Long.road. Hope

[@MegaMusicMuse]

Is MSA rare? Canada has the highest rates of Mutilple Sclerosis (MS). One parent with MS the other with MSA. They look EXACTLY the same. Is this a spirochete chronic Lyme disease? Is this checked post-mortem?

[@leobates8783]

Unfortunately they confirm diagnosis during autopsy. Im 49 in northern Alberta Canada 🇨🇦

[@babylegs1968]

Leo Bates, how is the care in Alberta? I’m in Toronto. How long have you had MSA? 🇨🇦

[@carlitguy]

I am in central Alberta and after 12 years and 6 neurologists I just got my diagnosis of MSA. I cried tears of joy when I saw the session of Dr Vik Khurana because EXACTLY described my journey of the last 12 years and a Parkinson tremour in my left arm.. I knew there had to be more as I have had falls a bladder issue and I totally failed with Leva Carb having zero affect.

[@nonahammon1098]

@@babylegs1968l

[@nonahammon1098]

@@carlitguy wasting?